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Speaker 1: I guess that's it. I'm just scared of being on

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my own.

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Speaker 2: I can't rest act as that sound when you pretend

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you're sleeping but you're stocking.

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Speaker 1: Someone tell me the truth? Is really I ord to

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know if I'm playing second best? Is it best if

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I go home? Why he can't he be seen? If

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you don't even care? Dad, I'm so stuck out of

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way and there's.

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Speaker 3: No one the baby.

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Speaker 4: I'm just too excited to let you know when I

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give you somebody trying you home. I need to say

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it now.

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Speaker 3: Is I can't s if.

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Speaker 1: They made me in these days, I'm the bests.

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Speaker 4: I don't having give these days.

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Speaker 1: I'm the best days.

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Speaker 5: I don't have.

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Speaker 1: Give me a reason why I feel.

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Speaker 2: So light today, because it's scares me, this thing that

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I might have read here for nothing at all.

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Speaker 1: God did dust on my shoes just to prove I

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can be now using your parents, I don't need and

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nice leave, probably treaming up your lips.

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Speaker 6: You know your sins for sadness is a can by

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feeding physical baby, I'm just shooting trying to let you know.

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Speaker 1: I want to give you a right, so I'm gonna

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drop you.

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Speaker 4: I need to say it now because.

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Speaker 6: I guess I'll be giving baby. It is of the

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best disable I need ready scared of being thing. Maybe

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I can be justin mill hair struggle. I've never had

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a look.

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Speaker 4: That's giving a peason, but these as are the best

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disable going.

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Speaker 1: Maybe I understood side to let you know want.

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Speaker 4: To give you on the bit so I'm going to

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drive you. I need to say it now because I

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can't thinking the baby on the.

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Speaker 1: Bus days on the best days, I will even be scan.

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Speaker 4: Maybe I can be just a the least I've never

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that's t be a reason to be in these any sides.

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Speaker 5: And the bests have on.

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Speaker 4: Maybe I'm just too excited, but it can't do on

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the bit so wan to tell you. I need to

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see the cause I can's not being the making. Maybe

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these days, on the best days, I won't ta be scaping.

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Speaker 5: Maybe happen to.

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Speaker 4: Be just the nest I'm not having that baby therese

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and the main every day they said.

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Speaker 1: Days album maybe honest to.

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Speaker 4: Time that they know what it can't do. Anyway I

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need say nose.

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Speaker 1: I guess have big the mabe maybe thays and papusdays

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I happen.

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Speaker 4: Just pason believe James Design, Jesus.

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Speaker 7: Design, Jesus Design.

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Speaker 5: The people.

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Speaker 7: Or James come.

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Speaker 8: Skl didn't construe.

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Speaker 7: Streak smerd a saber about cop.

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Speaker 3: No wealthy God. We'll show you.

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Speaker 9: Everyone everything that you have agath, I'll know you want

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to do one not today, reason for going that thing?

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You cannot know what that little way.

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Speaker 3: Now corner a questions or crew well, oh cr where

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you are holding on by crown through the world, not

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thing and black or La group pour out you.

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Speaker 4: Got from.

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Speaker 3: Free two?

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Speaker 4: Here's a free and from.

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Speaker 3: Would you like to know money?

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Speaker 10: Yeah? Yeah, yeah yeah.

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Speaker 11: That is two radio premiere, so open this week's Matt

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Connorton Unleashed. That was the FM radio premiere of Cyber Jesus,

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the new single from Silicon Kong, and to open the

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show we played the American radio premiere of our friends

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from Across the Pond Club Paradise and their great new

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track what If These Days, which I absolutely love. And

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this is of course Matt Connorton Unleashed. We are live

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from the studios of w m n H ninety five

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point three f I'm and Glorious, Manchester, New Hampshire. Today

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is Saturday August thirty one, twenty twenty.

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Speaker 5: Four and I Am not alone.

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Speaker 11: Cool a little remix for you there of your your

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theme that was different.

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Speaker 5: Yes, I kind of like it.

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Speaker 11: Yeah yeah, but you did that remix. That's right. It's

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it's still uh it's Studio Killers, but it's so same

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band but featuring Kim Petris.

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Speaker 5: Oh cool.

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Speaker 11: So maybe that's who remixed it. I don't know, but uh,

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that's cool.

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Speaker 5: I like it.

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Speaker 12: Good Morning Sunshine and it just stopped for some reason

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because it heard my lovely voice.

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Speaker 11: That's weird. It's still playing, but it's like there's no

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audio there anyway. Well that's definitely a remix. Yes, yes,

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so welcome everybody. Of course, we like I said, we

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opened the show with a couple of radio premieres, Silicon

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Kong and before that, Club Paradise, both great new tracks.

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We'll try to hit those again later in the show

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in the second and third hours today in case you

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uh you miss those, but really good stuff. Our first

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guest should be calling in in just a couple of moments, uh,

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filmmaker Charles Maddox, who has been on the show a

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couple times over the years, and of course he's got

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a documentary called a trial by fire, which we're going

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to talk with him about that. In the second hour,

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we have ever Felt who is returning to the program,

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Adam Steglitch, and I don't know if anyone else will

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be with him, but he did message us he is

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on Skype. They're from Chicago and we had them as

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a couple of years ago. I love their sound, really

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really great band. And then in the third hour, we

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have Dave Strong coming in and I think he's from

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Boston if I'm not mistaken, and.

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Speaker 12: It may be coming with some company.

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Speaker 11: We've got We've got We've got several tracks of his

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He's got a brand new single by the way, that

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h We're not gonna We're actually not going to play

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the new single that just came out because the new single,

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so you know, if there's bad words in a song,

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I often make radio edits, but I listened to the

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new single and it would have ruined the song if

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I'd made it radio edit of the new one, brand

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new It's called I Hate Joe King's Roommate. But he

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did send us some other tracks to play, so we

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have some of Dave Strong's studio tracks that I really

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look forward to've I became an instant fan as soon

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as I listened to him. But yeah, but I am

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curious to ask him about the new single. I hate

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Joe King's roommate because I'm curious to know who is

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joking and what is his roommate done to Dave Strong

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to elicit a song with so much F word in it,

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so much track. Well, it's a punk song, so it's

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not a you know, distrack is kind of reserved for

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hip hop. I would say, but but I didn't know that.

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Speaker 12: I thought anybody could do well.

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Speaker 11: But he's certainly the things that he says about this

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individual about whom the song is about, he certainly is

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dissing them. Oh, by the way, too funny thing. As

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we were listening to that Silicon cong tract, Cyber Jesus

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immediately thought, I don't know if you thought this that

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I could imagine him playing with Green Jello or Green Jelly,

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whichever you want to call them. I think he would

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fit right in with them. Of course, they were Tuesday

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night at Terminus in Nashua. A show that you have insane,

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the show that you helped put together.

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Speaker 12: Actually that was insane, And I got to tell you

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you got to get down to Terminus to see a

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show period. But ye, see Green Jello.

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Speaker 11: There was just oh amazing, absolutely incredible, incredible. Yeah, such

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a great time. And it's funny. I said to Eleanor

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at the end of the night as we were leaving,

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I said, I hope nothing got broken, or I said,

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I actually I was quite sure something had gotten broken.

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I said, I hope nothing important got broken during the

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show tonight. And she kind of shrug and said, well,

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if it did, we'll figure it out. You know, it

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was worth it.

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Speaker 12: So I don't think anything. I don't remember anything becoming Yeah, I.

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Speaker 11: Don't know, but no, but it was. That was a

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great time. That was a great time. And it's one

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of those things who it all started with. You know,

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we had them because they had played in Manchester yep

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at the beginning of the summer I think it was.

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Speaker 12: And it did not start with me.

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Speaker 11: Right well they so they they played, right, they played, Uh,

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they played at the Shaft Scheme.

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Speaker 13: Yes, and then.

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Speaker 11: Jesse, your your son had suggested because he had gone

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to the show. He was at the show, and he suggested,

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you see if they would come on the next morning

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on to here, which was all.

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Speaker 12: I was planning on going to the show right told

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me about it and said, you know, you ought to

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see if these guys want to come in, and I said,

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that's a great idea. Yeah, so I reached out to

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him maybe two months before they came to New Hampshire.

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Speaker 5: Yeah, and.

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Speaker 11: That was a long shot too, so it's good that

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you went for it. The reason I say it was

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a long shot is usually if a band is going

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to do a radio interview in a particular market where

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they have a show because they're touring, they you know,

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usually the show, the radio show is before because the

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idea of going on the radio show is to sell

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tickets to the to the concert. So usually so I didn't.

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I was actually surprised they said yes because they were

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kind enough to come on and Bill mannspeaker, great guy,

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everybody from the band. They were kind enough to come

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on the morning after they had just played the show

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in Manchester or so, so that was really cool. Well,

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I'm just saying though, typically in the industry, when you're

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when you're doing when you're doing radio interviews, you don't

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usually go on to show the day after. So that's

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why I'm saying that was especially cool of them.

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Speaker 12: To do that, absolutely, and they all came in.

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Speaker 11: It was amazing.

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Speaker 12: It was if you didn't see that it is recorded,

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of course, but not now.

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Speaker 11: Yeah, no, no, no, but yeah, So that was But

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so that led to a conversation after the show, because

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you know that we talked for a few minutes after

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the show because they were our last guests of the

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day and.

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Speaker 5: Bill.

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Speaker 11: Bill said something about, you know we're going to be

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coming back through is there somewhere else we can play?

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And he wanted to offer a free con a free show, Yeah, which.

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Speaker 12: Is pretty insane. Cool. Yeah, to do that and you

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get Terminus.

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Speaker 11: At that point it was in your hands to get

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and I thought Terminus.

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Speaker 12: Might be a great location. Reached out to Eleanor and

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they said yes. And I know they took very good

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care of Green Jellow because I will say Terminus knows

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how to treat their artists quite nicely.

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Speaker 11: Absolutely, No, that was insane.

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Speaker 12: That was awesome, grateful for Terminists to post it. It

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was an incredible evening. It was like having a private

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concert in a way. Yes, because it was limited. It

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was limited amount of people who could come. And I

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have never seen so many pool noodles in my life,

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not even at the.

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Speaker 11: Pool right exactly exactly.

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Speaker 12: No, No, that was awesome. That was definitely awesome.

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Speaker 11: Excuse me speaking of Terminus too, of course your art

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has been hanging there.

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Speaker 12: Yeah, and Spelfie came and sat down and did an

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interview with me, and it's a it's a really in

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depth interview. We talked for about an hour. We talked

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about the pieces that are have been hanging up in

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Terminus all month.

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Speaker 11: We should tell people, Spelfiest part of the Midnight Creatives Collective,

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which of course Terminus is a part of, which is CRACT.

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But and we had them on the show just recently.

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Spelfie and Eleanor and Andre all came on the show.

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Speaker 12: And every month they pick an artist to feature, and

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I was this one's artist, and they actually chose to

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have my darkest paintings that I had never actually put

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all together. So that was that was interesting to see

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all of those paintings together as a collection. Yeah, and yeah,

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kind of powerful to see that because it's a little

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jarring because none of them were They were all dark

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paintings for the most part. There's one that was maybe

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not so dark, but yeah, that was insane to see

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them all together like that.

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Speaker 11: Yeah, yeah, absolutely so. Yeah, lots of good stuff going on.

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But yeah, that's up on YouTube, right, the interview that

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Stealthy did YouTube so people can watch them now.

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Speaker 12: It's on YouTube, It's on my Facebook page, it's on

254
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the Midnight Creative Collector's page. You can also find links

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to it at gencoffee dot com. We might blog is

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posted yes j E N N C O F f

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ey dot com.

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Speaker 11: Yes, yes, I do want to say hello to everybody

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to in the chat room. Let's see we have Jay

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Bellow from the band Chasing the Devil. Of course they're

261
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going to be coming on soon, right, I think are

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you working on getting them back on?

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Speaker 12: I am waiting to hear respond.

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Speaker 11: They've got a big tour that they're that they're going on.

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So very happy for them. And and actually the when

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they were on previously, when the single for a Beautiful

267
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Nightmare came out and the guys were on the show, Yeah,

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they were talking about that, how they were looking into, uh,

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possibly doing a tour and so very excited about that.

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So yeah, we do need to get them on, you know,

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even if they're even if they're out on tour, if

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they want to do a phone or something. Love those guys.

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But Andy Jay is such a great guy, always a

274
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big supporter of the show. And let's see, we also

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have Hope the Rapper in the chat room. Hello to

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our friend Hope the Rapper. We love him. And let's see,

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I got to look at more than one chat room

278
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now since I'm splitting the stream up to multiple locations

279
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because you can stream it on YouTube now too, I

280
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forget figured out how to do that.

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Speaker 12: We are streaming live in many places.

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Speaker 11: And our friend Bruce from Legion of Solas of course,

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great organization based in Connecticut who does a lot to

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promote the music scene as well. Bruce is in the

285
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chat room and he's in there pretty much every week,

286
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which is nice. And he says morning friends, and our

287
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first guest is late you hear anything from.

288
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Speaker 12: Him active online but not hurt anything.

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Speaker 13: Okay, Well, what we'll do.

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Speaker 11: You know what I think I'm gonna do. I'm gonna

291
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call an audible here upon fully intended actually, so we'll

292
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see if maybe he's having a technical problem. But since

293
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our friend Jay is in the chat room, Jay Bellow

294
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from Chasing the Devil, and they are going on a

295
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big tour. I think we should take a break and

296
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play We did the world radio premiere for this actually

297
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on the show. We were the first ones to play it. Drowning,

298
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great great track, absolutely, absolutely, such a great band. Uh,

299
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let's give this a spin and then we'll come back

300
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and we'll uh, we'll figure out where we're going from here,

301
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and perhaps our guests will appear. We'll see what happens

302
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live radio. But hey gives us, ah, gives us an

303
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excuse to play some Chasing the Devil here.

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Speaker 13: It is drowning, the New days a game.

305
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Speaker 5: Through this, just this awesome time. Well, holding on to

306
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whatever saying?

307
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Speaker 3: Is that.

308
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Speaker 5: Count that.

309
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Speaker 1: Streams rocksnails so si.

310
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Speaker 4: Cop, that's lie, So come on, trust, come.

311
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Speaker 5: Truck, feel coming Row.

312
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Speaker 4: Trumps lie South, not no many things.

313
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Speaker 5: I don't us to be.

314
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Speaker 14: Small, don't want campers, camp small, Dona camp.

315
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Speaker 13: Small so good.

316
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Speaker 11: That is drowning the band is Chasing the Devil and

317
00:24:12,880 --> 00:24:15,759
we have with us now via phone. I believe our

318
00:24:15,799 --> 00:24:17,000
friend Charles Maddox is there.

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Speaker 5: Charles, is that you?

320
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Speaker 10: Hey, how's everybody doing this morning?

321
00:24:22,519 --> 00:24:23,039
Speaker 5: Good? Good?

322
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Speaker 11: Welcome, or I should say welcome back. You've been on

323
00:24:25,799 --> 00:24:28,039
with us a couple of times before over the years.

324
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I think the first time. The first time was jeez,

325
00:24:31,799 --> 00:24:33,119
it had to be at least five years ago. The

326
00:24:33,160 --> 00:24:36,440
first time you were on, I think you had had

327
00:24:36,480 --> 00:24:38,799
you put out the documentary about diabetes.

328
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Speaker 10: Was that okay, yeah, yeah, yeah, that's been out.

329
00:24:43,240 --> 00:24:45,519
Speaker 11: It's coming back to me now, yeah. Yeah. Well you're

330
00:24:45,559 --> 00:24:47,160
a busy guy. You do a lot of stuff. So,

331
00:24:47,960 --> 00:24:50,599
so welcome to the show on this Saturday morning. Jenny

332
00:24:50,680 --> 00:24:54,039
is here of course as well, and the subject of

333
00:24:54,119 --> 00:24:57,960
your newest documentary, Trial by Fire, is something that obviously

334
00:24:58,119 --> 00:25:02,480
Jenny is she can relate too, unfortunately, because it is

335
00:25:02,519 --> 00:25:07,119
about a very serious subject CRPS, complex regional pain syndrome.

336
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And let me ask you right off the top, Charles,

337
00:25:12,680 --> 00:25:15,519
what what was it that compelled you to make this

338
00:25:15,680 --> 00:25:18,039
particular documentary Trial by Fire.

339
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Speaker 7: Yeah, you know it.

340
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Speaker 10: My mother suffers from from CRPS, and I remember she

341
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had it probably about maybe about three two three years,

342
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maybe even longer, and I would go see her and

343
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I really didn't have any understanding of what she was

344
00:25:40,880 --> 00:25:45,279
going through, and she was was at a place where,

345
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you know, she would complain about the pain. Once again,

346
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I was ignorant to what CRPS was, so I would

347
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just say, well, Mom, maybe you should go to the gym,

348
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Maybe you should try to stretch it out. You know,

349
00:25:56,839 --> 00:25:59,480
you got to walk it out. You know, things like

350
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that that you know, really weren't going to help. And

351
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then one day I went over there. Now you know,

352
00:26:05,440 --> 00:26:09,319
she's a very proud Jamaican woman, and I was there

353
00:26:09,400 --> 00:26:11,880
one day and this was, you know, like I said,

354
00:26:11,960 --> 00:26:14,119
she was dealing with a lot of pain, but you know,

355
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she was still mobile and so on and so forth.

356
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And I remember her saying something about, you know, wanting

357
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to maybe not be on earth anymore. And I said,

358
00:26:24,119 --> 00:26:27,400
WHOA hold on a second, that that. You know, my

359
00:26:27,599 --> 00:26:32,759
mother talked like this, you know. So at that moment,

360
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I literally went online and went to YouTube and just

361
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started you know, looking up stuff and and online looking

362
00:26:41,400 --> 00:26:45,240
up stuff. And I just bumped into someone who I

363
00:26:45,359 --> 00:26:48,759
think had CRPS and it was real bad and they

364
00:26:48,799 --> 00:26:53,240
were talking about how bad it was and about suicide

365
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and things like that. And that's when I said, wow,

366
00:26:56,680 --> 00:27:00,279
you know what, I don't know what this is or

367
00:27:00,359 --> 00:27:03,880
what this is doing to her. I get it now

368
00:27:04,160 --> 00:27:07,839
because I saw someone else who was explaining it, and

369
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I said, you know what I've got to do something

370
00:27:10,160 --> 00:27:13,480
about this, and it was kind of like I wanted

371
00:27:13,559 --> 00:27:15,880
to kind of chronicle what she was going through. But

372
00:27:16,480 --> 00:27:19,680
through chronicling or trying to chronicle what she was going

373
00:27:19,759 --> 00:27:22,839
to go through or going through, you know, I had

374
00:27:22,880 --> 00:27:25,319
to kind of reach out into the community to say,

375
00:27:25,559 --> 00:27:27,359
you know, let me reach out and try to find

376
00:27:27,440 --> 00:27:30,480
other people who are dealing with this, because I want

377
00:27:30,519 --> 00:27:33,039
to tell this story, not just her story, but just

378
00:27:33,160 --> 00:27:36,920
overall and see what was going on with this condition

379
00:27:37,079 --> 00:27:40,640
called CRPS. And that kind of opened up the door

380
00:27:40,680 --> 00:27:44,160
and I met some people in Tampa Saint you know,

381
00:27:44,240 --> 00:27:46,680
I was living in Orlando at the time, so I

382
00:27:46,759 --> 00:27:52,359
met some people who were in Orlando area who were

383
00:27:52,720 --> 00:27:56,680
I have a kids of it, and you know, they said, hey, Charles,

384
00:27:56,759 --> 00:27:58,920
you know what we'd love to, you know, help you

385
00:27:59,000 --> 00:28:02,000
tell this story. And that's that's pretty much how it

386
00:28:02,079 --> 00:28:04,839
got started to really just wanting to see what she

387
00:28:05,079 --> 00:28:07,960
was living through, but then also met other people who

388
00:28:08,039 --> 00:28:09,839
were dealing with it as well.

389
00:28:10,400 --> 00:28:12,440
Speaker 11: In terms of reaching out to other people who are

390
00:28:12,519 --> 00:28:15,559
dealing with it, was that, I mean, how challenging was

391
00:28:15,640 --> 00:28:18,240
it to find those people because CRPS, I mean, the

392
00:28:18,240 --> 00:28:20,599
average person probably has no idea what it is and

393
00:28:21,119 --> 00:28:24,160
and it's not always uh you know, as as you mentioned,

394
00:28:24,200 --> 00:28:27,759
easy to diagnose, and I mean, Jenny, how long the

395
00:28:27,839 --> 00:28:31,400
years before the years? Yeah, you know obviously. And the

396
00:28:31,480 --> 00:28:33,519
thing is too, it's it's such a conundrum. It's like

397
00:28:34,759 --> 00:28:38,200
when you have an illness that is rare. Of course,

398
00:28:38,319 --> 00:28:42,279
it's it's harder to diagnose because fewer medical professionals have

399
00:28:42,440 --> 00:28:45,960
seen that particular illness and there's a lack of research

400
00:28:46,039 --> 00:28:48,440
and whatnot because it's you know, it's not again, it's

401
00:28:48,480 --> 00:28:50,559
not something most people have heard of. You know, everybody

402
00:28:50,640 --> 00:28:53,759
knows what diabetes is, but the average person has no

403
00:28:53,880 --> 00:28:56,799
idea what CRPS is. So was it was that challenging

404
00:28:56,920 --> 00:28:57,759
finding these people?

405
00:28:59,559 --> 00:29:03,839
Speaker 10: No, actually wasn't. The thing is is, you know, there

406
00:29:03,920 --> 00:29:07,359
are some some some great groups on social media, whether

407
00:29:07,359 --> 00:29:10,599
it's Facebook or whatever it may be. And the particular

408
00:29:10,680 --> 00:29:13,480
person that I ran into that was close to me,

409
00:29:14,799 --> 00:29:19,039
they had a great support group and also they knew

410
00:29:19,039 --> 00:29:21,279
a lot of other people, so they had resources from

411
00:29:21,359 --> 00:29:26,759
doctors to experts to uh, you know, hundreds of people

412
00:29:26,839 --> 00:29:29,680
that were following them, and that that kind of opened

413
00:29:29,759 --> 00:29:33,559
up the door that I found other advocates. Like at

414
00:29:33,599 --> 00:29:36,319
that that time, it was like Barbie Ingele, who was

415
00:29:36,480 --> 00:29:40,359
very vocal a few years ago. You know, she still

416
00:29:40,359 --> 00:29:45,839
lives about CRPS and pain, and it just started connecting.

417
00:29:45,960 --> 00:29:50,400
And because there wasn't much advocacy on it, the fact

418
00:29:50,480 --> 00:29:55,079
that this film was being put together was really you know,

419
00:29:55,279 --> 00:29:57,640
raising a lot of awareness. Now, they don't get it wrong.

420
00:29:57,720 --> 00:30:00,319
It wasn't it wasn't easy. They were. There are a

421
00:30:00,400 --> 00:30:04,000
lot of nights where, you know, at times, because of

422
00:30:04,440 --> 00:30:09,319
the pain, it's easy at times to to to shoot

423
00:30:09,359 --> 00:30:13,400
the message. So I had a lot of sleepless, sleepless

424
00:30:13,519 --> 00:30:16,400
nights at times trying to pull all this together and

425
00:30:16,759 --> 00:30:22,880
and you attacked at times, uh you know, but but

426
00:30:23,160 --> 00:30:25,720
it was it was it was all worth it. And

427
00:30:26,240 --> 00:30:29,319
there's some amazing people out in who are dealing with

428
00:30:29,400 --> 00:30:34,160
the RPS, and and you know, I still see, you know,

429
00:30:34,279 --> 00:30:37,000
what my mother is going through daily, and it's really

430
00:30:37,319 --> 00:30:40,559
taken her her her whole, her whole life. To be

431
00:30:40,640 --> 00:30:43,640
honest with you now, you know, she's now bedridden and

432
00:30:44,960 --> 00:30:50,200
sad to say, and uh so it's it's it still

433
00:30:50,279 --> 00:30:53,079
inspires me to want to get out there and change.

434
00:30:53,160 --> 00:30:58,480
And because also there aren't many other advocates that are

435
00:30:58,640 --> 00:31:01,599
known or can do what I can do with this,

436
00:31:02,000 --> 00:31:05,079
you know, these films, I kind of feel like it's

437
00:31:05,200 --> 00:31:10,079
my it's my, you know, god given destiny to try

438
00:31:10,119 --> 00:31:12,960
to continue to fight for people with CRPS. And I've

439
00:31:13,039 --> 00:31:16,039
come to know so many and have so much respect

440
00:31:16,079 --> 00:31:17,359
and love for them too as well.

441
00:31:17,759 --> 00:31:20,000
Speaker 12: That's how we met. How you and I actually met

442
00:31:20,160 --> 00:31:23,160
is because of CRPS and what you're doing with Trial

443
00:31:23,279 --> 00:31:27,279
by Fire is so vital to get information out there,

444
00:31:27,319 --> 00:31:30,680
and unfortunately in America, we don't have as much information

445
00:31:30,759 --> 00:31:33,839
out there as they do in other countries. When I

446
00:31:33,920 --> 00:31:37,119
was in the Netherlands, my girlfriend had gotten into a

447
00:31:37,200 --> 00:31:40,359
bad accident and I got to see an entire protocol

448
00:31:40,440 --> 00:31:43,720
that they have to watch out for CRPS and people

449
00:31:43,720 --> 00:31:46,160
who get injured like that. But we have nothing like that,

450
00:31:46,920 --> 00:31:49,519
especially here. But I know that you're not just showing

451
00:31:49,599 --> 00:31:52,759
this here in the United States. I know it's been

452
00:31:52,799 --> 00:31:57,079
seen in well over what twenty countries. You've won numerous

453
00:31:57,119 --> 00:32:01,720
awards with this, with this documentary. And now what's exciting

454
00:32:01,799 --> 00:32:04,519
to me is that now it's going to be carried

455
00:32:04,559 --> 00:32:08,079
on Netflix soon, isn't it. Oh no, no, Amazon Prime,

456
00:32:08,359 --> 00:32:09,799
Amazon Prime.

457
00:32:09,960 --> 00:32:13,359
Speaker 10: Yeah, it should be there hopefully in the next few weeks.

458
00:32:13,400 --> 00:32:17,799
Which is really exciting. I know, you're right, it's probably

459
00:32:18,039 --> 00:32:20,920
been seen in over twenty five countries and and I

460
00:32:21,039 --> 00:32:26,079
assume by by uh who knows. I mean at this point,

461
00:32:26,160 --> 00:32:28,960
maybe millions of people, because it's still getting seen and

462
00:32:29,079 --> 00:32:32,400
because it's it's been on PBS, it's been on you know,

463
00:32:33,599 --> 00:32:38,240
some great platforms already. So it's, uh, it's very exciting.

464
00:32:38,359 --> 00:32:42,519
And we plan on, even with this new documentary that

465
00:32:42,599 --> 00:32:46,519
we're doing Drop by Fire, to go into other countries

466
00:32:46,640 --> 00:32:50,039
to kind of examine what's going on right now as

467
00:32:50,079 --> 00:32:53,119
far as that. But it you know, it's it's it's

468
00:32:53,160 --> 00:32:56,240
and I'll say this, it's I wish I wish it

469
00:32:56,400 --> 00:32:59,799
was it was easier to to to to get this done.

470
00:32:59,839 --> 00:33:02,720
And you think with all the people who are dealing

471
00:33:02,799 --> 00:33:05,640
with pain, I mean, hundreds of millions of people are

472
00:33:05,680 --> 00:33:08,559
dealing with pain. It's one of the biggest biggest businesses

473
00:33:08,759 --> 00:33:15,359
is the pain. Unfortunately, yeah, unfortunately, I don't know how.

474
00:33:15,279 --> 00:33:20,920
Speaker 12: Many VID chronic pain patients have been hurt so badly of.

475
00:33:21,000 --> 00:33:27,160
Speaker 10: Course, of course, and what you're doing you don't know. Oh,

476
00:33:27,200 --> 00:33:27,680
I'm sorry, go.

477
00:33:27,640 --> 00:33:29,119
Speaker 12: Ahead, I'm sorry, I'm sorry, go ahead.

478
00:33:29,400 --> 00:33:32,559
Speaker 11: No, I was saying, she was just saying what you're

479
00:33:32,599 --> 00:33:33,480
doing is so vital.

480
00:33:35,200 --> 00:33:37,519
Speaker 10: Yeah, yeah, no, And I was saying that, you don't

481
00:33:37,559 --> 00:33:41,200
know how many doors I've knocked gone to try to

482
00:33:41,240 --> 00:33:44,119
get some small funding just to get this done. And

483
00:33:45,039 --> 00:33:47,920
you know, the sad thing, especially with CRPS is there's

484
00:33:48,039 --> 00:33:51,599
there's no cure, so there's you know, there's no money

485
00:33:51,839 --> 00:33:57,079
in that. So it's hard to find people who who say,

486
00:33:58,119 --> 00:34:00,839
you know, yeah, well we'll get involved. I mean I

487
00:34:00,920 --> 00:34:04,720
even reached out to a lawyer that's that's you know,

488
00:34:05,079 --> 00:34:08,800
pushing trying to fight for people would see RPS and

489
00:34:09,239 --> 00:34:12,800
and you know, you got to figure that a lawyer

490
00:34:12,880 --> 00:34:16,119
who might take one case and who could make you know,

491
00:34:16,320 --> 00:34:19,239
hundreds of thousands, if not more than that, you know,

492
00:34:19,760 --> 00:34:23,159
is is more concerned with you know, how much it's

493
00:34:23,199 --> 00:34:24,960
going to cost, you know what I mean, even even

494
00:34:25,000 --> 00:34:27,440
if it was twenty five thousand dollars. But I mean

495
00:34:27,559 --> 00:34:30,880
even twenty five thousand dollars could do a lot for us,

496
00:34:31,079 --> 00:34:35,239
but to get you know, some scene shot. But you know,

497
00:34:35,320 --> 00:34:37,519
they can make a million dollars or if not more,

498
00:34:37,920 --> 00:34:41,679
on one case, and if they bring in ten cases,

499
00:34:41,760 --> 00:34:43,920
they could make you know, a whole lot of money.

500
00:34:44,000 --> 00:34:47,400
But so it's it's everyone is really in it for

501
00:34:48,039 --> 00:34:50,920
for for the money and healthcare.

502
00:34:51,960 --> 00:34:53,719
Speaker 12: That's true, and one of the one of the key

503
00:34:53,840 --> 00:34:57,639
treatments what's the RPS is kind of man infusions and

504
00:34:57,880 --> 00:35:00,840
for the vast majority of patients having to pay cash

505
00:35:00,880 --> 00:35:04,440
out of pocket because they're you know, or fight. I've

506
00:35:04,480 --> 00:35:07,400
been fighting insurance and I've got a provider that's allowing

507
00:35:07,440 --> 00:35:10,199
me to use it, but I'm having to fight. And

508
00:35:10,519 --> 00:35:14,079
the thing about this is too is yes, CRPS is rare,

509
00:35:14,239 --> 00:35:16,599
but people with rare diseases are not. One out of

510
00:35:16,679 --> 00:35:19,480
every ten people has a rare disease. And the light

511
00:35:19,599 --> 00:35:23,119
that you're shining on this is extremely important in the

512
00:35:23,199 --> 00:35:26,719
sense that a CRPS complex regional pain syndrome is the

513
00:35:26,760 --> 00:35:29,239
most painful disease known to modern medicine, and as you said,

514
00:35:29,280 --> 00:35:32,280
it has no cure. However, seventy percent of people with it,

515
00:35:32,360 --> 00:35:37,159
including children, will consider suicide as the option because it

516
00:35:37,280 --> 00:35:39,800
is that bad. It's called the suicide disease by the

517
00:35:39,840 --> 00:35:42,199
medical community and has been called that for over two

518
00:35:42,280 --> 00:35:45,800
hundred years. So it's been a disease that's known but

519
00:35:46,000 --> 00:35:49,000
not known enough. And the light that you're shining on

520
00:35:49,239 --> 00:35:51,079
this is vital to save lives.

521
00:35:52,320 --> 00:35:57,480
Speaker 10: Yeah, yeah, yeah. And I've had a few people then

522
00:35:57,519 --> 00:36:00,440
I've had to that, you know, just reached out to me,

523
00:36:00,519 --> 00:36:03,760
and I've kind of had to say, listen, just don't

524
00:36:03,840 --> 00:36:07,559
do that and if you have to call me personally

525
00:36:07,679 --> 00:36:13,000
and let's talk. Over the years where I've literally had

526
00:36:13,079 --> 00:36:15,760
to try to, you know, just talk people out of things.

527
00:36:15,840 --> 00:36:19,880
And I remember of late, and I like to be

528
00:36:20,000 --> 00:36:22,400
real because you know, when when doing an interview, you

529
00:36:22,480 --> 00:36:25,880
could always gloss over things and and make everything out

530
00:36:25,960 --> 00:36:29,360
to be peachy and keen, but but it's really not.

531
00:36:29,559 --> 00:36:32,119
And I think that you know, the people who are

532
00:36:32,159 --> 00:36:34,039
dealing with this and the people who need to know

533
00:36:34,119 --> 00:36:38,599
about it need to hear the reality that that's out

534
00:36:38,639 --> 00:36:42,400
there at times of you know, what they're dealing with,

535
00:36:42,440 --> 00:36:44,960
because I hear reality from them all the time, and

536
00:36:45,079 --> 00:36:47,000
it's like, wow, I wish I could do more. But

537
00:36:47,599 --> 00:36:50,679
had to release lady recently who this was a couple

538
00:36:50,679 --> 00:36:53,159
of months ago, and she would always say just the

539
00:36:53,320 --> 00:36:55,800
nicest things to me. She would just I didn't know her,

540
00:36:55,880 --> 00:36:59,000
but she just reached out and you know, she was

541
00:36:59,039 --> 00:37:04,360
dealing with CRPS. And I remember before the last time

542
00:37:04,559 --> 00:37:07,480
when I spoke, so I say listen, just can need anything,

543
00:37:07,719 --> 00:37:09,679
just let me know, and so on and so forth,

544
00:37:09,719 --> 00:37:12,639
and no idea, you know how bad things were. And

545
00:37:12,719 --> 00:37:15,480
then probably a couple of weeks later, someone reached out

546
00:37:15,519 --> 00:37:17,679
and said, char Als, I know you and so and

547
00:37:17,840 --> 00:37:20,280
so we're good friends and she had a lot of

548
00:37:20,320 --> 00:37:23,719
respect for you, but you know she's no longer here.

549
00:37:24,119 --> 00:37:28,719
And I was literally just just shook it because, like

550
00:37:28,840 --> 00:37:32,159
I said, she would always encourage me. She would always

551
00:37:32,159 --> 00:37:35,519
say nice things and reach out and send me a

552
00:37:35,599 --> 00:37:36,360
nice message.

553
00:37:36,480 --> 00:37:43,239
Speaker 12: And you know, to hear that was like, especially when

554
00:37:43,280 --> 00:37:45,119
we know that there are options and things that can

555
00:37:45,159 --> 00:37:47,519
be done out there, but it's money that gets in

556
00:37:47,519 --> 00:37:51,079
the way. It's lack of access. Then I'll access the

557
00:37:51,199 --> 00:37:53,239
care or if you don't have enough cash to put

558
00:37:53,360 --> 00:37:56,960
up front, you don't get it. So you know, yeah,

559
00:37:57,079 --> 00:38:00,280
this isn't as serious thing to talk about. And I'm

560
00:38:00,320 --> 00:38:03,119
glad that you're doing a second version and you're talking

561
00:38:03,199 --> 00:38:06,280
about other areas of the world, because some areas of

562
00:38:06,320 --> 00:38:09,039
the world are dealing with this better than we are,

563
00:38:09,239 --> 00:38:11,000
and we could we could take a turn out of

564
00:38:11,039 --> 00:38:12,880
their page, you know, and take a page out of

565
00:38:12,920 --> 00:38:15,639
their book, I should say, of what they're doing to

566
00:38:15,760 --> 00:38:19,239
help not only protect and preserve lives and save lives,

567
00:38:19,320 --> 00:38:23,079
but preventative medicines that we in America really kind of

568
00:38:23,199 --> 00:38:26,920
stink about. When it comes to preventative medicine, we.

569
00:38:27,079 --> 00:38:30,079
Speaker 11: Stink well in a in a broader in a broader

570
00:38:30,159 --> 00:38:33,559
sense too. In America, we just don't. Yeah, there's not

571
00:38:33,760 --> 00:38:38,639
enough focus on preventative anything. When it comes to health.

572
00:38:38,679 --> 00:38:40,840
It's it's all about, you know, waiting until you get sick,

573
00:38:40,920 --> 00:38:42,480
and then we have good.

574
00:38:42,400 --> 00:38:46,239
Speaker 12: Sick care sort of, but not great preventative.

575
00:38:45,920 --> 00:38:49,320
Speaker 11: Exactly, yeah, exactly, Yeah, that's and unfortunately some of that

576
00:38:49,360 --> 00:38:53,679
I think it's just American culture. But uh, but yeah,

577
00:38:54,239 --> 00:38:57,719
but this is something in terms of CRPS. I mean,

578
00:38:57,960 --> 00:39:00,480
this isn't like it's not like you can just uh

579
00:39:01,000 --> 00:39:02,480
you know, as we were talking about, you know, there

580
00:39:02,480 --> 00:39:04,840
are treatments, but it's not like you can just go

581
00:39:04,960 --> 00:39:06,800
to the gym or take some vitamins. I mean, you

582
00:39:06,960 --> 00:39:08,199
have to be able to you have to be able

583
00:39:08,199 --> 00:39:10,880
to have access to to what you need, not to

584
00:39:11,000 --> 00:39:13,480
cure it because there is no cure, but but to

585
00:39:13,519 --> 00:39:14,920
try to manage it as best you can.

586
00:39:15,079 --> 00:39:18,920
Speaker 10: And yeah, and there are people who literally, i mean

587
00:39:20,840 --> 00:39:23,840
who are traveling from different parts of the world just

588
00:39:23,960 --> 00:39:26,239
to you know, there's some treatment out here and for

589
00:39:26,360 --> 00:39:29,960
the kiddymene in Florida and literally hear the stories it

590
00:39:30,079 --> 00:39:36,880
traveling from, you know, whether it's Los Angeles, New York, Canada, Europe,

591
00:39:38,199 --> 00:39:40,920
and some have to do this every few months just

592
00:39:41,000 --> 00:39:44,199
to get a little bit of relief. And it's costly.

593
00:39:44,480 --> 00:39:47,679
This is not This is not you know, a couple

594
00:39:47,719 --> 00:39:50,400
of hundred dollars. This is you know, some some serious

595
00:39:50,440 --> 00:39:52,880
money to get on a plane, you know, and and

596
00:39:53,159 --> 00:39:57,159
and pay for treatment, have to stay in hotels, you know,

597
00:39:57,280 --> 00:39:59,719
have to rent cars on and so forth, just to

598
00:39:59,800 --> 00:40:03,400
get a little bit of relief for you know, three months.

599
00:40:03,880 --> 00:40:06,800
Speaker 5: Yep, this is not easy.

600
00:40:07,199 --> 00:40:08,079
Speaker 12: No, no, it's not.

601
00:40:09,000 --> 00:40:12,239
Speaker 11: What was kind of the criteria Charles for in terms

602
00:40:12,280 --> 00:40:15,239
of people who you put into the film to talk

603
00:40:15,280 --> 00:40:18,480
about this and were there some people who you spoke

604
00:40:18,559 --> 00:40:20,400
with who you wanted to put in it, who maybe

605
00:40:20,880 --> 00:40:23,760
was there anyone who declined to be in it, because

606
00:40:23,760 --> 00:40:26,320
some people are, you know, as much as they might

607
00:40:26,480 --> 00:40:28,599
like to help and spread awareness, some people are obviously

608
00:40:28,760 --> 00:40:32,119
just very private about their health. So I'm curious what

609
00:40:32,199 --> 00:40:34,960
the criteria was and did you encounter anybody who just

610
00:40:35,519 --> 00:40:37,639
said no, I'd like to help, but I don't want

611
00:40:37,679 --> 00:40:39,199
to be in the in the documentary.

612
00:40:40,639 --> 00:40:45,639
Speaker 10: You know, I'll say this, almost everyone wants to be

613
00:40:45,920 --> 00:40:50,480
and wants to share your story. Yeah, because and miscrosses

614
00:40:50,920 --> 00:40:58,280
color lines is called crosses gender lines, as crosses everything.

615
00:40:58,320 --> 00:41:00,760
I mean, when when you know and dealing with this,

616
00:41:01,320 --> 00:41:05,119
you know this type of pain, people just want to

617
00:41:05,159 --> 00:41:09,679
tell their story. I mean, we get now hundreds of

618
00:41:09,840 --> 00:41:13,360
messages where people are like, Charles, I just want to

619
00:41:13,400 --> 00:41:15,719
tell my story, please, I have a story to tell.

620
00:41:16,000 --> 00:41:18,039
And it's it's to the point now where it's like

621
00:41:18,760 --> 00:41:21,440
I'm so you know, focused on trying to raise some

622
00:41:21,519 --> 00:41:25,119
money to get this done that it's like listen, I've

623
00:41:25,159 --> 00:41:27,360
got to reply and listen, I will get back to

624
00:41:27,480 --> 00:41:30,880
you because you know, we have so many messages that

625
00:41:31,440 --> 00:41:35,239
it's and some of these messages are like very long

626
00:41:35,559 --> 00:41:37,400
where you know, it's going to take me a few

627
00:41:37,480 --> 00:41:41,880
minutes to just read through the one message. But I understand,

628
00:41:42,239 --> 00:41:44,840
you know what they're dealing with. So we're going to

629
00:41:44,920 --> 00:41:47,159
have to get back, take a day and get back

630
00:41:47,199 --> 00:41:50,400
to everybody. But no, everyone wants to share. Even back

631
00:41:50,480 --> 00:41:53,440
then when you were shooting the film, everyone wanted to

632
00:41:53,880 --> 00:41:58,119
and wanted to share. And I think in many ways,

633
00:41:58,280 --> 00:42:03,400
because you know, like we just talked about this being

634
00:42:03,559 --> 00:42:07,559
called a suicide disease, that a lot of people are

635
00:42:07,639 --> 00:42:11,599
I mean, you know, you can't even me and you

636
00:42:12,039 --> 00:42:16,039
we don't deal with what they're dealing with. And we

637
00:42:16,239 --> 00:42:21,280
can't understand being in pain day and night. I mean,

638
00:42:21,800 --> 00:42:25,639
can you imagine stubborn your toe and the pain of

639
00:42:25,760 --> 00:42:30,400
that and having that day and night and now you

640
00:42:30,559 --> 00:42:35,199
take that and amplify that a hundred times where this

641
00:42:35,440 --> 00:42:41,400
is running through someone's body. We can't understand what that is, right.

642
00:42:42,559 --> 00:42:45,400
So I mean, when you think about that, and and

643
00:42:45,800 --> 00:42:49,880
people are thinking about, you know, maybe taking their own life,

644
00:42:50,840 --> 00:42:53,079
they want to share. There's a lot of people. I

645
00:42:53,239 --> 00:42:56,519
just I just had a young lady a few days

646
00:42:56,559 --> 00:42:59,960
ago send me a message and she contatacted me through WHAT'SPP.

647
00:43:00,159 --> 00:43:02,599
She said, Charles, I don't think I could do this anymore.

648
00:43:03,119 --> 00:43:06,119
And she's got I think two kids, and and I'm like, listen,

649
00:43:06,440 --> 00:43:08,840
just hang in. And you know she's got a fiance,

650
00:43:08,880 --> 00:43:10,360
her husband, and and.

651
00:43:12,159 --> 00:43:13,760
Speaker 7: You know this is wow.

652
00:43:14,320 --> 00:43:18,840
Speaker 10: I you know, words can't even express what what what

653
00:43:19,000 --> 00:43:21,840
they're dealing with and how we need to fight for

654
00:43:21,960 --> 00:43:24,800
this and this is why I fight for it because

655
00:43:25,079 --> 00:43:29,480
once you know, once again, if if if I don't,

656
00:43:30,400 --> 00:43:32,760
I don't know who will. Right Oh, thank god, I'm

657
00:43:32,840 --> 00:43:35,079
able to have the resources as far as getting the

658
00:43:35,639 --> 00:43:38,519
message out there and putting a good story together and

659
00:43:38,639 --> 00:43:41,920
so on and so forth. You know, I wish it

660
00:43:42,039 --> 00:43:45,559
was easier, you know, sometimes I you know, like I said,

661
00:43:45,559 --> 00:43:48,519
I'm banging my head trying to understand, you know, why

662
00:43:49,239 --> 00:43:52,880
it's so hard to be able to get a project

663
00:43:52,960 --> 00:43:55,239
like this together. But I, you know, I understand that

664
00:43:55,360 --> 00:43:58,199
this is the world we live in, and but we

665
00:43:58,360 --> 00:44:00,679
keep fighting. And when you know, hope. We were working

666
00:44:00,760 --> 00:44:06,480
on going to Italy to highlight some of the treatment

667
00:44:06,559 --> 00:44:09,159
that they have over there. So we've been talking to

668
00:44:09,280 --> 00:44:10,039
that clinic.

669
00:44:09,800 --> 00:44:15,800
Speaker 12: Over there, and Italy has treatment that if administered early enough,

670
00:44:16,840 --> 00:44:21,440
it can halter or reverse or put into remission to

671
00:44:21,599 --> 00:44:24,679
our PS. I used to know a woman who had

672
00:44:24,760 --> 00:44:27,800
a fourteen year old daughter that took her to Italy

673
00:44:27,960 --> 00:44:31,360
for the treatment. It did work for a number of years,

674
00:44:31,480 --> 00:44:33,800
and then I guess it came back went back to

675
00:44:33,920 --> 00:44:36,320
Italy for an additional treatment. But it has to be

676
00:44:36,480 --> 00:44:40,480
done early, early, early, Like by the time we knew

677
00:44:40,519 --> 00:44:43,079
that I had CRPS. It was too late for that

678
00:44:43,239 --> 00:44:46,039
to work for me and to access it here in

679
00:44:46,079 --> 00:44:48,360
the United States. I don't think you can. I think

680
00:44:48,360 --> 00:44:51,440
it's impossible. It's not even like an option.

681
00:44:51,239 --> 00:44:54,679
Speaker 10: For Yeah, I think it's only in Italy.

682
00:44:55,559 --> 00:44:58,440
Speaker 12: People have mortgaged their houses to get you know, done

683
00:44:58,519 --> 00:45:01,840
anything to get their loved ones were there to try it. Yeah, yeah,

684
00:45:01,880 --> 00:45:03,599
And I'll just just have something to try. And I

685
00:45:03,679 --> 00:45:06,159
do want to say, I mean, this is a serious topic.

686
00:45:06,280 --> 00:45:08,360
It is difficult to talk about at times, but this

687
00:45:08,559 --> 00:45:11,159
is why you're done this documentary and why it's so

688
00:45:11,320 --> 00:45:14,519
important to talk about these documentaries and get that information

689
00:45:14,679 --> 00:45:17,800
out there. But if you are having any concerns, or

690
00:45:17,880 --> 00:45:20,480
you're not feeling too hot today, or you need some help,

691
00:45:20,719 --> 00:45:23,400
please remember you can dial nine eighty eight. Nine eight

692
00:45:23,400 --> 00:45:26,000
eight is the suicide and crisis Lifeline, and there are

693
00:45:26,000 --> 00:45:28,639
people there that can help you. So there's always a

694
00:45:28,719 --> 00:45:31,159
voice out there. Don't forget nine eighty eight.

695
00:45:32,039 --> 00:45:35,679
Speaker 11: Yeah, yeah, yeah, absolutely, And I.

696
00:45:35,760 --> 00:45:38,320
Speaker 10: Think too as well. Part of me, you know why,

697
00:45:38,400 --> 00:45:40,119
I fight too as well, because you never know what

698
00:45:40,280 --> 00:45:43,519
might be around the corner, and you want, you want

699
00:45:43,599 --> 00:45:46,480
folks to to to hang in there and hold out

700
00:45:46,559 --> 00:45:49,559
hope that maybe there is some treatment out there that

701
00:45:50,199 --> 00:45:53,280
that you know, I won't have to mortgage your house

702
00:45:53,440 --> 00:45:56,440
or fly across the world to get done. You know,

703
00:45:56,880 --> 00:45:58,559
hopefully there is something that that.

704
00:45:59,519 --> 00:46:02,559
Speaker 12: Part of my is with you doing this. I have

705
00:46:02,960 --> 00:46:05,320
hope that maybe that gets some of the people up

706
00:46:05,360 --> 00:46:09,159
on Capitol Hill to pay attention and approve treatments that

707
00:46:09,280 --> 00:46:12,239
are working for people with c the RPS. But I

708
00:46:12,360 --> 00:46:15,199
do want to also bring up because Charles, you've done

709
00:46:15,320 --> 00:46:18,639
a lot of really great advocacy work, especially in the

710
00:46:18,719 --> 00:46:21,440
realm of the Forever Sick, and you've also done work

711
00:46:21,639 --> 00:46:26,880
in highlighting diabetes and type one diabetes and type two diabetes.

712
00:46:27,199 --> 00:46:30,000
I know you did a documentary series on that as well,

713
00:46:30,639 --> 00:46:32,400
and I wanted to make sure that our listeners heard

714
00:46:32,400 --> 00:46:32,719
about that.

715
00:46:34,199 --> 00:46:38,239
Speaker 10: Yeah, yeah, yeah, We've done some great shows, and you know,

716
00:46:38,320 --> 00:46:42,400
we have the first docuseries we did doctor reality series

717
00:46:42,519 --> 00:46:44,480
was called a Verse. We shut that in Jamaica and

718
00:46:45,280 --> 00:46:47,960
featured you know, people living with diabetes. And I've done

719
00:46:48,000 --> 00:46:53,360
a documentary called The Diabetic You and a couple other

720
00:46:53,440 --> 00:46:57,480
projects on diabetes, and so it's been very powerful and

721
00:46:58,679 --> 00:47:01,199
you know, now that I'm even talking into you, i'd

722
00:47:01,280 --> 00:47:03,719
love to follow up once we get off to as well,

723
00:47:03,760 --> 00:47:06,679
because there probably is some other things that we could

724
00:47:06,760 --> 00:47:10,159
be doing, whether it's starting some sort of you know,

725
00:47:10,280 --> 00:47:13,320
online petition where we have you know, a few thousand

726
00:47:13,400 --> 00:47:16,760
people signs through things that could be you know, brought

727
00:47:16,840 --> 00:47:21,840
in front of some legislation or or some more awareness

728
00:47:21,960 --> 00:47:24,599
that maybe you could help me with and help the

729
00:47:24,679 --> 00:47:27,159
community get out there. So we can kind of make

730
00:47:27,239 --> 00:47:32,800
this more movement because we have to force the hands

731
00:47:33,159 --> 00:47:37,599
of these companies. We do, these pharmaceutical companies, we can

732
00:47:37,920 --> 00:47:41,000
just stay. They've got to open up their eyes and

733
00:47:41,119 --> 00:47:46,800
take account and at least, if nothing else, help support

734
00:47:46,840 --> 00:47:50,480
the people, whether it's even with treatment options.

735
00:47:50,760 --> 00:47:54,719
Speaker 12: Oh exactly, look at what's happening now in our community.

736
00:47:55,400 --> 00:47:58,679
LOTOS snow track Zone is a medication that's working for

737
00:47:59,000 --> 00:48:02,000
a lot of people c RPS and small fiber in neuropathy,

738
00:48:02,280 --> 00:48:06,039
including myself. However, the pharmaceutical company that makes now trucks

739
00:48:06,079 --> 00:48:08,159
On won't make it in the low doses that people

740
00:48:08,760 --> 00:48:11,039
like us need it because it's not profitable for them.

741
00:48:11,280 --> 00:48:13,599
They only make it in the extremely high dose, so

742
00:48:13,760 --> 00:48:15,920
all of us have to go to compounding pharmacies to

743
00:48:15,960 --> 00:48:18,400
get the medication, which means we're paying one hundred percent

744
00:48:18,400 --> 00:48:21,639
out of pocket and it's not cheap, you know, and

745
00:48:21,800 --> 00:48:24,079
have it made that way because insurance gets to take

746
00:48:24,119 --> 00:48:28,400
a walk because it's compounded. Pharmaceutical company goes not enough

747
00:48:28,480 --> 00:48:29,880
money in that for us, So we're not going to

748
00:48:29,920 --> 00:48:32,880
make it, you know, and you're you know, you're left

749
00:48:32,920 --> 00:48:36,920
with either you know, no money, no med or whatever

750
00:48:36,920 --> 00:48:40,119
you're going to do to get the med yep exactly,

751
00:48:40,280 --> 00:48:41,400
Maybe maybe we need.

752
00:48:41,320 --> 00:48:45,599
Speaker 10: To get a petition against or for that company, right

753
00:48:45,760 --> 00:48:49,280
so maybe they can open up their eyes and say,

754
00:48:49,760 --> 00:48:54,079
what is this? Who are these people? And and maybe

755
00:48:54,159 --> 00:48:56,119
take a different look at it. I think, you know,

756
00:48:56,199 --> 00:49:00,239
collectively is a community while it's a rare disease. I'm

757
00:49:00,280 --> 00:49:03,519
sure they're I don't know how what the number is,

758
00:49:03,639 --> 00:49:07,880
but CRPS people. But any petition with you know, fifty

759
00:49:07,960 --> 00:49:12,079
sixty to seventy thousand signatures might make that company say,

760
00:49:12,440 --> 00:49:16,679
you know what, we may need to take a look

761
00:49:16,719 --> 00:49:18,800
at this or at least address this in some form

762
00:49:18,840 --> 00:49:19,360
of fashion.

763
00:49:19,800 --> 00:49:24,679
Speaker 11: Right right, exactly, exactly, Charles. It is already approaching the

764
00:49:24,719 --> 00:49:26,840
top of the hour. We need to begin to wrap up,

765
00:49:26,880 --> 00:49:28,599
but before we run out of time, I want to

766
00:49:28,639 --> 00:49:32,880
make sure the people know where to find the documentary

767
00:49:33,360 --> 00:49:36,480
Trial by Fire, and also too where they should go

768
00:49:36,599 --> 00:49:39,519
to find your other work, your other documentaries, and anything

769
00:49:39,559 --> 00:49:41,280
else that you want our listeners to know about how

770
00:49:41,320 --> 00:49:42,760
to keep up with everything that you're doing.

771
00:49:44,519 --> 00:49:48,480
Speaker 10: Definitely, and I really appreciate this. My website is probably

772
00:49:48,519 --> 00:49:52,199
the best place. It's BELA and l eMedia dot com.

773
00:49:52,360 --> 00:49:56,199
B L l A A and d L e E

774
00:49:56,480 --> 00:49:59,199
l l eMedia dot com and you can always just

775
00:50:00,039 --> 00:50:02,639
google my name Charles Maddox. I'm not hard to find.

776
00:50:03,320 --> 00:50:07,280
Trial by Fire, like I said, is on YouTube right now,

777
00:50:07,440 --> 00:50:10,000
on my on my uh on one of my pages,

778
00:50:10,840 --> 00:50:14,800
the Future of Health Network. But probably will more directed

779
00:50:14,920 --> 00:50:18,599
toward the Amazon Prime so that we can really get

780
00:50:18,679 --> 00:50:22,719
people focused there. And who knows, maybe uh you know,

781
00:50:22,880 --> 00:50:25,719
with with some great views on Amazon Prime, they may

782
00:50:25,800 --> 00:50:29,760
be interested in in doing something bigger with us regarding

783
00:50:29,840 --> 00:50:34,119
CRPS and uh so we really want to push that initiative,

784
00:50:34,239 --> 00:50:36,840
and and and and for those who are listening, do

785
00:50:37,000 --> 00:50:43,719
remember that collectively, you know, as an army of people,

786
00:50:44,000 --> 00:50:47,800
we work better because we have to share. There's there

787
00:50:47,840 --> 00:50:51,960
are people who are literally just now seeing try by

788
00:50:52,000 --> 00:50:56,000
Fire after so many years, and we have to make

789
00:50:56,039 --> 00:50:58,559
sure that when we get this opportunity that we share,

790
00:50:59,280 --> 00:51:01,920
we share. We share, We ask our friends to share,

791
00:51:02,119 --> 00:51:05,360
we ask the friends of our friends to share. And

792
00:51:05,559 --> 00:51:08,480
even though at times a lot of us don't get

793
00:51:08,519 --> 00:51:12,159
the support that we would like, just keep pushing, just

794
00:51:12,280 --> 00:51:15,280
keep sharing, get the message out there. And I think

795
00:51:15,360 --> 00:51:17,760
if we work together at least we can cause some

796
00:51:19,679 --> 00:51:22,559
attention and some eyes to be put on on some

797
00:51:22,760 --> 00:51:26,000
things so that we can try to get some more

798
00:51:26,079 --> 00:51:27,400
help and resources out there.

799
00:51:27,719 --> 00:51:32,079
Speaker 11: Yeah, absolutely, absolutely, all right. Well, Charles Maddox, thank you

800
00:51:32,159 --> 00:51:33,920
so much, my friend. It's wonderful to have you back

801
00:51:34,000 --> 00:51:36,639
on the show. Always great to speak with you, and

802
00:51:37,000 --> 00:51:39,159
we really love and appreciate what you're doing.

803
00:51:39,320 --> 00:51:43,840
Speaker 10: And keep it up, man, keep it up, thanks so much,

804
00:51:43,920 --> 00:51:44,960
and have a good one.

805
00:51:45,119 --> 00:51:49,280
Speaker 11: Absolutely, Charles, thank you. Take care about it all right.

806
00:51:49,360 --> 00:51:53,920
That was Charles Maddox, filmmaker and also a celebrity chef

807
00:51:54,000 --> 00:51:55,760
and actor. And he does a lot of stuff, by

808
00:51:55,800 --> 00:51:59,199
the way, Yeah, not just you know, obviously we're focused

809
00:51:59,199 --> 00:52:03,400
on the documentary with that conversation, but he's a busy guy.

810
00:52:03,719 --> 00:52:05,599
He's got a lot going on, so you should definitely

811
00:52:06,239 --> 00:52:07,639
check out everything that he's doing.

812
00:52:08,360 --> 00:52:11,400
Speaker 12: Absolutely, and he and see I follow him all the

813
00:52:11,440 --> 00:52:15,079
time because he does so much in the chronic illness

814
00:52:15,199 --> 00:52:18,239
area and shine such a great light on it, especially

815
00:52:18,280 --> 00:52:20,239
with that series he did that serious he was talking

816
00:52:20,280 --> 00:52:23,000
about on diabetes is excellent and they talk about things

817
00:52:23,039 --> 00:52:26,440
that they do to you know, help stay healthier, diet

818
00:52:26,559 --> 00:52:29,400
and so forth. So it's it's good to have those

819
00:52:29,440 --> 00:52:33,639
conversations frankly, and Trial by Fire one hundred percent excellent

820
00:52:33,719 --> 00:52:35,840
movie to watch. If you haven't seen it, please see it,

821
00:52:36,400 --> 00:52:39,400
share it, help spread awareness. The more people that are

822
00:52:39,440 --> 00:52:41,800
aware and know, the more we can do to try

823
00:52:41,800 --> 00:52:44,400
and help them prevent people from losing their lives.

824
00:52:44,599 --> 00:52:44,800
Speaker 11: Yep.

825
00:52:44,960 --> 00:52:47,320
Speaker 12: Absolutely, and again I want to just remind people if

826
00:52:47,360 --> 00:52:49,159
you're having a hard day or you're needing someone to

827
00:52:49,239 --> 00:52:52,400
talk to, please remember nine eight eight is a great

828
00:52:52,519 --> 00:52:55,159
number you can call. You can find help and support

829
00:52:55,239 --> 00:52:58,920
there and no shame nine eight eight yep.

830
00:52:59,079 --> 00:53:01,519
Speaker 11: Absolutely. All Right, while we are approaching the top of

831
00:53:01,559 --> 00:53:03,320
the hour, we're going to take a quick break, show

832
00:53:03,360 --> 00:53:05,800
some love to our amazing sponsors. Then when we come back,

833
00:53:05,840 --> 00:53:08,480
we're going to play the newest single from the band

834
00:53:08,599 --> 00:53:11,679
Ever Felt. It is called Reach, and then after that

835
00:53:11,800 --> 00:53:13,559
we will have Everfelt or at least I know Adam

836
00:53:13,559 --> 00:53:15,519
Steglitz is going to join us, and we'll see. We'll

837
00:53:15,519 --> 00:53:17,199
see if other band members are with him. I think

838
00:53:17,239 --> 00:53:18,639
the last time they were on, I think it was

839
00:53:18,719 --> 00:53:20,719
just Adam, but I'm not sure. But a great band

840
00:53:20,719 --> 00:53:24,039
from Chicago. If you haven't heard ever felt, definitely stick around,

841
00:53:24,119 --> 00:53:27,199
but we will be right back plenty more to come.

842
00:53:29,280 --> 00:53:31,480
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Speaker 18: When it comes to keeping WMNH on the air and

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Speaker 12: Seven times out of ten we listened to our music at.

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Speaker 1: Here on w NH, Manchester because.

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Speaker 17: Saturdays and Sunday nights midnight to four am.

884
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916
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