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Speaker 1: What's wrong with God?

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Speaker 2: Said Sion Dean. All the kids do day all week.

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They just like to call me all.

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Speaker 3: Parents mean by balancing.

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Speaker 1: Why can't they be more like me? I like to

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walk and don't people say that thing?

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Speaker 2: Play through day crap crap, it's all the same. It

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seems like y'a find no way Jamaica, k you saying

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the grade tagain Hester dipster.

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Speaker 1: Doing any too, your gray o headstar dipster. They don't

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know real rocking.

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Speaker 2: Holes midst dipster, but your little says baking small headstar dipster.

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Speaker 3: When sad me do that so fact so shoot.

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Speaker 1: Broad test. They probably out the school's locations.

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Speaker 2: Sitting in my stove Deo Frank Cross gummy on my

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phone from sil kids down dot road.

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Speaker 4: Stella suth like that tousy they wesday.

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Speaker 2: Could be like me.

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Speaker 3: I'll kick their ass with my feet.

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Speaker 2: The kids today just mucking on yuppies gummy stupid thoughts.

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Speaker 4: My might just be a Nope fan.

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Speaker 2: So for rocking out this one, I know, miser dipster

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doing it into your ray Deo Hester dipster. They don't

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know real rocking rolesister dipster, but you'll old with us

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baking small, mister dipster, or send me do that so

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fat so No.

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Speaker 1: Listen.

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Speaker 4: Music today isn't even wait by written musicians.

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Speaker 5: So I'm gonna tak saying to.

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Speaker 1: Me, baby, play me a solo.

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Speaker 2: Answer.

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Speaker 1: Did sir do your rady o star dipster? He don't

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know we're walking all star dipster.

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Speaker 4: Bujobs, says Bacon Slow his star dipster.

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Speaker 1: Listend me don mad so fat so Shoo.

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Speaker 3: This is Eleanor Langthorne from Vices Inc.

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Speaker 6: And you're listening to Matt Connorton Unleashed on ninety five

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point three w m n H.

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Speaker 3: You're listening to w M and H three.

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Speaker 4: The Commander Don't get Supreme, Lina Matzo Cobbing.

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Speaker 6: Welcome everybody, here we go. It is that time again,

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Matt Connorton Unleashed and we are live from the studios

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of w m n H ninety five point three FM

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and Glorious A bit snowy but glorious, Manchester, New Hampshire.

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Today is Saturday, January eleven, twenty twenty five, and I

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am not alone.

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Speaker 1: Jenny Darn's best friend.

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Speaker 3: Good morning Sunshine.

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Speaker 6: Jenny is here at the news table and we have

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an exciting show for you today, an interesting show, kind

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of a little bit of an unusual lineup. Joining us

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in just a few minutes via skype, we have Natalie

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Moseley Quinautic. She's the author of Gage in the Invisible Illness,

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One Boy's Battle with CRPS and RSD, and really looking

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forward to talking with her. Actually she's written quite a

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few things, very interesting background. But we'll talk with her

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in a few minutes when she skypes in at nine

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to fifteen. I'm not sure where in the country is

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she exactly, do you know you know where she's from. Yeah,

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that's sorry, Well, that's sorry. I we'll ask her. But

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she's going to be skyping in. And then in the

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second hour we have Flo Nicholas joining us today from

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Regen Valley Tech Hub, and that will be very interesting.

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I'm looking forward to speaking with her, meeting with her.

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She was recommended by a friend of ours, Anthony tone Peyton,

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and so yeah, so she's going to be joining us

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in studio and recommendations yes. And then in the third hour,

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we've got a great band coming in, Modern Fools, who

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have come up in a couple of conversations on the program.

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Speaker 3: They have yes, So time for them to finally come

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into the studio.

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Speaker 6: That's right, So really looking forward to talking with them

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as well. So welcome everybody. By the way, uh, I

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suppose too, we should mention while we have a moment.

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You were on Status Coup.

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Speaker 3: I was. I was a guest on Status Koop last Sunday.

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Actually we were. Jordan was on with me for quite

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a while. It was a really excellent conversation about healthcare

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and what some of the struggles are that people are

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facing when they're trying to get care in the great

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old us of a.

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Speaker 6: Yes, you've been Uh yeah, one of the guys from

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Slim Volume had noticed. Oh really, i'd been remember it.

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It had been No, it had been kind of following

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what you've been doing. Oh yeah, as you've been making

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the rounds in the media.

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Speaker 3: Yeah, it's been in a few, in a.

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Speaker 6: Few let's see. By the way, our friend Charles Richardson

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is in the chat room and says, good morning everyone,

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Good morning. I think he has brought back once again

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the Charles Richardson show. Oh I did not know, yes,

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And of course where he is in Florida, he's not

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dealing with Well, we had a little bit of snow,

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just enough to make it a nuisance. We have yet

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this season to have a major storm.

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Speaker 3: Atlanta, Georgia can keep the snow.

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Speaker 6: Yeah, yeah, yeah, we've.

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Speaker 3: Got more snow than us. It's really interesting to be

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driving around Newhamshire, great sunny day, feeling like it's a

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heat wave yesterday far as my opinion goes, and then

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looking at the news and watching it Lana, Georgia shut

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down their airport and buried. Yeah, it's kind of flipped

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on its head here and they can keep it.

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Speaker 6: Yeah. And also Miriam vanishes in the Facebook laugh chat

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as well.

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Speaker 3: My bestie's a bestiat And by the.

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Speaker 6: Way, so we are back on We are fully back

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on video. Some of you may have noticed last couple

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of weeks this show is off only, but that has

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all been fixed. So we are streaming out to Facebook

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and YouTube and got the whole video component.

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Speaker 3: What's that We are here there and everywhere, yes, round

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the globe.

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Speaker 6: I could also with the UH with re stream, the

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service that I use, I could also send it out

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to LinkedIn and Twitch, but I didn't even know you could.

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Speaker 3: Do that now on LinkedIn, although I've not looked at

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that site. But forever.

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Speaker 6: But I don't do it. I don't do it with

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the show. I only do it with the previews that

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I do as far as LinkedIn, because of you know,

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we'll run into copyright issues because we do play obviously

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we play copyrighted music, so because we are licensed, we

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are a radio station. But Facebook and YouTube kind of

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have their own ways of dealing with that. But I

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think with LinkedIn they'll just block the video entirely. And

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with Twitch, I think I risk getting getting kicked off.

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Speaker 3: So that's not a good idea.

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Speaker 6: Yeah, I've I've tried to figure out exactly. There are

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some some Twitch streamers who I guess they go live,

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they'll go live with copyrighted material and they get away

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with it. But then they but then they have to

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take it down after and edit it or something.

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Speaker 3: Well that's weird. Oh like, so when they're first okay,

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I get.

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Speaker 6: Like, they get away with doing it live and.

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Speaker 3: Then they have to take it down or they'll get

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taken off.

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Speaker 6: Yeah, but I think I think Twitch will actually go

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so far as to ban you if you violate their copyright.

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So I'm not exactly sure. So I don't I don't

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risk it, but we do send the show out now

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to Facebook and uh YouTube? Uh Miriam and the Chavrama says, Uh,

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my usual appointment was virtual this morning. Uh so I

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didn't have to try to listen in the car on

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my way home from Nashua. Oh, very good.

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Speaker 3: I'm glad you've gotten to stay inside away from the snowness.

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Speaker 6: Yes, yes, absolutely, people.

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Speaker 3: Have a tendency to forget how to drive in it.

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When we get our first good one, i'd say this

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is the first good one.

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Speaker 6: No, I don't know. I mean the one. We've had

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a couple of instances where, like I said, where we

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get just enough to make it a nuisance, but not

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I try.

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Speaker 3: To stay indoors when these things happen.

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Speaker 6: Not anything, not anything too substantial. Uh So we should

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mention too, you know, because we were talking for people

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who want to learn more about We mentioned you being

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on status schou your website jencoffee dot com.

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Speaker 3: Yes, j E N N C O F f e

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y dot com.

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Speaker 6: If you want to keep track of everything Jenny is doing.

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And actually, yeah, I was just gonna say, I know

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there's something else coming up, but I don't think you

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can talk about it yet.

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Speaker 3: Negative ghost writer. That would be a big no note.

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Speaker 6: Until it's already happened.

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Speaker 3: But no, no, no, the future is yet written. Right,

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but before our guest calls.

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Speaker 6: In, the future is not yet written. Actually, what did

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I say? You said the future is yet written. I

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was going to say, you written. That is a no,

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the future is is yet unwritten.

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Speaker 3: The future is yet written, meaning it hasn't been written yet.

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Speaker 6: Right, it hasn't been written yet.

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Speaker 3: I can leave that word out if I want to.

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Speaker 6: I don't know if you can, Yes, I can. I

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don't feel like you.

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Speaker 3: Can correct me. Do you know that grammarly says I

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use ninety seven percent more unique words than any other user. Wow,

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I get a ninety seven percent on unique words. No,

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correct me. I write. I write ems terms short and sweet.

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Speaker 6: To the point I was thinking to that. What was

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her name? Natasha Bettingfield? She does that song Unwritten and

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says the future is yet unwritten in the song.

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Speaker 3: I don't care how you wered it. I didn't want to.

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I said the future.

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Speaker 6: I didn't say her name, right? Is it Natasha Bettingfield? Anyway?

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Speaker 3: I don't know.

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Speaker 6: I don't know anyway? Yes? Uh so, yeah, so the

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future is yet written, as you say, don't you dare,

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and then I interrupted you you're going to say something else.

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Speaker 3: I was just gonna lay a foundation in the sense

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before our guest calls in, she's going to be talking

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about CRPS. Yes, which is something that I have and

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a lot of our listeners know that, but for those

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that don't know, CRPS is complex regional pain syndrome. It

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is the most painful disease known to modern medicine. Medicine

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uses what's called the McGill pain scale to rate pain

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in the human body, from anything from a little splinter

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to having a limb cut off, and when you look

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at that scale, it goes up to a rating of fifty.

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CRPS is at the very top, unfortunately, and that's after

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labor without meds and removing a limb. So unfortunately, that

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is the state of that disease. So treatment is difficult

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because each patient is different. You get to find the

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right combinations of medications and things. So our guest who's

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calling in in just a moment here is an amazing

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writer and she's written extensively about CRPS, and she's going

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to talk to us about her books and why she's

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trying to get this information out there for people to

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be more aware. The more awareness there is, the better

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it is for people who have it and also for

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people to get diagnosed with it.

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Speaker 6: Well in her case too, it's interesting and obviously again yeah,

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we'll talk with her about it. But her son has.

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Speaker 3: It, correct, it's the caregiver for eleven year.

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Speaker 6: Old son Gauge.

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Speaker 3: Yes, and is that here?

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Speaker 6: And here we go? Hi, Natalie is that you?

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Speaker 7: Good morning?

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Speaker 6: Hey, good morning, welcome to the show. So we have

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joining us Natalie Moseley Klinotic? Am I am I saying

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the last name correctly? Clinotic?

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Speaker 7: You you actually said it? Really? Well, that's it?

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Speaker 3: Oh?

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Speaker 6: Good good? Why do other do other people butcher it?

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Speaker 3: You?

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Speaker 6: You almost sound surprised?

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Speaker 7: Yes, I answered anything close?

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Speaker 6: Okay, very good, very good. Well, welcome to the show.

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And uh really interested to learn more about this book,

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Gauge and the Invisible Illness, One Boy's Battle with c

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RPS and r s D. And of course, as you know,

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well how did so let's hear about how how did

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the two of you get connected? Because obviously Jenny, you know,

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this is a subject that is very close to her

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as someone with CRPS. How did the two of you

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get connected?

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Speaker 7: Well, I years ago. My son.

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Speaker 8: When he was diagnosed, he was eleven years old. So

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I joined several CRPS rooms on Facebook and started immediately

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entrenching myself and trying to educate myself. So when I

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decided to write this book, I reopened some of those

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groups and I began posting that I was starting to

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document a little bit of my son's journey, and then

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I was going to do a parent guide and I

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put a link in there and she found me very good.

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Speaker 6: Very good. We should mention too, you've written quite a

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few books. This is not This is not your first book, obviously, right.

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Speaker 8: Yes, I woke up one day during COVID and decided

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it was time my first book was about my childhood.

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Speaker 7: My childhood, I was an abused.

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Speaker 8: Child, I had not the greatest upbringing, and I decided

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it was time to write about all of that, and

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also the loss of my first husband.

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Speaker 7: Who died while serving. Oh wow, Yeah, so a little

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bit of backstory.

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Speaker 8: I had an amazing after death moment with him that

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I had not revealed to anyone, and I told my current.

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Speaker 7: Husband, I said, I think I'm going to let the

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world know. So I did that book and it was

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received really well, it did really well, and then I

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did another book. I did a children's book.

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Speaker 8: Relating to that book, letting kids have a way to

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connect to loved ones that have passed on. And then

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I did the book that's kind of the follow up

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to my memoir. It's called Down the rabbit Hole of Narcissism,

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and that's about my parents and the adult relationship with them.

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So naturally, the next book had to be about my

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youngest boy. My youngest boy when he was diagnosed with CRPS.

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I'm sure it's like thousands of other parents or thousands

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of other people that are, you know, coming down with

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this affliction. We had no idea what was happening to him.

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And when I wrote the children's book, I wanted kids

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to know that you can live with this illness and

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find a way to live around it and with it.

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And so then naturally I decided I should do a

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parent companion book to that children's book, because you feel

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so alone when you're dealing with that illness and you're

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trying to figure it out, and I want parents to

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have almost a friend via that book.

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Speaker 6: I would imagine you've heard from over the course of

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writing and releasing this book, I would imagine you've heard

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from a lot of parents.

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Speaker 3: I have.

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Speaker 8: I have heard from a lot of parents, and the

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feedback has been incredible. So many parents have shared my

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posting on their page, shared it with other parents. Other

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parents have reached out to me and messaged me and said,

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it's a wonderful thing that I'm doing, because there's really

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not a lot of I mean, there's medical books about CRPS,

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but there's not too many where it relays the actual

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event and what you're going through when you're navigating that world.

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Speaker 6: Your son was eleven at the time of the diagnosis.

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Is that correct?

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Speaker 8: Sadly, he was only eleven. He just and again, as

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this happens to so many people, because the brain's overreaction

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to this injury. He was just simply knocked down in

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a lunch line, went to get back up, and the

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next thing he described was that his foot felt like

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it was completely broken. So he took his sock off,

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he took his shoe off, he went to the nurse.

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The nurse said, you'll be fine. At the end of

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the day, I picked him up and he was already

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telling me that we needed to go to the emergency room.

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Something was wrong. With his foot, and for all outward appearances,

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it looked totally fine. So he started some homework and

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as all kids do, it kind of sat on his

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foot to get comfortable, and then the true agony began.

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He said his foot was on fire. It was completely

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broken inside, and that began our journey into CRPS.

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Speaker 6: So leading up to that, leading up to that day,

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there was no indication that there was anything.

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Speaker 8: No my son played no multiple sports. He was a baseball, football,

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basketball player. We literally would have to play in our

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family vacation in between the sports because he was so

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dedicated and so is my other son to sports and

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very accelerated student, was on student council at his school,

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very social, outgoing, funny little guy, accelerated classes, loved school,

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super social, and then when this disease began, it totally

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changed him inside out.

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Speaker 6: How unusual is that for somebody that young to be

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diagnosed with CRPS. That's got to be pretty unusual, right

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it is.

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Speaker 3: It has been rare, but yeah, yeah, exactly, there are

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a lot of kids that yet that the more we learn,

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the more the awareness there are, the more we're finding

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out about kiddos with it. But it is a rare disease,

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So yeah, I should I shouldn't say no that it

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doesn't happen. But yeah, it is a rare disease. But

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it strikes people of any age. It can be as

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you know, even younger than gage, and it can even

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and it can be somebody much older who takes a

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bad spill or something happens the wrong way, or they

337
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or they just knock themselves the wrong way and for

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whatever reason, the disease starts. Okay, So I don't know

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what causes it.

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Speaker 6: Yeah, that's wow. So so it is it? Do they

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00:20:45,720 --> 00:20:50,039
are there any theories about it? Because obviously so obviously

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it's not age related. If it can, it can happen

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at any age.

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Speaker 8: It's not an outside influence, you know what I mean,

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Like you think, oh, maybe as an adult, oh maybe.

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Speaker 7: They heard about this disease and then it kind of

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got in their head. It's not. It's not something like that.

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My little boy had no idea.

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Speaker 8: I had never you know, really enough, as he got

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more into CRPS, I began to find that there were

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people afflicted with us all over and I had never

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even heard about it. And there's so many physicians that

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are not educated in it, and that begins the really

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difficult journey of getting a diagnosis. We went to several

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specialists and they just said he had a sprained ankle

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or one doctor.

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Speaker 7: I don't think physicians realize words hurt as well.

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Speaker 8: They told our little boy that he was embellishing why

359
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he did not have CRPS. Well before we had gone,

360
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we told him, let the doctor do whatever he needs

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to do. Please let him touch your foot if he

362
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needs to do something, because he wouldn't let us anywhere

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near his foot, and so he did. He let this

364
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doctor play around with his foot. I would get these

365
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looks of hate, and he was so miserable because it

366
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is excruciating pain. And at the end of the appointment,

367
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he goes, your son is embolishing. He doesn't have CRPS,

368
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or he wouldn't have let me touch his foot. My son, again,

369
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fairly smart, knew what the word embellishing meant. At that point,

370
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we had already seen two or three physicians before this,

371
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and he was done. He goes, I'm not going to

372
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any more doctors. They're not going to help me. No

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one believes me. And it was really really difficult. So

374
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then you always have to have a referral for a specialist,

375
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so you're kind of trapped in that limbo. So I

376
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began writing specialists on my own and telling them what

377
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was going on with my son. And then, thankfully, about

378
00:22:36,880 --> 00:22:39,400
seven and a half months into him dealing with this,

379
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we found a doctor at a hospital downtown, at Riley Hospital,

380
00:22:43,799 --> 00:22:46,640
and they knew exactly what he had and I knew

381
00:22:46,880 --> 00:22:50,920
all along. We took him to a pediatrist, our pediatrist

382
00:22:51,039 --> 00:22:54,079
right away because it was his foot, and she goes,

383
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I think he has CRPS. Have you ever heard of that?

384
00:22:57,160 --> 00:22:59,519
And I said, sadly, I have. I have a friend,

385
00:22:59,640 --> 00:23:03,160
a very distant acquaintance friend whose daughter was diagnosed a

386
00:23:03,200 --> 00:23:05,160
couple of years ago, and I said, that's.

387
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Speaker 7: What I thought too.

388
00:23:06,440 --> 00:23:10,960
Speaker 8: I knew my podiatrist knew before a physician ever diagnosed

389
00:23:11,039 --> 00:23:11,799
him months later.

390
00:23:13,200 --> 00:23:17,920
Speaker 6: Wow, so was it? What was the timeline like, like

391
00:23:17,920 --> 00:23:20,799
like from the from the time that the initial incident

392
00:23:20,880 --> 00:23:24,240
happened to when it sounds like it was several months

393
00:23:24,319 --> 00:23:28,160
until you had the actual officially diagnosis.

394
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Speaker 1: Yes.

395
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Speaker 3: You know what about that, though, is that's that's luck

396
00:23:31,519 --> 00:23:36,279
because because you were so aggressive and really, and I

397
00:23:36,279 --> 00:23:38,720
shouldn't say just because you were, you ended up in

398
00:23:38,720 --> 00:23:41,480
the right situation that you were able to get him

399
00:23:41,480 --> 00:23:44,799
diagnosed within a year. It can be ten years ten

400
00:23:44,880 --> 00:23:48,839
providers before you finally get to an accurate diagnosis, especially

401
00:23:48,839 --> 00:23:51,720
here in the United States where we don't have any

402
00:23:51,799 --> 00:23:54,880
kind of national protocols or anything to look out for this.

403
00:23:56,000 --> 00:23:58,680
Unlike the Netherlands, would they have an entire protocol and

404
00:23:58,759 --> 00:24:01,559
teach their providers to look at for this in an

405
00:24:01,559 --> 00:24:03,039
effort to catch it right away.

406
00:24:04,359 --> 00:24:09,359
Speaker 8: Absolutely right. It incredibly lucky. And as a parent, I thought,

407
00:24:09,640 --> 00:24:11,039
this is taking way too long.

408
00:24:11,559 --> 00:24:12,960
Speaker 7: I didn't know what I didn't know.

409
00:24:13,079 --> 00:24:15,319
Speaker 8: I didn't know anything about it, and I was like,

410
00:24:15,400 --> 00:24:18,759
my little boy was no longer sleeping, he was begging

411
00:24:18,799 --> 00:24:22,240
to have his foot amputated. He had no pain medication,

412
00:24:22,359 --> 00:24:25,680
he had no medication whatsoever from any position that we

413
00:24:25,759 --> 00:24:26,440
ever visited.

414
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Speaker 3: Oh my god.

415
00:24:27,960 --> 00:24:30,839
Speaker 7: He was dealing with this for seven and a half months.

416
00:24:30,920 --> 00:24:33,039
Speaker 8: And when we found the pain scale and we would

417
00:24:33,039 --> 00:24:34,720
say one to ten, where are you at gauge? You

418
00:24:34,720 --> 00:24:36,960
would say, I'm a ten plus, I'm not a ten.

419
00:24:37,079 --> 00:24:40,359
I'm off the charts, and no physician would listen to

420
00:24:40,440 --> 00:24:44,039
him or listen to us. And again, like you're saying,

421
00:24:44,079 --> 00:24:47,119
I was incredibly lucky that I found someone when I did,

422
00:24:47,799 --> 00:24:51,559
and I do think that was integral in his healing

423
00:24:51,599 --> 00:24:53,119
and eventually finding remission.

424
00:24:54,519 --> 00:24:57,759
Speaker 3: And that's key is early diagnosis. And when I say early,

425
00:24:58,039 --> 00:25:00,720
it's within that it's like get that golden e that

426
00:25:01,319 --> 00:25:04,319
first year. To get treatment right away, you have a

427
00:25:04,400 --> 00:25:08,119
higher percentage chance of getting into a remission when it's

428
00:25:08,279 --> 00:25:10,519
ten years down the road and your UNPTEAM provider's in,

429
00:25:11,240 --> 00:25:14,480
it's it's not gonna go. It's it's very rare to

430
00:25:14,559 --> 00:25:16,400
go into a remission when you're that fire in before

431
00:25:16,440 --> 00:25:17,160
you start treatment.

432
00:25:17,920 --> 00:25:20,319
Speaker 8: Yes, And when we finally found his paying physician at

433
00:25:20,400 --> 00:25:23,440
Riley Hospital, he told us if it had just been

434
00:25:23,480 --> 00:25:26,240
a few months longer, you might not have had any

435
00:25:26,359 --> 00:25:28,880
real hope because he told us, once you're a year in,

436
00:25:29,119 --> 00:25:33,519
even with zero treatment, that it's excruciatingly hard to get

437
00:25:33,599 --> 00:25:37,759
into remission or even lower pain threshold.

438
00:25:38,359 --> 00:25:40,720
Speaker 3: To find that's right combo. And it's so hard for

439
00:25:40,759 --> 00:25:44,279
each human to find that right combination of treatment. I mean,

440
00:25:44,279 --> 00:25:47,279
you've seen how long Matt's my care provider, So he's

441
00:25:47,599 --> 00:25:50,279
he's been by my side watching this treatment fail or

442
00:25:50,319 --> 00:25:53,480
that treatment fail or this medication works but the insurance

443
00:25:53,519 --> 00:25:55,359
decided it's not going to cover it anymore, so we

444
00:25:55,400 --> 00:25:57,599
had to switch to a new medical all of that

445
00:25:57,839 --> 00:25:59,759
to finally get to some kind of combination that gives

446
00:25:59,759 --> 00:26:00,799
you a quality of life.

447
00:26:01,640 --> 00:26:05,160
Speaker 8: Hi, And as you're describing, you don't go in and

448
00:26:05,200 --> 00:26:07,480
they're like, Okay, we give you this medication. We'll do

449
00:26:07,559 --> 00:26:09,200
this for you, and then you're going to be better.

450
00:26:09,680 --> 00:26:12,960
Nothing is the same for every CRPS patient. They literally

451
00:26:13,000 --> 00:26:15,559
throw whatever sticks and like, Okay, we're going to try this.

452
00:26:15,720 --> 00:26:17,960
Maybe this will work. This work for somebody else, Let's

453
00:26:17,960 --> 00:26:20,319
see what it does for you. And it's hard when

454
00:26:20,359 --> 00:26:21,400
it's your child.

455
00:26:21,880 --> 00:26:26,839
Speaker 3: I can't imagine adult dealing with this disease is as

456
00:26:26,839 --> 00:26:30,680
difficult as it is. My heart just bleeds for a

457
00:26:30,799 --> 00:26:34,079
child who has this disease. I think it's compounded so

458
00:26:34,240 --> 00:26:36,880
much by their their young age.

459
00:26:37,279 --> 00:26:39,440
Speaker 8: He had to grow up so quickly, he didn't get

460
00:26:39,480 --> 00:26:41,960
to be a child for those three and a half years.

461
00:26:42,519 --> 00:26:44,839
He was a shell of a person. He missed out

462
00:26:44,839 --> 00:26:48,559
on so much. But I have to see the positive

463
00:26:48,720 --> 00:26:52,000
that he did get a positive outcome, and that's what's

464
00:26:52,000 --> 00:26:52,519
a blessing.

465
00:26:52,920 --> 00:26:57,680
Speaker 3: He's here, he's with us. He smiles and laughs, yes, yes,

466
00:26:58,680 --> 00:27:02,000
that's it there. How long did it take for him

467
00:27:02,079 --> 00:27:05,640
to find that combination of treatment or what have you

468
00:27:05,680 --> 00:27:07,759
that worked with that would helped him get to a

469
00:27:07,759 --> 00:27:08,640
place of remission.

470
00:27:09,440 --> 00:27:12,519
Speaker 8: Well, I say about three and a half years. But

471
00:27:13,319 --> 00:27:16,200
once I'm not sure if you have the same But

472
00:27:16,359 --> 00:27:20,279
once you have CRPS, it opens up a doorway to

473
00:27:20,640 --> 00:27:21,880
so many other ailments.

474
00:27:22,559 --> 00:27:26,640
Speaker 3: They come with I say, CRPS comes with friends. Yes, yes,

475
00:27:26,880 --> 00:27:31,359
I have secondary hypertension caused by the CRPS. Yeah, I

476
00:27:31,359 --> 00:27:35,119
have inability to control my body temperature. That's a medication. Yeah,

477
00:27:35,240 --> 00:27:37,559
I mean, oh yeah, yes, I'm right there with it.

478
00:27:38,599 --> 00:27:43,319
Speaker 8: He was diagnosed with hypermobility EDS, the lesser of the

479
00:27:43,519 --> 00:27:47,440
EDS hypermobility, which I have since found out me and

480
00:27:47,640 --> 00:27:51,079
all three of my children have hypermobility. Really, so I

481
00:27:51,160 --> 00:27:54,000
became educated in that. Now I don't have any of

482
00:27:54,039 --> 00:27:57,559
the negative side effects of hypermobility. But there's a little

483
00:27:57,599 --> 00:28:00,680
tests you can do online, Like there's these like they're like,

484
00:28:00,680 --> 00:28:02,400
you're not supposed to be able to touch your shoulders

485
00:28:02,400 --> 00:28:08,480
with your palms, Well I can't. That's hyper mobility. There's

486
00:28:08,519 --> 00:28:11,000
several things, and he began to go down another road.

487
00:28:11,039 --> 00:28:13,920
He was pre sincope, which means he would be incredibly

488
00:28:13,960 --> 00:28:15,559
dizzy and he would feel like he was going to

489
00:28:15,599 --> 00:28:16,279
faint when there.

490
00:28:16,200 --> 00:28:17,119
Speaker 7: Was no need to faint.

491
00:28:17,200 --> 00:28:18,079
Speaker 3: Does he have pots.

492
00:28:19,319 --> 00:28:22,319
Speaker 8: He doesn't have pots, full blown pots. But when we

493
00:28:22,440 --> 00:28:25,480
did the tilt table study, which I requested, I had

494
00:28:25,480 --> 00:28:27,960
to always ask for these tests. These doctors didn't do

495
00:28:28,000 --> 00:28:30,960
any of them. Yeah, I requested the tilt table study

496
00:28:31,119 --> 00:28:33,079
and that's when they found he was pre sin cope.

497
00:28:33,160 --> 00:28:35,880
They barely tilted it and he started to feel like he.

498
00:28:35,880 --> 00:28:36,720
Speaker 7: Was going to pass out.

499
00:28:38,039 --> 00:28:40,839
Speaker 8: But that's also after he'd had some of his treatments

500
00:28:40,839 --> 00:28:43,240
and he was experiencing even worse pain.

501
00:28:43,640 --> 00:28:44,400
Speaker 7: Unfortunately.

502
00:28:45,799 --> 00:28:48,319
Speaker 6: So is he now because you talk about a being

503
00:28:48,400 --> 00:28:51,079
in remission, is he now pain free or what's his

504
00:28:51,160 --> 00:28:51,799
status now?

505
00:28:52,720 --> 00:28:55,880
Speaker 8: He is pain free? He says that his afflicted foot

506
00:28:56,000 --> 00:28:58,559
has very little feeling in it now whatsoever.

507
00:28:58,839 --> 00:29:02,759
Speaker 3: Oh, okay, and it's gonna be a big thing. That's

508
00:29:02,759 --> 00:29:05,039
actually part of what makes it hard to walk. If

509
00:29:05,079 --> 00:29:06,640
you can't feel the ground you're walking on.

510
00:29:07,839 --> 00:29:10,599
Speaker 8: He will often have injuries to his toes or toenails

511
00:29:10,599 --> 00:29:12,720
and be bleeding and he won't feel it. He won't

512
00:29:12,759 --> 00:29:15,680
even know it happened. Someone has to tell him yep.

513
00:29:15,759 --> 00:29:17,680
Speaker 3: So he has to be extra cautious of keeping an

514
00:29:17,720 --> 00:29:21,119
eye on that foot and really looking at those toes.

515
00:29:21,160 --> 00:29:23,559
It's not just the average person going wash your feet,

516
00:29:23,559 --> 00:29:26,240
walk out. He's got to actually be super conscious of it.

517
00:29:26,240 --> 00:29:29,440
It's super conscious of checking his skin looking for injury,

518
00:29:29,759 --> 00:29:32,880
especially in a foot, because if you miss someone there,

519
00:29:33,039 --> 00:29:35,680
you can set an infection and then you have multiple

520
00:29:35,680 --> 00:29:39,200
problems from there. So CRPS is with him for a

521
00:29:39,240 --> 00:29:42,000
lifetime to keep track of these things. But I'm so

522
00:29:42,119 --> 00:29:45,759
happy that he was treated early and look what has

523
00:29:45,839 --> 00:29:48,880
happened because of that. He's able to have a quality life.

524
00:29:49,599 --> 00:29:55,119
And in the book talk about because writing the children's

525
00:29:55,160 --> 00:29:59,440
book is different obviously than writing a book for adults,

526
00:30:00,119 --> 00:30:02,640
of the things that you felt were important to include

527
00:30:02,680 --> 00:30:05,440
in the book to help other kiddos who have CRPS

528
00:30:05,720 --> 00:30:06,440
understand it.

529
00:30:07,599 --> 00:30:10,079
Speaker 8: Well, I'm so glad you asked that. That's a wonderful question.

530
00:30:10,279 --> 00:30:12,519
I never thought I would be a children's book author,

531
00:30:13,240 --> 00:30:16,400
But when you have these tough topics that adults read,

532
00:30:17,039 --> 00:30:19,799
you realize there's a whole world out there of children

533
00:30:19,839 --> 00:30:22,039
that relate to these topics and may not have an

534
00:30:22,039 --> 00:30:25,759
avenue to read about this and feel positive.

535
00:30:26,519 --> 00:30:29,359
Speaker 7: So I have a wonderful editor that I work with.

536
00:30:29,279 --> 00:30:32,559
Speaker 8: And she does my illustrations on my children's book, and

537
00:30:32,680 --> 00:30:36,440
this book about Gauge is different illustration than my first one,

538
00:30:36,519 --> 00:30:40,200
Daddy's Not Gone. She used AI this time, and she

539
00:30:40,359 --> 00:30:42,640
made the images look so close to my son.

540
00:30:42,880 --> 00:30:46,480
Speaker 7: It's very moving. Wow, and it's beautiful.

541
00:30:46,519 --> 00:30:49,359
Speaker 8: And my whole thing is that I want my children's books,

542
00:30:49,519 --> 00:30:51,000
this one especially, to be bright.

543
00:30:51,839 --> 00:30:54,599
Speaker 7: I don't want it to look like a dark and negative.

544
00:30:54,160 --> 00:30:58,640
Speaker 8: World, right because kids need to learn and know that

545
00:30:58,759 --> 00:31:01,279
you can have a life with you. It may not

546
00:31:01,400 --> 00:31:03,200
be the same one that you thought you were going

547
00:31:03,279 --> 00:31:07,720
to have, but you can have a positive life. And

548
00:31:07,759 --> 00:31:10,880
I really wanted it to focus on time passing because

549
00:31:10,920 --> 00:31:13,359
Gage was eleven when he was diagnosed, and then he

550
00:31:13,480 --> 00:31:17,119
was almost he was after thirteen when he finally found remission.

551
00:31:17,680 --> 00:31:19,640
So I made sure that it was bright and it

552
00:31:19,720 --> 00:31:23,599
documented going to physicians, and it's not a revenge type

553
00:31:23,640 --> 00:31:26,400
of book. It's all about that you're not always helped

554
00:31:26,400 --> 00:31:32,039
from the get go, and that's what CRPS is, you know. Unfortunately,

555
00:31:32,079 --> 00:31:33,880
it's not like going to the doctor and having an

556
00:31:33,920 --> 00:31:35,839
earache and they're like, okay, here you go.

557
00:31:35,920 --> 00:31:38,079
Speaker 7: I'll help you. We had several.

558
00:31:37,720 --> 00:31:41,200
Speaker 8: Positions, so I documented that a little bit, and I

559
00:31:41,240 --> 00:31:43,519
also documented the fact that I mean, Gage and I

560
00:31:43,559 --> 00:31:47,160
spent a lot of time together. He would be up

561
00:31:47,200 --> 00:31:50,000
for forty eight hours at a stretch, and eventually I

562
00:31:50,079 --> 00:31:53,160
quit my part time job because I couldn't let him

563
00:31:53,200 --> 00:31:56,799
be alone all night long and struggling with pain. Because

564
00:31:56,839 --> 00:31:59,440
it is called the suicide disease. I don't know how

565
00:31:59,440 --> 00:32:00,720
many people talk about that.

566
00:32:00,799 --> 00:32:02,759
Speaker 3: We do, but you openly talk about.

567
00:32:02,559 --> 00:32:05,960
Speaker 8: It good, good, and sometimes people don't want to talk

568
00:32:05,960 --> 00:32:06,920
about a tough topic.

569
00:32:07,319 --> 00:32:09,240
Speaker 7: But as a mother, that worried me.

570
00:32:09,400 --> 00:32:11,559
Speaker 8: He was alone a lot, and I didn't want him

571
00:32:11,559 --> 00:32:13,680
to be alone and feel like he didn't have anybody

572
00:32:13,680 --> 00:32:14,160
with him.

573
00:32:14,359 --> 00:32:16,359
Speaker 7: So we spend a lot of time together.

574
00:32:16,440 --> 00:32:18,519
Speaker 8: So I'm in the book with him and you see

575
00:32:18,559 --> 00:32:21,319
his journey and you see at the end where he

576
00:32:21,400 --> 00:32:24,599
begins playing baseball again and that was the beginning of

577
00:32:24,720 --> 00:32:26,519
him really going into remission.

578
00:32:27,240 --> 00:32:29,880
Speaker 3: Okay, that's awesome. I love that you included the fact

579
00:32:29,920 --> 00:32:32,599
that you're going to see multiple doctors. Yeah, you know,

580
00:32:32,759 --> 00:32:37,000
that's so huge to include that, because it's a big

581
00:32:37,039 --> 00:32:40,079
difference and people don't realize it unless it happens to

582
00:32:40,119 --> 00:32:42,440
them or somebody that they love. We're all used to

583
00:32:42,480 --> 00:32:44,880
going to the regular guy and having I'm like you, oh, oh,

584
00:32:44,920 --> 00:32:47,640
you drink too much coffee, or right, you're cholesteros too high.

585
00:32:47,720 --> 00:32:49,319
Like we're used to that kind of thing, but we're

586
00:32:49,440 --> 00:32:52,160
not used to You got to see this neurologists, you

587
00:32:52,160 --> 00:32:53,880
got to see this pediatrist. You got to see this

588
00:32:54,279 --> 00:32:56,680
person and that person, and these people are in your

589
00:32:56,720 --> 00:32:59,920
life forever. The team never goes away. This is the

590
00:33:00,359 --> 00:33:02,559
you know I call them. I have a team. I

591
00:33:02,559 --> 00:33:05,759
have a great team. And there's many providers in there,

592
00:33:06,119 --> 00:33:10,000
and each one is an expert in their aspect, and

593
00:33:10,079 --> 00:33:13,000
each one plays a significant role to keeping me an

594
00:33:13,039 --> 00:33:16,079
equality of life. Including that in the children's book is

595
00:33:16,079 --> 00:33:19,759
so essential to let them know and to give them validation.

596
00:33:20,559 --> 00:33:23,480
This is the same that you're not alone. It's not

597
00:33:23,559 --> 00:33:26,599
just you. You know, here's Gauge going to the neurologist.

598
00:33:26,680 --> 00:33:30,400
Here's Gauge going to the podiatrist. You know, you're that

599
00:33:30,559 --> 00:33:32,799
is so essential. I think that's really great that you

600
00:33:32,880 --> 00:33:34,640
included that in the book. You didn't just put in

601
00:33:34,680 --> 00:33:37,240
the proverbial. Here's one dark kind of a thing that

602
00:33:37,319 --> 00:33:40,039
you gave them the sense of what that world really

603
00:33:40,079 --> 00:33:43,160
feels like from the inside. So maybe it's not as

604
00:33:43,160 --> 00:33:45,160
scary for the next kiddo who reads your book.

605
00:33:46,039 --> 00:33:47,680
Speaker 7: I appreciate it and they don't feel it.

606
00:33:47,599 --> 00:33:50,400
Speaker 3: As alone, because that is a big aspect. I mean,

607
00:33:50,440 --> 00:33:52,680
the number one killer for CRPS is suicide.

608
00:33:53,400 --> 00:33:55,240
Speaker 7: Yes, it absolutely is.

609
00:33:55,319 --> 00:33:57,640
Speaker 8: And as a parent, the moment you learn about that

610
00:33:57,759 --> 00:34:00,880
and your child is eleven years old, I'm thinking, is

611
00:34:00,920 --> 00:34:03,599
this what's happened? What is happening to us? What is

612
00:34:03,640 --> 00:34:06,559
this really the avenue the path we're going down. It's

613
00:34:06,599 --> 00:34:09,960
absolutely the path you go down. He began having uh

614
00:34:10,079 --> 00:34:13,679
seeing a psychologist, which no one I knew had ever

615
00:34:13,760 --> 00:34:16,440
seen a psychiatrist or a psychologist. I didn't know what

616
00:34:16,480 --> 00:34:20,920
to expect. That man was incredible. His name is doctor

617
00:34:21,039 --> 00:34:24,400
Eric Scott and he ended up leaving Riley Hospital a

618
00:34:24,400 --> 00:34:29,719
few years after seeing Gage. But he was monumental to Gauge,

619
00:34:29,719 --> 00:34:33,559
healing his mind and using distraction techniques and.

620
00:34:33,679 --> 00:34:34,760
Speaker 3: Gets bud.

621
00:34:36,199 --> 00:34:38,920
Speaker 7: Yes, yes, it is so huge.

622
00:34:39,440 --> 00:34:42,199
Speaker 8: Yes, And he leaned into Gauge and found out what

623
00:34:42,280 --> 00:34:44,119
he enjoyed in that time. He was a little boy

624
00:34:44,119 --> 00:34:47,320
and he loved minecraft. So he's like, get in there

625
00:34:47,440 --> 00:34:50,320
and play Minecraft and don't think about your foot because

626
00:34:50,320 --> 00:34:51,880
we were, you know, we were worried he's in his

627
00:34:51,960 --> 00:34:53,599
room all the time. You don't want him just staring

628
00:34:53,639 --> 00:34:56,800
at a screen all day long, you know. So and

629
00:34:56,880 --> 00:35:00,360
he goes let him, Let him distract himself. Tell him

630
00:35:00,360 --> 00:35:02,000
he has an hour to do that, and he's got

631
00:35:02,000 --> 00:35:05,039
to stand on his foot. He's got to use that foot.

632
00:35:04,920 --> 00:35:08,519
Speaker 7: Make him distract himself. And my gosh, it worked. It

633
00:35:08,599 --> 00:35:09,280
was incredible.

634
00:35:09,519 --> 00:35:14,239
Speaker 3: Yep. I do that with my artwork macrimae painting. I

635
00:35:14,280 --> 00:35:17,199
get into a bad flare or I'm having a bad moment,

636
00:35:17,239 --> 00:35:19,840
I can lose myself in one of those activities. So

637
00:35:19,960 --> 00:35:21,920
even if I'm having a really rougher day where I'm

638
00:35:21,960 --> 00:35:25,239
staying under the blanket, I've got in my lap whatever

639
00:35:25,280 --> 00:35:27,280
I'm working on, and I can work on it all

640
00:35:27,360 --> 00:35:29,559
day into the night if that's what it takes. But

641
00:35:29,599 --> 00:35:31,800
I'm still being I still feel like I'm productive, i

642
00:35:31,920 --> 00:35:35,400
still feel like I'm doing something meaningful or what have you.

643
00:35:35,800 --> 00:35:38,119
So I can totally relate to that aspect of it.

644
00:35:38,159 --> 00:35:41,440
And therapist is huge. I love my therapist. I say,

645
00:35:41,519 --> 00:35:44,880
keep her in my back pocket all the time because, yeah,

646
00:35:45,079 --> 00:35:47,920
teaching you techniques to deal with that moment in time,

647
00:35:48,039 --> 00:35:51,519
even if in that moment all you can do is box, breathe,

648
00:35:52,039 --> 00:35:54,559
or look around the room and say what five things

649
00:35:54,559 --> 00:35:56,920
do I see? What five things do I hear? But

650
00:35:57,000 --> 00:35:58,440
in this moment, I do want to make sure that

651
00:35:58,480 --> 00:36:01,519
I say, if anybody's feeling any kind of negative feelings

652
00:36:01,639 --> 00:36:03,920
or you feel like you might need help, please reach

653
00:36:03,960 --> 00:36:06,360
out to nine eight eight. Nine eight eight is a

654
00:36:06,400 --> 00:36:09,960
suicide and crisis lifeline all across the United States, So

655
00:36:10,079 --> 00:36:12,559
nine to eight eight if you are in any need whatsoever.

656
00:36:12,880 --> 00:36:16,719
As these are topics to talk about, and CRPS is

657
00:36:16,760 --> 00:36:20,119
not the only ailment that can make someone feel suicidal.

658
00:36:20,159 --> 00:36:22,159
So I definitely want to make sure that people realize

659
00:36:22,159 --> 00:36:24,400
if that if you feel a connection to this, if

660
00:36:24,440 --> 00:36:26,880
it's affecting you in any way, please do call nine

661
00:36:26,960 --> 00:36:28,519
eight eight. They do care and they are there to

662
00:36:28,559 --> 00:36:31,960
help you. So going forward with the book with Gage,

663
00:36:32,000 --> 00:36:34,800
is there a particular aspect of it that you want

664
00:36:34,840 --> 00:36:37,880
to make sure that our listeners are aware of that

665
00:36:37,960 --> 00:36:40,760
you feel is maybe unique or different about the children's book.

666
00:36:43,039 --> 00:36:45,480
Speaker 8: The children's book, I would say the different aspect about

667
00:36:45,519 --> 00:36:49,599
that book is that for me, having written it, it's

668
00:36:49,679 --> 00:36:53,679
also an extension of my advocating for Gage. Oh yeah,

669
00:36:53,840 --> 00:36:57,679
children don't have an adult voice. He would go to school,

670
00:36:57,880 --> 00:37:03,360
his teachers didn't leave him. Advocacy is huge for a

671
00:37:03,480 --> 00:37:06,079
child if you have to have a parent that is

672
00:37:06,119 --> 00:37:09,320
there for you. So the children's book, again, I think

673
00:37:09,360 --> 00:37:12,360
you kind of laid into it. You're not alone. I

674
00:37:12,400 --> 00:37:15,519
don't want kids to feel like they're alone. Yes, you're

675
00:37:15,559 --> 00:37:18,000
going to doctor after doctor, but it's because we're going

676
00:37:18,079 --> 00:37:18,760
to get you better.

677
00:37:18,880 --> 00:37:20,840
Speaker 7: We're going to figure this out. We're going to find

678
00:37:20,840 --> 00:37:25,400
an answer that team. Yeah, yes, yes, absolutely.

679
00:37:25,960 --> 00:37:28,519
Speaker 3: In addition to the book with Gage, you have a

680
00:37:28,559 --> 00:37:32,199
second book that you wrote from the adult perspective on CRPS.

681
00:37:32,320 --> 00:37:36,000
Speaker 8: Right yes, it's actually available for pre order for your

682
00:37:36,079 --> 00:37:37,719
kindle or an ebook right now?

683
00:37:37,920 --> 00:37:41,320
Speaker 6: Yes, oh very good. When is that coming out?

684
00:37:42,320 --> 00:37:44,599
Speaker 7: That should be out February fifteenth.

685
00:37:44,719 --> 00:37:48,480
Speaker 8: And it's basically it says the title is it hurts

686
00:37:48,599 --> 00:37:51,320
So Bad and Nobody believes Me. And it's one Mom's

687
00:37:51,360 --> 00:37:55,360
Guide to raising a child with CRPS or RSD. And

688
00:37:55,639 --> 00:37:58,199
when I wrote that book again, it's because you feel

689
00:37:58,239 --> 00:38:01,360
so alone as a parent when you're trying to navigate

690
00:38:01,400 --> 00:38:05,000
this and figure it out and literal the people you're trusting.

691
00:38:05,079 --> 00:38:08,320
Specialists are telling you your child's fine, he doesn't have

692
00:38:08,360 --> 00:38:12,400
anything wrong with him. So not to get into being

693
00:38:12,440 --> 00:38:15,920
maligned or belittled, but I do go into some of

694
00:38:15,960 --> 00:38:17,360
those aspects where.

695
00:38:17,599 --> 00:38:20,000
Speaker 7: I didn't know what a five four was or an IEP.

696
00:38:20,679 --> 00:38:23,000
Speaker 8: I didn't know that you could have ways to help

697
00:38:23,039 --> 00:38:27,039
your son at school when they're ill. So this also

698
00:38:27,159 --> 00:38:30,000
teaches the parent if you're new to CRPS and you're

699
00:38:30,079 --> 00:38:33,920
navigating it with the child, things I wish I had known.

700
00:38:34,000 --> 00:38:37,239
Then there's these steps, and then I also go into

701
00:38:37,280 --> 00:38:39,880
some of the treatments and some of the medications, and

702
00:38:39,960 --> 00:38:42,440
you do have to be aware some of these medications.

703
00:38:42,719 --> 00:38:47,559
Gage was on hydrocodone for years and he's taking a

704
00:38:47,599 --> 00:38:50,880
dose it's meant for like an adult cancer patient. And

705
00:38:50,960 --> 00:38:53,960
he was also on a drug called gabapentin, and I

706
00:38:54,079 --> 00:38:56,400
lost my boy for a while to gabapentin, And if

707
00:38:56,440 --> 00:38:58,679
I had known, I wish someone had told me, don't

708
00:38:58,679 --> 00:39:01,119
ever put your child on gabapinn, not that it doesn't

709
00:39:01,159 --> 00:39:04,360
work for others for other ailments. My child was lost

710
00:39:04,519 --> 00:39:09,400
for months to gab a pitt. He had no brain reaction.

711
00:39:09,599 --> 00:39:12,960
He would call his pillow a football. He was losing

712
00:39:13,280 --> 00:39:16,119
nerve endings and brain cells. He was not the same

713
00:39:16,159 --> 00:39:17,079
little boy anymore.

714
00:39:17,199 --> 00:39:17,559
Speaker 1: Wow.

715
00:39:18,079 --> 00:39:21,480
Speaker 3: And unfortunately that's like a go to drug for whatever reason.

716
00:39:21,960 --> 00:39:24,800
And yes, it does work for some people, absolutely, but

717
00:39:24,840 --> 00:39:27,440
I do absolutely recognize what you're saying as far as

718
00:39:27,719 --> 00:39:31,400
the effect that it can have on personality, on ability

719
00:39:31,440 --> 00:39:34,119
to think and to do things, and when you're dealing

720
00:39:34,159 --> 00:39:37,440
with an invisible illness at the same time, that that's

721
00:39:37,559 --> 00:39:41,239
just a catastrophe. Especially for him. I really do feel

722
00:39:41,239 --> 00:39:43,559
frigage in the sense that he doesn't just have CRPS,

723
00:39:43,920 --> 00:39:48,519
he has eds and all these other things that affect it,

724
00:39:48,880 --> 00:39:51,000
and nobody can tell that when you look at him,

725
00:39:51,599 --> 00:39:53,840
but it's there, and what's going on inside of his

726
00:39:53,920 --> 00:39:58,000
body is very difficult to deal with. And you know,

727
00:39:58,360 --> 00:40:01,599
the more that we talk about these invisible illnesses, the better.

728
00:40:01,679 --> 00:40:04,880
And we actually talked about that on Status Koup. Invisible ailments,

729
00:40:04,920 --> 00:40:06,719
things that people can't see by looking at you.

730
00:40:07,679 --> 00:40:10,840
Speaker 8: Yes, we had a handicap placer given to us early

731
00:40:11,000 --> 00:40:13,480
on by the pediatrist because she knew what he had,

732
00:40:13,559 --> 00:40:16,239
she knew what we were going through, and so we

733
00:40:16,280 --> 00:40:18,800
would park in these handicapped spots and I at the

734
00:40:18,920 --> 00:40:21,360
very end. In the epilogue, I would lay a story

735
00:40:21,360 --> 00:40:23,559
of a lady that screened at us at a store

736
00:40:23,840 --> 00:40:26,639
because we were in the handicapped spot, and she.

737
00:40:26,639 --> 00:40:28,280
Speaker 7: Goes, none of you look handicap, what's wrong?

738
00:40:28,519 --> 00:40:30,239
Speaker 3: Oh my god? Oh? I hate that?

739
00:40:31,039 --> 00:40:32,920
Speaker 7: And it happened so often.

740
00:40:33,000 --> 00:40:37,199
Speaker 8: That was just the first time, and it also educated me, right,

741
00:40:37,559 --> 00:40:39,719
and I would never yell at someone, But there are

742
00:40:39,760 --> 00:40:42,639
those moments you would see somebody parking, You're like, what

743
00:40:42,719 --> 00:40:43,079
are they?

744
00:40:43,639 --> 00:40:47,000
Speaker 7: You don't know what someone is going through? Yeah, you

745
00:40:47,079 --> 00:40:47,519
don't know.

746
00:40:48,679 --> 00:40:51,920
Speaker 6: Yeah, And unfortunately, it's it's an element of human nature.

747
00:40:52,000 --> 00:40:55,199
People like to make assumptions about other people based on

748
00:40:55,239 --> 00:40:58,559
literally no information whatsoever. So you're always going to have

749
00:40:58,599 --> 00:41:02,360
people who do that unfortunately. Right, if you are just

750
00:41:02,440 --> 00:41:07,559
joining us, we're talking with Natalie Moseley Klinotic and talking

751
00:41:07,559 --> 00:41:10,559
about the book Gauge in the Invisible Illness, One Boy's

752
00:41:10,599 --> 00:41:15,119
Battle with CRPS and RSD. How many, Natalie, how many

753
00:41:15,159 --> 00:41:17,639
books have you written? You've written quite a few, right.

754
00:41:18,480 --> 00:41:19,320
Speaker 7: I've written a few.

755
00:41:19,559 --> 00:41:22,400
Speaker 8: Yeah, I've got to see you later. A memoir of life,

756
00:41:22,480 --> 00:41:25,440
Calling me from Beyond. I've Got Daddy's Knock Gone is

757
00:41:25,480 --> 00:41:28,320
a children's book. And then I've got Down the rabbit

758
00:41:28,320 --> 00:41:31,360
Hole of Narcissism, Life Under narc Attack, because I think

759
00:41:31,400 --> 00:41:33,719
everybody has known or deals with the narcissist.

760
00:41:33,760 --> 00:41:34,719
Speaker 7: They're everywhere.

761
00:41:34,960 --> 00:41:35,920
Speaker 3: I need to read that one.

762
00:41:36,719 --> 00:41:39,760
Speaker 8: And then I have the children's book about Gauge that's

763
00:41:39,840 --> 00:41:42,400
just coming out, and then the Parent Companion Book that

764
00:41:42,440 --> 00:41:44,679
should be out on the fifteenth of February.

765
00:41:44,880 --> 00:41:46,039
Speaker 3: So I thought that one.

766
00:41:47,199 --> 00:41:50,039
Speaker 8: That one is titled it Hurts So Bad and Nobody

767
00:41:50,079 --> 00:41:52,960
Believes Me, and then it's One Mom's Guide.

768
00:41:52,639 --> 00:41:59,559
Speaker 7: To Raising a Child with CRPS RSD Okay, okay, lean Eileen.

769
00:41:59,320 --> 00:42:04,960
Speaker 8: Heavy into because like the monarch is heavy in CRPS fire.

770
00:42:05,239 --> 00:42:07,920
So that book, the Parent Companion Book, looks like it's

771
00:42:07,920 --> 00:42:09,559
on fire. It looks like flames.

772
00:42:09,679 --> 00:42:11,280
Speaker 6: Oh okay, because that's.

773
00:42:11,119 --> 00:42:13,119
Speaker 7: A heavy component for CRPS people.

774
00:42:13,159 --> 00:42:16,480
Speaker 8: They feel like their foot or their affected appendage is

775
00:42:16,519 --> 00:42:17,320
on fire.

776
00:42:17,440 --> 00:42:19,960
Speaker 3: Right, right, or their whole body is if it's global

777
00:42:20,239 --> 00:42:21,920
yah me right.

778
00:42:24,199 --> 00:42:27,360
Speaker 6: I'm curious about what's the name of the narcissism book

779
00:42:27,360 --> 00:42:27,880
you mentioned.

780
00:42:28,639 --> 00:42:31,440
Speaker 8: It's called Down the rabbit Hole of Narcissism, Life Under

781
00:42:31,519 --> 00:42:32,159
narc Attack.

782
00:42:32,480 --> 00:42:32,840
Speaker 6: Okay.

783
00:42:34,119 --> 00:42:35,719
Speaker 7: As a child, I had.

784
00:42:35,559 --> 00:42:41,079
Speaker 8: An abusive childhood, and I think people think you escape

785
00:42:41,119 --> 00:42:44,320
that as an adult, you're a child, you're living through that. Well,

786
00:42:44,320 --> 00:42:47,320
I still had a relationship with my parents. Unfortunately, my

787
00:42:47,360 --> 00:42:49,880
young husband passed away when he was twenty two and

788
00:42:49,880 --> 00:42:50,920
when I was twenty one.

789
00:42:51,119 --> 00:42:51,679
Speaker 6: Oh wow.

790
00:42:52,039 --> 00:42:54,559
Speaker 8: And I was actually on board the ship when he

791
00:42:54,599 --> 00:42:57,039
died in his accident. So that also is part of

792
00:42:57,039 --> 00:42:59,000
the reason I wrote my book, the first book, See

793
00:42:59,000 --> 00:43:02,880
You Later. Yeah, and so many people wanted to know, well,

794
00:43:03,320 --> 00:43:06,000
what happened. I know, you're still around and you're still

795
00:43:06,199 --> 00:43:08,840
dealing with your narcissist parents. And I didn't know they

796
00:43:08,840 --> 00:43:12,880
were narcissists as a child obviously. Yeah, But as you

797
00:43:12,920 --> 00:43:15,719
get older and you educate yourself and you find out

798
00:43:16,199 --> 00:43:18,480
my parents never told me they love me. I've never

799
00:43:18,480 --> 00:43:20,400
heard the words I love you from my parents. I

800
00:43:20,440 --> 00:43:22,800
was never hugged as a child by my parents. Oh wow,

801
00:43:22,800 --> 00:43:25,400
the effect in my home, we had none of that.

802
00:43:25,599 --> 00:43:28,559
They were emotionally unavailable zero.

803
00:43:28,920 --> 00:43:29,079
Speaker 1: Yeah.

804
00:43:29,960 --> 00:43:33,079
Speaker 8: So as an adult that never changed. Just because my

805
00:43:33,159 --> 00:43:36,320
husband died and I was raising a toddler. Now, it

806
00:43:36,360 --> 00:43:39,320
didn't suddenly become this loving world with my parents. It

807
00:43:39,400 --> 00:43:42,679
never It never changed. So that's hence the word down

808
00:43:42,760 --> 00:43:46,599
the rabbit hole. It just continued, and it continued until

809
00:43:46,760 --> 00:43:49,840
it finally stopped. So I relate a little bit of

810
00:43:49,880 --> 00:43:53,440
my life and my learnings about dealing with my narcissist parents.

811
00:43:53,679 --> 00:43:59,360
Speaker 6: Okay, okay, yeah, yeah, that sounds like an interesting read.

812
00:44:00,719 --> 00:44:02,519
Are they still alive?

813
00:44:04,119 --> 00:44:07,480
Speaker 7: They left fifteen minutes from me. Oh okay, yeah, they

814
00:44:07,519 --> 00:44:08,280
lived just down the.

815
00:44:08,239 --> 00:44:11,159
Speaker 8: Road, fifteen minutes. I haven't seen my mother in fourteen

816
00:44:11,280 --> 00:44:11,880
years now.

817
00:44:12,199 --> 00:44:13,079
Speaker 6: Yeah.

818
00:44:13,239 --> 00:44:16,679
Speaker 8: She decided one day to skip my daughter's high school graduation.

819
00:44:17,880 --> 00:44:21,639
And after that I found out a whole plethora of

820
00:44:21,719 --> 00:44:24,320
things that had been going on behind my back via

821
00:44:24,480 --> 00:44:28,360
my family for years. I had no idea how much

822
00:44:28,400 --> 00:44:29,519
they truly disliked me.

823
00:44:29,800 --> 00:44:30,239
Speaker 6: Oh wow.

824
00:44:30,280 --> 00:44:34,480
Speaker 8: And I found out at the graduation that my parents

825
00:44:34,480 --> 00:44:38,000
had now decided that they had pitted my brother against me.

826
00:44:38,119 --> 00:44:39,480
So I didn't have a brother. I don't have a

827
00:44:39,480 --> 00:44:42,360
brother anymore. I don't have a sibling, I don't have parents.

828
00:44:42,960 --> 00:44:46,199
And they all vanished after the graduation. They stopped talking

829
00:44:46,239 --> 00:44:49,119
to me. But when I began writing see you later,

830
00:44:50,079 --> 00:44:53,119
my mother heard, and this is what narcissists do. She

831
00:44:53,280 --> 00:44:55,639
heard that I was writing a book, and she sent

832
00:44:55,760 --> 00:44:57,320
a little one sentence card.

833
00:44:57,199 --> 00:44:59,000
Speaker 7: To me and said, we can begin again, if you

834
00:44:59,039 --> 00:45:04,559
want and see. She wanted in. She wanted in. She

835
00:45:04,559 --> 00:45:06,199
wanted to know what I was writing in that book.

836
00:45:06,320 --> 00:45:06,480
Speaker 5: Right.

837
00:45:06,719 --> 00:45:08,719
Speaker 8: She was super curious if I was going to out

838
00:45:08,800 --> 00:45:10,960
all of our secrets, is it all going to be

839
00:45:11,000 --> 00:45:11,440
out there?

840
00:45:11,840 --> 00:45:14,199
Speaker 7: And it is. It is out there because it's my

841
00:45:14,320 --> 00:45:15,440
life and it happened to me.

842
00:45:16,199 --> 00:45:19,000
Speaker 6: I assume well done. I assume you didn't respond to

843
00:45:19,039 --> 00:45:20,280
her after she sent you that.

844
00:45:20,960 --> 00:45:23,840
Speaker 7: Oh she didn't like my response. Absolutely, I responded to her,

845
00:45:23,880 --> 00:45:24,639
Oh you did, Okay.

846
00:45:26,239 --> 00:45:28,960
Speaker 8: I'm not the same girl that I was as a child.

847
00:45:29,079 --> 00:45:32,639
I had no voice as a child. I was so lonely.

848
00:45:32,800 --> 00:45:33,840
I had no opinion.

849
00:45:34,039 --> 00:45:34,880
Speaker 7: I wasn't even.

850
00:45:34,719 --> 00:45:37,159
Speaker 8: Allowed to look how I wanted to look. I couldn't

851
00:45:37,159 --> 00:45:40,199
grow my hair out. I couldn't play the instrument I

852
00:45:40,239 --> 00:45:42,119
wanted to play your hair.

853
00:45:43,199 --> 00:45:46,239
Speaker 3: Yes, Oh, curiously, I know this one. My hair was

854
00:45:46,280 --> 00:45:47,840
so short people called me a boy.

855
00:45:48,840 --> 00:45:52,239
Speaker 8: Yep, my hair was short. And I also manufactured an

856
00:45:52,239 --> 00:45:55,079
image of myself. I didn't want to stand out. I

857
00:45:55,079 --> 00:45:57,519
didn't want to look like anything was going.

858
00:45:57,320 --> 00:45:58,119
Speaker 7: On at my home.

859
00:45:58,280 --> 00:46:01,800
Speaker 8: I had to blend in so I didn't get to

860
00:46:01,840 --> 00:46:02,960
have an opinion in my home.

861
00:46:03,000 --> 00:46:03,920
Speaker 7: If I had an opinion.

862
00:46:04,000 --> 00:46:07,320
Speaker 8: I was called stupid or shut up, or my dad

863
00:46:07,320 --> 00:46:09,719
would give me the silent treatment for weeks on end,

864
00:46:10,199 --> 00:46:11,960
and he was abusive and he would hurt me.

865
00:46:12,360 --> 00:46:13,639
Speaker 7: And I wrote about.

866
00:46:13,400 --> 00:46:16,800
Speaker 6: That in the book, Wow do you know? So did

867
00:46:16,800 --> 00:46:19,719
you hear anything further from anybody in your family after

868
00:46:19,760 --> 00:46:22,599
the book came out? Any feedback?

869
00:46:23,880 --> 00:46:25,159
Speaker 7: Well, my mother.

870
00:46:25,400 --> 00:46:28,360
Speaker 8: I didn't think she had read it, and then I thought, well,

871
00:46:28,360 --> 00:46:30,920
maybe she read it, and that's why she's angry. She

872
00:46:31,000 --> 00:46:34,280
began messaging my husband, and my husband said, listen, if

873
00:46:34,320 --> 00:46:36,760
you really want to know your daughter's heart, you need

874
00:46:36,800 --> 00:46:39,719
to read her books, because I do say in Down

875
00:46:39,719 --> 00:46:40,400
the Rabbit Hole.

876
00:46:40,679 --> 00:46:42,800
Speaker 7: The hardest part about all of this is that I

877
00:46:42,840 --> 00:46:44,719
will probably always love my mother.

878
00:46:45,559 --> 00:46:48,400
Speaker 8: We were a team for most of my childhood because

879
00:46:48,400 --> 00:46:50,760
we were both being beaten up. We were both being

880
00:46:50,840 --> 00:46:53,400
hurt by this man, and we were a team. And

881
00:46:53,440 --> 00:46:56,039
it took me becoming an adult to realize we shouldn't

882
00:46:56,039 --> 00:46:57,840
have been a team. She should have been protecting me.

883
00:46:57,960 --> 00:46:59,639
Speaker 6: Yes, yes, exactly.

884
00:47:00,480 --> 00:47:02,599
Speaker 8: And as I became a mother, I'm like, none of

885
00:47:02,639 --> 00:47:05,039
that was okay. Why didn't she ever stop it or

886
00:47:05,039 --> 00:47:07,440
help me instead of just saying, you know, oh, this

887
00:47:07,559 --> 00:47:08,199
is terrible.

888
00:47:09,239 --> 00:47:10,960
Speaker 7: So later my.

889
00:47:10,960 --> 00:47:14,079
Speaker 8: Husband told her read the books, read them and see

890
00:47:14,119 --> 00:47:16,639
how she feels. This is what happened to her. It's,

891
00:47:16,760 --> 00:47:19,440
you know, just the way it is. And she never

892
00:47:19,480 --> 00:47:22,440
reached back out after that. We haven't heard from her since.

893
00:47:22,719 --> 00:47:28,119
Speaker 6: Okay, okay, Is that just as well from your perspective

894
00:47:28,199 --> 00:47:31,039
or is there a part of you that would like, yeah,

895
00:47:31,039 --> 00:47:34,079
I mean maybe you might order her to take some responsibility,

896
00:47:34,119 --> 00:47:36,679
I would think, right, but that's probably not going to happen.

897
00:47:37,440 --> 00:47:40,679
Speaker 8: Well, I mean, she's given hollow apologies when I said,

898
00:47:40,760 --> 00:47:44,119
you've never ever even apologized for things that you allowed

899
00:47:44,119 --> 00:47:45,480
to happen to me, and she's like, I did the

900
00:47:45,519 --> 00:47:49,280
best I could. So that's about as good as it's

901
00:47:49,280 --> 00:47:51,960
going to get. And there are some relationships I think

902
00:47:52,360 --> 00:47:55,400
need to be over. They run their course. I don't

903
00:47:55,400 --> 00:47:59,000
have any desire to reach out and talk to my

904
00:47:59,039 --> 00:48:02,360
mother or my father or my brother. It's fine. I'm

905
00:48:02,400 --> 00:48:05,599
living a great life. Everything's going really well. And the

906
00:48:05,599 --> 00:48:07,400
minute they come back, it's drama.

907
00:48:07,840 --> 00:48:08,119
Speaker 6: Yep.

908
00:48:08,559 --> 00:48:10,840
Speaker 3: They'll make it worse, they'll take away all the joy.

909
00:48:11,119 --> 00:48:16,519
Speaker 6: Yep. Yes, yes, absolutely, absolutely, Well, Natalie, this has been

910
00:48:16,679 --> 00:48:20,639
a wonderful conversation. I really appreciate you joining us today,

911
00:48:20,960 --> 00:48:23,599
and of course if you are just joining us, Natalie

912
00:48:23,760 --> 00:48:27,679
Moseley Clinoutic, we've been speaking with. And by the way, Natalie,

913
00:48:27,719 --> 00:48:29,800
where are you? Where in the country are you? Obviously

914
00:48:29,800 --> 00:48:32,679
you're not up here? Where where? Whereabouts are you?

915
00:48:33,320 --> 00:48:35,679
Speaker 8: I'm in central Indiana. I live in a little town

916
00:48:35,719 --> 00:48:36,599
called Greenfield.

917
00:48:36,760 --> 00:48:38,119
Speaker 6: Okay, okay, cool.

918
00:48:38,239 --> 00:48:38,679
Speaker 3: I like them.

919
00:48:38,840 --> 00:48:41,039
Speaker 6: I like the Midwest. I spent a lot of time

920
00:48:41,039 --> 00:48:44,079
there as a kid when my when my parents split up.

921
00:48:44,159 --> 00:48:45,800
They split up when I was really young, and my

922
00:48:45,880 --> 00:48:49,599
mom moved back to Illinois, where she was from originally.

923
00:48:49,679 --> 00:48:51,559
So then the arrangement was, you know, I would I

924
00:48:51,559 --> 00:48:53,400
would be here with my dad during the school year,

925
00:48:53,440 --> 00:48:56,480
but then I would spend the summers in Illinois. And yeah,

926
00:48:56,480 --> 00:48:58,320
I like I like the Midwest quite a bit.

927
00:48:59,159 --> 00:48:59,400
Speaker 1: Nice.

928
00:48:59,400 --> 00:49:02,559
Speaker 7: You've got beautiful country where you are too, So that's wonderful.

929
00:49:02,639 --> 00:49:04,599
Speaker 6: Oh yeah, oh absolutely, yeah.

930
00:49:04,440 --> 00:49:06,719
Speaker 3: Even nice though when Atlanta takes the snow.

931
00:49:08,239 --> 00:49:12,119
Speaker 7: Yeah it's terrible. There's a lot of snow here right now.

932
00:49:12,199 --> 00:49:14,599
Speaker 3: No, thank you, y'all can keep it.

933
00:49:15,559 --> 00:49:16,079
Speaker 7: I agree.

934
00:49:16,199 --> 00:49:19,119
Speaker 6: Yeah, it's funny. You know, often people in other parts

935
00:49:19,119 --> 00:49:20,840
of the country assume that we have a rough winter

936
00:49:21,000 --> 00:49:24,320
here in New Hampshire, and we certainly did at one time,

937
00:49:24,400 --> 00:49:27,920
but they just keep getting easier. It's uh less, you're.

938
00:49:27,920 --> 00:49:30,440
Speaker 3: Up north of the mountains and that's that's different.

939
00:49:30,639 --> 00:49:33,320
Speaker 8: Yeah, that's wonderful. Maybe I need to move there because

940
00:49:33,360 --> 00:49:34,599
we're getting hit right now.

941
00:49:34,639 --> 00:49:37,519
Speaker 6: So yeah, yeah, yeah, it's it's not too bad here.

942
00:49:37,760 --> 00:49:41,519
But Natalie, before we let you go, please remind us

943
00:49:41,559 --> 00:49:45,280
because you said the new book is available for pre order. Yeah,

944
00:49:45,480 --> 00:49:47,079
and that and that comes out when.

945
00:49:48,119 --> 00:49:52,360
Speaker 8: It comes out in hard and paperback on February fifteenth.

946
00:49:52,360 --> 00:49:54,280
The pre order is now and you can find it

947
00:49:54,320 --> 00:49:57,320
on Amazon or you can find it on Kindle. And

948
00:49:57,440 --> 00:50:03,360
I also have a website. It's Natalie mostly clinoticbooks dot com. Okay, excellent,

949
00:50:04,039 --> 00:50:06,079
you'll be able to find links to them there as well.

950
00:50:06,639 --> 00:50:10,800
Speaker 6: Oh wonderful, wonderful. Well, Natalie, let's keep in touch. You know,

951
00:50:10,840 --> 00:50:13,000
we definitely want to have you on, especially you know,

952
00:50:13,079 --> 00:50:15,440
after the after the new book is out and uh

953
00:50:15,679 --> 00:50:17,920
you know, and you start hearing some feedback on that,

954
00:50:18,039 --> 00:50:19,760
you know, we'd love to have you back on. And

955
00:50:20,039 --> 00:50:23,880
it's such an important subject, uh crps and and obviously

956
00:50:23,920 --> 00:50:26,760
because of Jenny, it's something you know, we're not. For Jenny,

957
00:50:26,800 --> 00:50:29,519
I I probably would not have known a thing about

958
00:50:29,559 --> 00:50:34,239
it because it is a rare illness, and rare illnesses

959
00:50:34,280 --> 00:50:37,280
don't get the attention that they deserve, obviously because of

960
00:50:37,519 --> 00:50:40,199
because they're rare. And then you know, when something like

961
00:50:40,239 --> 00:50:43,159
what happened to your son happens, you know, even a

962
00:50:43,159 --> 00:50:46,519
lot of medical professionals you know, don't know what it is.

963
00:50:46,679 --> 00:50:49,559
Speaker 3: Here's the thing. Rare illnesses are rare, but people with

964
00:50:49,800 --> 00:50:52,920
rare illnesses are not. One in ten people has something

965
00:50:53,000 --> 00:50:54,719
rare yep, yep, right.

966
00:50:54,920 --> 00:50:57,199
Speaker 7: Right, great statistic that that's important.

967
00:50:57,199 --> 00:50:59,360
Speaker 8: And I do thank you both so much for giving

968
00:50:59,400 --> 00:51:01,519
a face a voice to CRPS.

969
00:51:02,159 --> 00:51:04,000
Speaker 7: It needs to be everywhere.

970
00:51:04,039 --> 00:51:06,239
Speaker 8: People need to know because odds are you're going to

971
00:51:06,320 --> 00:51:08,400
find someone that's going to be afflicted by it or

972
00:51:08,480 --> 00:51:11,800
know someone. So I really appreciate the chance to speak.

973
00:51:11,599 --> 00:51:14,760
Speaker 6: About it absolutely. Natalie, thank you so much. We'll let

974
00:51:14,800 --> 00:51:17,480
you go and we will we will talk you again in

975
00:51:17,480 --> 00:51:17,920
the future.

976
00:51:18,599 --> 00:51:20,159
Speaker 7: Thank you guys so much, great.

977
00:51:19,920 --> 00:51:21,840
Speaker 6: Meaning you you got it. Thank you, take care, bye

978
00:51:21,880 --> 00:51:23,199
bye bye.

979
00:51:24,119 --> 00:51:24,679
Speaker 3: All right.

980
00:51:24,960 --> 00:51:27,840
Speaker 6: That was Natalie Moseley Klinautic and of course the author

981
00:51:27,880 --> 00:51:31,360
of Gaging the Invisible Illness One Boy's Battle with CRPS

982
00:51:31,400 --> 00:51:34,360
and RST and well, yeah, we'll definitely have her on

983
00:51:34,440 --> 00:51:35,440
after the new book is out.

984
00:51:35,679 --> 00:51:38,559
Speaker 3: Absolutely well. And again, if you're looking for more information

985
00:51:38,719 --> 00:51:42,079
on CRPS, also known as RSD, you can go to

986
00:51:42,239 --> 00:51:46,159
r SDS dot org. It is a national organization that

987
00:51:46,199 --> 00:51:48,920
provides a lot of information and education out there. And again,

988
00:51:48,960 --> 00:51:51,599
if you or someone you care about is feeling a

989
00:51:51,719 --> 00:51:54,400
need to speak to someone or having a down moment,

990
00:51:54,480 --> 00:51:56,760
please die on nine to eight eight from anywhere in

991
00:51:56,800 --> 00:51:58,000
the country.

992
00:51:58,840 --> 00:52:02,639
Speaker 6: Now, absolutely, And if you are listening live on Saturday,

993
00:52:02,719 --> 00:52:04,800
stick with us because coming up next in the second hour,

994
00:52:05,079 --> 00:52:07,519
Hello Nicholas. Is she in the building? She is in

995
00:52:07,559 --> 00:52:09,480
the building, so I'm looking forward to meeting her. This

996
00:52:09,519 --> 00:52:12,760
will be very very interesting, so stick around. There is

997
00:52:12,960 --> 00:52:49,320
plenty more to come. When I was a boy.

998
00:52:50,280 --> 00:52:55,199
Speaker 1: Oh I think now this one is bejoying that I was.

999
00:52:55,599 --> 00:52:59,440
Speaker 4: When I was a kid, I got my face up,

1000
00:53:00,280 --> 00:53:03,519
not boilets wide damn.

1001
00:53:04,079 --> 00:53:09,199
Speaker 2: I wasn't always a stoop and bom But when I was,

1002
00:53:09,800 --> 00:53:15,000
I was a jump I didn't always look can some

1003
00:53:15,960 --> 00:53:20,679
I used to lap and go filled man us.

1004
00:53:21,639 --> 00:53:25,800
Speaker 1: I remember roll the man, the times and things them

1005
00:53:25,920 --> 00:53:26,400
my mom.

1006
00:53:28,960 --> 00:53:32,239
Speaker 4: It feels like someone they shomping.

1007
00:53:31,960 --> 00:53:34,760
Speaker 1: Their tack, fuck off of my bar.

1008
00:53:37,360 --> 00:53:42,199
Speaker 2: Right do your mess side go where no scene down?

1009
00:53:42,199 --> 00:53:42,760
Speaker 1: No bomb?

1010
00:53:42,920 --> 00:53:43,920
Speaker 2: Me roll up live?

1011
00:53:44,760 --> 00:53:50,239
Speaker 3: I ride you miss side go where no scene down?

1012
00:53:50,320 --> 00:53:53,199
The bomb me roll up life.

1013
00:54:00,519 --> 00:54:00,719
Speaker 2: Yes.

1014
00:54:08,840 --> 00:54:13,360
Speaker 1: When I was in school, didn't make good grapes.

1015
00:54:13,480 --> 00:54:16,280
Speaker 2: I was, yes, still big numb fool.

1016
00:54:16,960 --> 00:54:18,880
Speaker 1: When I was still young.

1017
00:54:19,800 --> 00:54:22,519
Speaker 4: All I cared out proud was girls.

1018
00:54:22,599 --> 00:54:24,920
Speaker 1: But they didn't like my pimples.

1019
00:54:25,400 --> 00:54:29,880
Speaker 2: I used to be such a stool before day at

1020
00:54:30,199 --> 00:54:32,760
night crying on the floor.

1021
00:54:33,519 --> 00:54:35,760
Speaker 4: They used to wear fans read.

1022
00:54:36,039 --> 00:54:40,840
Speaker 2: Me of my milk money taking. When I was growing up,

1023
00:54:42,960 --> 00:54:47,119
I remember the bad times and picking.

1024
00:54:46,960 --> 00:54:47,760
Speaker 1: Them my am.

1025
00:54:50,320 --> 00:54:54,360
Speaker 2: It feels like someone is shoving the same like.

1026
00:54:54,719 --> 00:54:56,159
Speaker 3: All of my heart.

1027
00:54:58,039 --> 00:55:03,440
Speaker 2: I ride, don't your nass side God have no scene down?

1028
00:55:03,559 --> 00:55:05,280
Speaker 1: No bob? You roll alive?

1029
00:55:06,119 --> 00:55:06,440
Speaker 3: Aye?

1030
00:55:06,920 --> 00:55:07,159
Speaker 2: Right?

1031
00:55:07,800 --> 00:55:12,440
Speaker 1: Do you assie go w no scene down? Noboby?

1032
00:55:12,960 --> 00:55:14,440
Speaker 3: Roll up live.

1033
00:55:30,880 --> 00:55:31,079
Speaker 1: You know.

1034
00:55:31,360 --> 00:55:34,559
Speaker 4: When I was a boy, my father used to look

1035
00:55:34,639 --> 00:55:38,119
down at me and say, what god hell is even?

1036
00:55:38,239 --> 00:55:42,719
Then go outside and cut some grass. Why don't you

1037
00:55:42,800 --> 00:55:45,039
go kids a girl? You stupid loser?

1038
00:56:20,159 --> 00:56:26,760
Speaker 1: Rhyme dons I call no scene down Bob road the life?

1039
00:56:27,480 --> 00:56:31,519
I rhyme don as I go way have.

1040
00:56:31,800 --> 00:56:35,880
Speaker 3: No scene down the Bobby Road life.

1041
00:56:51,639 --> 00:57:01,599
Speaker 5: Yes, in times of you need a law firm that

1042
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1043
00:57:03,039 --> 00:57:06,719
Speaker 9: With over forty years of experience, Craigan Getsulis is dedicated

1044
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1045
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1048
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1049
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1050
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Visit craigatzulis dot com for a free consultation. Craigan getsulus

1051
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1052
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1053
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1054
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1055
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1059
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Speaker 11: Another Brown sponsor of WMNH. Disneys Cafe is the place

1060
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1061
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1062
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1068
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Speaker 12: When it comes to keeping WMNH on the air and

1069
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Speaker 3: Seven times out of ten.

1078
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Speaker 5: We listened to our music at night.

1079
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Speaker 1: That's com titled list program.

1080
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Speaker 10: Late Night to Light with DJ Midas right here on

1081
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1082
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Speaker 3: If you want to know why, because

1083
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Speaker 6: Saturdays and Sunday nights midnight to four am