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<v Speaker 1>It's ato six at fifty five KRCD Talk station. Hope

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<v Speaker 1>everyone's having a happy Friday, please to Welcome to the

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<v Speaker 1>fifty five KRC Morning Show. Bill Potts. His background motivational speaker,

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<v Speaker 1>business leader, community builder. He's held executive roles at Ironman

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<v Speaker 1>Group and Clearwater Marine Aquarium, co founder and managing director

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<v Speaker 1>of marketing agency Remedy three sixty five lecturer at Tulane University.

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<v Speaker 1>In addition to being an Ironman triathlete, he is also

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<v Speaker 1>a five time cancer survivor and author of the book

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<v Speaker 1>We're talking about today, Up for the Fight. How you

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<v Speaker 1>to advocate for yourself as you battle cancer from a

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<v Speaker 1>five time survivor. Bill Potts, Welcome to the fifty five

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<v Speaker 1>KRC Morning Show. It's a real pleasure to have you

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<v Speaker 1>on this morning.

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<v Speaker 2>Oh Brian, it's a pleasure to be on your show.

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<v Speaker 2>Thank you.

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<v Speaker 1>And according to my producer, you and I have something

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<v Speaker 1>in common and that's lymphoma.

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<v Speaker 2>Yeah we do, we do. Yeah, mine, I had stage

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<v Speaker 2>three lymphalma in two thousand and eight and then came

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<v Speaker 2>back in twenty fourteen, twenty nineteen, and twenty and twenty.

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<v Speaker 2>So we do have that in common and by the way,

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<v Speaker 2>congrats on your success with that.

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<v Speaker 1>Yeah, and I just recently had a CT scan, actually

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<v Speaker 1>two back to back. There were several months apart. My

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<v Speaker 1>lymph nodes did start growing back. I had retuction treatment

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<v Speaker 1>and I was able to keep it at bay for

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<v Speaker 1>about three three and a half years. But the scan

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<v Speaker 1>revealed that the nodes were growing a little bit. But

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<v Speaker 1>I've been given the option of just sort of taking

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<v Speaker 1>a weight and see approach, and that's currently where I am.

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<v Speaker 1>So I engaged in some dietary changes. I removed all

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<v Speaker 1>the sugar from my diet. I've reduced a lot of

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<v Speaker 1>the carbs for my diet, lost some weight, So I'm

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<v Speaker 1>not sure that's going to keep it at bay, but

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<v Speaker 1>I know there's a correlation between sugar and cancer. Whether

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<v Speaker 1>it's lymphoma related, don't know, but I was willing to

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<v Speaker 1>try that out and I feel a lot healthier for it.

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<v Speaker 1>So next scan taking place in June, and I'm hoping

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<v Speaker 1>that we don't see any more growth. But I know

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<v Speaker 1>there's treatment options out there for me. And you've obviously

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<v Speaker 1>been through that which particular respective you said stage three.

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<v Speaker 2>Yeah, I had stage three non Hodgkin's lymphoma, So that's yeah.

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<v Speaker 2>I went through retuction as well, and there was recently

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<v Speaker 2>as four years ago, I went through a more harsh

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<v Speaker 2>treatment of chemotherapy treatment. So yeah, it's it's been interesting.

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<v Speaker 2>My wife jokes that it took me getting cancer five

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<v Speaker 2>times before I finally cleaned up my diet, but that

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<v Speaker 2>that does make a difference. So I am very very

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<v Speaker 2>strict on you know, fruits and vegetables. I limit dairy,

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<v Speaker 2>red meat, alcohols limited, and so I lean into as

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<v Speaker 2>healthy a diet as I can, like you do. And

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<v Speaker 2>also I lean into exercise because for me, I'm trying

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<v Speaker 2>always to be ready for when it comes back and

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<v Speaker 2>also do everything I can to lengthen the amount of

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<v Speaker 2>time before that happens.

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<v Speaker 1>Well, you got to be physically fit to do compete

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<v Speaker 1>in Iron Man.

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<v Speaker 2>Come on, Bill, Yeah, that's true. That was trying to

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<v Speaker 2>prove to my three kids that no matter what happens

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<v Speaker 2>to you in life, if you get focused and put

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<v Speaker 2>your mind to it, you can accomplish anything. And so yeah,

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<v Speaker 2>I taught them that lesson. Well, and a couple of

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<v Speaker 2>my kids followed in my footsteps on the triathlon stuff,

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<v Speaker 2>which is pretty cool.

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<v Speaker 1>Well, what motivated you to be so open and share

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<v Speaker 1>your cancer journey with and of course write the book.

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<v Speaker 1>Up for the fight.

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<v Speaker 2>Yeah, it wasn't my idea. I actually was going through

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<v Speaker 2>a chemo er B treatment in September of twenty twenty,

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<v Speaker 2>and before that treatment, I'd had surgery to remove a

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<v Speaker 2>tumor below my right hip, and when I woke up

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<v Speaker 2>from the surgery, Brian, I had an emotional breakdown and

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<v Speaker 2>told the nurse that I was done. I wasn't up

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<v Speaker 2>for the fight anymore, that I knew what was coming,

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<v Speaker 2>and I'd had a great life and a great career

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<v Speaker 2>and a great family, and I was throwing in the towel.

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<v Speaker 2>So she called in the pastor at Mayo and we

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<v Speaker 2>came and talked about it for a while, about an

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<v Speaker 2>hour and a half, and she said, hey, Bill, let's

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<v Speaker 2>reconnect with the reasons why you should fight. And I

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<v Speaker 2>did fight for my family, fight for my friends, fight

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<v Speaker 2>for my meeting, for work, and also to fight to

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<v Speaker 2>make God proud. So I'd reset my mindset and was

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<v Speaker 2>really up for the fight. At the end of this conversation, Brian,

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<v Speaker 2>she leans into me and goes nos and noses says,

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<v Speaker 2>I got one more thing for you, Bill, like what

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<v Speaker 2>she goes. I want you to turn your pain into

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<v Speaker 2>purpose and write a book to help others. So I

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<v Speaker 2>thought about it for a few seconds and said yes,

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<v Speaker 2>reached out to a publisher who the CEO called and said,

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<v Speaker 2>do we want to do this book? I'm like, why

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<v Speaker 2>she goes. I lost one of my best friends to

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<v Speaker 2>breast cancer recently, and this is the book I wish

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<v Speaker 2>somebody had written for her. So we want to write

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<v Speaker 2>a book like What to Expect when You're Expecting, but

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<v Speaker 2>for cancer patients, with some stuff thrown in for the

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<v Speaker 2>friends and family of cancer patients as well, because it

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<v Speaker 2>will be meaningful and it will change lives and hopefully

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<v Speaker 2>save some lives. And so I wrote it while I

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<v Speaker 2>was going through treatment and was really thankful to get

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<v Speaker 2>that done and get it out.

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<v Speaker 1>Well, you mentioned the loss of hope and thrown in

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<v Speaker 1>the towel. How does one you know after you get

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<v Speaker 1>a cancer diagnosis? And of course some cancers are far

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<v Speaker 1>more aggressive than others. Some are caught far later after metastasization,

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<v Speaker 1>you know, stage four cancers and things like that, and

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<v Speaker 1>people only learn late in the process that they have

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<v Speaker 1>this progressive disease. Obviously there's going to be a problem

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<v Speaker 1>finding some hope amid all that gloom and doom? How

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<v Speaker 1>does one advocate for oneself? And and you know I've

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<v Speaker 1>always turned I have great family support. You know, I'm

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<v Speaker 1>I married out. I can't kicked my coverage with marriage,

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<v Speaker 1>and I get inspiration from my wife and for my

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<v Speaker 1>family and for my mom, and I try not to

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<v Speaker 1>even think about it. I just ignore it like it's

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<v Speaker 1>no big deal. It's like just part of my life.

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<v Speaker 1>But see, I've got I'm surrounded, and I also have

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<v Speaker 1>good doctors. So what does one do to advocate for

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<v Speaker 1>themselves amid all this?

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<v Speaker 2>Yeah, I think that's by the way, I ticked my

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<v Speaker 2>coverage too with my wife, and I've got the same

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<v Speaker 2>family support. You know. For me, it's about treating it.

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<v Speaker 2>Advocating for myself is that I have to own my

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<v Speaker 2>own journey, meaning I have to be involved and my

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<v Speaker 2>family has to be involved in all these decisions from

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<v Speaker 2>where to go, to getting second opinions, to doing things

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<v Speaker 2>like you're doing, managing your diet and exercise all those things.

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<v Speaker 2>So the way I deal with it is I deal

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<v Speaker 2>with it a little bit like it's my job. So

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<v Speaker 2>it's my job when I'm going through it to get better. Now,

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<v Speaker 2>my job is to prevent it from coming back and

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<v Speaker 2>make sure I'm in good shape when it comes back.

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<v Speaker 2>And so a lot of folks look at the healthcare

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<v Speaker 2>journey as the doctors own it, and it's really not

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<v Speaker 2>the case. It's you own it. It's your life, and

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<v Speaker 2>so you have to be really involved in all those

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<v Speaker 2>decisions and understand what's happening and surround yourself with the

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<v Speaker 2>right team of doctors and the support that you need,

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<v Speaker 2>and then it's your journey, not somebody else's.

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<v Speaker 1>Well, how about practical stuff that folks can take to

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<v Speaker 1>make their treatment days more comfortable. Now, Fortunately, as you

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<v Speaker 1>probably know, retuction doesn't really come with a whole lot

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<v Speaker 1>of side effects, unlike chemotherapy, which has some profoundly negative

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<v Speaker 1>side effects. So along the lines is something more aggressive

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<v Speaker 1>in terms of treatment and more profound in terms of

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<v Speaker 1>side effects, chemo therapy. What what can folks do to

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<v Speaker 1>make that make it more comfortable or less painful in

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<v Speaker 1>their life?

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<v Speaker 2>Yeah, I think first of all, you've got the emotional

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<v Speaker 2>and mental piece, which, as you know, even walking into

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<v Speaker 2>a retucentreatment, the emotional side of it. Oh and so,

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<v Speaker 2>and I actually actually had an antaplexics reaction to to

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<v Speaker 2>retucent time. So that, yeah, you know how scary that is.

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<v Speaker 2>You talking about waking up at what's going on? Until

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<v Speaker 2>that happened.

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<v Speaker 1>Yeah, they had to slow the drip down. They're trying

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<v Speaker 1>to get me in and out a little bit faster,

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<v Speaker 1>so they up the drip level. And man, I am

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<v Speaker 1>telling you that is the weirdest and almost awful sensation ever.

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<v Speaker 2>Yeah, it was. Yeah, it's pretty tough. So the way

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<v Speaker 2>it works for me is, yeah, a couple of days

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<v Speaker 2>before treatment, I'm kind of a mess and I don't

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<v Speaker 2>talk to anybody and just people just leave me along.

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<v Speaker 2>But when I get outside the doors of the cancer center,

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<v Speaker 2>my mind switches and now it's my job to get

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<v Speaker 2>this done. This is one step and healing. I also

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<v Speaker 2>always make sure I have somebody with me. I also,

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<v Speaker 2>as you know, it gets cold in there, make sure

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<v Speaker 2>I get a sweatshirt, ski cap, baseball cap, got some

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<v Speaker 2>water to drink. I don't The first time I went in, Brian,

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<v Speaker 2>I was so ignorant. I took my laptop. I was

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<v Speaker 2>planning to work, and so now I know if I'm

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<v Speaker 2>going in there, just plan to relax the best I

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<v Speaker 2>can and get through it, and I count up to

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<v Speaker 2>the halfway point. I went through generally, I'm somewhere around

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<v Speaker 2>twelve to fourteen treatments. I'll count up and then when

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<v Speaker 2>I get to the halfway point, I start counting down

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<v Speaker 2>and that helps me from mental side, you know how

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<v Speaker 2>much progress that I'm making.

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<v Speaker 1>Oh, that's an interesting way of looking at it. And

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<v Speaker 1>there are a lot of support organizations out there. Think

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<v Speaker 1>of the I feel so so terribly for someone who's

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<v Speaker 1>dealing with this problem. This is cancer diagnosis and being

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<v Speaker 1>alone in the world in that regard. I'm blessed to

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<v Speaker 1>have a family in support, you know, in my own home,

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<v Speaker 1>to help me deal with the problems associated with cancer,

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<v Speaker 1>mental and otherwise. But there are some great support groups

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<v Speaker 1>out there that can help out and have resources for

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<v Speaker 1>you and to interact with folks who are also struggling

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<v Speaker 1>like you.

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<v Speaker 2>Yeah, it's been remarkable for me. I leaned into the

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<v Speaker 2>Leukemia Lymphoma Society. I guide people to whatever cancer it is.

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<v Speaker 2>There's a national cancer nonprofit in the US that can

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<v Speaker 2>provide you support. I leaned into some Facebook groups for support.

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<v Speaker 2>I recommend professional therapy if you can get it. Somebody

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<v Speaker 2>listen to you. You do want to lean on your

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<v Speaker 2>family and friends, but you also need to lean on

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<v Speaker 2>outside support because there are things that you can share

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<v Speaker 2>with them that you might not feel comfortable with sharing

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<v Speaker 2>with your family. And you also, as you did too, Brian,

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<v Speaker 2>you've got to keep an eye on the family and

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<v Speaker 2>make sure that they okay. So part of my job

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<v Speaker 2>and my wife's job was to keep an eye on

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<v Speaker 2>the three kids and to make sure that they were

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<v Speaker 2>handling it well and to make sure they had the

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<v Speaker 2>support and resources they need to go through it too,

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<v Speaker 2>because the family goes through it and the friends go

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<v Speaker 2>through it, not just the patient.

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<v Speaker 1>Yeah, there's a certain degree of that. I can understand that.

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<v Speaker 1>And well, to the family and others that are struggling

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<v Speaker 1>with a loved one's cancer diagnosis, how do they help

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<v Speaker 1>and support that love them with, maybe how without overwhelming them?

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<v Speaker 1>I mean some people are like, oh my god, they

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<v Speaker 1>funnel over people and like, oh my god, anything I

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<v Speaker 1>can do for you, And sometimes that can be a

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<v Speaker 1>little bit troubling for the person who's dealing with the

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<v Speaker 1>cancer diagnosis.

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<v Speaker 2>Yeah, it's it's true. Sometimes your friends disappear. Sometimes they

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<v Speaker 2>lean in a little bit too much, and so there's

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<v Speaker 2>really a few things. Is number one, be present when

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<v Speaker 2>you're with them. Number two is ask them if there's

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<v Speaker 2>anything you can do for them, But not only that,

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<v Speaker 2>maybe suggest something that you can do for them and

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<v Speaker 2>see what they say. I don't know how you were

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<v Speaker 2>with people coming over to visit and food and things

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<v Speaker 2>like that, but that wasn't really working well for me.

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<v Speaker 2>I don't My sense of taste was kind of a mess,

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<v Speaker 2>and my sense of smell was kind of a mess,

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<v Speaker 2>and so you food tasted differently. And the best thing

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<v Speaker 2>that my friends have done for me, I'm sure for

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<v Speaker 2>you is to say, hey, can I come see you?

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<v Speaker 2>And then just sit there and talk about anything but

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<v Speaker 2>the cancer. Let's talk about Let's talk about basketball or

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<v Speaker 2>football or baseball, some of my passions. Let's talk about

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<v Speaker 2>your family. Let's talk about my family. But let's give

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<v Speaker 2>me a break from all the cancer talk, because I

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<v Speaker 2>get that enough.

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<v Speaker 1>Yeah, And everybody's curious because they love you. They just

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<v Speaker 1>want to know if everything's okay. And I get to

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<v Speaker 1>ask that question from time to time, and I don't

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<v Speaker 1>mind hearing the question to me. That's just a sign

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<v Speaker 1>of love, concern, and support, and that's what you expect

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<v Speaker 1>from friends. But I guess my symptoms and my treatments

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<v Speaker 1>weren't ever as bad as yours in terms of my

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<v Speaker 1>body's reaction to it. And I just really don't even

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<v Speaker 1>talk about it. Like I said, Bill, It's just part

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<v Speaker 1>of my life and I just accept it for what

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<v Speaker 1>it is. It's the hand that the cards that God

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<v Speaker 1>dealt me, and I'm happy to play with them. So

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<v Speaker 1>that's where I sort of get my optimism. You know,

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<v Speaker 1>it's kind of out of my hands. I just go

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<v Speaker 1>with the treatments and just enjoy and embrace the support

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<v Speaker 1>that's provided. And of course get a copy of the

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<v Speaker 1>book Up for the Fight, How to Advocate for Yourself

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<v Speaker 1>as you Battle Cancer. From a five time survivor, Bill,

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<v Speaker 1>I can't thank you enough for writing the book for

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<v Speaker 1>all of us out here who needs some resources and

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<v Speaker 1>guidance to help. And you obviously have been down this

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<v Speaker 1>road as a five time cancer survivor. That's truly amazing, Bill,

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<v Speaker 1>and congratulations on that. And I wish you all the

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<v Speaker 1>health and the best in the world.

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<v Speaker 2>Yeah, yeah, back at you. And this book has changed

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<v Speaker 2>my life in so many profound ways because now I

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<v Speaker 2>hear from cancer patients all the time, and I'm able

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<v Speaker 2>to mentor them and coach them to their journey. So

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<v Speaker 2>I've accidentally become an expert in a lot of other

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<v Speaker 2>different types of cancer than the ones I've had. So

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<v Speaker 2>if you need it, if you have anybody that needs

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<v Speaker 2>some coaching or whatever, Brian, just reach out.

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<v Speaker 1>Just reach out.

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<v Speaker 2>Bill.

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<v Speaker 1>It's been a pleasure and congratulations. Obviously a very well

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<v Speaker 1>rated book on Amazon. You're almost at a full five

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<v Speaker 1>stars across the board and some really positive reviews from

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<v Speaker 1>folks in the medical profession. So well done, and thanks

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<v Speaker 1>for your time this morning. Bill, It's been a real

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<v Speaker 1>pleasure having you on the program.