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<v Speaker 1>Adventist Radio London inspiration for.

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<v Speaker 2>The song.

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<v Speaker 3>Good evening, Good evening, Good evening, and welcome to Talking Point.

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<v Speaker 3>I hope people had a really good day to day.

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<v Speaker 3>It's always good to get to the end of the

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<v Speaker 3>week and recognize that we're taking a rest from her

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<v Speaker 3>daily week and having good Sabbath. So whenever you've got

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<v Speaker 3>up to I hope it's been a blessed day. And

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<v Speaker 3>thank you once again for joining us on Talking Point.

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<v Speaker 3>As usual, I'm joined by my trustee co hosts. We're

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<v Speaker 3>all actually on today, so Zenya and Pedro, how are

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<v Speaker 3>you both?

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<v Speaker 4>I am well, and yeah, it's good to be back.

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<v Speaker 4>We took a decent break over the summer and we've

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<v Speaker 4>been all sort of pered in everywhere, and yeah, it's

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<v Speaker 4>good to be back in the room. It's good to

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<v Speaker 4>be rack for another edition, a very important edition of

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<v Speaker 4>Talking Point.

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<v Speaker 2>It's good.

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<v Speaker 3>I'm Petra. How have you been? And then when I

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<v Speaker 3>expect to you this week, you're saying you had a

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<v Speaker 3>really you've had a really busy summer. So how has

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<v Speaker 3>it been for you?

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<v Speaker 2>It's been. I'm good, it's been a really good summer.

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<v Speaker 5>Like I said, busy, yea beside my daughter breaking her foot,

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<v Speaker 5>I broke my hand, things like that, you know. And yeah,

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<v Speaker 5>I fell on my I fell out of a house

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<v Speaker 5>and fell on my hand, broke my pinky. Yeah, yeah,

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<v Speaker 5>I know. So you know what else is That's how

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<v Speaker 5>it calls me. I'm the most clumsiest man, you know.

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<v Speaker 5>So I just proved that point. Could you guys have

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<v Speaker 5>a question real quick, I'm trying. I not this thing.

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<v Speaker 5>I'm really quick with this question. Why is it that

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<v Speaker 5>you guys put lips on the bottom of the door frames?

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<v Speaker 3>I mean not being you know what I mean?

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<v Speaker 2>Does anybody know it?

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<v Speaker 5>And like they put lips like you know, like in

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<v Speaker 5>a state, they just have a door frame and you walk,

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<v Speaker 5>you step out the door. But here they put like

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<v Speaker 5>this little tuiny like like level shovel or something. So

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<v Speaker 5>I was walking, I turned my head and my foot

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<v Speaker 5>hit the lip as I was going out the door.

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<v Speaker 5>And that's what made me go forward because I was thinking,

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<v Speaker 5>I'm just stepping out into the outside of the house, okay,

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<v Speaker 5>And that's why I felt because I hit that lip

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<v Speaker 5>in my foot and I just kind of, you know,

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<v Speaker 5>big old man just flying out the house. It looked

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<v Speaker 5>really funny, you know, it was really embarrassing. Yeah, all

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<v Speaker 5>that good stuff.

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<v Speaker 3>Yeah, yeah, I mean the whole door frame thing. I

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<v Speaker 3>have no idea. I mean, I guess that's just how

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<v Speaker 3>the doors are.

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<v Speaker 4>I mean, there might be a scientific reason, and if

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<v Speaker 4>anyone's listening and knows.

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<v Speaker 5>It, I think it's just me. I just think it's

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<v Speaker 5>a British thing. But anyway, I.

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<v Speaker 4>Would like to think there was some reasoning behind it,

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<v Speaker 4>and it's just not someone decided, you know what, let's

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<v Speaker 4>just put the trip hazard here.

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<v Speaker 2>Somebody like making just trip over it and you know,

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<v Speaker 2>break their finger. You know.

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<v Speaker 4>Wow, I'm.

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<v Speaker 3>Easy and yeah, high paved the heels. Yeah he was quickly.

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<v Speaker 5>It feels okay, I'm still working as to stop me

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<v Speaker 5>from working, be honest with you. Good because I used

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<v Speaker 5>my other fingers to write and cut, so I just

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<v Speaker 5>tried to keep immobilized.

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<v Speaker 6>And yeah.

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<v Speaker 4>Yeah, so blessing that it wasn't.

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<v Speaker 2>Oh yeah, it could have been. I felt I actually

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<v Speaker 2>landed on my hand.

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<v Speaker 5>I felt like my rest went towards my fingers, so

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<v Speaker 5>I felt like I actually booke all my fingers when

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<v Speaker 5>I did it.

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<v Speaker 2>At first. Luckily it was just my pinky. Yeah, it

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<v Speaker 2>was definitely a blessing.

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<v Speaker 3>Glad that you're here and it was nothing worse.

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<v Speaker 4>How about you? How was your How was your break?

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<v Speaker 2>How was your break?

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<v Speaker 3>It It's been Yeah, it's been good. I mean it's

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<v Speaker 3>been busy as always because I think every weekend there's

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<v Speaker 3>been something happening. Over the bank holiday weekend that we had.

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<v Speaker 3>I thought I was actually going to Cheltenham. I ended

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<v Speaker 3>up in Whales with a group of friends, which was

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<v Speaker 3>really nice. We'd rented at cottage and it was just

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<v Speaker 3>really nice to be out of the city and just

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<v Speaker 3>kind of in nature really and we took a program

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<v Speaker 3>over to Cheltenham, which is actually really good as well,

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<v Speaker 3>really lovely church members there and just been able to

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<v Speaker 3>just take some time out and it's definitely good for me.

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<v Speaker 3>I was always not sure if I was going to

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<v Speaker 3>be able to make it, but yeah, it was really nice,

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<v Speaker 3>and yeah, just kind of it's been busy, you know,

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<v Speaker 3>lots of things happening. But here we are back again,

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<v Speaker 3>waring to go with our I don't know what are

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<v Speaker 3>we on season whatever it would be. Yeah, we've been

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<v Speaker 3>going what three years now, three years.

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<v Speaker 2>Or oh I came I came in at after the

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<v Speaker 2>first year.

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<v Speaker 5>Yeah, so yeah, before it's been three years because I

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<v Speaker 5>start my anniversary is my work day anniversary of a

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<v Speaker 5>day when I started my job, is that you guys

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<v Speaker 5>called me and asked me to join I was actually

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<v Speaker 5>going for That's what I always remember.

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<v Speaker 2>I was going for orientation.

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<v Speaker 5>Yeah, I was down and down, way down in Exeter

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<v Speaker 5>or form or whatever I was at and that's when

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<v Speaker 5>you call me late that evening, and that's what I

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<v Speaker 5>always remember.

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<v Speaker 2>So it's definitely been three for us. Okay, cool, if

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<v Speaker 2>you was a year before that, it has been four.

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<v Speaker 3>Oh oh yeah. So we've got some you know, we've

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<v Speaker 3>got some great shows planned in the works already, so yeah,

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<v Speaker 3>looking forward to doing those. However, we are here today

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<v Speaker 3>and we're going to be talking about another other kind

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<v Speaker 3>of I suppose often on Talking Point we do talk

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<v Speaker 3>a lot about different health topics, different mental health topics

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<v Speaker 3>and what have you. So we're going to be covering

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<v Speaker 3>one today, which actually it's a theme of this month

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<v Speaker 3>of September, but also today, the twenty first of September

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<v Speaker 3>being World Alzheimer's Day, so we're going to be talking

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<v Speaker 3>about that. We've got some great guests on today, who's

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<v Speaker 3>going to be sharing about the work that they do

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<v Speaker 3>and the impact they are having within this world of dementia.

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<v Speaker 3>So before we get started into that, let's have a

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<v Speaker 3>word of prayer, So you would you mind praying for

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<v Speaker 3>us to start.

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<v Speaker 4>A definitely, Father, thank you for bringing us together for

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<v Speaker 4>another conversation on this critical and timely topic. We're talking

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<v Speaker 4>Alzheimer's and dementia law. And I thank you for the

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<v Speaker 4>experts I have accepted the invitation to come on. I

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<v Speaker 4>pray that you give them wisdom and clarity your thoughts

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<v Speaker 4>so that when we are through with this discussion, whenever

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<v Speaker 4>we have shared will make a difference for those listening

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<v Speaker 4>best the technology and the lesser slow I pray.

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<v Speaker 3>In Jesus name, Amen, Amen.

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<v Speaker 2>Thanks.

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<v Speaker 3>Okay, So, as I said, it's World Alzheimer's month September,

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<v Speaker 3>and today it's World Alzheimer's Day, and so we're going

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<v Speaker 3>to be talking a little bit about that. And I

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<v Speaker 3>know we have done a show about this before, and

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<v Speaker 3>as you know, as many of these topics we could

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<v Speaker 3>pub there's a lot to talk about around this, but

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<v Speaker 3>I guess this time we kind of be really talking

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<v Speaker 3>about a little bit about what it is Alzheimer's is

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<v Speaker 3>what dementias are, but also about people who are making

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<v Speaker 3>a difference with this within this area. It's a topic

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<v Speaker 3>that is dear to my heart because over the last

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<v Speaker 3>I suppose what twenty since twenty nineteen, I've been on

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<v Speaker 3>that journey of being a caregiver supporting my mum who

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<v Speaker 3>was living with Alzheimer's, and it definitely has been a journey,

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<v Speaker 3>definitely been one of learning emotional ups and downs, but

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<v Speaker 3>also quite I say a learning process, but learning about

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<v Speaker 3>the disease itself, but learning the opportunity to learn from

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<v Speaker 3>other people as well. You know, I've kind of had

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<v Speaker 3>to do lots of research myself, not only in terms

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<v Speaker 3>of understanding what it's all about, but also how I

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<v Speaker 3>can be effective in the support and learning a lot

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<v Speaker 3>about myself. You get to an age and you think

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<v Speaker 3>you kind of have an idea, A lot of that's

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<v Speaker 3>gone out the window, so you know, and you know,

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<v Speaker 3>life is a journey. There's always something new to learn,

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<v Speaker 3>and you know, every day I'm learning something new about which, sadly,

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<v Speaker 3>just so you know, a really heartbreaking and sad disease,

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<v Speaker 3>but it's one that's incredibly prevalence. So we're gonna be

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<v Speaker 3>talking about that, and I guess on today are people

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<v Speaker 3>who are, like I said, have been making a difference

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<v Speaker 3>within this world. I'm going to call it make a

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<v Speaker 3>difference within this world. So we've got two with us

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<v Speaker 3>today and I'm going to just introduce, get them to

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<v Speaker 3>introduce themselves very briefly, and then we'll start talking. And

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<v Speaker 3>then I didn't I wasn't gonna be playing an interview

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<v Speaker 3>that I did with my mum. Attends a day center

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<v Speaker 3>local to where we live, which has been I would

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<v Speaker 3>say a complete god send and a blessing respect to

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<v Speaker 3>the manager today about the work that they do and

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<v Speaker 3>how they support those people who are living with dementia.

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<v Speaker 3>So that'll be part of our program today. So with

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<v Speaker 3>a further ado, we will speak to our guests who

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<v Speaker 3>are joining us today. Now our first one I met.

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<v Speaker 3>I guess it's coming maybe a couple of months ago

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<v Speaker 3>because one of the key things I found myself being

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<v Speaker 3>a career is trying to tap into the support networks

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<v Speaker 3>that are out there. And again I've been quite fortunate

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<v Speaker 3>to be able to find groups that I can join

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<v Speaker 3>that's at my workplace or in the local area. But

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<v Speaker 3>then I was kind of sent some information about another

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<v Speaker 3>group that was being set up, and this is how

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<v Speaker 3>I met my first guest, Michelle. So, Hi, Michelle, welcome

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<v Speaker 3>to our show today.

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<v Speaker 6>Hi, thank you for having me on. It's a pleasure.

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<v Speaker 3>So I just introduced us and tell us a little

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<v Speaker 3>bit about you what you do.

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<v Speaker 6>Okay. So, my name is Michelle Guthrie. I'm a qualified counselor.

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<v Speaker 6>I'm a child of the Windrush generation. My parents come

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<v Speaker 6>from Jamaica.

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<v Speaker 1>And prior to.

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<v Speaker 6>Taking the interest that I now have in dementia and counseling,

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<v Speaker 6>I was a teacher for many is in further education

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<v Speaker 6>and I also run workshops and do presentations.

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<v Speaker 3>Okay, cool, And like I said, you recently set up

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<v Speaker 3>a support group, so we wish we will hear a

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<v Speaker 3>little bit more about that and the work that you do.

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<v Speaker 3>So again, thank you so much for joining us today,

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<v Speaker 3>looking forward to our conversation and also joining us. And

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<v Speaker 3>again this is sometimes, you know, the networking and connections happen.

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<v Speaker 3>Our next guest is Doctrinmonia Gaspas, So again, thank you

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<v Speaker 3>for joining us this evening. So tell us a little

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<v Speaker 3>bit about yourself and what you do and how you yeah,

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<v Speaker 3>and how we've kind of connected here today.

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<v Speaker 7>Good evening everyone. Thank you so much, Angela, it's a

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<v Speaker 7>real honor to be here. Thank you, Zenia, thank you Pedro.

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<v Speaker 7>My journey with dementia wasn't always very clear cut. I'm

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<v Speaker 7>of Nigerian heritage, so we've got the African and we've

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<v Speaker 7>got the Caribbean well centered. And I used to spend

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<v Speaker 7>a lot of time with my grandmother and now I

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<v Speaker 7>know she had dementia, but then all I knew was

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<v Speaker 7>that it was old age. And so when I moved

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<v Speaker 7>to the UK, I wanted to work with old people

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<v Speaker 7>because of the relationship with my grandmother, and I met

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<v Speaker 7>lots of old people. They were just like my grandma,

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<v Speaker 7>and I got to find out that it wasn't old age,

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<v Speaker 7>it was an illness, dementia, and that's when I started

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<v Speaker 7>really getting involved in it. I'm a general practitioner by

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<v Speaker 7>profession my day job, but every minute I have outside

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<v Speaker 7>that I'm spent advocating and trying to educate and enlighten

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<v Speaker 7>people on dementia, primarily in the Afro Caribbean community, but

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<v Speaker 7>everywhere else as well. I've just completed a degree with

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<v Speaker 7>the University of London, Queen Mary and it's global public health,

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<v Speaker 7>but we have to do a basis on something close

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<v Speaker 7>to our hearts. And I looked at dementia, which happens

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<v Speaker 7>to be the twenty first century public health crisis at

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<v Speaker 7>the moment globally. So it's not just in the UK,

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<v Speaker 7>it's not just in the Black African community, it's everywhere.

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<v Speaker 7>And thank you so much for highlighting it. And I'm

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<v Speaker 7>really honored to be here.

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<v Speaker 3>Oh, thank you, thank you so much for joining us.

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<v Speaker 3>And yeah, it's going to be great to kind of

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<v Speaker 3>get the different sides to as you said, is a

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<v Speaker 3>kind of global crisis. So with that in mind, actually, Ammonia,

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<v Speaker 3>could you just kind of give us a bit of

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<v Speaker 3>a background about dimension Alzheimer's for any of our listeners

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<v Speaker 3>who may not necessarily be familiar. I think many of

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<v Speaker 3>us know the words and have heard of the terms,

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<v Speaker 3>but I think there's probably and I guess name to

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<v Speaker 3>kind of a bit of misconceptions at times as well.

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<v Speaker 3>And I know dementsia is becoming much more of a

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<v Speaker 3>topic that's talked about. We're hearing about, you know, well

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<v Speaker 3>known celebrities and sort of public people in the public

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<v Speaker 3>eye who have you know, disclosed that they have been had,

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<v Speaker 3>they've had a diagnosis. But for any of our listeners

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<v Speaker 3>who don't know what this is about, yeah, do give

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<v Speaker 3>us a bit of a background. And also Michelle, if

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<v Speaker 3>you've got any bits to add in, please do it

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<v Speaker 3>as well.

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<v Speaker 7>Definitely, dementia is an umbrella term, so it's like saying

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<v Speaker 7>you have a fever. It could be an earinfection, it

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<v Speaker 7>could be a throat infection, it could be a urine infection,

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<v Speaker 7>it could be meningitis anything, and that's what dementia is.

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<v Speaker 7>There's more than two hundred types subtypes of dementia, but

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<v Speaker 7>we hear about the commonest one, which is Alzheimer's and

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<v Speaker 7>about sixty to eighty percent of the population globally have Alzheimer's.

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<v Speaker 7>But in the black community, the more prevalent type of

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<v Speaker 7>dementia is vascular dementia, and they are two completely separate

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<v Speaker 7>different kinds. So we use dementia and Alzheimer's interchangeably. But

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<v Speaker 7>it's important to actually know what the diagnosis that one

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<v Speaker 7>has or our loved ones have, and in my case,

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<v Speaker 7>my family history was one of vascular dementia, which is

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<v Speaker 7>very closely related to blood pressure, diabetes, heart disease that

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<v Speaker 7>kind of thing as different from Alzheimer's dementia, where there's

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<v Speaker 7>lots of proteins that are fighting for space in the

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<v Speaker 7>brain type of thing. So in a nutshell, that's dementia.

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<v Speaker 7>It's a medical condition, it's an illness. Children can get dementia,

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<v Speaker 7>Adults can get dementia, old age can get dementia. It

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<v Speaker 7>can come from disease, it can come from trauma. So

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<v Speaker 7>people who have head injury, either a major impact head

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<v Speaker 7>injury or repeated bits of head injury, rugby players, that

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<v Speaker 7>kind of thing, they can all get dementia. So it's

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<v Speaker 7>a very broad umbrella term for lots of different conditions.

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<v Speaker 7>That's really interesting.

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<v Speaker 3>I've never you know, just saying that again, I'm going

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<v Speaker 3>to be learning quite a lot today, I know. I mean,

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<v Speaker 3>I'm kind of aware of, you know, young onset dementias,

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<v Speaker 3>But the idea of that children could get that, I

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<v Speaker 3>had no idea that was possibly the case.

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<v Speaker 5>I have a question because you said children and just

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<v Speaker 5>real quick. So once you get it, there is no

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<v Speaker 5>you have it for rest of your life. Does that

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<v Speaker 5>make like? Because you said child can get it, So

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<v Speaker 5>if a child gets it, then they have to learn

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<v Speaker 5>how to manage it. I mean where they still last

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<v Speaker 5>a long will it affect them going forward in their

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<v Speaker 5>life or because you know, you have a lot of time.

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<v Speaker 5>Some people you know here that they pass from Alzheimer's

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<v Speaker 5>or they passed from them, you know, they passed from it.

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<v Speaker 5>So will it affect the child long term that they

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<v Speaker 5>get it?

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<v Speaker 7>Sadly, children get more of a metabolic kind of dementia,

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<v Speaker 7>so it's lots of different kind of metabolic conditions, congenital

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<v Speaker 7>conditions that they're born with, and unfortunately they don't survive

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<v Speaker 7>to adulthood. In Okay, I thought.

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<v Speaker 5>That was the case, but I just thought I would

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<v Speaker 5>ask because I don't want to assume like because I mean,

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<v Speaker 5>I don't mean the lad but I mean, it's just

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<v Speaker 5>like because we said that, Like Angela, I said, that's

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<v Speaker 5>shocking that you said children can get it, because we

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<v Speaker 5>just associate with elderly. We associate with older people. We

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<v Speaker 5>don't associated with everybody, you know, like anybody can get it.

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<v Speaker 2>We don't associate it with that at all.

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<v Speaker 7>And that's why it's so important to keep talking about it,

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<v Speaker 7>to raise awareness about it because in children, they they

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<v Speaker 7>learn all their skills that you expect them to know

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<v Speaker 7>how to feed themselves, how to dress themselves, how to

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<v Speaker 7>use the bathroom themselves, and then when it starts, they

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<v Speaker 7>start losing all those skills. A lot of times diagnosis

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<v Speaker 7>isn't very clear because nobody ever expects a young person

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<v Speaker 7>to get it, and it's like an old, eighty year

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<v Speaker 7>old kind of thing. So it's a very devastating, cruel disease.

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<v Speaker 6>So I think i'd like to add a little bit

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<v Speaker 6>onto what Ammonia said, and I should say that how

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<v Speaker 6>it's impacted me is because my mom's been diagnosed with Alzheimer's.

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<v Speaker 6>We kind of suspected a few years ago, but she

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<v Speaker 6>was tested last year and it confirmed that confirmed that

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<v Speaker 6>she has Alzheimer's. So of course, with that diagnosis, I

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<v Speaker 6>started to do my own reason search as you do,

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<v Speaker 6>and looked into some statistics which I thought was quite

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<v Speaker 6>alarming actually, so I'd probably like to share a few

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<v Speaker 6>numbers with you, and you know, you can see what

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<v Speaker 6>you think. So when I was doing my research, approximately

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<v Speaker 6>it says approximately nine hundred thousand people in the UK

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<v Speaker 6>is living with dementia and by about twenty forty that

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<v Speaker 6>will increase to one point four million, So that's the

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<v Speaker 6>significant amount of people, you know, living with dementia, one

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<v Speaker 6>in eleven people would be over the age of sixty five,

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<v Speaker 6>and one in six is over eighty years old. And

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<v Speaker 6>I've also researched and found out that dementia affects one

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<v Speaker 6>in twenty people under sixty five, So I think that's

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<v Speaker 6>where the young onset dementia would come in possibly. And

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<v Speaker 6>it's more common in women than it is in men,

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<v Speaker 6>and it's the leading cause of death in the UK

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<v Speaker 6>for women. So it is a big thing. It really

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<v Speaker 6>is a big thing that needs to be taken quite seriously.

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<v Speaker 6>And I think, like Ammonia said, we just need to

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<v Speaker 6>keep talking about it now.

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<v Speaker 2>Yeah, yeah, I have a question another question.

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<v Speaker 5>I'm sorry, So that on that thought process you said

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<v Speaker 5>affects women. Is it just something that just that just

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<v Speaker 5>happens or is it like because you said the the

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<v Speaker 5>different affects the brain or the vascular whereas you know diabetes,

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<v Speaker 5>you know, things of that nature. Is it not eating healthy?

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<v Speaker 5>Is it not taking care of your body?

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<v Speaker 2>Is it?

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<v Speaker 5>Is it you know because you said like like women

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<v Speaker 5>will get it when they get older or you still

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<v Speaker 5>get it ONSTEDT is it like have they been able

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<v Speaker 5>to kind of pinpoint why you develop Alzheimers or is

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<v Speaker 5>it just something that just happens it just genetically, or

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<v Speaker 5>do you understand I mean maybe all over the map

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<v Speaker 5>here a little bit. I'm sorry, I'm just trying to

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<v Speaker 5>get a better understanding.

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<v Speaker 7>No, no, you're not pedro. I think that's an excellent question.

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<v Speaker 7>But the thing is that with many of us, we

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<v Speaker 7>live like we don't think about long term consequences. Our

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<v Speaker 7>lives in all sorts of ways, sometimes less healthy than

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<v Speaker 7>we should. We smoke, we drink too much, we take

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<v Speaker 7>on too much stress, we don't sleep enough. We all

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<v Speaker 7>the things that we shouldn't necessarily be doing to that

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<v Speaker 7>degree we do. And then we get older and we

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<v Speaker 7>wonder why, you know, things aren't we don't have a

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<v Speaker 7>healthy old age. You know, we all want to live

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<v Speaker 7>till an old age. But it's more about living healthily

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<v Speaker 7>to an al Alzheimer's is. This is why it's so

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<v Speaker 7>important to get a diagnosis, because Alzheimer's is more prevalent

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<v Speaker 7>in females, and yes it's the number one cause of death,

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<v Speaker 7>although statistics are absolutely correct. However, vascular dementia has equal

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<v Speaker 7>male and female prevalence. A lot of people are like, well,

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<v Speaker 7>I'm not going to get it, you know. But Roslyn Carter,

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<v Speaker 7>the wife of the former American presidents, made a very

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<v Speaker 7>very profound quote, and she said, there's four types of

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<v Speaker 7>people in the world. Those that are careers, those that

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<v Speaker 7>will be careers, those that will need care, and the

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<v Speaker 7>fourth group is those that eventually will become careers. So

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<v Speaker 7>by twenty fifty, to add to Michelle's statistics, one in

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<v Speaker 7>two of us will fall into those one of those

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<v Speaker 7>four categories. See that dementia ourselves, which is accumulation of

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<v Speaker 7>lots of different life lifestyle factors, genetic factors. I must

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<v Speaker 7>say that we might have the gene, or a person

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<v Speaker 7>might have the gene, but it's our environment that pulls

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<v Speaker 7>the trigger. So not everybody that has the gene, which

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<v Speaker 7>is a Poe four for dementia, will go on to

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<v Speaker 7>develop dementia. And some people who don't have the gene,

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<v Speaker 7>if they've lived their lives in a very challenging, difficult

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<v Speaker 7>way for their brains, will go on to develop dementia

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<v Speaker 7>even if they haven't got the gene. So it's a

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<v Speaker 7>very very complex, very complicated picture, and you just need

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<v Speaker 7>to keep talking because right now we have no cure

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<v Speaker 7>for it.

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<v Speaker 3>Right, And you mentioned about diagnosis, I mean, is that

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<v Speaker 3>an easy you know, it's it easy for people to

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<v Speaker 3>get a diagnosis because obviously you know what happened. I

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<v Speaker 3>guess I'm saying I know myself from experience, but I

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<v Speaker 3>guess before my mum did have a diagnosis, I kind

403
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<v Speaker 3>of never really considered it. And as I reflect back,

404
00:23:06.839 --> 00:23:10.519
<v Speaker 3>looking back and looking at maybe behaviors that were presenting

405
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<v Speaker 3>or you know, things that were happening which I might

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<v Speaker 3>have kind of a sparse at the back of my

407
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<v Speaker 3>mind think well, actually that may seems a bit strange

408
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<v Speaker 3>or odd. I never really considered it. I never really

409
00:23:19.839 --> 00:23:22.640
<v Speaker 3>put two and two together. I really never really looked

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00:23:22.680 --> 00:23:25.680
<v Speaker 3>at it. But looking back, I probably think maybe the

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<v Speaker 3>signs were there and it might have been going on

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<v Speaker 3>for a good number of years before you know, finally

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00:23:31.079 --> 00:23:33.759
<v Speaker 3>went protests and everything like that. So you know, how

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<v Speaker 3>how does one kind of you know, get a diagnosism

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00:23:36.519 --> 00:23:37.960
<v Speaker 3>in what kind of things would you be looking for?

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<v Speaker 3>Because I guess as well, there are things that you

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<v Speaker 3>kind of sometimes we make assumptions about it being a senior,

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<v Speaker 3>it is a seniors, or you know, it's a natural

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<v Speaker 3>part of aging, that kind of thing, but you know,

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<v Speaker 3>it's probably not. But I think that's maybe where it

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<v Speaker 3>seems to be normalized as that's what it is, which

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<v Speaker 3>maybe is the kind of conception there.

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<v Speaker 7>Yes, and you're absolutely right, Angela, and I think that

424
00:24:05.720 --> 00:24:08.920
<v Speaker 7>that's the purpose or this will help as well to

425
00:24:09.160 --> 00:24:13.119
<v Speaker 7>dispelling some of those myths. If you don't talk about it,

426
00:24:13.480 --> 00:24:16.000
<v Speaker 7>you're not ever gonna think about it, you're not going

427
00:24:16.079 --> 00:24:19.960
<v Speaker 7>to ever know about it. And lots of communities don't

428
00:24:20.000 --> 00:24:24.400
<v Speaker 7>necessarily talk about certain things, which is fine, but when

429
00:24:24.640 --> 00:24:29.039
<v Speaker 7>it's become an epidemic, then everybody kind of needs to

430
00:24:29.079 --> 00:24:33.319
<v Speaker 7>sit up and like, oops, what's going on here? You

431
00:24:33.480 --> 00:24:36.680
<v Speaker 7>have to suspect it. And that's where that's the angle

432
00:24:36.759 --> 00:24:41.599
<v Speaker 7>I come from, because very often it's the caregivers who

433
00:24:42.839 --> 00:24:46.519
<v Speaker 7>think that, you know, something's wrong with mummy, she's not right,

434
00:24:47.200 --> 00:24:51.799
<v Speaker 7>because Mummy doesn't see herself as having a problem. So

435
00:24:51.920 --> 00:24:55.000
<v Speaker 7>it's the people around them, the people who live with them,

436
00:24:55.079 --> 00:24:58.440
<v Speaker 7>their loved ones, their families and friends, who notice it.

437
00:24:58.960 --> 00:25:01.720
<v Speaker 7>But if they don't raise it, or if they don't

438
00:25:02.000 --> 00:25:05.279
<v Speaker 7>encourage their loved one to go and see their doctors

439
00:25:05.400 --> 00:25:12.720
<v Speaker 7>for whatever their concerns are, Alzheimer's may present with memory loss,

440
00:25:13.319 --> 00:25:16.400
<v Speaker 7>where you know, they just say, oh, I haven't seen you,

441
00:25:16.440 --> 00:25:20.000
<v Speaker 7>but you were there the day before. Two minutes later

442
00:25:20.119 --> 00:25:22.759
<v Speaker 7>they say again, oh I haven't seen you, and you say, oh,

443
00:25:22.799 --> 00:25:26.119
<v Speaker 7>but I was here yesterday, and then they keep repeating it.

444
00:25:26.279 --> 00:25:30.559
<v Speaker 7>Then you know that, But then it's way down the line.

445
00:25:30.720 --> 00:25:34.559
<v Speaker 7>By time symptoms start showing, or by time they get

446
00:25:34.599 --> 00:25:37.599
<v Speaker 7>to that stage, the disease has been present at least

447
00:25:37.680 --> 00:25:41.839
<v Speaker 7>twenty years prior, you know, So, like you said, Angela,

448
00:25:41.960 --> 00:25:44.640
<v Speaker 7>you start thinking back and it's like, oh, okay, so

449
00:25:44.720 --> 00:25:47.640
<v Speaker 7>that's what that was all about. You know my mom

450
00:25:47.759 --> 00:25:52.279
<v Speaker 7>In the instance of my mom, hers was paranoia and

451
00:25:52.319 --> 00:25:55.599
<v Speaker 7>she was somebody who was as cool as a cucumber.

452
00:25:55.759 --> 00:25:59.519
<v Speaker 7>You know, nothing ever flapped her. She was completely chilled,

453
00:25:59.839 --> 00:26:02.839
<v Speaker 7>and all of a sudden she was suspicious about everything.

454
00:26:03.279 --> 00:26:06.440
<v Speaker 7>You know. If you'd say you'd hold her handbag, she'd

455
00:26:06.519 --> 00:26:09.680
<v Speaker 7>take it and should look if the money was still there,

456
00:26:09.759 --> 00:26:15.640
<v Speaker 7>you know, out of character. So looking for behavior changes

457
00:26:15.799 --> 00:26:20.240
<v Speaker 7>not necessarily memory loss, because it's only Alzheimer's that will

458
00:26:20.240 --> 00:26:25.359
<v Speaker 7>present initially with memory loss. Vascalate dementia and another very

459
00:26:25.400 --> 00:26:32.160
<v Speaker 7>common one, fronto temporal dementia that presents with really you

460
00:26:32.200 --> 00:26:36.519
<v Speaker 7>know kind of behavior like I don't like you, you know,

461
00:26:37.160 --> 00:26:41.079
<v Speaker 7>like your behavior, and you start being withdrawing from the

462
00:26:41.160 --> 00:26:46.119
<v Speaker 7>person rather than gravitating towards them to get them help.

463
00:26:46.839 --> 00:26:49.920
<v Speaker 7>But if you don't have a high index of suspicion,

464
00:26:50.039 --> 00:26:53.799
<v Speaker 7>if you've never heard about dementia, you're just going to say, oh,

465
00:26:53.920 --> 00:26:57.799
<v Speaker 7>this is old age, or he's going through a bad patch,

466
00:26:57.920 --> 00:27:00.960
<v Speaker 7>or she's not feeling very well, and then you have

467
00:27:01.000 --> 00:27:05.319
<v Speaker 7>all sorts of reasons why things are happening how they're happening.

468
00:27:05.799 --> 00:27:08.359
<v Speaker 7>But when that happens, if you go to your doctor,

469
00:27:08.680 --> 00:27:13.480
<v Speaker 7>it's very easy to get assessed, and initial assessments are done,

470
00:27:13.599 --> 00:27:16.400
<v Speaker 7>and it's very easy to be referred to memory clinics,

471
00:27:17.200 --> 00:27:21.799
<v Speaker 7>and it's really helpful to get diagnosed at those early stages.

472
00:27:22.160 --> 00:27:24.920
<v Speaker 7>A lot of people who are diagnosed in the early stages,

473
00:27:24.920 --> 00:27:29.400
<v Speaker 7>they're still working, they're still holding down full time jobs.

474
00:27:29.839 --> 00:27:33.160
<v Speaker 7>But if you don't say it, then comes to lights

475
00:27:33.160 --> 00:27:37.559
<v Speaker 7>in a crisis situation, right a question.

476
00:27:39.839 --> 00:27:44.519
<v Speaker 4>If pet my pressure would be and I know things different,

477
00:27:44.559 --> 00:27:49.119
<v Speaker 4>maybe you can talk as a practicing GP, but sometimes

478
00:27:49.160 --> 00:27:52.000
<v Speaker 4>when things are labeled or have we stepped away from that,

479
00:27:52.079 --> 00:27:54.839
<v Speaker 4>But sometimes when things are labeled as an old age

480
00:27:54.920 --> 00:27:58.119
<v Speaker 4>disease or disease that becomes more prevalent at a certain

481
00:27:58.160 --> 00:28:00.480
<v Speaker 4>age or at a certain time in your life, or

482
00:28:00.519 --> 00:28:05.839
<v Speaker 4>for certain for certain ethnic groups or whatever. When you

483
00:28:05.880 --> 00:28:08.119
<v Speaker 4>go to the GP and you say, you know what,

484
00:28:08.559 --> 00:28:10.599
<v Speaker 4>I'd like to be assessed or i'd like someone I

485
00:28:10.680 --> 00:28:13.359
<v Speaker 4>love to be assessed, is it well received or do

486
00:28:13.440 --> 00:28:15.680
<v Speaker 4>you have to be persistent? Do you have to meet

487
00:28:15.720 --> 00:28:20.799
<v Speaker 4>certain markers? How easy is it? Because you said it is,

488
00:28:21.359 --> 00:28:24.920
<v Speaker 4>But in my experience, and obviously it's not surrounding dementia.

489
00:28:25.480 --> 00:28:28.960
<v Speaker 4>But if I come to the doctor at twenty and say,

490
00:28:28.960 --> 00:28:31.400
<v Speaker 4>you know what, I've got heart problems. I feel like

491
00:28:31.480 --> 00:28:35.960
<v Speaker 4>I might be struggling with something that might be cardiovascular,

492
00:28:36.319 --> 00:28:39.319
<v Speaker 4>They'll say, well, you're too young for that, you know,

493
00:28:39.559 --> 00:28:42.359
<v Speaker 4>I don't. Let's rule other things out first. Or you

494
00:28:42.440 --> 00:28:45.160
<v Speaker 4>have to be very insistent and persistent to get the

495
00:28:45.240 --> 00:28:48.160
<v Speaker 4>help in a particular era. So if I'm young and

496
00:28:48.200 --> 00:28:49.920
<v Speaker 4>I come to the doctor and I say, you know what,

497
00:28:50.000 --> 00:28:53.319
<v Speaker 4>I want to be assessed for dementia or I don't

498
00:28:53.400 --> 00:28:57.400
<v Speaker 4>hit those markers in their mind, would they still push

499
00:28:57.480 --> 00:29:01.200
<v Speaker 4>me through or does or will we have to be

500
00:29:01.279 --> 00:29:03.400
<v Speaker 4>persistent and insistent on it.

501
00:29:04.480 --> 00:29:07.039
<v Speaker 7>The short answer is that they will push you through

502
00:29:07.599 --> 00:29:11.640
<v Speaker 7>and he doesn't want to get hauled up before the

503
00:29:11.759 --> 00:29:16.960
<v Speaker 7>General Medical Council will have an attitude of three strikes

504
00:29:17.000 --> 00:29:17.599
<v Speaker 7>and you're out.

505
00:29:17.960 --> 00:29:18.319
<v Speaker 4>Okay.

506
00:29:19.119 --> 00:29:22.839
<v Speaker 7>The first time you go to your GP and complain

507
00:29:23.200 --> 00:29:26.720
<v Speaker 7>you know what, I don't remember stuff, or my husband

508
00:29:26.880 --> 00:29:31.200
<v Speaker 7>is saying I'm acting strangely, or my children are saying

509
00:29:31.240 --> 00:29:35.000
<v Speaker 7>I'm getting very quarrelsome. The least that should be done

510
00:29:35.240 --> 00:29:38.440
<v Speaker 7>is your routine bloods because there's loads of things that

511
00:29:38.519 --> 00:29:44.759
<v Speaker 7>can mimic dementia, loads of conditions, which just fixing it

512
00:29:44.880 --> 00:29:48.240
<v Speaker 7>on a simple blood test and your writer's reign again.

513
00:29:48.680 --> 00:29:49.000
<v Speaker 4>Okay.

514
00:29:49.960 --> 00:29:53.759
<v Speaker 7>People don't even get to that stage. You know, they

515
00:29:54.359 --> 00:29:58.240
<v Speaker 7>for it, or they ignore the advice, or they just say, oh,

516
00:29:58.359 --> 00:30:02.400
<v Speaker 7>my family don't want me or for whatever reason. You know,

517
00:30:03.039 --> 00:30:06.119
<v Speaker 7>it gets a little bit uncomfortable to go to the adoptors.

518
00:30:06.519 --> 00:30:09.359
<v Speaker 7>But not everybody does that. Some people are very open

519
00:30:09.400 --> 00:30:14.519
<v Speaker 7>about it, especially when they've had experience of it personally

520
00:30:14.759 --> 00:30:18.759
<v Speaker 7>or through friends or other family members, and then you

521
00:30:18.799 --> 00:30:22.240
<v Speaker 7>know they're like, hmm, I saw Auntie Eva a few

522
00:30:22.319 --> 00:30:27.240
<v Speaker 7>years ago. I remember when my mom started showing symptoms.

523
00:30:28.319 --> 00:30:30.519
<v Speaker 7>I said to my dad, do you think mommy is

524
00:30:30.519 --> 00:30:34.160
<v Speaker 7>becoming like ma'am mind you. I thought my grandma's was

525
00:30:34.359 --> 00:30:37.640
<v Speaker 7>old age, because that's what I knew then. And my

526
00:30:37.720 --> 00:30:39.440
<v Speaker 7>dad said, oh no, no, no, no, no, no, no no,

527
00:30:39.519 --> 00:30:42.759
<v Speaker 7>And I believed him because you want to believe, you know,

528
00:30:42.920 --> 00:30:46.119
<v Speaker 7>that there's nothing wrong. But after a while I thought,

529
00:30:46.720 --> 00:30:49.839
<v Speaker 7>this is not there's something wrong here. There's something wrong

530
00:30:49.920 --> 00:30:52.680
<v Speaker 7>and you know so. But then it was still a

531
00:30:52.680 --> 00:30:56.519
<v Speaker 7>bit of a struggle with my siblings. Oh, nothing's wrong

532
00:30:56.559 --> 00:31:00.319
<v Speaker 7>with mommy. Nothing's wrong with mommy, And they say, hey, guys,

533
00:31:00.559 --> 00:31:05.079
<v Speaker 7>this is more than just whatever she's complaining about, you know,

534
00:31:05.200 --> 00:31:08.920
<v Speaker 7>because hers was paranoia. You don't trust the helpers in

535
00:31:08.960 --> 00:31:11.000
<v Speaker 7>the house. You can't, you know, that kind of thing.

536
00:31:11.079 --> 00:31:15.079
<v Speaker 7>And you still want to hope that there is nothing wrong,

537
00:31:15.440 --> 00:31:17.200
<v Speaker 7>but there's no harm in checking.

538
00:31:19.000 --> 00:31:19.960
<v Speaker 2>That's gonna be my question.

539
00:31:21.680 --> 00:31:24.960
<v Speaker 5>I have a friend whose mother is over ninety and

540
00:31:25.000 --> 00:31:27.200
<v Speaker 5>she's a sweet lady, and she's showing signs. But when

541
00:31:27.240 --> 00:31:30.079
<v Speaker 5>she when they went to the GP, they said that

542
00:31:30.160 --> 00:31:32.359
<v Speaker 5>she didn't have any that she wasn't showing any signs

543
00:31:32.359 --> 00:31:35.640
<v Speaker 5>of it. But she's showing the markers of like forgetfulness,

544
00:31:35.680 --> 00:31:40.200
<v Speaker 5>and you know, and some of the things that you

545
00:31:40.319 --> 00:31:42.640
<v Speaker 5>just said. You know, so what do they do because

546
00:31:42.640 --> 00:31:47.359
<v Speaker 5>they're like, they're she the mother daughter really thinks that

547
00:31:47.440 --> 00:31:50.759
<v Speaker 5>she may have something going on, but the GPS saying,

548
00:31:50.880 --> 00:31:53.000
<v Speaker 5>oh no, there's nothing. We tested her and she didn't

549
00:31:53.000 --> 00:31:53.720
<v Speaker 5>meet the markers.

550
00:31:55.160 --> 00:32:00.480
<v Speaker 7>Ask to be referred to a memory clinic. Okay, I

551
00:32:00.559 --> 00:32:03.039
<v Speaker 7>have palpitations. I don't know what it is. You do

552
00:32:03.079 --> 00:32:06.960
<v Speaker 7>all the tests and everything seems fine, but they're still complaining.

553
00:32:07.079 --> 00:32:08.720
<v Speaker 7>You're not going to sit there and let them have

554
00:32:08.759 --> 00:32:09.720
<v Speaker 7>a heart attack on you.

555
00:32:10.200 --> 00:32:11.680
<v Speaker 2>Yeah, you're right, you're right, you're right.

556
00:32:11.920 --> 00:32:16.079
<v Speaker 7>I'm just say, you know what, let's ask the cardiologists

557
00:32:16.079 --> 00:32:18.519
<v Speaker 7>to see you and see what's going on. You know,

558
00:32:18.720 --> 00:32:22.759
<v Speaker 7>so you keep saying three strikes, you're still complaining it

559
00:32:22.839 --> 00:32:26.839
<v Speaker 7>might not be anything. And then at least you can say, look,

560
00:32:26.880 --> 00:32:31.519
<v Speaker 7>we've done ABCD. Whatever are the investments. Mind you, a

561
00:32:31.559 --> 00:32:35.480
<v Speaker 7>lot of the newer investigations are still in sort of

562
00:32:35.519 --> 00:32:39.079
<v Speaker 7>experimental stages. So there's a lot on the news, but

563
00:32:39.279 --> 00:32:45.519
<v Speaker 7>it's not available in primary care. So I don't hope

564
00:32:45.559 --> 00:32:45.799
<v Speaker 7>for that.

565
00:32:46.319 --> 00:32:48.759
<v Speaker 5>You know that, Well, no, this is not this is

566
00:32:48.799 --> 00:32:51.319
<v Speaker 5>not in the UK. This is somebody there's in another country.

567
00:32:51.839 --> 00:32:54.680
<v Speaker 5>So is even a little bit different in terms of healthcare.

568
00:32:55.279 --> 00:32:57.359
<v Speaker 5>So is that in the UK? So I just want

569
00:32:57.400 --> 00:32:58.319
<v Speaker 5>to point that out.

570
00:33:00.240 --> 00:33:00.839
<v Speaker 7>Keep asking.

571
00:33:01.519 --> 00:33:05.000
<v Speaker 6>Yeah, I think to follow on actually from what Ammonia saying,

572
00:33:06.759 --> 00:33:10.200
<v Speaker 6>I was having some longtime concerns about my own mum.

573
00:33:10.319 --> 00:33:15.319
<v Speaker 6>You know, she'd start sentences and stop midway. She couldn't

574
00:33:15.400 --> 00:33:20.599
<v Speaker 6>finish them, changing mood and behavior, sleep problems, even she

575
00:33:20.759 --> 00:33:25.039
<v Speaker 6>just wasn't sleeping very much, you know. And I actually

576
00:33:25.079 --> 00:33:29.119
<v Speaker 6>got her referred to a memory clinic. I think I

577
00:33:29.279 --> 00:33:32.920
<v Speaker 6>waited about probably four months, four or five months before

578
00:33:32.960 --> 00:33:35.920
<v Speaker 6>I got an appointment. When I speak to other people

579
00:33:35.920 --> 00:33:40.799
<v Speaker 6>that I know whose parents have dementia, they waited considerably longer.

580
00:33:41.359 --> 00:33:44.039
<v Speaker 6>So I guess maybe it depends on what bur are

581
00:33:44.119 --> 00:33:49.039
<v Speaker 6>you living. I don't know. But somebody came to the home,

582
00:33:49.119 --> 00:33:51.559
<v Speaker 6>my mum's home and did the test with her in

583
00:33:51.599 --> 00:33:54.759
<v Speaker 6>her home. Now I must admit mum was a little

584
00:33:54.759 --> 00:33:57.599
<v Speaker 6>bit frustrated. It took about a good hour and a

585
00:33:57.640 --> 00:34:01.440
<v Speaker 6>half to two hours to get her tested, you know,

586
00:34:01.599 --> 00:34:04.079
<v Speaker 6>and she was just so fed up and exhausted by

587
00:34:04.119 --> 00:34:08.960
<v Speaker 6>the end of it, you know, And unfortunately she really

588
00:34:09.079 --> 00:34:13.000
<v Speaker 6>wasn't understanding some of the questions they were asking her,

589
00:34:13.639 --> 00:34:16.320
<v Speaker 6>and that made it difficult as well. And they were

590
00:34:16.400 --> 00:34:21.519
<v Speaker 6>asking her to do little activities like trace around an image,

591
00:34:21.559 --> 00:34:26.639
<v Speaker 6>for example, and she didn't understand what you know, and

592
00:34:26.679 --> 00:34:31.280
<v Speaker 6>they were asking her questions that she really couldn't understand.

593
00:34:31.360 --> 00:34:35.239
<v Speaker 6>And then it made me think, Hm, how cultural specific

594
00:34:35.480 --> 00:34:40.880
<v Speaker 6>is this? You know, this memory test? How cultural specific

595
00:34:41.039 --> 00:34:43.400
<v Speaker 6>is it? And then at the end of it, Mum

596
00:34:43.440 --> 00:34:45.880
<v Speaker 6>looked at me and she held my hand and she said,

597
00:34:46.400 --> 00:34:49.920
<v Speaker 6>I'm sorry, Michelle, And I said, Mom, what are you

598
00:34:50.000 --> 00:34:53.039
<v Speaker 6>sorry about? She said, I know I've let you down,

599
00:34:53.199 --> 00:34:56.039
<v Speaker 6>haven't tied? And I said, no, no, no, you haven't

600
00:34:56.119 --> 00:34:59.599
<v Speaker 6>let me down. She was just so frustrated by the

601
00:34:59.679 --> 00:35:02.159
<v Speaker 6>end of you know, and she couldn't wait for the

602
00:35:02.280 --> 00:35:06.280
<v Speaker 6>lady to go. And then a couple of weeks after

603
00:35:06.320 --> 00:35:11.920
<v Speaker 6>we got the diagnosis that is Alzheimer's. But on talking

604
00:35:11.920 --> 00:35:15.599
<v Speaker 6>to other people, I know they actually had a brain

605
00:35:15.639 --> 00:35:20.400
<v Speaker 6>scan an MRI scan as a way of diagnosing, and

606
00:35:20.800 --> 00:35:24.360
<v Speaker 6>Mom didn't have a brain scan, so I'm not really

607
00:35:24.400 --> 00:35:27.639
<v Speaker 6>sure whether she has Alzheimer's or whether it is another

608
00:35:27.719 --> 00:35:31.000
<v Speaker 6>type of dementia. I don't know, ammonia. Should she have

609
00:35:31.119 --> 00:35:36.920
<v Speaker 6>had a brain scan on top of the memory clinic diagnosis.

610
00:35:37.360 --> 00:35:40.599
<v Speaker 7>You talking about an ideal world or the real world.

611
00:35:43.079 --> 00:35:46.119
<v Speaker 7>I used to work in a very affluent part of

612
00:35:46.199 --> 00:35:50.800
<v Speaker 7>the UK, and I think I got spoilt working there

613
00:35:50.920 --> 00:35:54.039
<v Speaker 7>because everything was you just had to think about it

614
00:35:54.239 --> 00:35:56.760
<v Speaker 7>and you got it. You just had to fill in

615
00:35:56.800 --> 00:36:00.199
<v Speaker 7>a form and within a week the patient got what

616
00:36:00.280 --> 00:36:04.559
<v Speaker 7>you requested. You know, Michelle, I work in a more

617
00:36:05.000 --> 00:36:09.880
<v Speaker 7>urban area now, and you know, some patients look at

618
00:36:09.920 --> 00:36:14.559
<v Speaker 7>you and you look at them and what can you do?

619
00:36:14.599 --> 00:36:19.159
<v Speaker 7>You know, But there's lots of would I say, tricks

620
00:36:19.159 --> 00:36:23.039
<v Speaker 7>of the trade. And if somebody has got high blood

621
00:36:23.119 --> 00:36:27.760
<v Speaker 7>pressure and over the years it's not necessarily well controlled,

622
00:36:28.239 --> 00:36:35.960
<v Speaker 7>and somebody's got diabetes and it's been average control, not fantastic,

623
00:36:36.719 --> 00:36:40.360
<v Speaker 7>then you're kind of thinking along the lines of could

624
00:36:40.400 --> 00:36:45.679
<v Speaker 7>this be vascular dementia? If obviously we're talking about dementia.

625
00:36:46.519 --> 00:36:52.639
<v Speaker 7>If somebody's seventy plus eighty and have only just started

626
00:36:52.760 --> 00:36:56.559
<v Speaker 7>forgetting to turn the hob off or keep calling their

627
00:36:56.639 --> 00:37:00.199
<v Speaker 7>children several times a day asking the same question uestion,

628
00:37:00.800 --> 00:37:05.039
<v Speaker 7>then you're thinking, okay, could this be Alzheimer's? And when

629
00:37:05.039 --> 00:37:08.719
<v Speaker 7>you're having somebody who's younger than sixty five, which then

630
00:37:08.760 --> 00:37:12.079
<v Speaker 7>you're thinking early on set. But it brings us back

631
00:37:12.119 --> 00:37:16.039
<v Speaker 7>to the point of if you don't suspect something, you're

632
00:37:16.039 --> 00:37:19.920
<v Speaker 7>not going to look for it. You know, it always

633
00:37:20.000 --> 00:37:22.280
<v Speaker 7>has to be at the back of your mind. To

634
00:37:22.360 --> 00:37:27.199
<v Speaker 7>a large extent, a brain scan is not one hundred

635
00:37:27.239 --> 00:37:31.880
<v Speaker 7>percent necessary in all cases, and a lot of people

636
00:37:32.039 --> 00:37:37.639
<v Speaker 7>present in a bit of a crisis situation. Unfortunately, when

637
00:37:37.679 --> 00:37:41.400
<v Speaker 7>it's more useful, it's when you have, say, fifty five

638
00:37:41.519 --> 00:37:47.320
<v Speaker 7>year old chief executive who you know just doesn't hoping

639
00:37:47.679 --> 00:37:50.320
<v Speaker 7>that well anymore, and you're thinking, what's going on here?

640
00:37:50.440 --> 00:37:53.039
<v Speaker 7>You know it's not very clear, But when it's been

641
00:37:53.079 --> 00:37:56.079
<v Speaker 7>going on for quite a while and they turn up,

642
00:37:56.320 --> 00:38:00.800
<v Speaker 7>you know, after several years, then it's pretty obvious. You

643
00:38:00.800 --> 00:38:03.920
<v Speaker 7>know what's going on, and you know you don't want

644
00:38:03.960 --> 00:38:10.400
<v Speaker 7>to go through too many invasive investigations. Luckily, we're getting

645
00:38:10.480 --> 00:38:15.960
<v Speaker 7>bio markers. It's not quite out yet, but previously the

646
00:38:16.119 --> 00:38:20.320
<v Speaker 7>dementias and Alzheimer's would be a diagnosis of exclusion. But

647
00:38:20.519 --> 00:38:24.360
<v Speaker 7>now with the when the bio markers really come on board,

648
00:38:24.440 --> 00:38:27.360
<v Speaker 7>it would be as simple blood tests the same as

649
00:38:27.400 --> 00:38:30.360
<v Speaker 7>your kidney function and your liver function and your full

650
00:38:30.400 --> 00:38:33.960
<v Speaker 7>blood count, which would be fantastic but you know that's

651
00:38:34.079 --> 00:38:36.559
<v Speaker 7>not quite We're not quite there yet. We don't have

652
00:38:36.679 --> 00:38:40.280
<v Speaker 7>it out in primary care. So you know, there's lots

653
00:38:40.280 --> 00:38:43.400
<v Speaker 7>of work going on. But I think the most important

654
00:38:43.400 --> 00:38:47.079
<v Speaker 7>thing is that everybody you know, me inclusive. I thought

655
00:38:47.119 --> 00:38:49.239
<v Speaker 7>it was old age at one point, you know. So

656
00:38:49.360 --> 00:38:52.239
<v Speaker 7>we just have to keep educating ourselves as much as

657
00:38:52.280 --> 00:38:52.960
<v Speaker 7>we can.

658
00:38:55.159 --> 00:38:59.360
<v Speaker 3>Cool So with that in mind, Ammonia, you mentioned that

659
00:38:59.440 --> 00:39:03.639
<v Speaker 3>you have conducted some research. Tell you a little bit

660
00:39:03.679 --> 00:39:06.639
<v Speaker 3>about the area that you were looking at and kind

661
00:39:06.679 --> 00:39:09.199
<v Speaker 3>of what's more of your findings were from that.

662
00:39:11.880 --> 00:39:16.239
<v Speaker 7>Thank you for your interest. My research was looking at,

663
00:39:18.480 --> 00:39:21.800
<v Speaker 7>I suppose a little bit of a contentious area, and

664
00:39:21.960 --> 00:39:27.440
<v Speaker 7>I was looking specifically at Black Africans in the UK, because,

665
00:39:27.760 --> 00:39:32.920
<v Speaker 7>as we all know, there's a big umbrella label, just

666
00:39:32.960 --> 00:39:36.639
<v Speaker 7>like dementia, we have a big umbrella label of bame,

667
00:39:36.800 --> 00:39:41.840
<v Speaker 7>bame and under bame. You've got the Caribbeans, You've got

668
00:39:41.840 --> 00:39:45.639
<v Speaker 7>the Africans, you've got the Sri Lankans, you've got the Irish,

669
00:39:45.719 --> 00:39:48.920
<v Speaker 7>you've got the Japanese, you've got the Chinese, and we're

670
00:39:48.960 --> 00:39:53.320
<v Speaker 7>all supposed to be one homogeneous group. I'm not saying

671
00:39:53.320 --> 00:39:56.920
<v Speaker 7>Black Africa is one homogeneous group. But it kind of

672
00:39:57.039 --> 00:40:01.400
<v Speaker 7>narrows it down a little bit. I think the cultural

673
00:40:01.519 --> 00:40:05.519
<v Speaker 7>aspect is so important, you know, like Michelle said, you

674
00:40:05.599 --> 00:40:10.840
<v Speaker 7>cannot assess somebody out of their culture because it's not

675
00:40:10.880 --> 00:40:13.960
<v Speaker 7>going to make sense to them. I know one of

676
00:40:14.000 --> 00:40:17.920
<v Speaker 7>my participants, her mother had a kind of dementia which

677
00:40:18.000 --> 00:40:21.119
<v Speaker 7>is called fronto temporal dementia, and that tends to be

678
00:40:21.199 --> 00:40:24.559
<v Speaker 7>quite common in the younger age group that's less than

679
00:40:24.599 --> 00:40:31.239
<v Speaker 7>sixty five. And they were asking her questions about who's

680
00:40:31.280 --> 00:40:34.559
<v Speaker 7>the Queen of England, and she was, what's my business

681
00:40:34.599 --> 00:40:37.239
<v Speaker 7>with the Queen of England. You know, it doesn't mean

682
00:40:37.320 --> 00:40:40.480
<v Speaker 7>that she has dementia because she doesn't know. We know

683
00:40:40.639 --> 00:40:43.199
<v Speaker 7>that a lot of times is the short term memory

684
00:40:43.239 --> 00:40:47.599
<v Speaker 7>that goes first and the longer term memory is there,

685
00:40:47.719 --> 00:40:52.599
<v Speaker 7>so these people regress, So you know, I have to

686
00:40:52.639 --> 00:40:55.559
<v Speaker 7>put it in context of the culture. Maybe at that

687
00:40:55.760 --> 00:40:58.639
<v Speaker 7>stage it would have been useful to ask us something

688
00:40:58.719 --> 00:41:03.559
<v Speaker 7>related to her culture in the past, and you could

689
00:41:03.559 --> 00:41:08.079
<v Speaker 7>assess a little bit more strategically that way. But I

690
00:41:08.119 --> 00:41:12.519
<v Speaker 7>was looking at caregivers of people with dementia because they've

691
00:41:12.519 --> 00:41:20.880
<v Speaker 7>got triple whammy, quadruple whammy, the black ethnicity. Their caregivers

692
00:41:21.039 --> 00:41:24.320
<v Speaker 7>and the fact that they're black ethnicity, their migrants in

693
00:41:24.400 --> 00:41:30.760
<v Speaker 7>the UK permation, second generation migrants. And I was coming

694
00:41:30.800 --> 00:41:34.079
<v Speaker 7>at it from the point of intersectionality, and what that

695
00:41:34.360 --> 00:41:38.079
<v Speaker 7>is is the challenges that they face is not because

696
00:41:38.119 --> 00:41:41.480
<v Speaker 7>they're black, or it's not because they're females, and it's

697
00:41:41.519 --> 00:41:46.440
<v Speaker 7>not because they're migrants. It's a combination of everything. Lots

698
00:41:46.440 --> 00:41:50.960
<v Speaker 7>of things chipping away at them and they become unwell,

699
00:41:51.239 --> 00:41:54.360
<v Speaker 7>they have to look after their loved ones and it

700
00:41:54.559 --> 00:42:00.719
<v Speaker 7>just dementia caregivers we know are second patients. Everybody who

701
00:42:00.760 --> 00:42:04.199
<v Speaker 7>has dementia, you've got another patient who's looking after them.

702
00:42:04.880 --> 00:42:08.079
<v Speaker 7>And if one in two people are going to get

703
00:42:08.280 --> 00:42:11.159
<v Speaker 7>this disease or be a care of by twenty fifty,

704
00:42:11.599 --> 00:42:14.599
<v Speaker 7>then it kind of works out that the entire population

705
00:42:14.760 --> 00:42:17.280
<v Speaker 7>is going to be in trouble one way or the other.

706
00:42:18.039 --> 00:42:21.280
<v Speaker 7>And what did I find that, Yes, we need to

707
00:42:21.360 --> 00:42:25.800
<v Speaker 7>look at individuals in the context of their culture, in

708
00:42:25.840 --> 00:42:29.559
<v Speaker 7>the context of their background, which is a very very

709
00:42:29.559 --> 00:42:33.119
<v Speaker 7>big ask for the government. But at least we know

710
00:42:33.719 --> 00:42:36.280
<v Speaker 7>and then we can start chipping at it bit by

711
00:42:36.360 --> 00:42:40.519
<v Speaker 7>bits in different ways, even like this forum as well.

712
00:42:42.119 --> 00:42:44.159
<v Speaker 3>Cool. Oh no, that sounds really interesting. It's really interesting

713
00:42:44.199 --> 00:42:46.039
<v Speaker 3>as you were saying, I mean, the stats are quite

714
00:42:46.079 --> 00:42:50.000
<v Speaker 3>alarming in terms of you know, you'll either be somebody

715
00:42:50.000 --> 00:42:53.000
<v Speaker 3>who is living with the disease or you'll be caring

716
00:42:53.000 --> 00:42:55.199
<v Speaker 3>for somebody. And again, you know, if you've got no

717
00:42:55.360 --> 00:42:57.920
<v Speaker 3>idea about it, then you know, how are you going

718
00:42:57.960 --> 00:43:00.639
<v Speaker 3>to be able to support that. So we're going to

719
00:43:00.679 --> 00:43:03.280
<v Speaker 3>take a quick pause there, play some music, and then

720
00:43:03.280 --> 00:43:04.800
<v Speaker 3>we're gonna come back and talk a little bit more

721
00:43:04.840 --> 00:43:07.199
<v Speaker 3>about the idea of of you know, you mentioned about

722
00:43:07.199 --> 00:43:10.760
<v Speaker 3>caregivers and actually how we can support them in a

723
00:43:10.800 --> 00:43:14.079
<v Speaker 3>much better way to support those who are living with

724
00:43:14.440 --> 00:43:17.599
<v Speaker 3>dementia Alzheimer's. So you're gonna pause for a piece of

725
00:43:17.679 --> 00:43:18.519
<v Speaker 3>music here.

726
00:43:33.199 --> 00:43:33.280
<v Speaker 7>No.

727
00:43:39.199 --> 00:43:48.320
<v Speaker 1>Worldhand you willian that you're bresent.

728
00:43:48.719 --> 00:44:06.320
<v Speaker 8>Now in your bit, we homely, bite, plan out.

729
00:44:10.760 --> 00:44:49.840
<v Speaker 9>And worship, pray cham two birds worship weirdy how the mad.

730
00:44:58.800 --> 00:45:10.679
<v Speaker 1>Let's pray and worship the worship.

731
00:45:15.079 --> 00:45:19.960
<v Speaker 8>Let it turn into his game.

732
00:45:20.880 --> 00:45:30.719
<v Speaker 10>It can gave him that he fadly to be play

733
00:45:32.079 --> 00:46:17.559
<v Speaker 10>and we will lend his holy shame to fame.

734
00:48:28.519 --> 00:48:32.559
<v Speaker 3>Okay, so we're back here with talking points, and as usual,

735
00:48:32.639 --> 00:48:36.239
<v Speaker 3>we're having a really great conversation about a really important topic.

736
00:48:37.000 --> 00:48:41.119
<v Speaker 3>It's word Alzheimer's Day today, and we have our guests

737
00:48:41.159 --> 00:48:43.880
<v Speaker 3>on us who are talking about their experiences and their

738
00:48:44.320 --> 00:48:47.880
<v Speaker 3>insights into the world of dementia as it were, and Alzheimer's.

739
00:48:48.400 --> 00:48:51.920
<v Speaker 3>We've got Michelle Guthrie who is a counselor has her

740
00:48:51.960 --> 00:48:54.679
<v Speaker 3>own experience that with her mother. And we have doctor

741
00:48:54.800 --> 00:49:00.760
<v Speaker 3>Amonia Gasper who as a general practitioner obviously those who

742
00:49:00.920 --> 00:49:04.280
<v Speaker 3>are living with dementia, but as also conducting research and

743
00:49:04.400 --> 00:49:10.960
<v Speaker 3>we were just talking about her research into i suppose,

744
00:49:10.960 --> 00:49:14.920
<v Speaker 3>the same community you mentioned, but also the role of

745
00:49:14.960 --> 00:49:19.639
<v Speaker 3>the caregiver and the impacts on there. So it's interesting

746
00:49:19.679 --> 00:49:21.559
<v Speaker 3>as we're going to you know, we're talking about and

747
00:49:21.760 --> 00:49:25.440
<v Speaker 3>you said something just before there that when somebody has

748
00:49:25.480 --> 00:49:27.800
<v Speaker 3>the diagnos of dementia and living with that, there are

749
00:49:27.840 --> 00:49:30.559
<v Speaker 3>potentially two patients in a sense of the one person

750
00:49:30.599 --> 00:49:32.880
<v Speaker 3>who is living with the disease and those who are

751
00:49:32.920 --> 00:49:36.679
<v Speaker 3>caring for them and don't know. Just as we were

752
00:49:36.760 --> 00:49:38.920
<v Speaker 3>kind of as we're behind the music there, you know,

753
00:49:39.039 --> 00:49:43.199
<v Speaker 3>talking about actually the impact of that and impact on

754
00:49:43.400 --> 00:49:50.519
<v Speaker 3>the loved one, the partner, the mother, the daughter, et cetera. So,

755
00:49:51.079 --> 00:49:52.840
<v Speaker 3>and this is I guess, Michelle, where you come in

756
00:49:52.840 --> 00:49:55.920
<v Speaker 3>in terms of your work as a therapist.

757
00:49:57.440 --> 00:49:57.760
<v Speaker 7>I guess.

758
00:49:58.559 --> 00:50:01.119
<v Speaker 3>I guess first though, to ask bess both of your

759
00:50:01.239 --> 00:50:05.079
<v Speaker 3>kind of experience and you know, what, what is the

760
00:50:05.199 --> 00:50:08.480
<v Speaker 3>impact for those who are caring for those who are

761
00:50:08.480 --> 00:50:10.400
<v Speaker 3>living with Alzheimer's.

762
00:50:14.239 --> 00:50:18.800
<v Speaker 6>No, it's very difficult. It can impact your life in

763
00:50:19.000 --> 00:50:26.000
<v Speaker 6>so many different ways. I think as caregivers we struggle

764
00:50:26.039 --> 00:50:30.159
<v Speaker 6>a lot. We get caught up in a feeling of

765
00:50:30.320 --> 00:50:34.880
<v Speaker 6>guilt sometimes well not sometimes a lot of times resentment

766
00:50:35.159 --> 00:50:38.480
<v Speaker 6>can set in, you know, because you're not able to

767
00:50:38.559 --> 00:50:41.159
<v Speaker 6>spend time with your own family if you've got family,

768
00:50:41.360 --> 00:50:44.840
<v Speaker 6>because you're so busy caught up worrying about your mum

769
00:50:45.000 --> 00:50:48.000
<v Speaker 6>or your dad, whoever you're taking care of, So that

770
00:50:48.199 --> 00:50:53.800
<v Speaker 6>becomes difficult. And then you're caught up in other struggles

771
00:50:54.039 --> 00:50:56.960
<v Speaker 6>like what do I do? Do I keep my parents

772
00:50:57.039 --> 00:50:59.599
<v Speaker 6>at home? Do I put them in a care home?

773
00:50:59.800 --> 00:51:01.960
<v Speaker 6>And there's all of that going on in your mind,

774
00:51:02.079 --> 00:51:04.719
<v Speaker 6>you know, dealing with that, the impact on all of that,

775
00:51:05.840 --> 00:51:10.119
<v Speaker 6>And then you've got costs because supporting and caring for

776
00:51:10.239 --> 00:51:16.840
<v Speaker 6>someone with dementia is very very costly. For them to

777
00:51:16.960 --> 00:51:21.360
<v Speaker 6>go in a care home, you're probably looking at minimum

778
00:51:21.639 --> 00:51:26.760
<v Speaker 6>one thousand pounds a week easily to one thousand to

779
00:51:26.880 --> 00:51:31.199
<v Speaker 6>two thousand on average per week, which you know, you

780
00:51:31.320 --> 00:51:35.519
<v Speaker 6>do the maths, it's like eight thousand pounds what six

781
00:51:35.599 --> 00:51:39.000
<v Speaker 6>to eight thousand pounds a month? Who's got that kind

782
00:51:39.039 --> 00:51:43.840
<v Speaker 6>of money readily available? If you keep your loved ones

783
00:51:43.960 --> 00:51:49.000
<v Speaker 6>at home, it's who's going to be there to look

784
00:51:49.079 --> 00:51:52.039
<v Speaker 6>after them? You know, if you're having to go to work,

785
00:51:52.880 --> 00:51:55.760
<v Speaker 6>you can't. You may not necessarily be around to support

786
00:51:55.800 --> 00:51:59.320
<v Speaker 6>your loved ones. So the other option there could be

787
00:51:59.519 --> 00:52:02.280
<v Speaker 6>the possible ability of having a living care come in

788
00:52:03.119 --> 00:52:06.440
<v Speaker 6>to look after your loved ones, but again that's very

789
00:52:06.639 --> 00:52:09.719
<v Speaker 6>very expensive, and if you go to these care agencies

790
00:52:10.440 --> 00:52:13.920
<v Speaker 6>sometimes you meet problems even in that respect because you're

791
00:52:13.960 --> 00:52:17.679
<v Speaker 6>not necessarily going to get the best care of and

792
00:52:17.880 --> 00:52:20.519
<v Speaker 6>not all careers are that good and have your your

793
00:52:20.679 --> 00:52:24.679
<v Speaker 6>parents' interest at heart. And I'm talking from personal experience.

794
00:52:24.920 --> 00:52:28.360
<v Speaker 6>You know, I've been through so many different care agencies,

795
00:52:28.559 --> 00:52:31.559
<v Speaker 6>and We've had so many different cares in and I've

796
00:52:31.639 --> 00:52:35.079
<v Speaker 6>had to sack the whole lot of them, honestly, and

797
00:52:35.519 --> 00:52:38.679
<v Speaker 6>it's been heartbreaking for me, and it's been very very

798
00:52:38.760 --> 00:52:41.840
<v Speaker 6>difficult for mum because you know, at the end of

799
00:52:41.920 --> 00:52:45.639
<v Speaker 6>the day, I do admit, nobody can look after your

800
00:52:45.719 --> 00:52:49.599
<v Speaker 6>loved ones in the way that you can. But at

801
00:52:49.679 --> 00:52:53.480
<v Speaker 6>the same token, what do you do? So it becomes

802
00:52:53.679 --> 00:52:58.679
<v Speaker 6>very difficult. And fortunately for me in my situation that

803
00:52:58.840 --> 00:53:03.800
<v Speaker 6>I mean, now we've recently got a family member who's

804
00:53:03.960 --> 00:53:07.719
<v Speaker 6>available and she is now taking care of Mom with

805
00:53:07.920 --> 00:53:14.480
<v Speaker 6>her sister, and that's going remarkably well, thank god. But

806
00:53:14.719 --> 00:53:18.679
<v Speaker 6>prior to that, it was it was just horrible. It

807
00:53:18.840 --> 00:53:23.159
<v Speaker 6>was horrible. And you know, when you're paying out all

808
00:53:23.239 --> 00:53:27.400
<v Speaker 6>this money every week or every month, you expect a

809
00:53:27.519 --> 00:53:31.000
<v Speaker 6>certain level of care, but a lot of people just

810
00:53:31.239 --> 00:53:33.519
<v Speaker 6>haven't got it in them, and you wonder why their

811
00:53:33.599 --> 00:53:37.760
<v Speaker 6>care is in the first place, you know, So I

812
00:53:37.960 --> 00:53:39.360
<v Speaker 6>was having to deal with all of that.

813
00:53:41.239 --> 00:53:43.440
<v Speaker 2>I have a question with that question. I'm sorry, is

814
00:53:43.519 --> 00:53:44.760
<v Speaker 2>there is there a help.

815
00:53:46.239 --> 00:53:48.480
<v Speaker 5>From the government or there's like because I know, like

816
00:53:48.519 --> 00:53:50.039
<v Speaker 5>as a care they don't give you that much if

817
00:53:50.079 --> 00:53:51.400
<v Speaker 5>you're a care they don't give you that much a

818
00:53:51.480 --> 00:53:55.000
<v Speaker 5>month to be a carer, right, a really small amount.

819
00:53:55.679 --> 00:53:59.280
<v Speaker 6>Well, here's the here's the thing, petro Okay, it's all

820
00:53:59.519 --> 00:54:03.679
<v Speaker 6>around finances, as you can appreciate. So if you have

821
00:54:03.960 --> 00:54:07.360
<v Speaker 6>I think the figure is twenty three two hundred and

822
00:54:07.519 --> 00:54:11.199
<v Speaker 6>fifty pounds in savings. Your mum or your dad, or

823
00:54:11.239 --> 00:54:15.760
<v Speaker 6>whoever you're caring from, you have to fund all the

824
00:54:15.840 --> 00:54:21.280
<v Speaker 6>care yourself. If you have less than that, you then

825
00:54:21.440 --> 00:54:24.760
<v Speaker 6>have to go through what's called in the financial assessment

826
00:54:25.400 --> 00:54:30.000
<v Speaker 6>through your local council and they ask you a million

827
00:54:30.079 --> 00:54:34.360
<v Speaker 6>and one questions and even then you're not guaranteed to

828
00:54:34.480 --> 00:54:38.320
<v Speaker 6>be successful with that, or if you are, they refer

829
00:54:38.519 --> 00:54:42.320
<v Speaker 6>you to specific agencies that they have on their books

830
00:54:42.719 --> 00:54:46.800
<v Speaker 6>and you have to take the cares from that particular agency,

831
00:54:47.119 --> 00:54:50.719
<v Speaker 6>which may not necessarily be the best care for your

832
00:54:50.880 --> 00:54:54.480
<v Speaker 6>parents or your loved one. And on top of that,

833
00:54:55.119 --> 00:54:58.920
<v Speaker 6>they will only offer you so many hours a day.

834
00:55:00.039 --> 00:55:02.960
<v Speaker 6>For example, they may come in for thirty to forty

835
00:55:03.039 --> 00:55:06.599
<v Speaker 6>five minutes in the morning, popping again at lunchtime, and

836
00:55:06.760 --> 00:55:09.679
<v Speaker 6>maybe again in the afternoon and if you're lucky, in

837
00:55:09.800 --> 00:55:14.320
<v Speaker 6>the evening. But then what happens in the in between stages,

838
00:55:15.159 --> 00:55:18.000
<v Speaker 6>particularly if you've got a parent that cannot be left

839
00:55:18.039 --> 00:55:20.880
<v Speaker 6>on their own, like, for example, my mum can't be

840
00:55:21.000 --> 00:55:23.360
<v Speaker 6>left on her own. Somebody has to be with her

841
00:55:23.960 --> 00:55:26.800
<v Speaker 6>twenty four hours a day, seven days a week. You

842
00:55:26.880 --> 00:55:32.559
<v Speaker 6>know she needs support on every level, so it's difficult.

843
00:55:33.800 --> 00:55:37.159
<v Speaker 3>Yeah, yeah, and I can definitely testify to that, you know,

844
00:55:37.719 --> 00:55:39.559
<v Speaker 3>again having gone through sort of lots of different care

845
00:55:39.639 --> 00:55:43.880
<v Speaker 3>options which I often say it worked until it doesn't work,

846
00:55:44.760 --> 00:55:48.920
<v Speaker 3>similar experiences, you know, we different care agencies, different care

847
00:55:48.960 --> 00:55:53.039
<v Speaker 3>you know, people are offering care, and I sometimes, you know,

848
00:55:53.679 --> 00:55:55.480
<v Speaker 3>you have to wonder because I kind of think, what

849
00:55:55.559 --> 00:55:57.360
<v Speaker 3>do you do to kind of get this role? You know,

850
00:55:57.440 --> 00:56:01.039
<v Speaker 3>when you had your interview, you know, in respect to anybody,

851
00:56:01.079 --> 00:56:04.280
<v Speaker 3>but you have to wonder. But I can imagine all

852
00:56:04.360 --> 00:56:06.559
<v Speaker 3>of this, and I know for myself there's a lot

853
00:56:06.599 --> 00:56:11.239
<v Speaker 3>of stress anxiety around kind of managing that, and ultimately

854
00:56:11.440 --> 00:56:14.000
<v Speaker 3>you want to you want to offer the support, the

855
00:56:14.039 --> 00:56:17.280
<v Speaker 3>best support that you can. As you mentioned that, feelings

856
00:56:17.320 --> 00:56:19.719
<v Speaker 3>of guilt and kind of feeling that you've not you know,

857
00:56:20.039 --> 00:56:21.519
<v Speaker 3>you're not good enough to do it and you've not

858
00:56:21.599 --> 00:56:24.920
<v Speaker 3>been able to manage well enough definitely an impact. And

859
00:56:25.079 --> 00:56:27.920
<v Speaker 3>now I've often felt that and many times as thinking,

860
00:56:28.000 --> 00:56:30.679
<v Speaker 3>you know, I can't. You know, I'd never like to

861
00:56:30.679 --> 00:56:33.480
<v Speaker 3>think that I'm a superwoman, but sometimes you kind of think, oh,

862
00:56:33.920 --> 00:56:36.199
<v Speaker 3>I really want to do this because I think it's

863
00:56:36.280 --> 00:56:38.880
<v Speaker 3>going to be the best thing. But you know, ultimately

864
00:56:38.880 --> 00:56:41.079
<v Speaker 3>you're kind of potentially just going to burn yourself out.

865
00:56:42.079 --> 00:56:44.840
<v Speaker 3>I'm sure both of you seen, you know, whether it's

866
00:56:44.840 --> 00:56:47.320
<v Speaker 3>your own personal experience or you know you've seen you know,

867
00:56:47.400 --> 00:56:50.239
<v Speaker 3>your patients or your clients come in and with that.

868
00:56:52.400 --> 00:56:53.920
<v Speaker 3>So what's been the sort of you know, I mean

869
00:56:54.719 --> 00:56:56.960
<v Speaker 3>when you sort of see what's what would you say

870
00:56:57.039 --> 00:56:58.960
<v Speaker 3>then is going to be the key thing? Because I

871
00:56:59.000 --> 00:57:02.039
<v Speaker 3>guess if were and you know, they see this analogy

872
00:57:02.320 --> 00:57:04.719
<v Speaker 3>in many different things. You know, if you aren't well

873
00:57:04.760 --> 00:57:07.199
<v Speaker 3>within yourself, how can you then help somebody else?

874
00:57:07.599 --> 00:57:08.159
<v Speaker 2>You know, you're on a.

875
00:57:08.239 --> 00:57:11.000
<v Speaker 3>Plane, you know, if there's an emergency, you put on

876
00:57:11.039 --> 00:57:12.960
<v Speaker 3>your own kind of oxygen mask first for you help

877
00:57:13.039 --> 00:57:16.039
<v Speaker 3>somebody else. So you know, how can how do you know,

878
00:57:16.199 --> 00:57:19.639
<v Speaker 3>support caregivers and what kind of can make the difference

879
00:57:19.760 --> 00:57:21.559
<v Speaker 3>for them in terms of the journey that they are

880
00:57:21.679 --> 00:57:22.280
<v Speaker 3>on as well?

881
00:57:22.920 --> 00:57:27.519
<v Speaker 6>You know, So in my counsel in practice that I have,

882
00:57:28.280 --> 00:57:32.079
<v Speaker 6>I can support caregivers on a one to one and

883
00:57:32.760 --> 00:57:36.320
<v Speaker 6>boy do some of them need it because in the

884
00:57:36.440 --> 00:57:39.480
<v Speaker 6>situation that they find themselves in. Not so much for me,

885
00:57:39.519 --> 00:57:42.239
<v Speaker 6>it didn't happen with me admittingly, but in the situation

886
00:57:42.400 --> 00:57:46.159
<v Speaker 6>they find themselves in, it can be a very lonely road.

887
00:57:46.639 --> 00:57:49.639
<v Speaker 6>It can be very very lonely. Very often they have

888
00:57:49.920 --> 00:57:54.480
<v Speaker 6>nobody to talk to, and sometimes until you're actually in it,

889
00:57:54.639 --> 00:57:58.320
<v Speaker 6>you don't really understand, and that in itself can be

890
00:57:58.480 --> 00:58:04.199
<v Speaker 6>quite stressful. And you know, what do you do? Where

891
00:58:04.280 --> 00:58:08.559
<v Speaker 6>do you turn to? It's just so so difficult. Nobody

892
00:58:08.719 --> 00:58:11.719
<v Speaker 6>turns around and says to you, Angela, how are you?

893
00:58:12.519 --> 00:58:17.000
<v Speaker 6>How are you feeling? Nobody asks you any of these questions.

894
00:58:17.159 --> 00:58:20.719
<v Speaker 6>On top of having to deal with your loved one.

895
00:58:21.159 --> 00:58:26.639
<v Speaker 6>It can be absolutely frustrating. And as a result, I

896
00:58:26.760 --> 00:58:31.840
<v Speaker 6>find people come to me and they have depression, They

897
00:58:31.960 --> 00:58:39.599
<v Speaker 6>have high levels of anxiety, stress, stress, burnout because they

898
00:58:39.800 --> 00:58:42.960
<v Speaker 6>just feel really alone in this journey. And I don't

899
00:58:43.039 --> 00:58:47.039
<v Speaker 6>think anybody should be made to feel alone, but people

900
00:58:47.719 --> 00:58:52.360
<v Speaker 6>are not always there for them. And sometimes even within

901
00:58:52.440 --> 00:58:55.559
<v Speaker 6>your own families, you know, they could be three four,

902
00:58:55.719 --> 00:58:59.760
<v Speaker 6>five siblings, but ultimately what happens, all the care and

903
00:59:00.000 --> 00:59:05.440
<v Speaker 6>responsibility lies on one person within the family because the

904
00:59:05.559 --> 00:59:10.119
<v Speaker 6>other siblings don't necessarily want to take responsibility for whatever reason,

905
00:59:10.880 --> 00:59:13.000
<v Speaker 6>and that in itself leads to frustration.

906
00:59:14.039 --> 00:59:17.400
<v Speaker 3>Yeah, yeah, and I guess as well, you know, I mean,

907
00:59:17.440 --> 00:59:20.400
<v Speaker 3>with all of that I'm sure there is and ammonia.

908
00:59:20.440 --> 00:59:22.480
<v Speaker 3>I'm sure you can attest to this in terms of

909
00:59:22.599 --> 00:59:25.599
<v Speaker 3>the physical health problems that may be a caregiver may

910
00:59:25.639 --> 00:59:29.400
<v Speaker 3>be facing as well. You know from the you know

911
00:59:29.480 --> 00:59:32.400
<v Speaker 3>from the stress can present itself in so many different ways.

912
00:59:32.760 --> 00:59:36.679
<v Speaker 3>I know that from personal experience. And again, you know,

913
00:59:37.639 --> 00:59:40.000
<v Speaker 3>if they're not well, how are they then expected to

914
00:59:40.039 --> 00:59:42.119
<v Speaker 3>look after somebody else? But you know, you kind of

915
00:59:42.199 --> 00:59:44.639
<v Speaker 3>keep going and keep going. I mean, do you find

916
00:59:44.679 --> 00:59:46.920
<v Speaker 3>that you have patients that do come in and often

917
00:59:46.920 --> 00:59:49.679
<v Speaker 3>when you kind of you talk to them initially and

918
00:59:49.719 --> 00:59:51.960
<v Speaker 3>then they suddenly reveal that they're a caregiver that sometimes

919
00:59:52.079 --> 00:59:58.440
<v Speaker 3>like ah, it's all kind of makes sense, Angela.

920
01:00:00.000 --> 01:00:03.880
<v Speaker 7>I think a certain kind of personality becomes a career.

921
01:00:05.599 --> 01:00:08.880
<v Speaker 7>Like Michelle said, you can have a family of five

922
01:00:09.280 --> 01:00:13.559
<v Speaker 7>or three siblings, but one person will always step up,

923
01:00:14.039 --> 01:00:17.719
<v Speaker 7>not because they've been mandated to do it, but because

924
01:00:17.800 --> 01:00:21.800
<v Speaker 7>they've volunteered on their own to do it. And a

925
01:00:21.880 --> 01:00:26.360
<v Speaker 7>lot of times there's different kind of cares. If you're

926
01:00:26.480 --> 01:00:31.039
<v Speaker 7>caring for a parent, it's almost for many people it's

927
01:00:31.320 --> 01:00:34.480
<v Speaker 7>a privilege to care for their parents, and they don't

928
01:00:34.760 --> 01:00:38.920
<v Speaker 7>anticipate how hard it's going to be caring is a tough,

929
01:00:39.239 --> 01:00:44.000
<v Speaker 7>tough job, but caring for somebody with dementia is the

930
01:00:44.239 --> 01:00:48.519
<v Speaker 7>toughest of all the caregiving jobs. It's easy to care

931
01:00:48.639 --> 01:00:52.519
<v Speaker 7>for somebody who's had a stroke or a diabetes, or

932
01:00:52.599 --> 01:00:57.000
<v Speaker 7>a car accident or cancer or name it or altitude

933
01:00:57.039 --> 01:01:00.519
<v Speaker 7>of illnesses out there, but a caregiver for somebody with

934
01:01:00.679 --> 01:01:04.760
<v Speaker 7>dementia is the toughest of all the caregiving jobs. And

935
01:01:05.880 --> 01:01:09.559
<v Speaker 7>like I said, it takes a certain personality. When it's

936
01:01:10.639 --> 01:01:16.880
<v Speaker 7>a child's parent, intergenerational, a lot of times the caregiver

937
01:01:17.119 --> 01:01:21.679
<v Speaker 7>doesn't identify as a career So that's one problem on

938
01:01:21.800 --> 01:01:25.280
<v Speaker 7>its own. You know, you're like, it's my mum, I'm

939
01:01:25.320 --> 01:01:33.400
<v Speaker 7>supposed to do it, or it's my dad. But the

940
01:01:33.599 --> 01:01:38.599
<v Speaker 7>challenge that you're faced with in caregiving it's not for

941
01:01:38.719 --> 01:01:42.199
<v Speaker 7>the fainthearted, and it's not a walk in the park.

942
01:01:42.840 --> 01:01:45.719
<v Speaker 7>I'm not saying that it's wrong to do it, but

943
01:01:46.119 --> 01:01:49.800
<v Speaker 7>you must learn to ask for help and to accept help.

944
01:01:51.960 --> 01:01:55.079
<v Speaker 7>You can do it, especially in the early stages of

945
01:01:55.239 --> 01:02:01.000
<v Speaker 7>the illness, but as the illness progresses, there is grief.

946
01:02:01.719 --> 01:02:05.440
<v Speaker 7>You're losing your loved one. You know, you don't know

947
01:02:05.639 --> 01:02:09.280
<v Speaker 7>this person. They look like your mum or dad. They

948
01:02:09.400 --> 01:02:11.599
<v Speaker 7>sound like your mum or dad, but you don't know

949
01:02:11.800 --> 01:02:16.360
<v Speaker 7>this person, so there's that grief before they actually pass away,

950
01:02:16.519 --> 01:02:19.280
<v Speaker 7>and that can go on for years and years and years.

951
01:02:20.440 --> 01:02:24.199
<v Speaker 7>So caregivers often have a lot of burnout. You've mentioned

952
01:02:24.280 --> 01:02:27.840
<v Speaker 7>a lot of depression, a lot of anxiety, but a

953
01:02:27.920 --> 01:02:32.239
<v Speaker 7>lot of them don't even accept that their careers, so

954
01:02:32.559 --> 01:02:36.760
<v Speaker 7>it's difficult. And how do you say to someone you

955
01:02:36.920 --> 01:02:40.920
<v Speaker 7>need to take time out for yourself. The common response

956
01:02:41.000 --> 01:02:46.920
<v Speaker 7>you get, well, who's going to do it? Very valid question,

957
01:02:47.599 --> 01:02:53.440
<v Speaker 7>especially if all the services aren't in place yet, and

958
01:02:53.599 --> 01:02:57.559
<v Speaker 7>it's not like the care homes are, you know, grabbing

959
01:02:58.199 --> 01:03:03.000
<v Speaker 7>patients off the streets. They've got their hands full and

960
01:03:03.119 --> 01:03:08.199
<v Speaker 7>a lot of care homes aren't necessarily appropriate for your

961
01:03:08.320 --> 01:03:16.199
<v Speaker 7>loved one. So it's a very difficult road. But they

962
01:03:16.320 --> 01:03:18.960
<v Speaker 7>must learn that, like you said, you've got to put

963
01:03:19.079 --> 01:03:24.400
<v Speaker 7>your oxygen mask on before you put them, not because

964
01:03:24.440 --> 01:03:26.440
<v Speaker 7>you don't love them, but you can only give what

965
01:03:26.599 --> 01:03:27.039
<v Speaker 7>you've got.

966
01:03:29.559 --> 01:03:33.519
<v Speaker 4>That's a quick question here, maybe going off topic a

967
01:03:33.559 --> 01:03:36.480
<v Speaker 4>little bit, but you've said that dementia is one of

968
01:03:36.840 --> 01:03:39.119
<v Speaker 4>being a carer for someone with dementia as one of

969
01:03:39.159 --> 01:03:42.039
<v Speaker 4>the hardest jobs of all, and hearing in itself is

970
01:03:42.400 --> 01:03:46.519
<v Speaker 4>a difficult job. And I say job, but it's often unpaid.

971
01:03:49.119 --> 01:03:53.000
<v Speaker 4>Is it because there's an element of denial? Is it

972
01:03:53.119 --> 01:03:56.199
<v Speaker 4>because it's a it's a mental it can be a

973
01:03:56.320 --> 01:03:59.360
<v Speaker 4>mental illness. Is that what makes it a hard aspect

974
01:03:59.400 --> 01:04:01.880
<v Speaker 4>because I know a lot of people who struggle with

975
01:04:02.039 --> 01:04:06.519
<v Speaker 4>mental illnesses or dementia and that sort don't accept that

976
01:04:06.639 --> 01:04:10.239
<v Speaker 4>it's happening, you know, don't want the care that may

977
01:04:10.280 --> 01:04:14.119
<v Speaker 4>be required, and so you're always there's often a battle

978
01:04:14.960 --> 01:04:18.800
<v Speaker 4>going on even before you even get started about whether

979
01:04:18.880 --> 01:04:21.519
<v Speaker 4>you should go to the doctor, whether you should get assessed,

980
01:04:21.599 --> 01:04:24.719
<v Speaker 4>whether you should get the care and assistance you need.

981
01:04:24.840 --> 01:04:28.199
<v Speaker 4>Because most times it's like I'm okay, and fine, why

982
01:04:28.239 --> 01:04:29.719
<v Speaker 4>are you here? Why are you doing this?

983
01:04:31.159 --> 01:04:34.760
<v Speaker 7>It's a bit of all of that. There. Certainly there

984
01:04:34.880 --> 01:04:39.639
<v Speaker 7>is denial, but with dementia caregiving which is the hardest

985
01:04:39.760 --> 01:04:43.760
<v Speaker 7>caregiving and there's lots of research on it. But apart

986
01:04:43.880 --> 01:04:48.679
<v Speaker 7>from the denial, there is what you call anticipatory grief. Okay,

987
01:04:49.320 --> 01:04:52.960
<v Speaker 7>so you're grieving the person is in front of you,

988
01:04:53.119 --> 01:04:59.079
<v Speaker 7>but you're already grieving, like losing someone, you're somebody is

989
01:04:59.199 --> 01:05:03.440
<v Speaker 7>you slowly lose, and you know, one part of your

990
01:05:03.519 --> 01:05:07.559
<v Speaker 7>brain recognizes that, and another part of your brain is fighting.

991
01:05:08.559 --> 01:05:11.480
<v Speaker 7>You know, hope is the last to go. You're trying

992
01:05:11.679 --> 01:05:13.880
<v Speaker 7>very hard. Maybe if I do this, maybe if I

993
01:05:14.000 --> 01:05:17.360
<v Speaker 7>sleep with them, maybe if I give them spinach juice

994
01:05:17.400 --> 01:05:20.440
<v Speaker 7>every morning, maybe if I You know you and you

995
01:05:20.599 --> 01:05:24.440
<v Speaker 7>can't stop trying, and nobody can ask you to stop trying,

996
01:05:24.800 --> 01:05:27.320
<v Speaker 7>But all we can ask is take care of yourself,

997
01:05:28.760 --> 01:05:31.199
<v Speaker 7>because it gets to a point that your loved one

998
01:05:31.280 --> 01:05:34.760
<v Speaker 7>doesn't even recognize five minutes later, they don't know if

999
01:05:34.800 --> 01:05:38.920
<v Speaker 7>you've been there or not. Yeah, it's cool, but it's

1000
01:05:39.000 --> 01:05:39.719
<v Speaker 7>the reality.

1001
01:05:41.599 --> 01:05:42.320
<v Speaker 6>Absolutely.

1002
01:05:44.400 --> 01:05:47.519
<v Speaker 7>You know, you're not going to get any brownie points.

1003
01:05:48.920 --> 01:05:49.159
<v Speaker 8>Hmm.

1004
01:05:49.840 --> 01:05:53.079
<v Speaker 3>Yeah, that's really interesting because I know sometimes it's interesting

1005
01:05:53.079 --> 01:05:54.840
<v Speaker 3>you say that because I think you have to that

1006
01:05:54.960 --> 01:05:58.559
<v Speaker 3>in itself is a real learning process, because you want

1007
01:05:58.599 --> 01:06:00.920
<v Speaker 3>to give as much as you can and actually the

1008
01:06:01.039 --> 01:06:04.119
<v Speaker 3>reality of it, and you know, I know sometimes you know,

1009
01:06:04.239 --> 01:06:06.800
<v Speaker 3>my sister will sometimes say, you know, you just have

1010
01:06:06.880 --> 01:06:08.719
<v Speaker 3>to accept the way things are. It's not going to

1011
01:06:08.800 --> 01:06:11.440
<v Speaker 3>be like that. But I know sometimes I get LOLd

1012
01:06:11.519 --> 01:06:15.760
<v Speaker 3>into this maybe false sense of security that things seem

1013
01:06:15.880 --> 01:06:20.320
<v Speaker 3>quite normal momentarily, and then it completely changes, and it's

1014
01:06:20.360 --> 01:06:24.119
<v Speaker 3>just like, oh, actually, you know that kind of acceptance

1015
01:06:24.239 --> 01:06:26.760
<v Speaker 3>piece as to what it is, because as much as

1016
01:06:26.840 --> 01:06:30.280
<v Speaker 3>I may read about it and I try to educate myself,

1017
01:06:30.519 --> 01:06:32.519
<v Speaker 3>when you're actually in it seems a very different. It

1018
01:06:32.559 --> 01:06:35.599
<v Speaker 3>seems very different. So you know when you're experiencing and

1019
01:06:35.760 --> 01:06:38.639
<v Speaker 3>you know that in itself is yeah, the challenge there

1020
01:06:38.719 --> 01:06:41.159
<v Speaker 3>as well. So I guess you know, what kind of

1021
01:06:41.239 --> 01:06:43.880
<v Speaker 3>practical advice would we you know, can we give to

1022
01:06:44.559 --> 01:06:50.079
<v Speaker 3>caregivers as to what they can do to be more

1023
01:06:50.119 --> 01:06:53.840
<v Speaker 3>effective I suppose in their caregiving journey. And I'm you know,

1024
01:06:53.880 --> 01:06:55.440
<v Speaker 3>I'm saying all that. I'm sure there's no if they

1025
01:06:55.440 --> 01:06:57.480
<v Speaker 3>could be one hundred and one different things, but are

1026
01:06:57.519 --> 01:07:01.119
<v Speaker 3>their keys that they could do that's going to be.

1027
01:07:02.280 --> 01:07:05.880
<v Speaker 4>Yeah, adds as well just as a follow one. That's

1028
01:07:05.880 --> 01:07:08.840
<v Speaker 4>what we can prepare to answer. What can what advice

1029
01:07:08.880 --> 01:07:12.039
<v Speaker 4>can we give persons who are struggling with the disease?

1030
01:07:12.320 --> 01:07:16.320
<v Speaker 4>Is there anyway to or best the best practice in

1031
01:07:16.440 --> 01:07:21.880
<v Speaker 4>terms of managing it or slowing down the process or

1032
01:07:21.960 --> 01:07:22.599
<v Speaker 4>anything like that.

1033
01:07:23.599 --> 01:07:28.320
<v Speaker 7>We diagnosed follow onto the early diagnosis. If you catch

1034
01:07:28.400 --> 01:07:32.239
<v Speaker 7>it early, A lot of times part of the struggle

1035
01:07:32.360 --> 01:07:35.960
<v Speaker 7>is just the pain and the grief of losing one's

1036
01:07:36.039 --> 01:07:41.599
<v Speaker 7>loved one. The other fifty is are we going to

1037
01:07:41.679 --> 01:07:46.119
<v Speaker 7>manage one? Income is not enough, who's going to look

1038
01:07:46.199 --> 01:07:52.480
<v Speaker 7>after them? Logistics of actually caring for them? But with

1039
01:07:52.719 --> 01:07:56.000
<v Speaker 7>early diagnosis, lots of things can be put in place.

1040
01:07:57.039 --> 01:08:01.239
<v Speaker 7>Have they got the power of attorney? Who's topic affairs?

1041
01:08:01.880 --> 01:08:04.880
<v Speaker 7>Mom didn't tell me about everything that's going on. Now

1042
01:08:04.960 --> 01:08:08.199
<v Speaker 7>all her affairs are in a mess. You're backling with

1043
01:08:08.360 --> 01:08:12.960
<v Speaker 7>your grief of losing your dementia, but you're getting read

1044
01:08:13.079 --> 01:08:15.519
<v Speaker 7>letters through the door. You don't know which one you're

1045
01:08:15.559 --> 01:08:21.000
<v Speaker 7>focusing on, you know, So early diagnosis is key. It

1046
01:08:21.119 --> 01:08:26.359
<v Speaker 7>doesn't stop the disease, but in some instances can you

1047
01:08:26.439 --> 01:08:31.359
<v Speaker 7>can get help in terms of sometimes medication, the support

1048
01:08:31.520 --> 01:08:35.880
<v Speaker 7>services to kind of slow down the progression of the disease.

1049
01:08:36.880 --> 01:08:40.000
<v Speaker 7>And then for people who are not necessarily cares. Know

1050
01:08:40.159 --> 01:08:43.520
<v Speaker 7>your numbers, the number of people you say, what's your

1051
01:08:43.560 --> 01:08:45.720
<v Speaker 7>blood pressure? And or when did you do your blood

1052
01:08:45.760 --> 01:08:51.640
<v Speaker 7>pressure last? And you know, and we're all very busy people.

1053
01:08:51.800 --> 01:08:55.479
<v Speaker 7>We don't nobody wants to sit around checking blood pressure

1054
01:08:55.520 --> 01:08:59.560
<v Speaker 7>and all of that. But it's something so simple that

1055
01:08:59.760 --> 01:09:01.960
<v Speaker 7>you can check your blood pressure and if it's high,

1056
01:09:02.039 --> 01:09:03.960
<v Speaker 7>you can get medication for it, and it can be

1057
01:09:04.039 --> 01:09:07.640
<v Speaker 7>well controlled before it starts knocking off all your organs,

1058
01:09:07.680 --> 01:09:11.079
<v Speaker 7>your kidney, your nerves, your brain, everything in its path.

1059
01:09:12.239 --> 01:09:15.079
<v Speaker 7>You know, when last did anyone get their eye tests?

1060
01:09:15.800 --> 01:09:19.680
<v Speaker 7>When last did you get your hearing tests? Tests and

1061
01:09:19.840 --> 01:09:24.119
<v Speaker 7>hearing tests are the two new additions to the WHO

1062
01:09:24.520 --> 01:09:31.399
<v Speaker 7>criteria of risk factors for dementia. Wow, not communicating. If

1063
01:09:31.439 --> 01:09:35.039
<v Speaker 7>you can't hear what's going on around you, you withdraw

1064
01:09:35.159 --> 01:09:41.920
<v Speaker 7>into yourself. There's less mental stimulation. When last did anyone

1065
01:09:42.039 --> 01:09:44.800
<v Speaker 7>get their eye test? When did they? You know you

1066
01:09:44.920 --> 01:09:48.439
<v Speaker 7>wear glasses apart from going for your usual which a

1067
01:09:48.520 --> 01:09:52.680
<v Speaker 7>lot of people don't do. And last did you get

1068
01:09:52.720 --> 01:09:53.560
<v Speaker 7>a dental check?

1069
01:09:55.279 --> 01:09:55.520
<v Speaker 9>Yeah?

1070
01:09:56.079 --> 01:10:00.720
<v Speaker 7>Yeah, looking and living and doing every other thing except

1071
01:10:01.159 --> 01:10:06.680
<v Speaker 7>really taking so know your numbers, especially with people who

1072
01:10:06.760 --> 01:10:11.279
<v Speaker 7>are risk for vascular dementia. If your blood sugars are high,

1073
01:10:11.840 --> 01:10:16.279
<v Speaker 7>then you're asking for trouble. You know, that's the top

1074
01:10:16.439 --> 01:10:19.119
<v Speaker 7>risk factor. If your blood pressure is high, your blood

1075
01:10:19.119 --> 01:10:21.880
<v Speaker 7>pressure might be perfect, but if you've got family history,

1076
01:10:22.239 --> 01:10:24.239
<v Speaker 7>if your mum and dad have blood pressure, it's a

1077
01:10:24.359 --> 01:10:29.920
<v Speaker 7>question of when not if well if not when, so

1078
01:10:30.399 --> 01:10:34.119
<v Speaker 7>know your numbers is important for that and you know,

1079
01:10:34.760 --> 01:10:38.199
<v Speaker 7>we just we're in a society now where everything is

1080
01:10:39.239 --> 01:10:43.840
<v Speaker 7>twenty four to seven. When I was growing up in Nigerian,

1081
01:10:44.720 --> 01:10:46.720
<v Speaker 7>I remember when I first moved here. I'll tell you

1082
01:10:46.760 --> 01:10:50.279
<v Speaker 7>a very funny story. I was busy doing everything quickly

1083
01:10:50.359 --> 01:10:54.079
<v Speaker 7>quickly in the house, taking care of children before six o'clock.

1084
01:10:54.560 --> 01:10:57.159
<v Speaker 7>And my friends were like, why are you rushing? You

1085
01:10:57.199 --> 01:10:59.319
<v Speaker 7>can do it later. I said, no, that it'll soon

1086
01:10:59.439 --> 01:11:05.800
<v Speaker 7>get dark. Then there's no light to do anything, so

1087
01:11:05.960 --> 01:11:08.880
<v Speaker 7>it WANs to go to bed early. You know, the

1088
01:11:09.319 --> 01:11:12.600
<v Speaker 7>day kind of stops when the sun goes down. I

1089
01:11:13.159 --> 01:11:20.479
<v Speaker 7>should be maybe, but it saves your brain. You know,

1090
01:11:20.600 --> 01:11:23.039
<v Speaker 7>you stop at a certain points. You go to bed

1091
01:11:23.159 --> 01:11:25.159
<v Speaker 7>when you should go to bed. Now two o'clock in

1092
01:11:25.199 --> 01:11:29.199
<v Speaker 7>the morning, some of us are working, yeah, and it's

1093
01:11:29.239 --> 01:11:32.680
<v Speaker 7>not healthy, or we're on our phones, or we're doing

1094
01:11:32.760 --> 01:11:34.600
<v Speaker 7>one thing or the other because we can.

1095
01:11:36.359 --> 01:11:38.920
<v Speaker 4>I hear these conversations all the time, and it's funny

1096
01:11:39.239 --> 01:11:41.840
<v Speaker 4>we hear them. We know what we should do, but

1097
01:11:42.079 --> 01:11:45.119
<v Speaker 4>we just don't quite or we start on the path

1098
01:11:45.199 --> 01:11:48.159
<v Speaker 4>of doing it. Let's say every New Year or whatever

1099
01:11:48.319 --> 01:11:50.560
<v Speaker 4>it might be. Or after a conversation like this, you know,

1100
01:11:50.600 --> 01:11:51.880
<v Speaker 4>I'm going to go back and I'm like, okay, my

1101
01:11:51.960 --> 01:11:54.479
<v Speaker 4>phone gets shut off at ten blah blah blah blah blah,

1102
01:11:54.479 --> 01:11:57.880
<v Speaker 4>And slowly the band had its creep in again, and

1103
01:11:58.039 --> 01:12:01.359
<v Speaker 4>you again. This is why conversation like this was so important,

1104
01:12:01.439 --> 01:12:05.560
<v Speaker 4>because if it's not new information, it's reminding us these

1105
01:12:05.600 --> 01:12:07.439
<v Speaker 4>are the things that we need to do. And if

1106
01:12:07.479 --> 01:12:10.560
<v Speaker 4>you pay attention and you put things into practice, it

1107
01:12:10.960 --> 01:12:11.520
<v Speaker 4>can help.

1108
01:12:12.439 --> 01:12:12.640
<v Speaker 7>Yeah.

1109
01:12:13.239 --> 01:12:15.920
<v Speaker 5>And one thing I learned. One thing I learned, I'm

1110
01:12:15.920 --> 01:12:18.439
<v Speaker 5>sorry to cut you off thinking about that. I had

1111
01:12:18.439 --> 01:12:20.359
<v Speaker 5>a bad habit of having a TV in my bedroom

1112
01:12:20.399 --> 01:12:22.239
<v Speaker 5>because in the States, you know, TV's in the bedroom,

1113
01:12:22.920 --> 01:12:24.960
<v Speaker 5>and I would always go to bed three four in

1114
01:12:25.000 --> 01:12:27.159
<v Speaker 5>the morning because I'm so busy watching the show and

1115
01:12:27.239 --> 01:12:28.960
<v Speaker 5>even though I watched the show before, I'm still watching

1116
01:12:29.000 --> 01:12:32.159
<v Speaker 5>the show. So one day I find I said to wife,

1117
01:12:32.199 --> 01:12:33.680
<v Speaker 5>you know, we need to take this TV out this room.

1118
01:12:34.399 --> 01:12:36.079
<v Speaker 5>And ever since I take it out of the bedroom,

1119
01:12:36.359 --> 01:12:38.960
<v Speaker 5>I sleep better. Yeah, because when I get and I

1120
01:12:39.079 --> 01:12:42.439
<v Speaker 5>lay down, I actually lay down and go to sleep,

1121
01:12:42.920 --> 01:12:45.800
<v Speaker 5>like I use the bedroom just for sleeping and I

1122
01:12:46.239 --> 01:12:47.880
<v Speaker 5>spend one time, I used to be in my bedroom

1123
01:12:47.920 --> 01:12:50.640
<v Speaker 5>a lot watching TV, and I don't go to my

1124
01:12:50.680 --> 01:12:52.399
<v Speaker 5>bedroom at all until it's time to go to sleep.

1125
01:12:53.199 --> 01:12:55.439
<v Speaker 5>So I did find that taking the TV out did

1126
01:12:55.560 --> 01:12:58.079
<v Speaker 5>help me too, and I felt myself also my brain

1127
01:12:58.159 --> 01:13:01.119
<v Speaker 5>also functioning better because I just be so foggy and

1128
01:13:01.239 --> 01:13:04.079
<v Speaker 5>face and hazy in the morning, and I was like, this,

1129
01:13:04.199 --> 01:13:07.319
<v Speaker 5>can't I got to do something different. So on that

1130
01:13:07.399 --> 01:13:09.399
<v Speaker 5>point of you just saying, you know, just changing your

1131
01:13:09.560 --> 01:13:13.960
<v Speaker 5>lifestyle a little bit in a sense consistent yeah, and

1132
01:13:14.039 --> 01:13:16.279
<v Speaker 5>being consistent yeah, because I still get the urge every

1133
01:13:16.319 --> 01:13:17.920
<v Speaker 5>now and then to put a TV back in the bedroom,

1134
01:13:17.960 --> 01:13:18.880
<v Speaker 5>but then I say no, you.

1135
01:13:18.920 --> 01:13:20.359
<v Speaker 2>Know what, I'm okay.

1136
01:13:27.520 --> 01:13:32.680
<v Speaker 7>So they've got often younger children or younger dependents, they've

1137
01:13:32.720 --> 01:13:36.119
<v Speaker 7>got full time jobs and then watch to go with

1138
01:13:36.520 --> 01:13:42.000
<v Speaker 7>mom or dad. But even harder are caregivers for spouses.

1139
01:13:44.960 --> 01:13:49.239
<v Speaker 7>For a parent, you almost expect to want to do

1140
01:13:49.479 --> 01:13:53.239
<v Speaker 7>that to an extent, but you know, all respect to

1141
01:13:53.359 --> 01:13:58.680
<v Speaker 7>caregivers for spouses, it's a completely different relationship and it's tough.

1142
01:14:00.159 --> 01:14:02.000
<v Speaker 4>That from your research is that some of the stuff

1143
01:14:02.039 --> 01:14:02.720
<v Speaker 4>that came out.

1144
01:14:02.680 --> 01:14:07.479
<v Speaker 7>Of what you your doves into absolutely and a lot

1145
01:14:07.560 --> 01:14:10.920
<v Speaker 7>of them were very grateful for the opportunity to be

1146
01:14:11.039 --> 01:14:15.840
<v Speaker 7>able to say that, to be able to talk honestly,

1147
01:14:17.119 --> 01:14:23.119
<v Speaker 7>I'm saying it's hard. It's just how sometimes they they

1148
01:14:23.560 --> 01:14:28.239
<v Speaker 7>feel resentments because they don't love their spouse.

1149
01:14:28.560 --> 01:14:30.760
<v Speaker 1>But why do I have to do this?

1150
01:14:31.479 --> 01:14:36.399
<v Speaker 7>Mhm. You know sometimes some people said they you know,

1151
01:14:37.239 --> 01:14:41.800
<v Speaker 7>they wish they were dead, and they feel very guilty

1152
01:14:41.960 --> 01:14:44.840
<v Speaker 7>for thinking that way, but not from a bad place.

1153
01:14:47.279 --> 01:14:48.000
<v Speaker 7>It's too much.

1154
01:14:48.560 --> 01:14:54.680
<v Speaker 3>Well, yeah, as you said that, that kind of you know,

1155
01:14:54.720 --> 01:14:57.000
<v Speaker 3>the opportunity to talk. And I guess this was a

1156
01:14:57.119 --> 01:15:00.920
<v Speaker 3>segue nicely into the group that Michelle you've set up,

1157
01:15:01.600 --> 01:15:03.640
<v Speaker 3>because I guess one of the really key things is

1158
01:15:03.720 --> 01:15:06.199
<v Speaker 3>having a space to be able to have those kind

1159
01:15:06.239 --> 01:15:10.439
<v Speaker 3>of conversations in a space, but also being with people

1160
01:15:10.479 --> 01:15:13.600
<v Speaker 3>who kind of have an understanding of that. A little

1161
01:15:13.600 --> 01:15:15.880
<v Speaker 3>bit about the group that you've set up.

1162
01:15:17.239 --> 01:15:21.319
<v Speaker 6>Okay, So when my mum was diagnosed with Alzheimer's early

1163
01:15:21.439 --> 01:15:26.439
<v Speaker 6>last year, I thought to myself, if I'm having to

1164
01:15:26.560 --> 01:15:30.000
<v Speaker 6>go through this, what must it be like for other

1165
01:15:30.239 --> 01:15:34.560
<v Speaker 6>people as well who have no support. So I went

1166
01:15:34.640 --> 01:15:36.680
<v Speaker 6>to bed one night and a light bulb was set

1167
01:15:36.720 --> 01:15:39.079
<v Speaker 6>off in my mind and I thought, right, I'm going

1168
01:15:39.159 --> 01:15:42.720
<v Speaker 6>to get up and form a dementia support group for

1169
01:15:42.880 --> 01:15:47.840
<v Speaker 6>people of African Caribbean descent, because I do think that

1170
01:15:48.039 --> 01:15:51.760
<v Speaker 6>our needs are slightly different, and I think there are

1171
01:15:51.920 --> 01:15:57.600
<v Speaker 6>support groups out there for English people Caucasians, but there's

1172
01:15:57.680 --> 01:16:02.800
<v Speaker 6>something about us Black African have being comeing together that

1173
01:16:02.960 --> 01:16:07.439
<v Speaker 6>I think is really important. So I decided to set

1174
01:16:07.520 --> 01:16:10.119
<v Speaker 6>up this support group and I called it the Naya

1175
01:16:10.279 --> 01:16:13.920
<v Speaker 6>a Coma Support Group. Okay, so let me just tell

1176
01:16:13.920 --> 01:16:16.399
<v Speaker 6>you a little bit about the meaning of nya a

1177
01:16:16.520 --> 01:16:20.640
<v Speaker 6>coma and what it means. Nya Acoma is a Swahili name,

1178
01:16:20.720 --> 01:16:24.199
<v Speaker 6>but it's also used in Ghana as well. So Nya

1179
01:16:24.800 --> 01:16:30.039
<v Speaker 6>nya means purpose having purpose, okay, which I thought is

1180
01:16:30.119 --> 01:16:33.880
<v Speaker 6>important for me to have a sense of purpose even

1181
01:16:33.960 --> 01:16:37.239
<v Speaker 6>though I'm supporting Mom with her on her dementia journey.

1182
01:16:38.159 --> 01:16:40.840
<v Speaker 6>I then came up with the word a coma and

1183
01:16:41.000 --> 01:16:45.119
<v Speaker 6>it means from the heart. So to be a good caregiver,

1184
01:16:45.399 --> 01:16:50.319
<v Speaker 6>I think you have to have patience, love, unity, and

1185
01:16:50.439 --> 01:16:55.279
<v Speaker 6>an element of endurance. Okay. So those two things together

1186
01:16:56.159 --> 01:16:59.600
<v Speaker 6>Naya a coma. So I thought, right, that's the name

1187
01:16:59.640 --> 01:17:03.960
<v Speaker 6>of my group, and that's high birthed it basically, And

1188
01:17:04.119 --> 01:17:06.159
<v Speaker 6>then I thought, what is it that I want my

1189
01:17:06.279 --> 01:17:11.479
<v Speaker 6>group to achieve? And I thought, A, I want a

1190
01:17:11.600 --> 01:17:16.600
<v Speaker 6>sense of community connection. So other Black African Caribbeans can

1191
01:17:16.680 --> 01:17:22.119
<v Speaker 6>come together be sharing of resources because I don't have

1192
01:17:22.279 --> 01:17:24.800
<v Speaker 6>all the answers, none of us have all the answers,

1193
01:17:25.319 --> 01:17:29.279
<v Speaker 6>so sharing the resources in our group, we can learn

1194
01:17:29.560 --> 01:17:32.920
<v Speaker 6>so much from each other. And then I thought it's

1195
01:17:33.000 --> 01:17:37.960
<v Speaker 6>a way of giving emotional support as well, because admittedly

1196
01:17:38.399 --> 01:17:42.000
<v Speaker 6>not everybody has the finances or means to go out

1197
01:17:42.039 --> 01:17:44.960
<v Speaker 6>and pay a counselor for one to one support. So

1198
01:17:45.239 --> 01:17:47.880
<v Speaker 6>I thought, you know, we could have a bit of

1199
01:17:48.119 --> 01:17:54.079
<v Speaker 6>emotional support within the group. So they're the three main

1200
01:17:54.319 --> 01:17:59.199
<v Speaker 6>areas that I look at in all my support group meetings.

1201
01:17:59.279 --> 01:18:03.640
<v Speaker 6>That's what I hope to achieve. So I started the group.

1202
01:18:03.720 --> 01:18:07.760
<v Speaker 6>I think it was January this year, and I must admit,

1203
01:18:08.199 --> 01:18:11.960
<v Speaker 6>for me, it's far exceeded what I can imagine what

1204
01:18:12.079 --> 01:18:15.560
<v Speaker 6>I could have ever hoped for. So it's not about

1205
01:18:16.079 --> 01:18:20.479
<v Speaker 6>quantity in terms of numbers, but it's about quality. And

1206
01:18:20.720 --> 01:18:23.399
<v Speaker 6>you know what I find really humbling is I have

1207
01:18:23.640 --> 01:18:28.920
<v Speaker 6>people on the Zoom that come from the Caribbean, people

1208
01:18:29.760 --> 01:18:38.399
<v Speaker 6>here in the UK, Yeah, the Caribbean UK, and yeah,

1209
01:18:38.640 --> 01:18:41.960
<v Speaker 6>we're all over, So it's open to anyone in every

1210
01:18:42.079 --> 01:18:46.159
<v Speaker 6>country because it is a Zoom meeting. And I'm really,

1211
01:18:46.279 --> 01:18:48.960
<v Speaker 6>really find I get a lot out of it. And

1212
01:18:49.159 --> 01:18:52.520
<v Speaker 6>when do my meetings finish, I get such lovely emails

1213
01:18:52.600 --> 01:18:55.479
<v Speaker 6>say from people saying, you know, oh I could do

1214
01:18:55.840 --> 01:18:58.800
<v Speaker 6>I could do it this on a weekly basis, for example,

1215
01:18:59.399 --> 01:19:01.920
<v Speaker 6>But I don't have the capacity to run the group

1216
01:19:02.039 --> 01:19:05.720
<v Speaker 6>every week. But it's a beginning. It's a step in

1217
01:19:05.800 --> 01:19:09.800
<v Speaker 6>the right direction. And what I tried to do is

1218
01:19:09.880 --> 01:19:13.479
<v Speaker 6>where possible get a guest to speaker on, a Black

1219
01:19:13.680 --> 01:19:19.279
<v Speaker 6>African or Caribbean professional in to come and talk about

1220
01:19:19.319 --> 01:19:22.840
<v Speaker 6>their areas and share with the group. So that's where

1221
01:19:22.840 --> 01:19:27.479
<v Speaker 6>I met Ammonia. She's a GP, she's interested in dementia

1222
01:19:27.840 --> 01:19:30.279
<v Speaker 6>and she came on and she spoke At the last

1223
01:19:30.439 --> 01:19:34.279
<v Speaker 6>meeting I had. Okay, a previous meeting I had, I

1224
01:19:34.359 --> 01:19:38.159
<v Speaker 6>had a lovely woman come on and she showed the

1225
01:19:38.359 --> 01:19:42.760
<v Speaker 6>participants how to breathe correctly. You know the importance of

1226
01:19:42.920 --> 01:19:45.880
<v Speaker 6>correct breathing because believe it or not, if you're not

1227
01:19:46.000 --> 01:19:49.720
<v Speaker 6>breathing correctly, it causes a lot more tension and stressing

1228
01:19:49.800 --> 01:19:54.079
<v Speaker 6>the body. At my next dementia support meeting on the

1229
01:19:54.279 --> 01:19:58.800
<v Speaker 6>third of October, I have a Black Admiral nurse. Admire

1230
01:19:58.880 --> 01:20:03.159
<v Speaker 6>nurses are She lists the mentioned nurses, So she will

1231
01:20:03.199 --> 01:20:06.560
<v Speaker 6>be coming on to tell the group how they can

1232
01:20:06.720 --> 01:20:11.039
<v Speaker 6>benefit from talking to an admiral nurse. And the service

1233
01:20:11.199 --> 01:20:14.840
<v Speaker 6>is free. You know, there's a free phone number seven

1234
01:20:14.920 --> 01:20:17.720
<v Speaker 6>days a week and if you're your witsend, or you're

1235
01:20:17.760 --> 01:20:21.119
<v Speaker 6>feeling absolutely frustrated, or you've got no one to talk to,

1236
01:20:21.680 --> 01:20:25.399
<v Speaker 6>you just ring this admiral nurse. And I must admit

1237
01:20:25.600 --> 01:20:28.520
<v Speaker 6>I've ran them a few times myself in the past,

1238
01:20:29.079 --> 01:20:31.760
<v Speaker 6>and I've always come off the phone feeling a lot

1239
01:20:32.000 --> 01:20:36.239
<v Speaker 6>lighter and a lot better than how I was feeling

1240
01:20:36.359 --> 01:20:40.199
<v Speaker 6>before I made the call. So I think that support

1241
01:20:40.640 --> 01:20:45.760
<v Speaker 6>is of p It's of paramount importance. We need the support.

1242
01:20:46.359 --> 01:20:49.479
<v Speaker 3>Yeah, yeah, I can definitely testify to that. And you

1243
01:20:49.560 --> 01:20:52.199
<v Speaker 3>know that's again how I know I've met you, Michelle.

1244
01:20:52.239 --> 01:20:55.039
<v Speaker 3>Obviously being part of this group, I've been able to

1245
01:20:55.079 --> 01:20:57.239
<v Speaker 3>make all the sessions and unfortunately I missed the one

1246
01:20:57.319 --> 01:21:02.319
<v Speaker 3>with pneumonia, but definitely kind of, you know, been able

1247
01:21:02.359 --> 01:21:06.279
<v Speaker 3>to speak with other people to hear there is it

1248
01:21:06.319 --> 01:21:08.439
<v Speaker 3>sounds almost strange to say this, almost a bit of

1249
01:21:08.479 --> 01:21:11.520
<v Speaker 3>comfort to know that you're not the only person who's

1250
01:21:11.600 --> 01:21:13.920
<v Speaker 3>going through this and you can kind of, you know,

1251
01:21:14.000 --> 01:21:16.399
<v Speaker 3>you can relate so much, and I've kind of tried

1252
01:21:16.439 --> 01:21:19.039
<v Speaker 3>to join as many groups or get involved in and

1253
01:21:19.079 --> 01:21:23.119
<v Speaker 3>I've got there's a care as support network at my workplace,

1254
01:21:23.640 --> 01:21:25.279
<v Speaker 3>and again a lot of you know, there's quite a

1255
01:21:25.279 --> 01:21:27.560
<v Speaker 3>few spar staff members who again have got their own

1256
01:21:27.560 --> 01:21:31.319
<v Speaker 3>experience around dementia, and you know, the kind of comfort

1257
01:21:31.399 --> 01:21:34.119
<v Speaker 3>and encouragement they can kind of provide, or even I've

1258
01:21:34.159 --> 01:21:36.319
<v Speaker 3>been able to provide, you know, just talking about my

1259
01:21:36.399 --> 01:21:40.800
<v Speaker 3>own experience to other people. Again, in my local area,

1260
01:21:41.239 --> 01:21:43.159
<v Speaker 3>there's been a few support groups as well. I know

1261
01:21:43.279 --> 01:21:46.920
<v Speaker 3>I was supported by a mind and never mind, I

1262
01:21:46.960 --> 01:21:48.479
<v Speaker 3>think it was as well, and I had a support

1263
01:21:48.520 --> 01:21:50.520
<v Speaker 3>where I could be checking in and what have you

1264
01:21:50.640 --> 01:21:53.800
<v Speaker 3>for the first couple of years and stuff. So yeah,

1265
01:21:53.840 --> 01:21:58.239
<v Speaker 3>it's definitely definitely really important, and you know, the opportunity

1266
01:21:58.319 --> 01:22:00.319
<v Speaker 3>to kind of just talk about what's going going on,

1267
01:22:00.479 --> 01:22:03.359
<v Speaker 3>because as I think both of you have both said,

1268
01:22:03.520 --> 01:22:08.960
<v Speaker 3>unless you're in it, you don't really stand and you know,

1269
01:22:10.039 --> 01:22:12.000
<v Speaker 3>I kind of think, you know, sometimes people are very

1270
01:22:12.039 --> 01:22:15.760
<v Speaker 3>well meaning, but often and you know, and I sort

1271
01:22:15.760 --> 01:22:17.880
<v Speaker 3>of say this in terms of, you know, depending on

1272
01:22:17.920 --> 01:22:20.960
<v Speaker 3>the different types of communities that you're in, sometimes people

1273
01:22:21.159 --> 01:22:23.800
<v Speaker 3>kind of shy away from checking in on you when

1274
01:22:24.039 --> 01:22:27.079
<v Speaker 3>sometimes you need people the most. Sometimes they think I'm

1275
01:22:27.079 --> 01:22:29.079
<v Speaker 3>not really quite sure what to say, or you know,

1276
01:22:29.159 --> 01:22:31.640
<v Speaker 3>they're probably okay, you know, and I kind of think

1277
01:22:32.039 --> 01:22:35.680
<v Speaker 3>sometimes a simple phone call or a simple text can

1278
01:22:35.800 --> 01:22:38.479
<v Speaker 3>just make so much of a difference. And you know,

1279
01:22:39.239 --> 01:22:42.119
<v Speaker 3>obviously as Christians as well, you know, we're coming from

1280
01:22:42.159 --> 01:22:45.479
<v Speaker 3>that perspective as well. Sometimes you know, our own kinds

1281
01:22:45.520 --> 01:22:49.680
<v Speaker 3>of communities, our own other members around us sometimes don't

1282
01:22:49.720 --> 01:22:51.399
<v Speaker 3>even do that as well as they could do as well.

1283
01:22:51.479 --> 01:22:53.600
<v Speaker 3>And there's a lot more that possibly could be done

1284
01:22:54.239 --> 01:22:57.800
<v Speaker 3>in that respect. So yeah, the support, the support is

1285
01:22:58.000 --> 01:23:02.760
<v Speaker 3>definitely needed, you know. And I think as well the

1286
01:23:02.880 --> 01:23:09.159
<v Speaker 3>idea around education for caregivers themselves, you know, because everybody

1287
01:23:09.239 --> 01:23:11.880
<v Speaker 3>you know, I know, I've sometimes shared resources and I

1288
01:23:12.399 --> 01:23:14.239
<v Speaker 3>you know, I can talk, you know, we can all

1289
01:23:14.279 --> 01:23:18.159
<v Speaker 3>talk about where we've got support from and where you

1290
01:23:18.239 --> 01:23:20.199
<v Speaker 3>can access stuff, you know, and that Michelle, you know,

1291
01:23:20.279 --> 01:23:23.399
<v Speaker 3>I've spoken to you know, the Admiral nurses and again,

1292
01:23:23.800 --> 01:23:25.920
<v Speaker 3>just when you kind of think I just need someone

1293
01:23:26.000 --> 01:23:29.319
<v Speaker 3>to talk to, especially as you mentioned, sometimes when you're

1294
01:23:29.359 --> 01:23:32.439
<v Speaker 3>doing things on your own, you know, you feel like

1295
01:23:32.479 --> 01:23:34.359
<v Speaker 3>you're not even like I know, I work from home,

1296
01:23:34.640 --> 01:23:36.520
<v Speaker 3>so sometimes it feels like I've got no one else

1297
01:23:36.600 --> 01:23:39.600
<v Speaker 3>to talk to because there's no one else in the house.

1298
01:23:39.760 --> 01:23:42.119
<v Speaker 3>You know, if my mom isn't here, then it's just me. So,

1299
01:23:42.279 --> 01:23:45.159
<v Speaker 3>you know, when you're feeling very frustrated or just you know,

1300
01:23:45.319 --> 01:23:47.720
<v Speaker 3>having a bad day in terms of what you're doing,

1301
01:23:47.920 --> 01:23:50.319
<v Speaker 3>just being able to pick up the phone speak to

1302
01:23:50.359 --> 01:23:52.680
<v Speaker 3>somebody who can give you that sort of reinsurance and

1303
01:23:52.840 --> 01:23:56.039
<v Speaker 3>encouragement is you know, absolutely, absolutely wonderful.

1304
01:23:56.640 --> 01:24:00.199
<v Speaker 6>Absolutely, And I know in some borrows will certainly when

1305
01:24:00.239 --> 01:24:04.479
<v Speaker 6>my mum lives in Croydon, they have like a care

1306
01:24:04.560 --> 01:24:07.720
<v Speaker 6>and support for them and they meet three times a week.

1307
01:24:07.760 --> 01:24:10.880
<v Speaker 6>They have a coffee morning. I think it's between nine

1308
01:24:10.960 --> 01:24:14.199
<v Speaker 6>and twelve, and it's a drop in and you go

1309
01:24:14.399 --> 01:24:16.359
<v Speaker 6>there and you meet people and you can sit and

1310
01:24:16.439 --> 01:24:18.680
<v Speaker 6>have a chat to them. You don't even have to

1311
01:24:18.760 --> 01:24:20.920
<v Speaker 6>go back if you don't want to. You just drop

1312
01:24:21.079 --> 01:24:23.680
<v Speaker 6>in as and when you feel like it. But I've

1313
01:24:23.760 --> 01:24:26.439
<v Speaker 6>been to a few and it's quite welcoming. You know,

1314
01:24:26.560 --> 01:24:28.399
<v Speaker 6>would you like a cup of tea? Would you like

1315
01:24:28.479 --> 01:24:31.359
<v Speaker 6>some biscuits? And before you know it, you're chatting to

1316
01:24:31.479 --> 01:24:36.239
<v Speaker 6>other people that are going through exactly what you're going through. However,

1317
01:24:36.479 --> 01:24:39.680
<v Speaker 6>on saying that that only works if you can get

1318
01:24:39.720 --> 01:24:42.399
<v Speaker 6>out the house and leave the person that you're caring for.

1319
01:24:44.000 --> 01:24:47.399
<v Speaker 6>So if you can't, I always think the second best

1320
01:24:47.439 --> 01:24:50.159
<v Speaker 6>thing is the Admiral nurse because that's a fune caller way.

1321
01:24:50.960 --> 01:24:55.840
<v Speaker 3>Yeah, and also the beauty of something that grew your group. Yeah,

1322
01:24:56.000 --> 01:24:58.840
<v Speaker 3>and actually, you know, I guess that's probably one of

1323
01:24:58.920 --> 01:25:01.800
<v Speaker 3>the I could hardly say it's a benefit of COVID,

1324
01:25:01.960 --> 01:25:06.279
<v Speaker 3>but the actual realization that we can use our technology effectively,

1325
01:25:07.520 --> 01:25:09.319
<v Speaker 3>you know, and obviously been able to kind of join

1326
01:25:09.880 --> 01:25:13.039
<v Speaker 3>a zoom call, you know, to be able to connect

1327
01:25:13.279 --> 01:25:15.960
<v Speaker 3>you know, it's definitely definitely something that can be done.

1328
01:25:16.000 --> 01:25:18.720
<v Speaker 3>So that's another way of making those connections there as well.

1329
01:25:19.760 --> 01:25:22.920
<v Speaker 3>I know, as you've mentioned about support, I did check

1330
01:25:23.000 --> 01:25:25.680
<v Speaker 3>in with the manager of the day center that their

1331
01:25:25.760 --> 01:25:28.760
<v Speaker 3>mum goes to. And again it's another area because I know,

1332
01:25:29.359 --> 01:25:32.520
<v Speaker 3>not only do they support the service users there who

1333
01:25:32.600 --> 01:25:34.840
<v Speaker 3>are living with dementia, but again and one of the

1334
01:25:34.920 --> 01:25:38.319
<v Speaker 3>things that you know, Karen mentioned was the fact that

1335
01:25:38.399 --> 01:25:40.560
<v Speaker 3>actually it's there for service for the caregivers and the

1336
01:25:40.640 --> 01:25:44.079
<v Speaker 3>families as well. And I know, again I've experienced, you know,

1337
01:25:44.159 --> 01:25:47.119
<v Speaker 3>I've sort of gone there visibly quite stressed and distressed,

1338
01:25:47.640 --> 01:25:51.119
<v Speaker 3>and you know the kind of hugs or encouraging words

1339
01:25:51.119 --> 01:25:53.760
<v Speaker 3>that they've provided has definitely so you know, we'll hear

1340
01:25:53.800 --> 01:25:56.319
<v Speaker 3>a bit more from her with regards to that as well.

1341
01:25:57.399 --> 01:26:00.520
<v Speaker 3>Adventist Radio London inspiration with the song

1342
01:26:06.960 --> 01:26:07.239
<v Speaker 8>MHM
