Speaker 1: I guess that's it. I'm just scared of being on
my own.
Speaker 2: I can't rest act as that sound when you pretend
you're sleeping but you're stocking.
Speaker 1: Someone tell me the truth? Is really I ord to
know if I'm playing second best? Is it best if
I go home? Why he can't he be seen? If
you don't even care? Dad, I'm so stuck out of
way and there's.
Speaker 3: No one the baby.
Speaker 4: I'm just too excited to let you know when I
give you somebody trying you home. I need to say
it now.
Speaker 3: Is I can't s if.
Speaker 1: They made me in these days, I'm the bests.
Speaker 4: I don't having give these days.
Speaker 1: I'm the best days.
Speaker 5: I don't have.
Speaker 1: Give me a reason why I feel.
Speaker 2: So light today, because it's scares me, this thing that
I might have read here for nothing at all.
Speaker 1: God did dust on my shoes just to prove I
can be now using your parents, I don't need and
nice leave, probably treaming up your lips.
Speaker 6: You know your sins for sadness is a can by
feeding physical baby, I'm just shooting trying to let you know.
Speaker 1: I want to give you a right, so I'm gonna
drop you.
Speaker 4: I need to say it now because.
Speaker 6: I guess I'll be giving baby. It is of the
best disable I need ready scared of being thing. Maybe
I can be justin mill hair struggle. I've never had
a look.
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disable going.
Speaker 1: Maybe I understood side to let you know want.
Speaker 4: To give you on the bit so I'm going to
drive you. I need to say it now because I
can't thinking the baby on the.
Speaker 1: Bus days on the best days, I will even be scan.
Speaker 4: Maybe I can be just a the least I've never
that's t be a reason to be in these any sides.
Speaker 5: And the bests have on.
Speaker 4: Maybe I'm just too excited, but it can't do on
the bit so wan to tell you. I need to
see the cause I can's not being the making. Maybe
these days, on the best days, I won't ta be scaping.
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Speaker 4: Be just the nest I'm not having that baby therese
and the main every day they said.
Speaker 1: Days album maybe honest to.
Speaker 4: Time that they know what it can't do. Anyway I
need say nose.
Speaker 1: I guess have big the mabe maybe thays and papusdays
I happen.
Speaker 4: Just pason believe James Design, Jesus.
Speaker 7: Design, Jesus Design.
Speaker 5: The people.
Speaker 7: Or James come.
Speaker 8: Skl didn't construe.
Speaker 7: Streak smerd a saber about cop.
Speaker 3: No wealthy God. We'll show you.
Speaker 9: Everyone everything that you have agath, I'll know you want
to do one not today, reason for going that thing?
You cannot know what that little way.
Speaker 3: Now corner a questions or crew well, oh cr where
you are holding on by crown through the world, not
thing and black or La group pour out you.
Speaker 4: Got from.
Speaker 3: Free two?
Speaker 4: Here's a free and from.
Speaker 3: Would you like to know money?
Speaker 10: Yeah? Yeah, yeah yeah.
Speaker 11: That is two radio premiere, so open this week's Matt
Connorton Unleashed. That was the FM radio premiere of Cyber Jesus,
the new single from Silicon Kong, and to open the
show we played the American radio premiere of our friends
from Across the Pond Club Paradise and their great new
track what If These Days, which I absolutely love. And
this is of course Matt Connorton Unleashed. We are live
from the studios of w m n H ninety five
point three f I'm and Glorious, Manchester, New Hampshire. Today
is Saturday August thirty one, twenty twenty.
Speaker 5: Four and I Am not alone.
Speaker 11: Cool a little remix for you there of your your
theme that was different.
Speaker 5: Yes, I kind of like it.
Speaker 11: Yeah yeah, but you did that remix. That's right. It's
it's still uh it's Studio Killers, but it's so same
band but featuring Kim Petris.
Speaker 5: Oh cool.
Speaker 11: So maybe that's who remixed it. I don't know, but uh,
that's cool.
Speaker 5: I like it.
Speaker 12: Good Morning Sunshine and it just stopped for some reason
because it heard my lovely voice.
Speaker 11: That's weird. It's still playing, but it's like there's no
audio there anyway. Well that's definitely a remix. Yes, yes,
so welcome everybody. Of course, we like I said, we
opened the show with a couple of radio premieres, Silicon
Kong and before that, Club Paradise, both great new tracks.
We'll try to hit those again later in the show
in the second and third hours today in case you
uh you miss those, but really good stuff. Our first
guest should be calling in in just a couple of moments, uh,
filmmaker Charles Maddox, who has been on the show a
couple times over the years, and of course he's got
a documentary called a trial by fire, which we're going
to talk with him about that. In the second hour,
we have ever Felt who is returning to the program,
Adam Steglitch, and I don't know if anyone else will
be with him, but he did message us he is
on Skype. They're from Chicago and we had them as
a couple of years ago. I love their sound, really
really great band. And then in the third hour, we
have Dave Strong coming in and I think he's from
Boston if I'm not mistaken, and.
Speaker 12: It may be coming with some company.
Speaker 11: We've got We've got We've got several tracks of his
He's got a brand new single by the way, that
h We're not gonna We're actually not going to play
the new single that just came out because the new single,
so you know, if there's bad words in a song,
I often make radio edits, but I listened to the
new single and it would have ruined the song if
I'd made it radio edit of the new one, brand
new It's called I Hate Joe King's Roommate. But he
did send us some other tracks to play, so we
have some of Dave Strong's studio tracks that I really
look forward to've I became an instant fan as soon
as I listened to him. But yeah, but I am
curious to ask him about the new single. I hate
Joe King's roommate because I'm curious to know who is
joking and what is his roommate done to Dave Strong
to elicit a song with so much F word in it,
so much track. Well, it's a punk song, so it's
not a you know, distrack is kind of reserved for
hip hop. I would say, but but I didn't know that.
Speaker 12: I thought anybody could do well.
Speaker 11: But he's certainly the things that he says about this
individual about whom the song is about, he certainly is
dissing them. Oh, by the way, too funny thing. As
we were listening to that Silicon cong tract, Cyber Jesus
immediately thought, I don't know if you thought this that
I could imagine him playing with Green Jello or Green Jelly,
whichever you want to call them. I think he would
fit right in with them. Of course, they were Tuesday
night at Terminus in Nashua. A show that you have insane,
the show that you helped put together.
Speaker 12: Actually that was insane, And I got to tell you
you got to get down to Terminus to see a
show period. But ye, see Green Jello.
Speaker 11: There was just oh amazing, absolutely incredible, incredible. Yeah, such
a great time. And it's funny. I said to Eleanor
at the end of the night as we were leaving,
I said, I hope nothing got broken, or I said,
I actually I was quite sure something had gotten broken.
I said, I hope nothing important got broken during the
show tonight. And she kind of shrug and said, well,
if it did, we'll figure it out. You know, it
was worth it.
Speaker 12: So I don't think anything. I don't remember anything becoming Yeah, I.
Speaker 11: Don't know, but no, but it was. That was a
great time. That was a great time. And it's one
of those things who it all started with. You know,
we had them because they had played in Manchester yep
at the beginning of the summer I think it was.
Speaker 12: And it did not start with me.
Speaker 11: Right well they so they they played, right, they played, Uh,
they played at the Shaft Scheme.
Speaker 13: Yes, and then.
Speaker 11: Jesse, your your son had suggested because he had gone
to the show. He was at the show, and he suggested,
you see if they would come on the next morning
on to here, which was all.
Speaker 12: I was planning on going to the show right told
me about it and said, you know, you ought to
see if these guys want to come in, and I said,
that's a great idea. Yeah, so I reached out to
him maybe two months before they came to New Hampshire.
Speaker 5: Yeah, and.
Speaker 11: That was a long shot too, so it's good that
you went for it. The reason I say it was
a long shot is usually if a band is going
to do a radio interview in a particular market where
they have a show because they're touring, they you know,
usually the show, the radio show is before because the
idea of going on the radio show is to sell
tickets to the to the concert. So usually so I didn't.
I was actually surprised they said yes because they were
kind enough to come on and Bill mannspeaker, great guy,
everybody from the band. They were kind enough to come
on the morning after they had just played the show
in Manchester or so, so that was really cool. Well,
I'm just saying though, typically in the industry, when you're
when you're doing when you're doing radio interviews, you don't
usually go on to show the day after. So that's
why I'm saying that was especially cool of them.
Speaker 12: To do that, absolutely, and they all came in.
Speaker 11: It was amazing.
Speaker 12: It was if you didn't see that it is recorded,
of course, but not now.
Speaker 11: Yeah, no, no, no, but yeah, So that was But
so that led to a conversation after the show, because
you know that we talked for a few minutes after
the show because they were our last guests of the
day and.
Speaker 5: Bill.
Speaker 11: Bill said something about, you know we're going to be
coming back through is there somewhere else we can play?
And he wanted to offer a free con a free show, Yeah, which.
Speaker 12: Is pretty insane. Cool. Yeah, to do that and you
get Terminus.
Speaker 11: At that point it was in your hands to get
and I thought Terminus.
Speaker 12: Might be a great location. Reached out to Eleanor and
they said yes. And I know they took very good
care of Green Jellow because I will say Terminus knows
how to treat their artists quite nicely.
Speaker 11: Absolutely, No, that was insane.
Speaker 12: That was awesome, grateful for Terminists to post it. It
was an incredible evening. It was like having a private
concert in a way. Yes, because it was limited. It
was limited amount of people who could come. And I
have never seen so many pool noodles in my life,
not even at the.
Speaker 11: Pool right exactly exactly.
Speaker 12: No, No, that was awesome. That was definitely awesome.
Speaker 11: Excuse me speaking of Terminus too, of course your art
has been hanging there.
Speaker 12: Yeah, and Spelfie came and sat down and did an
interview with me, and it's a it's a really in
depth interview. We talked for about an hour. We talked
about the pieces that are have been hanging up in
Terminus all month.
Speaker 11: We should tell people, Spelfiest part of the Midnight Creatives Collective,
which of course Terminus is a part of, which is CRACT.
But and we had them on the show just recently.
Spelfie and Eleanor and Andre all came on the show.
Speaker 12: And every month they pick an artist to feature, and
I was this one's artist, and they actually chose to
have my darkest paintings that I had never actually put
all together. So that was that was interesting to see
all of those paintings together as a collection. Yeah, and yeah,
kind of powerful to see that because it's a little
jarring because none of them were They were all dark
paintings for the most part. There's one that was maybe
not so dark, but yeah, that was insane to see
them all together like that.
Speaker 11: Yeah, yeah, absolutely so. Yeah, lots of good stuff going on.
But yeah, that's up on YouTube, right, the interview that
Stealthy did YouTube so people can watch them now.
Speaker 12: It's on YouTube, It's on my Facebook page, it's on
the Midnight Creative Collector's page. You can also find links
to it at gencoffee dot com. We might blog is
posted yes j E N N C O F f
ey dot com.
Speaker 11: Yes, yes, I do want to say hello to everybody
to in the chat room. Let's see we have Jay
Bellow from the band Chasing the Devil. Of course they're
going to be coming on soon, right, I think are
you working on getting them back on?
Speaker 12: I am waiting to hear respond.
Speaker 11: They've got a big tour that they're that they're going on.
So very happy for them. And and actually the when
they were on previously, when the single for a Beautiful
Nightmare came out and the guys were on the show, Yeah,
they were talking about that, how they were looking into, uh,
possibly doing a tour and so very excited about that.
So yeah, we do need to get them on, you know,
even if they're even if they're out on tour, if
they want to do a phone or something. Love those guys.
But Andy Jay is such a great guy, always a
big supporter of the show. And let's see, we also
have Hope the Rapper in the chat room. Hello to
our friend Hope the Rapper. We love him. And let's see,
I got to look at more than one chat room
now since I'm splitting the stream up to multiple locations
because you can stream it on YouTube now too, I
forget figured out how to do that.
Speaker 12: We are streaming live in many places.
Speaker 11: And our friend Bruce from Legion of Solas of course,
great organization based in Connecticut who does a lot to
promote the music scene as well. Bruce is in the
chat room and he's in there pretty much every week,
which is nice. And he says morning friends, and our
first guest is late you hear anything from.
Speaker 12: Him active online but not hurt anything.
Speaker 13: Okay, Well, what we'll do.
Speaker 11: You know what I think I'm gonna do. I'm gonna
call an audible here upon fully intended actually, so we'll
see if maybe he's having a technical problem. But since
our friend Jay is in the chat room, Jay Bellow
from Chasing the Devil, and they are going on a
big tour. I think we should take a break and
play We did the world radio premiere for this actually
on the show. We were the first ones to play it. Drowning,
great great track, absolutely, absolutely, such a great band. Uh,
let's give this a spin and then we'll come back
and we'll uh, we'll figure out where we're going from here,
and perhaps our guests will appear. We'll see what happens
live radio. But hey gives us, ah, gives us an
excuse to play some Chasing the Devil here.
Speaker 13: It is drowning, the New days a game.
Speaker 5: Through this, just this awesome time. Well, holding on to
whatever saying?
Speaker 3: Is that.
Speaker 5: Count that.
Speaker 1: Streams rocksnails so si.
Speaker 4: Cop, that's lie, So come on, trust, come.
Speaker 5: Truck, feel coming Row.
Speaker 4: Trumps lie South, not no many things.
Speaker 5: I don't us to be.
Speaker 14: Small, don't want campers, camp small, Dona camp.
Speaker 13: Small so good.
Speaker 11: That is drowning the band is Chasing the Devil and
we have with us now via phone. I believe our
friend Charles Maddox is there.
Speaker 5: Charles, is that you?
Speaker 10: Hey, how's everybody doing this morning?
Speaker 5: Good? Good?
Speaker 11: Welcome, or I should say welcome back. You've been on
with us a couple of times before over the years.
I think the first time. The first time was jeez,
it had to be at least five years ago. The
first time you were on, I think you had had
you put out the documentary about diabetes.
Speaker 10: Was that okay, yeah, yeah, yeah, that's been out.
Speaker 11: It's coming back to me now, yeah. Yeah. Well you're
a busy guy. You do a lot of stuff. So,
so welcome to the show on this Saturday morning. Jenny
is here of course as well, and the subject of
your newest documentary, Trial by Fire, is something that obviously
Jenny is she can relate too, unfortunately, because it is
about a very serious subject CRPS, complex regional pain syndrome.
And let me ask you right off the top, Charles,
what what was it that compelled you to make this
particular documentary Trial by Fire.
Speaker 7: Yeah, you know it.
Speaker 10: My mother suffers from from CRPS, and I remember she
had it probably about maybe about three two three years,
maybe even longer, and I would go see her and
I really didn't have any understanding of what she was
going through, and she was was at a place where,
you know, she would complain about the pain. Once again,
I was ignorant to what CRPS was, so I would
just say, well, Mom, maybe you should go to the gym,
Maybe you should try to stretch it out. You know,
you got to walk it out. You know, things like
that that you know, really weren't going to help. And
then one day I went over there. Now you know,
she's a very proud Jamaican woman, and I was there
one day and this was, you know, like I said,
she was dealing with a lot of pain, but you know,
she was still mobile and so on and so forth.
And I remember her saying something about, you know, wanting
to maybe not be on earth anymore. And I said,
WHOA hold on a second, that that. You know, my
mother talked like this, you know. So at that moment,
I literally went online and went to YouTube and just
started you know, looking up stuff and and online looking
up stuff. And I just bumped into someone who I
think had CRPS and it was real bad and they
were talking about how bad it was and about suicide
and things like that. And that's when I said, wow,
you know what, I don't know what this is or
what this is doing to her. I get it now
because I saw someone else who was explaining it, and
I said, you know what I've got to do something
about this, and it was kind of like I wanted
to kind of chronicle what she was going through. But
through chronicling or trying to chronicle what she was going
to go through or going through, you know, I had
to kind of reach out into the community to say,
you know, let me reach out and try to find
other people who are dealing with this, because I want
to tell this story, not just her story, but just
overall and see what was going on with this condition
called CRPS. And that kind of opened up the door
and I met some people in Tampa Saint you know,
I was living in Orlando at the time, so I
met some people who were in Orlando area who were
I have a kids of it, and you know, they said, hey, Charles,
you know what we'd love to, you know, help you
tell this story. And that's that's pretty much how it
got started to really just wanting to see what she
was living through, but then also met other people who
were dealing with it as well.
Speaker 11: In terms of reaching out to other people who are
dealing with it, was that, I mean, how challenging was
it to find those people because CRPS, I mean, the
average person probably has no idea what it is and
and it's not always uh you know, as as you mentioned,
easy to diagnose, and I mean, Jenny, how long the
years before the years? Yeah, you know obviously. And the
thing is too, it's it's such a conundrum. It's like
when you have an illness that is rare. Of course,
it's it's harder to diagnose because fewer medical professionals have
seen that particular illness and there's a lack of research
and whatnot because it's you know, it's not again, it's
not something most people have heard of. You know, everybody
knows what diabetes is, but the average person has no
idea what CRPS is. So was it was that challenging
finding these people?
Speaker 10: No, actually wasn't. The thing is is, you know, there
are some some some great groups on social media, whether
it's Facebook or whatever it may be. And the particular
person that I ran into that was close to me,
they had a great support group and also they knew
a lot of other people, so they had resources from
doctors to experts to uh, you know, hundreds of people
that were following them, and that that kind of opened
up the door that I found other advocates. Like at
that that time, it was like Barbie Ingele, who was
very vocal a few years ago. You know, she still
lives about CRPS and pain, and it just started connecting.
And because there wasn't much advocacy on it, the fact
that this film was being put together was really you know,
raising a lot of awareness. Now, they don't get it wrong.
It wasn't it wasn't easy. They were. There are a
lot of nights where, you know, at times, because of
the pain, it's easy at times to to to shoot
the message. So I had a lot of sleepless, sleepless
nights at times trying to pull all this together and
and you attacked at times, uh you know, but but
it was it was it was all worth it. And
there's some amazing people out in who are dealing with
the RPS, and and you know, I still see, you know,
what my mother is going through daily, and it's really
taken her her her whole, her whole life. To be
honest with you now, you know, she's now bedridden and
sad to say, and uh so it's it's it still
inspires me to want to get out there and change.
And because also there aren't many other advocates that are
known or can do what I can do with this,
you know, these films, I kind of feel like it's
my it's my, you know, god given destiny to try
to continue to fight for people with CRPS. And I've
come to know so many and have so much respect
and love for them too as well.
Speaker 12: That's how we met. How you and I actually met
is because of CRPS and what you're doing with Trial
by Fire is so vital to get information out there,
and unfortunately in America, we don't have as much information
out there as they do in other countries. When I
was in the Netherlands, my girlfriend had gotten into a
bad accident and I got to see an entire protocol
that they have to watch out for CRPS and people
who get injured like that. But we have nothing like that,
especially here. But I know that you're not just showing
this here in the United States. I know it's been
seen in well over what twenty countries. You've won numerous
awards with this, with this documentary. And now what's exciting
to me is that now it's going to be carried
on Netflix soon, isn't it. Oh no, no, Amazon Prime,
Amazon Prime.
Speaker 10: Yeah, it should be there hopefully in the next few weeks.
Which is really exciting. I know, you're right, it's probably
been seen in over twenty five countries and and I
assume by by uh who knows. I mean at this point,
maybe millions of people, because it's still getting seen and
because it's it's been on PBS, it's been on you know,
some great platforms already. So it's, uh, it's very exciting.
And we plan on, even with this new documentary that
we're doing Drop by Fire, to go into other countries
to kind of examine what's going on right now as
far as that. But it you know, it's it's it's
and I'll say this, it's I wish I wish it
was it was easier to to to to get this done.
And you think with all the people who are dealing
with pain, I mean, hundreds of millions of people are
dealing with pain. It's one of the biggest biggest businesses
is the pain. Unfortunately, yeah, unfortunately, I don't know how.
Speaker 12: Many VID chronic pain patients have been hurt so badly of.
Speaker 10: Course, of course, and what you're doing you don't know. Oh,
I'm sorry, go.
Speaker 12: Ahead, I'm sorry, I'm sorry, go ahead.
Speaker 11: No, I was saying, she was just saying what you're
doing is so vital.
Speaker 10: Yeah, yeah, no, And I was saying that, you don't
know how many doors I've knocked gone to try to
get some small funding just to get this done. And
you know, the sad thing, especially with CRPS is there's
there's no cure, so there's you know, there's no money
in that. So it's hard to find people who who say,
you know, yeah, well we'll get involved. I mean I
even reached out to a lawyer that's that's you know,
pushing trying to fight for people would see RPS and
and you know, you got to figure that a lawyer
who might take one case and who could make you know,
hundreds of thousands, if not more than that, you know,
is is more concerned with you know, how much it's
going to cost, you know what I mean, even even
if it was twenty five thousand dollars. But I mean
even twenty five thousand dollars could do a lot for us,
but to get you know, some scene shot. But you know,
they can make a million dollars or if not more,
on one case, and if they bring in ten cases,
they could make you know, a whole lot of money.
But so it's it's everyone is really in it for
for for the money and healthcare.
Speaker 12: That's true, and one of the one of the key
treatments what's the RPS is kind of man infusions and
for the vast majority of patients having to pay cash
out of pocket because they're you know, or fight. I've
been fighting insurance and I've got a provider that's allowing
me to use it, but I'm having to fight. And
the thing about this is too is yes, CRPS is rare,
but people with rare diseases are not. One out of
every ten people has a rare disease. And the light
that you're shining on this is extremely important in the
sense that a CRPS complex regional pain syndrome is the
most painful disease known to modern medicine, and as you said,
it has no cure. However, seventy percent of people with it,
including children, will consider suicide as the option because it
is that bad. It's called the suicide disease by the
medical community and has been called that for over two
hundred years. So it's been a disease that's known but
not known enough. And the light that you're shining on
this is vital to save lives.
Speaker 10: Yeah, yeah, yeah. And I've had a few people then
I've had to that, you know, just reached out to me,
and I've kind of had to say, listen, just don't
do that and if you have to call me personally
and let's talk. Over the years where I've literally had
to try to, you know, just talk people out of things.
And I remember of late, and I like to be
real because you know, when when doing an interview, you
could always gloss over things and and make everything out
to be peachy and keen, but but it's really not.
And I think that you know, the people who are
dealing with this and the people who need to know
about it need to hear the reality that that's out
there at times of you know, what they're dealing with,
because I hear reality from them all the time, and
it's like, wow, I wish I could do more. But
had to release lady recently who this was a couple
of months ago, and she would always say just the
nicest things to me. She would just I didn't know her,
but she just reached out and you know, she was
dealing with CRPS. And I remember before the last time
when I spoke, so I say listen, just can need anything,
just let me know, and so on and so forth,
and no idea, you know how bad things were. And
then probably a couple of weeks later, someone reached out
and said, char Als, I know you and so and
so we're good friends and she had a lot of
respect for you, but you know she's no longer here.
And I was literally just just shook it because, like
I said, she would always encourage me. She would always
say nice things and reach out and send me a
nice message.
Speaker 12: And you know, to hear that was like, especially when
we know that there are options and things that can
be done out there, but it's money that gets in
the way. It's lack of access. Then I'll access the
care or if you don't have enough cash to put
up front, you don't get it. So you know, yeah,
this isn't as serious thing to talk about. And I'm
glad that you're doing a second version and you're talking
about other areas of the world, because some areas of
the world are dealing with this better than we are,
and we could we could take a turn out of
their page, you know, and take a page out of
their book, I should say, of what they're doing to
help not only protect and preserve lives and save lives,
but preventative medicines that we in America really kind of
stink about. When it comes to preventative medicine, we.
Speaker 11: Stink well in a in a broader in a broader
sense too. In America, we just don't. Yeah, there's not
enough focus on preventative anything. When it comes to health.
It's it's all about, you know, waiting until you get sick,
and then we have good.
Speaker 12: Sick care sort of, but not great preventative.
Speaker 11: Exactly, yeah, exactly, Yeah, that's and unfortunately some of that
I think it's just American culture. But uh, but yeah,
but this is something in terms of CRPS. I mean,
this isn't like it's not like you can just uh
you know, as we were talking about, you know, there
are treatments, but it's not like you can just go
to the gym or take some vitamins. I mean, you
have to be able to you have to be able
to have access to to what you need, not to
cure it because there is no cure, but but to
try to manage it as best you can.
Speaker 10: And yeah, and there are people who literally, i mean
who are traveling from different parts of the world just
to you know, there's some treatment out here and for
the kiddymene in Florida and literally hear the stories it
traveling from, you know, whether it's Los Angeles, New York, Canada, Europe,
and some have to do this every few months just
to get a little bit of relief. And it's costly.
This is not This is not you know, a couple
of hundred dollars. This is you know, some some serious
money to get on a plane, you know, and and
and pay for treatment, have to stay in hotels, you know,
have to rent cars on and so forth, just to
get a little bit of relief for you know, three months.
Speaker 5: Yep, this is not easy.
Speaker 12: No, no, it's not.
Speaker 11: What was kind of the criteria Charles for in terms
of people who you put into the film to talk
about this and were there some people who you spoke
with who you wanted to put in it, who maybe
was there anyone who declined to be in it, because
some people are, you know, as much as they might
like to help and spread awareness, some people are obviously
just very private about their health. So I'm curious what
the criteria was and did you encounter anybody who just
said no, I'd like to help, but I don't want
to be in the in the documentary.
Speaker 10: You know, I'll say this, almost everyone wants to be
and wants to share your story. Yeah, because and miscrosses
color lines is called crosses gender lines, as crosses everything.
I mean, when when you know and dealing with this,
you know this type of pain, people just want to
tell their story. I mean, we get now hundreds of
messages where people are like, Charles, I just want to
tell my story, please, I have a story to tell.
And it's it's to the point now where it's like
I'm so you know, focused on trying to raise some
money to get this done that it's like listen, I've
got to reply and listen, I will get back to
you because you know, we have so many messages that
it's and some of these messages are like very long
where you know, it's going to take me a few
minutes to just read through the one message. But I understand,
you know what they're dealing with. So we're going to
have to get back, take a day and get back
to everybody. But no, everyone wants to share. Even back
then when you were shooting the film, everyone wanted to
and wanted to share. And I think in many ways,
because you know, like we just talked about this being
called a suicide disease, that a lot of people are
I mean, you know, you can't even me and you
we don't deal with what they're dealing with. And we
can't understand being in pain day and night. I mean,
can you imagine stubborn your toe and the pain of
that and having that day and night and now you
take that and amplify that a hundred times where this
is running through someone's body. We can't understand what that is, right.
So I mean, when you think about that, and and
people are thinking about, you know, maybe taking their own life,
they want to share. There's a lot of people. I
just I just had a young lady a few days
ago send me a message and she contatacted me through WHAT'SPP.
She said, Charles, I don't think I could do this anymore.
And she's got I think two kids, and and I'm like, listen,
just hang in. And you know she's got a fiance,
her husband, and and.
Speaker 7: You know this is wow.
Speaker 10: I you know, words can't even express what what what
they're dealing with and how we need to fight for
this and this is why I fight for it because
once you know, once again, if if if I don't,
I don't know who will. Right Oh, thank god, I'm
able to have the resources as far as getting the
message out there and putting a good story together and
so on and so forth. You know, I wish it
was easier, you know, sometimes I you know, like I said,
I'm banging my head trying to understand, you know, why
it's so hard to be able to get a project
like this together. But I, you know, I understand that
this is the world we live in, and but we
keep fighting. And when you know, hope. We were working
on going to Italy to highlight some of the treatment
that they have over there. So we've been talking to
that clinic.
Speaker 12: Over there, and Italy has treatment that if administered early enough,
it can halter or reverse or put into remission to
our PS. I used to know a woman who had
a fourteen year old daughter that took her to Italy
for the treatment. It did work for a number of years,
and then I guess it came back went back to
Italy for an additional treatment. But it has to be
done early, early, early, Like by the time we knew
that I had CRPS. It was too late for that
to work for me and to access it here in
the United States. I don't think you can. I think
it's impossible. It's not even like an option.
Speaker 10: For Yeah, I think it's only in Italy.
Speaker 12: People have mortgaged their houses to get you know, done
anything to get their loved ones were there to try it. Yeah, yeah,
And I'll just just have something to try. And I
do want to say, I mean, this is a serious topic.
It is difficult to talk about at times, but this
is why you're done this documentary and why it's so
important to talk about these documentaries and get that information
out there. But if you are having any concerns, or
you're not feeling too hot today, or you need some help,
please remember you can dial nine eighty eight. Nine eight
eight is the suicide and crisis Lifeline, and there are
people there that can help you. So there's always a
voice out there. Don't forget nine eighty eight.
Speaker 11: Yeah, yeah, yeah, absolutely, And I.
Speaker 10: Think too as well. Part of me, you know why,
I fight too as well, because you never know what
might be around the corner, and you want, you want
folks to to to hang in there and hold out
hope that maybe there is some treatment out there that
that you know, I won't have to mortgage your house
or fly across the world to get done. You know,
hopefully there is something that that.
Speaker 12: Part of my is with you doing this. I have
hope that maybe that gets some of the people up
on Capitol Hill to pay attention and approve treatments that
are working for people with c the RPS. But I
do want to also bring up because Charles, you've done
a lot of really great advocacy work, especially in the
realm of the Forever Sick, and you've also done work
in highlighting diabetes and type one diabetes and type two diabetes.
I know you did a documentary series on that as well,
and I wanted to make sure that our listeners heard
about that.
Speaker 10: Yeah, yeah, yeah, We've done some great shows, and you know,
we have the first docuseries we did doctor reality series
was called a Verse. We shut that in Jamaica and
featured you know, people living with diabetes. And I've done
a documentary called The Diabetic You and a couple other
projects on diabetes, and so it's been very powerful and
you know, now that I'm even talking into you, i'd
love to follow up once we get off to as well,
because there probably is some other things that we could
be doing, whether it's starting some sort of you know,
online petition where we have you know, a few thousand
people signs through things that could be you know, brought
in front of some legislation or or some more awareness
that maybe you could help me with and help the
community get out there. So we can kind of make
this more movement because we have to force the hands
of these companies. We do, these pharmaceutical companies, we can
just stay. They've got to open up their eyes and
take account and at least, if nothing else, help support
the people, whether it's even with treatment options.
Speaker 12: Oh exactly, look at what's happening now in our community.
LOTOS snow track Zone is a medication that's working for
a lot of people c RPS and small fiber in neuropathy,
including myself. However, the pharmaceutical company that makes now trucks
On won't make it in the low doses that people
like us need it because it's not profitable for them.
They only make it in the extremely high dose, so
all of us have to go to compounding pharmacies to
get the medication, which means we're paying one hundred percent
out of pocket and it's not cheap, you know, and
have it made that way because insurance gets to take
a walk because it's compounded. Pharmaceutical company goes not enough
money in that for us, So we're not going to
make it, you know, and you're you know, you're left
with either you know, no money, no med or whatever
you're going to do to get the med yep exactly,
Maybe maybe we need.
Speaker 10: To get a petition against or for that company, right
so maybe they can open up their eyes and say,
what is this? Who are these people? And and maybe
take a different look at it. I think, you know,
collectively is a community while it's a rare disease. I'm
sure they're I don't know how what the number is,
but CRPS people. But any petition with you know, fifty
sixty to seventy thousand signatures might make that company say,
you know what, we may need to take a look
at this or at least address this in some form
of fashion.
Speaker 11: Right right, exactly, exactly, Charles. It is already approaching the
top of the hour. We need to begin to wrap up,
but before we run out of time, I want to
make sure the people know where to find the documentary
Trial by Fire, and also too where they should go
to find your other work, your other documentaries, and anything
else that you want our listeners to know about how
to keep up with everything that you're doing.
Speaker 10: Definitely, and I really appreciate this. My website is probably
the best place. It's BELA and l eMedia dot com.
B L l A A and d L e E
l l eMedia dot com and you can always just
google my name Charles Maddox. I'm not hard to find.
Trial by Fire, like I said, is on YouTube right now,
on my on my uh on one of my pages,
the Future of Health Network. But probably will more directed
toward the Amazon Prime so that we can really get
people focused there. And who knows, maybe uh you know,
with with some great views on Amazon Prime, they may
be interested in in doing something bigger with us regarding
CRPS and uh so we really want to push that initiative,
and and and and for those who are listening, do
remember that collectively, you know, as an army of people,
we work better because we have to share. There's there
are people who are literally just now seeing try by
Fire after so many years, and we have to make
sure that when we get this opportunity that we share,
we share. We share, We ask our friends to share,
we ask the friends of our friends to share. And
even though at times a lot of us don't get
the support that we would like, just keep pushing, just
keep sharing, get the message out there. And I think
if we work together at least we can cause some
attention and some eyes to be put on on some
things so that we can try to get some more
help and resources out there.
Speaker 11: Yeah, absolutely, absolutely, all right. Well, Charles Maddox, thank you
so much, my friend. It's wonderful to have you back
on the show. Always great to speak with you, and
we really love and appreciate what you're doing.
Speaker 10: And keep it up, man, keep it up, thanks so much,
and have a good one.
Speaker 11: Absolutely, Charles, thank you. Take care about it all right.
That was Charles Maddox, filmmaker and also a celebrity chef
and actor. And he does a lot of stuff, by
the way, Yeah, not just you know, obviously we're focused
on the documentary with that conversation, but he's a busy guy.
He's got a lot going on, so you should definitely
check out everything that he's doing.
Speaker 12: Absolutely, and he and see I follow him all the
time because he does so much in the chronic illness
area and shine such a great light on it, especially
with that series he did that serious he was talking
about on diabetes is excellent and they talk about things
that they do to you know, help stay healthier, diet
and so forth. So it's it's good to have those
conversations frankly, and Trial by Fire one hundred percent excellent
movie to watch. If you haven't seen it, please see it,
share it, help spread awareness. The more people that are
aware and know, the more we can do to try
and help them prevent people from losing their lives.
Speaker 11: Yep.
Speaker 12: Absolutely, and again I want to just remind people if
you're having a hard day or you're needing someone to
talk to, please remember nine eight eight is a great
number you can call. You can find help and support
there and no shame nine eight eight yep.
Speaker 11: Absolutely. All Right, while we are approaching the top of
the hour, we're going to take a quick break, show
some love to our amazing sponsors. Then when we come back,
we're going to play the newest single from the band
Ever Felt. It is called Reach, and then after that
we will have Everfelt or at least I know Adam
Steglitz is going to join us, and we'll see. We'll
see if other band members are with him. I think
the last time they were on, I think it was
just Adam, but I'm not sure. But a great band
from Chicago. If you haven't heard ever felt, definitely stick around,
but we will be right back plenty more to come.
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