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<v Speaker 1>It's Night Side with Dan Ray. I'm WBS Boston's.

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<v Speaker 2>News radio Nicole. Who is this Taylor Swift person you're

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<v Speaker 2>talking about. Hi, good evening, everybody. Welcome on any and

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<v Speaker 2>there for the football game or what are you there for?

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<v Speaker 2>I don't know. I don't know. I'm not watching a

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<v Speaker 2>football game, that's for sure. I'm doing the show. My

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<v Speaker 2>name is Dan Ray, and we are here every Monday

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<v Speaker 2>through Friday night from eight until midnight. We start off

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<v Speaker 2>the first hour talking with four guests. They're all newsmakers

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<v Speaker 2>of some sort. Some of them are breaking newsmakers, others

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<v Speaker 2>are topics that provide very important information. My most important

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<v Speaker 2>information tonight, besides telling you my name is Dan Ray.

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<v Speaker 2>I'm the host of Nice Side with Dan Ray as

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<v Speaker 2>we work our way through year number eighteen here in WBZ,

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<v Speaker 2>Boston's news radio. But Rob Brooks, our producer, is back.

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<v Speaker 2>We had some nice work last week by Dan and

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<v Speaker 2>Noah who were in the booth, and Rob is always

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<v Speaker 2>welcome back, Rob, We always mischief. Dan and Noah did

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<v Speaker 2>a nice job throughout the week. Allow you the well

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<v Speaker 2>deserved vacation week. Rob is a big Halloween guy. In

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<v Speaker 2>case you haven't figured this out and that becomes sort

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<v Speaker 2>of his holiday week every year. You know it's going

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<v Speaker 2>to be Halloween. So let us start off with our

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<v Speaker 2>guests tonight. Later on tonight, we're gonna talk a lot

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<v Speaker 2>of politics. Obviously, this is election eve, there's no question

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<v Speaker 2>about that. We'll be talking the first hour about the

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<v Speaker 2>Massachusetts ballid questions. We may hear from you on one

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<v Speaker 2>if you're particularly interested in one that you particularly support

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<v Speaker 2>or oppose. And then a little bit later on we'll

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<v Speaker 2>get into maybe some predictions. Maybe we'll ask some people

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<v Speaker 2>to tell us what the magic number will be in

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<v Speaker 2>which candidate will get to seventy or more. We'll explain

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<v Speaker 2>all of that. We have lots to talk about, and

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<v Speaker 2>of course tomorrow night we will have some great programming

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<v Speaker 2>here during nightside. We're going to be joined by the

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<v Speaker 2>news team. We're going to be joined by national reporters.

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<v Speaker 2>I've lined up some special guests, so we got lots

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<v Speaker 2>going on. But first off, let's welcome doctor Janet Chortz.

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<v Speaker 2>Doctor Kortz, you are a psychologist who specializes in treating

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<v Speaker 2>patients in high pressure careers, and you're also founder of

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<v Speaker 2>the Boston Psychiatry Practice ASIMA welcome to Nightside. First of all,

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<v Speaker 2>how are you tonight?

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<v Speaker 3>I'm doing well. How are you?

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<v Speaker 2>I'm doing great. I'm doing great at least it's but

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<v Speaker 2>it's early, it's only Monday. Let's let's look at it

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<v Speaker 2>like that, right. Tell us about Asimuth Psychological, which I

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<v Speaker 2>guess is your practice or you're with a group at

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<v Speaker 2>that at that practice.

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<v Speaker 3>Yeah, yes, I'm the founder of the practice and it's

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<v Speaker 3>a group of psychologists and we help people in high

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<v Speaker 3>pressure careers. So we're pretty familiar with the nuances of

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<v Speaker 3>a lot of different domains of a lot of high

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<v Speaker 3>pressure careers. You know, law, finance, consulting, certainly those are

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<v Speaker 3>heavy ones, but academ you a startups, biotech show hosts,

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<v Speaker 3>taka well, entertainment is another industry we actually see quite

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<v Speaker 3>a few people, and so we are able to sort

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<v Speaker 3>of help people navigate the nuances and stresses of those things.

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<v Speaker 3>But often that's about a lot of other things. So

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<v Speaker 3>we're also able to help with us step underneath as well.

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<v Speaker 2>Okay, so the subtopic is here the physical risks of

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<v Speaker 2>the always overachieving work life and how to avoid them.

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<v Speaker 2>So there are a lot of people who take their

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<v Speaker 2>jobs very seriously. I'm sure that you take your job

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<v Speaker 2>very seriously. How do you know when you have gone

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<v Speaker 2>over the edge and all of a sudden your job

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<v Speaker 2>is interfering with the rest of your life. It has

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<v Speaker 2>to interact with the rest of your life. At what

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<v Speaker 2>point do you cross that rubicon from acting and interacting

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<v Speaker 2>with to interfering.

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<v Speaker 3>Yeah, So we talk a lot about career enveashment, which

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<v Speaker 3>is when people's whole identity becomes wrapped up in their

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<v Speaker 3>career and so they don't really have anything else. And

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<v Speaker 3>so the way in which we sort of have people

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<v Speaker 3>self identify that is by three main questions. One is,

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<v Speaker 3>if you go to a party or you know, meet

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<v Speaker 3>some friends with friends, or really go anywhere social and

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<v Speaker 3>people are introducing each other, what do you say about

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<v Speaker 3>yourself if someone asks about you? Can you come up

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<v Speaker 3>with anything that's not about your job? So that's a

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<v Speaker 3>big one that we talk about. Another one is how

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<v Speaker 3>would you feel if you lost your job today? Because

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<v Speaker 3>you know, a lot of times people go the way

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<v Speaker 3>people arrived us is their company is acquired, or they've

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<v Speaker 3>missed a promotion or something like that, and they no

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<v Speaker 3>longer have this job that they've so heavily relied on,

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<v Speaker 3>and so then they sort of fall apart because their

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<v Speaker 3>whole identity is now in question. That's another one. How

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<v Speaker 3>do you spend your time when you're not really supposed,

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<v Speaker 3>you know, when you don't have to be working. Because

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<v Speaker 3>even people in high pressure careers are over two years

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<v Speaker 3>as you call them, there's always time in someone's day

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<v Speaker 3>when one does not have to be working. And so

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<v Speaker 3>what is happening during that time? Are people choosing to work,

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<v Speaker 3>do they feel compelled to work, do they like to work?

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<v Speaker 3>And what's going on in that time? Is there anything

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<v Speaker 3>else that people are doing to spend their time. So

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<v Speaker 3>those are kind of the three main ways we sort

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<v Speaker 3>of enter into that conversation.

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<v Speaker 2>Okay, now, if you talk about, for example, the people

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<v Speaker 2>that we know about, let's say, the successful football coaches,

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<v Speaker 2>the Bill Belichicks of the world. They obviously Belichick was

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<v Speaker 2>known for showing up at work, the first guy there

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<v Speaker 2>and the last guy out of the room. Dustin Pedroia

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<v Speaker 2>when he played for the Red Sox, he was always

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<v Speaker 2>the first guy in the locker room and the last

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<v Speaker 2>to leave. And a lot of that is the commitment

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<v Speaker 2>that people have to excellence. So how do you distinguish

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<v Speaker 2>between someone who has a commitment to excellence an an

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<v Speaker 2>overachiever who has gone too far? How do you draw

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<v Speaker 2>that line? I mean, there's a lot of people, as

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<v Speaker 2>you know, who go to work, they work their eight hours,

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<v Speaker 2>they go home and that's it. They really turn it off.

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<v Speaker 2>That's one extreme, or people who have never worked could

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<v Speaker 2>be in one extreme, and then you have the over

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<v Speaker 2>achievers on the other. Look, you look at the job

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<v Speaker 2>of you know that will be contested tomorrow, the President

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<v Speaker 2>of the United States twenty four seven, the toughest job

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<v Speaker 2>in the world. Yeah, I mean, don't we as Americans

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<v Speaker 2>always aspire to doing the best job we can, whether

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<v Speaker 2>we're an auto mechanic or Taylor Swift for example.

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<v Speaker 3>Well, you're talking about specific roles and jobs that are

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<v Speaker 3>sort of unique and one off, if you will. You know,

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<v Speaker 3>there aren't that many professional athletes, there aren't that many

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<v Speaker 3>football coaches. There's only one president, and so there are

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<v Speaker 3>certain jobs that require a lot more o.

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<v Speaker 2>The lawyers you taught you mentioned lawyers, Sure, so doctors

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<v Speaker 2>in that situation that you always cat continuing education and

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<v Speaker 2>all of that. I'm sure you know of what.

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<v Speaker 3>I speak well, right, So The second part of what

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<v Speaker 3>I was going to say is that commitment to excellence

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<v Speaker 3>does not necessarily it does not equal more time. That

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<v Speaker 3>those two things are not always the same. So just

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<v Speaker 3>because you want to be excellent at your job does

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<v Speaker 3>not mean to spend twenty four hours day doing your job.

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<v Speaker 3>Those things don't necessarily go together, and in fact, oftentimes

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<v Speaker 3>they do not go together, because most people don't function

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<v Speaker 3>their best when all they're doing is one thing, especially

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<v Speaker 3>if that thing is extremely stressful, because aside from psychological

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<v Speaker 3>impacts that we know about, you know, the physical impacts

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<v Speaker 3>of chronic stress are well documented as well, and so

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<v Speaker 3>people literally fall apart from the inside out when they

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<v Speaker 3>work that hard that often. And so.

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<v Speaker 2>I started, I didn't mean to go ahead, you were

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<v Speaker 2>completing No.

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<v Speaker 3>No, no, that's okay, go ahead, no. No.

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<v Speaker 2>What I was trying to get at was I think

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<v Speaker 2>you've provided with us with a lot of good information

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<v Speaker 2>and something to think about. I'm wondering if there's a

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<v Speaker 2>website because a lot of people who listen to our

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<v Speaker 2>interviews here, which in some cases should be longer, and

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<v Speaker 2>maybe we'll have you back if you'd be willing to

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<v Speaker 2>do an hour with phone calls. This is an hour

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<v Speaker 2>which is for interviews, so I don't get the interaction

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<v Speaker 2>of my audience, which I like to do in some

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<v Speaker 2>with some topics including this, is there a website you

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<v Speaker 2>can refer people too where they could kind of follow

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<v Speaker 2>up on their own tomorrow or a book that you

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<v Speaker 2>that you'd suggest that people might want to also avail

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<v Speaker 2>themselves off.

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<v Speaker 3>Well, if you're interested in our website, I picked the

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<v Speaker 3>world's most difficult name of a company to spell out,

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<v Speaker 3>but as mepsyche dot com, so it's easy. I m

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<v Speaker 3>U t hpsych dot com. That's where all of our

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<v Speaker 3>central hubs. You'll find all of our clinicians, things we've written,

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<v Speaker 3>all of our media. Also, we have some really great

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<v Speaker 3>free tools, including a career meshment test, a burnout test,

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<v Speaker 3>and a values navigator because we do a lot of

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<v Speaker 3>values based work, so that's a good one. And we

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<v Speaker 3>have some other things coming out like apps and things

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<v Speaker 3>coming in the new year. But that's where the most

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<v Speaker 3>of our central hub of publication is to get to

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<v Speaker 3>figure out more about what we do and if all

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<v Speaker 3>of these things might apply to you. There's also some

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<v Speaker 3>resources there about other places books to read, things like that.

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<v Speaker 2>So, and asthmuth, what what brought you to that term?

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<v Speaker 2>I'm looking the definition up at angle between a fixed

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<v Speaker 2>point and the vertical circle that passes through the center

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<v Speaker 2>of an object. Well, I can see how you get

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<v Speaker 2>the site. Trust me on that.

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<v Speaker 3>Yeah, yeah, yes, So we kind of took a little

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<v Speaker 3>liberty in in the definition. But basically people often use

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<v Speaker 3>that mathematical calculation for navigating boats way back when before

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<v Speaker 3>all the GPS and all ourself ones and such, and

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<v Speaker 3>so basically that's right. So asthmas is basically the difference

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<v Speaker 3>between where you are and where you want to be.

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<v Speaker 3>The difference between those two things is an asthma, and

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<v Speaker 3>so we're just trying to help people get from where

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<v Speaker 3>they are to wherever it is they want to be.

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<v Speaker 2>That's great, doctor Janet Koritz of Asimuth Psychological A z

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<v Speaker 2>I m U T H psych P s y cch

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<v Speaker 2>dot com. Thanks so much. I really enjoyed the conversation

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<v Speaker 2>and it will make me reconsider how hard I'm marking.

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<v Speaker 2>Thanks so much, doctor, I appreciate it.

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<v Speaker 4>Right, You're welcome, Thank you very much.

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<v Speaker 2>November, of course, every month has some causes. In November

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<v Speaker 2>is Alzheimer's Awareness Month, and we're going to talk with

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<v Speaker 2>doctor Lakelan Ikeenburger. She's a gerontologist and a here giving expert.

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<v Speaker 2>Right after the break again, this is the Alzheimer's Awareness Month,

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<v Speaker 2>and it's something that affects a lot of people and

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<v Speaker 2>a lot of families. We'll talk with doctor Eikenberger right

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<v Speaker 2>after this break here on a Monday night edition of Nightside.

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<v Speaker 1>Now back to Dan Ray Live from the Window World

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<v Speaker 1>nights Side Studios on WBZ News Radio.

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<v Speaker 2>November, amongst other things, is Alzheimer's Awareness Month, and we're

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<v Speaker 2>going to talk with doctor Lakelan Iickenberger, who's a gerontologist

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<v Speaker 2>and a caregiving advocate. Doctor Eichenberger, welcome to Nightside. How

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<v Speaker 2>are you?

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<v Speaker 5>By damn well? Thanks? How are you?

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<v Speaker 2>Which is great? How many people in America are directly

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<v Speaker 2>impacted by Alzheimer's not talking about familiar relations, but how

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<v Speaker 2>many individuals have Alzheimer's.

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<v Speaker 5>Well, there's nearly six milllion people living with Alzheimer's or

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<v Speaker 5>another type of dementia here in the US. And you're right,

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<v Speaker 5>that's not even including family members that are also impacted.

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<v Speaker 5>Sometimes people say when one person has a diagnosis, the

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<v Speaker 5>family has a diagnosis because there is a lot that

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<v Speaker 5>impacts the family as well as the individual. So you know,

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<v Speaker 5>six million people living with the disease, and then there's

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<v Speaker 5>about sixteen million caring for those that are living with

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<v Speaker 5>the disease.

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<v Speaker 2>So we talk about Alzheimer's, I assume that under that

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<v Speaker 2>phrase or that title is dementia. Correct, you know, it's.

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<v Speaker 5>Actually the reverse. So Alzheimer's is a type of dementia.

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<v Speaker 5>So dementia is kind of an umbrella term, and then

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<v Speaker 5>there's different types, but Alzheimer's is the most common form

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<v Speaker 5>of dementia.

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<v Speaker 2>So if Alzheimer's impacts six million individuals out of a

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<v Speaker 2>population of three hundred and thirty million people, that's a

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<v Speaker 2>little less than two percent. How much greater? How bigger

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<v Speaker 2>is the umbrella dementia? Just so I understand which is bigger?

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<v Speaker 5>You know, that's a really good question. I think as

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<v Speaker 5>we're learning more about the various types of dementia, we're

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<v Speaker 5>realizing that, you know, while there's the six million that

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<v Speaker 5>are diagnosed with Alzheimer's, it likely also includes a lot

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<v Speaker 5>of the other dementias as well. A lot of people

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<v Speaker 5>they're living with some sort of cognitive impairment, but maybe

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<v Speaker 5>aren't getting that official diagnosic, So it is actually kind

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<v Speaker 5>of hard to pinpoint the exact number, but we are

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<v Speaker 5>looking in the millions, probably around the six to eight

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<v Speaker 5>million marks.

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<v Speaker 2>Is Alzheimer's a spectrum disease? And when I say a

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<v Speaker 2>spectrum disease, I think of something like multiple sclerosis, where

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<v Speaker 2>you can have people who get on a scale of

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<v Speaker 2>zero to ten, they get a ten and it's horrific.

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<v Speaker 2>And yet there are people who are diagnosed with multiple

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<v Speaker 2>sclerosis and they live a fairly normal life. I'm assuming

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<v Speaker 2>that with Alzheimer's the diagnosis is always progressive.

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<v Speaker 5>Yes, generally that is the case. So you will see

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<v Speaker 5>somebody progress through the various stages, and some have more

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<v Speaker 5>symptoms or dementilated behaviors than others. You know, some might

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<v Speaker 5>have no still kind of a mild manner about them

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<v Speaker 5>as they progress to the disease. Others will have a

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<v Speaker 5>severe change in their personality and perhaps get aggressive or angry.

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<v Speaker 5>So there are different symptoms that can show up amongst

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<v Speaker 5>different individuals. But you're right, it is progressive in nature,

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<v Speaker 5>meaning that over time the person will eventually experience decline.

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<v Speaker 5>And because there's no cure, the person will eventually pass

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<v Speaker 5>away from Alzheimer's disease or complications of Alzheimer's disease.

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<v Speaker 2>Is there any way to slow down the Has there

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<v Speaker 2>been any advances in slowing down the progress of Alzheimer's And.

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<v Speaker 5>That's what's really exciting. I think about this point in

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<v Speaker 5>time as we're starting to see more treatments for Alzheimer's disease,

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<v Speaker 5>and most recently we're seeing treatments for the very early

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<v Speaker 5>stages of Alzheimer's disease, and certain people would qualify.

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<v Speaker 4>So you know, if you've.

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<v Speaker 5>Progressed far enough into the disease and that treatment likely

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<v Speaker 5>is it right for you? But if you're able to

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<v Speaker 5>get that diagnosis early on and you're a candidate for

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<v Speaker 5>that type of treatment, there are some treatments that are

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<v Speaker 5>showing a slowing in the progression of the disease. So

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<v Speaker 5>it's really an exciting time now.

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<v Speaker 2>My understanding is that there was a period of time

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<v Speaker 2>when Alzheimer's disease could not definitively be diagnosed except in

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<v Speaker 2>a post modem ought because they were looking for evidence

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<v Speaker 2>of I believe plaque on the brain, if I'm not mistaken.

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<v Speaker 2>Has that now changed.

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<v Speaker 5>You know, we are seeing more sophisticated methods of diagnosis.

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<v Speaker 5>So you're right, at one point in time, you know,

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<v Speaker 5>the most definitive way to diagnosis after someone has passed

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<v Speaker 5>away to you know, open up the brain and examine it.

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<v Speaker 5>But now there are various diagnostic tools like pet scams

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<v Speaker 5>that can help really provide a more clear image of

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<v Speaker 5>the brain and help identify those plaques entangles, amyloid and

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<v Speaker 5>how in the brains that are kind of the hallmark

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<v Speaker 5>symptoms of Alzheimer's disease. So we are seeing more sophisticated diagnosis,

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<v Speaker 5>and I think what's really exciting is and this is

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<v Speaker 5>not out yet for public use, but researchers are looking

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<v Speaker 5>into various blood tests or other biomarkers that could make

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<v Speaker 5>the diagnostic process, you know, more accessible and just kind

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<v Speaker 5>of an easier process as opposed to having to travel

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<v Speaker 5>to where a pet skin is available and that sort

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<v Speaker 5>of thing. So I think if you if we fast

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<v Speaker 5>forward five years from now, we'll be having a very

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<v Speaker 5>different conversation. I think there will be a lot more

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<v Speaker 5>in the realm of diagnostics for Alzheimer's and other types

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<v Speaker 5>of dimensions.

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<v Speaker 2>What percentage of the Alzheimer's diagnoses are genetic, and are

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<v Speaker 2>any of the diagnoses non genetic? And of the ones

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<v Speaker 2>that are not genetic, can they be avoided by diet exercise?

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<v Speaker 2>Is that? What can anyone do either who has been told, hey,

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<v Speaker 2>it runs in your family, or is fearful that, even

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<v Speaker 2>though it doesn't run in their family, that they may

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<v Speaker 2>feel what can I do to prevent that? Or is

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<v Speaker 2>there is there any Is there any magic potion? When

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<v Speaker 2>I say potion, I better diet, exercise, better sleep patterns?

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<v Speaker 4>An yes.

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<v Speaker 5>So as far as kind of the the risk factors

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<v Speaker 5>i'll call them of Alzheimer's use, I don't have the

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<v Speaker 5>exact percentages right in front of me, but we do

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<v Speaker 5>know the greatest risk factor is age, so as we

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<v Speaker 5>get older, the risk of developing Alzheimer's for me does increase.

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<v Speaker 5>We also know that family history can increase your risk,

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<v Speaker 5>So if it runs in your families, you have a

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<v Speaker 5>parent or sibling, you could have an increased risk of

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<v Speaker 5>Alzheimer's or another type of dementia. There's also a gene,

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<v Speaker 5>the apo lea four gene that could increase the risk

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<v Speaker 5>of dementia. But for all of those cases that I've

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<v Speaker 5>just mentioned, it doesn't ever guarantee that you will get it.

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<v Speaker 5>It just increases your risk. And then there is a

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<v Speaker 5>gene that's in a very very small percentage of the

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<v Speaker 5>population that significantly increases your risk, if not guarantees that

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<v Speaker 5>evil develop it. But again it's a very very very

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<v Speaker 5>small subset of the population. But the good news is,

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<v Speaker 5>and you alluded to it, Dan, is lifestyle. There's so

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<v Speaker 5>much we are learning about how our lifestyle can reduce

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<v Speaker 5>our risk of developing the mentioned down the road. So

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<v Speaker 5>even if you do have a family history, even if

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<v Speaker 5>you do have that equalia for gene, if you start

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<v Speaker 5>these kind of lifestyle risk reduction habits early on in

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<v Speaker 5>your life, you can reduce the risk. And it's actually

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<v Speaker 5>never too late to start these risk reduction habits, things

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<v Speaker 5>like diet, as you mentioned exercise. Exercise is so good

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<v Speaker 5>for the brain. Also making sure you're getting enough sleep,

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<v Speaker 5>that you continue to engage socially and to challenge your

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<v Speaker 5>brain to learn new things. So those kinds of lifestyle

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<v Speaker 5>interventions can again help reduce the risk, which I think

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<v Speaker 5>is good news for us all.

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<v Speaker 2>It's always great to end on a positive and you

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<v Speaker 2>certainly provided a lot of clear information I just am delighted.

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<v Speaker 2>We don't rehearse these interviews. You obviously know exactly how

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<v Speaker 2>to present yourself. You did a great job, Dr Eichenberger.

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<v Speaker 2>And maybe some night I can have you back and

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<v Speaker 2>we can do an hour and take phone calls in

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<v Speaker 2>this hour of the program. We specifically avoid phone calls

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<v Speaker 2>because the time for the interviews for separate interviews are

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<v Speaker 2>relatively short. But I might have my producer reach back

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<v Speaker 2>if possible. Is there anywhere that you'd like to refer

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<v Speaker 2>people to a website, a book of any sort that

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<v Speaker 2>people could use as an additional resource to this interview

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<v Speaker 2>or to just I guess at Alzheimer's website, Alzheimer's Foundation

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<v Speaker 2>of America, for example.

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<v Speaker 5>Yeah, well, Dan, I would be happy to come back anytime.

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<v Speaker 5>And there are various Alzheimer's related organizations. The Alzheimer's Association

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<v Speaker 5>ALV dot org is a great one. And then on

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<v Speaker 5>our home instead dot com website, we also have some

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<v Speaker 5>informative resources on kind of those risk reduction lifestyle factors,

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<v Speaker 5>but also all types of dementia related care tips as well.

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<v Speaker 5>So you can visit home in said dot com to

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<v Speaker 5>learn about those. When that went, buy me a little

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<v Speaker 5>home home what dot com home instead? Like, do you

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<v Speaker 5>want to stay home instead of going anywhere else?

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<v Speaker 2>YEP, okay, H O, M E I N S T

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<v Speaker 2>A D dot com Dotdikenberg really enjoyed the conversation. Tough subject,

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<v Speaker 2>but I think you've you've made some people think tonight,

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<v Speaker 2>which is what we're all about here on Nightside.

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<v Speaker 5>Thank you so much, Thank you, very welcome.

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<v Speaker 2>When we get back, we're going to talk with the

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<v Speaker 2>CEO of the Edward M. Kennedy Institute for the US Senate.

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<v Speaker 2>It's located right over by the JFK Library. I'm going

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<v Speaker 2>to talk with Adam Hines, former state senator here in Massachusetts,

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<v Speaker 2>who is the CEO of their effort to educate the

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<v Speaker 2>public about the important role of the Senate and foster

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<v Speaker 2>participatory democracy, civil discourse, and good government. Of course, this

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<v Speaker 2>on the eve of the twenty twenty four presidential election.

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<v Speaker 2>Timing is perfect. We'll talk with former Massachusetts state Senator

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<v Speaker 2>Adam Hines right after this break at news at the

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<v Speaker 2>bottom of the hour.

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<v Speaker 1>You're on Night Side with Dan Ray on w b Z,

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<v Speaker 1>Boston's news radio.

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<v Speaker 2>Delighted to welcome Adam Hines. He's the CEO of the

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<v Speaker 2>Edward M. Kennedy Institute for the US Senate, Former Massachusetts

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<v Speaker 2>State Senator Adam Welcome to Nightside. How are you, sir.

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<v Speaker 6>Great to be here. The timing is good for talking

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<v Speaker 6>about elections and all things democracy.

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<v Speaker 2>No doubt, no doubt. One of the themes of this show,

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<v Speaker 2>and I think you'll identify with that, is that when

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<v Speaker 2>you and I were in school, and I was in

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<v Speaker 2>school probably long before you, we actually look learned about

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<v Speaker 2>the Bill of Rights and the Constitution and the way

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<v Speaker 2>the government works, and the balance of power and the legislative,

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<v Speaker 2>the judicial, and the executive and all of that. And

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<v Speaker 2>I think that a lot of schools have backed off

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<v Speaker 2>of that. Now. I've been at the Kennedy Institute, as

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<v Speaker 2>a matter of fact, was able to moderate a program

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<v Speaker 2>there a few years ago, and tell us about the

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<v Speaker 2>role that this institute, which is right next door to

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<v Speaker 2>the JF. Kennedy Library out of Columbia Point, plans to play.

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<v Speaker 2>It's a beautiful facility, by the way, and the room

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<v Speaker 2>that is it was the epitome of the United States Senate.

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<v Speaker 2>You felt you were on the floor of the US Senate.

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<v Speaker 2>It's a magnificent room. Tell us about it all.

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<v Speaker 6>That's right. It's an exact replica, one to one scale

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<v Speaker 6>of the United States Senate. There's only one other one

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<v Speaker 6>in the world that exists, and that is the center

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<v Speaker 6>of a lot of our programming. And every year we

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<v Speaker 6>work with twenty thousandstudents. They become a Senator for a day,

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<v Speaker 6>and it's powerful and important. To your point. One of

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<v Speaker 6>the first bills that I voted on was the Massachusetts

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<v Speaker 6>Civics Reform and Requirement. But Massachusetts is in the minority.

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<v Speaker 6>Civics education is being cut across the country, and so

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<v Speaker 6>we shouldn't be surprised when we see some of the

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<v Speaker 6>polls that have come out that show, you know, less

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<v Speaker 6>than one third of millennials think that it is essential

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<v Speaker 6>to live in a democracy. I mean, it's just amazing.

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<v Speaker 6>And it's one poll after another show that either our

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<v Speaker 6>understanding amongst our youth or their commitment to democracy is

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<v Speaker 6>being undermined. And so that's that's a big piece of

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<v Speaker 6>the Institute. Really. In the last couple of years, we've

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<v Speaker 6>we've stood up a range of new programs focusing on democracy.

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<v Speaker 6>We've we've locked elbows with the Institute of three former

421
00:24:57.640 --> 00:25:03.000
<v Speaker 6>Republican senators being McCain, Dole, and Hatch to really dig

422
00:25:03.039 --> 00:25:05.440
<v Speaker 6>into ways that we can make sure that the United

423
00:25:05.480 --> 00:25:08.680
<v Speaker 6>States Senate is functioning. We're working with former senators and

424
00:25:08.720 --> 00:25:13.319
<v Speaker 6>current senators and making sure that we're modeling deliberation and

425
00:25:13.400 --> 00:25:17.440
<v Speaker 6>so that our governing institutions function well. And that's just

426
00:25:17.480 --> 00:25:21.759
<v Speaker 6>as critical protecting democracy as anything else. If folks don't

427
00:25:21.759 --> 00:25:25.319
<v Speaker 6>see that the government is representing them and standing up

428
00:25:25.359 --> 00:25:28.559
<v Speaker 6>for them, then their faith and democracy starts to be

429
00:25:29.279 --> 00:25:33.200
<v Speaker 6>tested as well. So an incredible set of programs that

430
00:25:33.240 --> 00:25:35.599
<v Speaker 6>we have running right now, and it feels as timely

431
00:25:35.640 --> 00:25:37.680
<v Speaker 6>has ever given the state of our democracy.

432
00:25:38.359 --> 00:25:40.759
<v Speaker 2>Yeah, one of the numbers you quoted, how many high

433
00:25:40.759 --> 00:25:45.240
<v Speaker 2>school students get an opportunity to visit your institute every year?

434
00:25:45.319 --> 00:25:47.079
<v Speaker 2>What's the number right now?

435
00:25:47.519 --> 00:25:50.599
<v Speaker 6>Sixteen thousand come through the doors, and then we do

436
00:25:50.720 --> 00:25:54.680
<v Speaker 6>about then we work with about six thousand more across

437
00:25:54.720 --> 00:25:58.640
<v Speaker 6>the country virtually. I'll give you an example. Just last week,

438
00:25:58.680 --> 00:26:02.559
<v Speaker 6>we had about thousand students from across the country talking

439
00:26:02.599 --> 00:26:05.400
<v Speaker 6>with each other in eight different states, or from eight

440
00:26:05.400 --> 00:26:08.119
<v Speaker 6>different states talking with each other about the pros and

441
00:26:08.160 --> 00:26:12.000
<v Speaker 6>cons of the electoral college. And and so that's a

442
00:26:12.119 --> 00:26:15.079
<v Speaker 6>new since COVID, a new way we're engaging and making

443
00:26:15.079 --> 00:26:17.319
<v Speaker 6>sure that we were getting into just about every state

444
00:26:17.400 --> 00:26:21.720
<v Speaker 6>in the country and teaching them and working with them

445
00:26:21.759 --> 00:26:24.799
<v Speaker 6>on their their understanding of our democracy.

446
00:26:25.440 --> 00:26:29.480
<v Speaker 2>So the students that come through the doors, because when

447
00:26:29.519 --> 00:26:32.279
<v Speaker 2>you come through the doors and again you experience the Senate,

448
00:26:32.319 --> 00:26:36.359
<v Speaker 2>it's it's just an amazing experience. Are they all from

449
00:26:36.400 --> 00:26:39.359
<v Speaker 2>Massachusetts or from across New England? What's what's the sort

450
00:26:39.359 --> 00:26:42.480
<v Speaker 2>of geographical reach And obviously with zoom and all of that,

451
00:26:42.920 --> 00:26:44.839
<v Speaker 2>you can reach everywhere around the world, but what is

452
00:26:44.880 --> 00:26:48.359
<v Speaker 2>the geographical reach of people student programs that come in

453
00:26:48.480 --> 00:26:49.200
<v Speaker 2>through the doors.

454
00:26:50.440 --> 00:26:52.920
<v Speaker 6>Yeah, you wouldn't be surprised to hear that there's a

455
00:26:53.000 --> 00:26:57.240
<v Speaker 6>large concentration in Massachusetts and New England. But boyle boy,

456
00:26:57.359 --> 00:27:01.359
<v Speaker 6>I'm surprised because we the given year, we can probably

457
00:27:01.400 --> 00:27:05.079
<v Speaker 6>have twenty one different states represented in the students coming

458
00:27:05.119 --> 00:27:09.440
<v Speaker 6>into the institute itself, and so the you know, there's

459
00:27:09.480 --> 00:27:12.640
<v Speaker 6>a real commitment amongst teachers and schools across the country

460
00:27:13.000 --> 00:27:16.200
<v Speaker 6>and we get to work with them one on one,

461
00:27:16.240 --> 00:27:18.079
<v Speaker 6>which is just gram Now.

462
00:27:18.440 --> 00:27:22.640
<v Speaker 2>I think most people in Massachusetts and certainly well New England,

463
00:27:22.640 --> 00:27:26.640
<v Speaker 2>but certainly Massachusetts have at some point visited the Kennedy Library.

464
00:27:27.240 --> 00:27:31.319
<v Speaker 2>I actually it was the Channel four's host the day

465
00:27:31.359 --> 00:27:34.759
<v Speaker 2>that the Kennedy Library was formerly open, when President Jimmy

466
00:27:34.759 --> 00:27:38.200
<v Speaker 2>Carter came and spoke back in fifteen seventy seventy nine,

467
00:27:38.279 --> 00:27:42.559
<v Speaker 2>which was a very memorable memory of that occasion. Well,

468
00:27:42.599 --> 00:27:44.480
<v Speaker 2>that was the time when Ted Kennedy was about to

469
00:27:44.519 --> 00:27:48.279
<v Speaker 2>announce his challenge of Carter. It was very it was

470
00:27:48.319 --> 00:27:52.720
<v Speaker 2>a historic moment, obviously in a very significant moment, but

471
00:27:53.160 --> 00:27:56.440
<v Speaker 2>it is people. People can visit the Kennedy Library as

472
00:27:56.480 --> 00:27:59.319
<v Speaker 2>individuals and his families can that be done at the

473
00:27:59.359 --> 00:28:03.240
<v Speaker 2>Kennedy institut t as well the Edward M. Kennedy Institute

474
00:28:03.279 --> 00:28:04.200
<v Speaker 2>for the Senate as well.

475
00:28:05.440 --> 00:28:07.440
<v Speaker 6>Yeah, it's great to hear you talk about opening day.

476
00:28:07.440 --> 00:28:09.839
<v Speaker 6>We're at our ten year anniversary is coming up to

477
00:28:10.000 --> 00:28:13.359
<v Speaker 6>twenty twenty five, and so keep on the lookout. We'll

478
00:28:13.359 --> 00:28:16.119
<v Speaker 6>be giving you updates on the major events that we'll

479
00:28:16.160 --> 00:28:17.400
<v Speaker 6>be taking on throughout the year.

480
00:28:18.480 --> 00:28:18.720
<v Speaker 3>Yeah.

481
00:28:18.759 --> 00:28:21.119
<v Speaker 6>So our bread and butter right now is the students

482
00:28:21.160 --> 00:28:23.759
<v Speaker 6>that come through and we do a number of public

483
00:28:23.759 --> 00:28:27.160
<v Speaker 6>programs and right now anyone can come in by appointment,

484
00:28:27.200 --> 00:28:31.920
<v Speaker 6>and we're about to restore a broader set of hours

485
00:28:32.039 --> 00:28:35.200
<v Speaker 6>during the week, during business hours for a walk in.

486
00:28:35.359 --> 00:28:39.839
<v Speaker 6>So we have a pretty lively museum. You know, we

487
00:28:40.279 --> 00:28:43.039
<v Speaker 6>mentioned the Senate Chamber, but there's also the Senator's office,

488
00:28:43.839 --> 00:28:46.240
<v Speaker 6>and the vision has been how do you make sure

489
00:28:46.240 --> 00:28:49.119
<v Speaker 6>that people know how the Senate functions even though we're

490
00:28:49.160 --> 00:28:53.279
<v Speaker 6>working across the government on people's awareness specific education, and

491
00:28:53.319 --> 00:28:58.720
<v Speaker 6>so the museum aspects have this interactive advanced technology to

492
00:28:59.480 --> 00:29:01.960
<v Speaker 6>allow you to interact with how the Senate functions as well.

493
00:29:04.119 --> 00:29:06.079
<v Speaker 2>I'm going to throw an idea, right, I'm sure you

494
00:29:06.119 --> 00:29:08.119
<v Speaker 2>probably have thought of this and you have dismissed it.

495
00:29:08.160 --> 00:29:10.640
<v Speaker 2>What are the chances do you think of actually having

496
00:29:11.319 --> 00:29:15.680
<v Speaker 2>a US Senate session fly the US the United States

497
00:29:15.680 --> 00:29:18.880
<v Speaker 2>Center up and have them spend I'm serious, I know

498
00:29:19.160 --> 00:29:21.880
<v Speaker 2>I love that. Have you thought I'm sure if someone has,

499
00:29:22.160 --> 00:29:25.359
<v Speaker 2>I'm not the first who suggested that. Obviously, logistically it

500
00:29:25.359 --> 00:29:26.279
<v Speaker 2>would be very difficult.

501
00:29:26.400 --> 00:29:27.720
<v Speaker 3>I assume it is.

502
00:29:28.319 --> 00:29:30.400
<v Speaker 6>Well, here's an exciting thing that we did this summer.

503
00:29:30.440 --> 00:29:34.480
<v Speaker 6>We had two senators debating each other. Chuck Todd moderated

504
00:29:35.160 --> 00:29:38.960
<v Speaker 6>between Bill kaz the Republican of Louisiana, and Sheldon white House,

505
00:29:39.000 --> 00:29:42.720
<v Speaker 6>Democratic Rhode Island, and they were on c SPAN debating

506
00:29:42.759 --> 00:29:45.000
<v Speaker 6>from the chamber and so that it had a feel

507
00:29:45.160 --> 00:29:50.079
<v Speaker 6>of being the actual Senate session, and we do that regularly.

508
00:29:50.079 --> 00:29:51.720
<v Speaker 6>I should say that that's one of our programs we

509
00:29:51.839 --> 00:29:55.279
<v Speaker 6>do with the Hatch Foundation and our news partners, typically

510
00:29:55.319 --> 00:29:58.279
<v Speaker 6>Fox News. It's also been CBS and c SPAN to

511
00:29:58.519 --> 00:30:04.319
<v Speaker 6>model deliberation and debate for the nation. And we haven't

512
00:30:04.359 --> 00:30:07.880
<v Speaker 6>talked about having the full Senate session in there, but

513
00:30:07.960 --> 00:30:11.880
<v Speaker 6>we have talked about, you know, maybe hearings and other

514
00:30:12.519 --> 00:30:16.440
<v Speaker 6>high profile events that could benefit from the location like that.

515
00:30:16.920 --> 00:30:19.400
<v Speaker 2>What were Cassidy and white House debating, I hope with

516
00:30:19.519 --> 00:30:21.839
<v Speaker 2>something more exciting than the name of a post office.

517
00:30:23.880 --> 00:30:27.119
<v Speaker 2>The subject was in dispute, if you recall.

518
00:30:27.880 --> 00:30:32.039
<v Speaker 6>Yeah, it was basically the climate and energy China. We

519
00:30:32.519 --> 00:30:35.480
<v Speaker 6>allow the senators to choose one topic each and the

520
00:30:35.519 --> 00:30:39.559
<v Speaker 6>moderator to choose a topic. And you know, last September

521
00:30:39.559 --> 00:30:43.880
<v Speaker 6>we had Marco Rubio and Chris Coons debating on CBS

522
00:30:43.920 --> 00:30:47.400
<v Speaker 6>and they similarly went the direction of having a foreign

523
00:30:47.440 --> 00:30:51.359
<v Speaker 6>policy topic and a domestic policy topic. And I'll say this,

524
00:30:51.400 --> 00:30:53.920
<v Speaker 6>when they get in person and talk, they often say

525
00:30:54.160 --> 00:30:56.559
<v Speaker 6>thank you for doing this because right now division is

526
00:30:56.599 --> 00:31:00.039
<v Speaker 6>impacting the Senate to such a dramatic degree that we

527
00:31:00.079 --> 00:31:03.359
<v Speaker 6>can't even you know, have this debate in the arena

528
00:31:03.400 --> 00:31:06.079
<v Speaker 6>of the Senate itself. We can't bring bills to the

529
00:31:06.079 --> 00:31:10.119
<v Speaker 6>floor effectively and even filing amendments. Now, the division in

530
00:31:10.160 --> 00:31:13.200
<v Speaker 6>our country is starting to impact the functioning of our Senate.

531
00:31:13.240 --> 00:31:16.119
<v Speaker 6>And that's what we're working on with the McCain Institute

532
00:31:16.319 --> 00:31:19.039
<v Speaker 6>and making sure that you know our group of we

533
00:31:19.079 --> 00:31:21.359
<v Speaker 6>have a group of former senators who are really working

534
00:31:21.440 --> 00:31:23.079
<v Speaker 6>with us to see what we can do to make

535
00:31:23.079 --> 00:31:26.160
<v Speaker 6>for changes in the Senate so that it's working well.

536
00:31:27.079 --> 00:31:30.799
<v Speaker 6>And so we have a pretty robust and growing setup.

537
00:31:30.799 --> 00:31:34.559
<v Speaker 6>Programs focus on democracy. I should say this. The third

538
00:31:34.559 --> 00:31:38.440
<v Speaker 6>one is because tomorrow's election day. With the Bob Dole

539
00:31:38.519 --> 00:31:43.039
<v Speaker 6>Institute out in Kansas, we're about to announce next week,

540
00:31:43.079 --> 00:31:46.599
<v Speaker 6>I guess I'm announcing it now, a report that's on

541
00:31:46.640 --> 00:31:50.279
<v Speaker 6>the horizon around how do we bolster the funding of

542
00:31:50.319 --> 00:31:55.039
<v Speaker 6>our elections infrastructure because right now tomorrow, eight thousand jurisdiction

543
00:31:55.480 --> 00:31:59.160
<v Speaker 6>elections jurisdictions across the country are largely going to be

544
00:31:59.240 --> 00:32:01.880
<v Speaker 6>run by volunteer years, largely going to be run in

545
00:32:01.960 --> 00:32:06.039
<v Speaker 6>small towns by clerks and others who take on four

546
00:32:06.119 --> 00:32:09.440
<v Speaker 6>or five different jobs, and it's a lot of work,

547
00:32:09.480 --> 00:32:13.440
<v Speaker 6>and we don't invest in our basic foundations of our democracy,

548
00:32:13.519 --> 00:32:16.359
<v Speaker 6>and that's a problem. So we're doing a lot of

549
00:32:16.359 --> 00:32:17.559
<v Speaker 6>work in that regard as well.

550
00:32:18.279 --> 00:32:21.039
<v Speaker 2>All right, well, Adam, I appreciate it very much. Adam Hines,

551
00:32:21.039 --> 00:32:23.680
<v Speaker 2>who is the CEO of the Edward M. Kennedy Institute

552
00:32:23.680 --> 00:32:26.720
<v Speaker 2>for the US Senate. If you get a chance, folks,

553
00:32:26.559 --> 00:32:29.640
<v Speaker 2>it's a wonderful trip to go to both the Kennedy

554
00:32:29.720 --> 00:32:32.640
<v Speaker 2>Library and the Kennedy Institute for the US Senate. Adam,

555
00:32:32.640 --> 00:32:34.240
<v Speaker 2>thanks very much, appreciate your time tonight.

556
00:32:34.559 --> 00:32:35.680
<v Speaker 6>Thanks love, Thanks for having me on.

557
00:32:36.240 --> 00:32:38.720
<v Speaker 2>You're very welcome. We'll come back and talk about November

558
00:32:38.799 --> 00:32:42.920
<v Speaker 2>being National Family Caregiver Month. Yes, different subjects can be

559
00:32:43.039 --> 00:32:47.640
<v Speaker 2>the focus in particular months. Early we talked about Alzheimer's

560
00:32:47.640 --> 00:32:50.000
<v Speaker 2>who were in this month. This is similar National Family

561
00:32:50.000 --> 00:32:52.960
<v Speaker 2>Caregiver Month. Going to talk with Bob Coughlin. He is

562
00:32:53.039 --> 00:32:56.400
<v Speaker 2>the co host of a podcast called In Sickness Men

563
00:32:56.480 --> 00:32:59.119
<v Speaker 2>in the Culture of Caregiving. Back on Night's Side right

564
00:32:59.160 --> 00:32:59.519
<v Speaker 2>after this.

565
00:33:00.440 --> 00:33:03.359
<v Speaker 1>Now back to Dan ray Mine from the Window World

566
00:33:03.559 --> 00:33:06.200
<v Speaker 1>Nightsides CEOs on WBZ.

567
00:33:05.920 --> 00:33:10.480
<v Speaker 2>The news radio November is, amongst other things, National Family

568
00:33:10.599 --> 00:33:13.960
<v Speaker 2>Caregiver Month, an event that is recognized with an official

569
00:33:14.000 --> 00:33:17.359
<v Speaker 2>proclamation by the White House with us as Bob Coughlin,

570
00:33:17.559 --> 00:33:20.319
<v Speaker 2>he is the co host of a podcast entitled In

571
00:33:20.400 --> 00:33:25.559
<v Speaker 2>Sickness Men in the Culture of Caregiving. Bob Coughlin, Welcome

572
00:33:25.599 --> 00:33:29.160
<v Speaker 2>to Night's Side. You are a caregiver. You've also been

573
00:33:29.319 --> 00:33:33.599
<v Speaker 2>very much involved in the Massachusetts political scene and also

574
00:33:33.720 --> 00:33:39.200
<v Speaker 2>you the CEO of the Massachusetts Biotechnology Organization, but you

575
00:33:40.359 --> 00:33:44.160
<v Speaker 2>have had the caregiving experience. Tell us about your experience

576
00:33:44.240 --> 00:33:47.200
<v Speaker 2>as a caregiver and why it is so important for

577
00:33:47.640 --> 00:33:50.759
<v Speaker 2>men also to understand that they have a role in

578
00:33:50.839 --> 00:33:51.920
<v Speaker 2>the culture of caregiving.

579
00:33:52.759 --> 00:33:52.960
<v Speaker 1>Yeah.

580
00:33:53.000 --> 00:33:55.319
<v Speaker 4>Absolutely, and thanks for having me Dan. And you know,

581
00:33:55.720 --> 00:33:59.240
<v Speaker 4>I was involved in government here in Massachusetts and the

582
00:33:59.279 --> 00:34:01.480
<v Speaker 4>CEO of mass and a lot of people didn't realize

583
00:34:01.519 --> 00:34:04.039
<v Speaker 4>the reason I got into that line of work and

584
00:34:04.160 --> 00:34:06.599
<v Speaker 4>was an advocate in the House and an advocate at

585
00:34:06.599 --> 00:34:09.119
<v Speaker 4>mass Bio for Patients is because twenty two years ago

586
00:34:09.159 --> 00:34:10.480
<v Speaker 4>my wife and I found out we were going to

587
00:34:10.519 --> 00:34:14.440
<v Speaker 4>have a child with cystic fibrosis. And you know, immediately

588
00:34:14.519 --> 00:34:16.679
<v Speaker 4>both her and I were thrust into that role of

589
00:34:17.079 --> 00:34:21.119
<v Speaker 4>caregivers and it's such an important thing and there's a

590
00:34:21.159 --> 00:34:24.039
<v Speaker 4>lot of areas that needed to be addressed, and that's

591
00:34:24.039 --> 00:34:27.000
<v Speaker 4>how we got into the idea of having this podcast.

592
00:34:27.039 --> 00:34:29.719
<v Speaker 4>It was actually Paul Kidwell, someone who I met while

593
00:34:29.719 --> 00:34:32.199
<v Speaker 4>at mass Bio. He was in the communications team over

594
00:34:32.239 --> 00:34:36.760
<v Speaker 4>at Millennium Pharmaceuticals and his wife is battling chronic illness

595
00:34:36.800 --> 00:34:39.000
<v Speaker 4>and he was a caregiver and we would talk about

596
00:34:39.000 --> 00:34:41.239
<v Speaker 4>it quite a bit, and just as of lady said,

597
00:34:41.280 --> 00:34:44.239
<v Speaker 4>wouldn't it be great to create a platform and a

598
00:34:44.280 --> 00:34:48.079
<v Speaker 4>place for men who are caregivers to you know, get

599
00:34:48.239 --> 00:34:51.480
<v Speaker 4>feedback and be part of the discussion and learn from

600
00:34:51.519 --> 00:34:55.199
<v Speaker 4>some successes and some mistakes. And it's been quite successful.

601
00:34:55.239 --> 00:34:57.400
<v Speaker 4>It's been very therapeutic and enjoyable.

602
00:34:57.920 --> 00:35:01.599
<v Speaker 2>How long have you been involved in the podcast.

603
00:35:02.159 --> 00:35:06.400
<v Speaker 4>We've had the podcast. Yeah, they've been doing it for

604
00:35:06.400 --> 00:35:08.880
<v Speaker 4>about a year now, and you know, it's been real

605
00:35:08.960 --> 00:35:11.920
<v Speaker 4>interesting and it's you know, it says in sickness men

606
00:35:12.000 --> 00:35:14.320
<v Speaker 4>in the culture of caregiving. And this isn't about men

607
00:35:14.480 --> 00:35:16.960
<v Speaker 4>versus women or anything like that. I mean, women have

608
00:35:17.079 --> 00:35:20.639
<v Speaker 4>predominantly been known as caregivers, but there's so many times

609
00:35:20.719 --> 00:35:24.519
<v Speaker 4>when you know, spouses, a wife will get sick or

610
00:35:24.519 --> 00:35:26.519
<v Speaker 4>a mom or dad will get sick, or a child

611
00:35:26.719 --> 00:35:29.280
<v Speaker 4>is sick, and you know, we just thought that would

612
00:35:29.280 --> 00:35:33.239
<v Speaker 4>be really interesting to bring in men caregivers and women

613
00:35:33.360 --> 00:35:36.119
<v Speaker 4>caregivers and talk about how we can learn from them.

614
00:35:36.119 --> 00:35:38.039
<v Speaker 4>So when they're doing about a year, we've had some

615
00:35:38.079 --> 00:35:42.159
<v Speaker 4>real interesting guests on the show, and we've focused on

616
00:35:42.320 --> 00:35:46.920
<v Speaker 4>cancer and Alzheimer's and you know, as of late, we've

617
00:35:46.960 --> 00:35:49.840
<v Speaker 4>been talking a lot about caregiver burnout, you know, and

618
00:35:49.880 --> 00:35:52.519
<v Speaker 4>what is it that you can do to avoid burning

619
00:35:52.599 --> 00:35:55.679
<v Speaker 4>out when you're trying to work, provide for a family

620
00:35:55.719 --> 00:35:56.920
<v Speaker 4>and care for a loved one.

621
00:35:57.360 --> 00:36:01.079
<v Speaker 2>I think all of us are familiar with the name

622
00:36:01.239 --> 00:36:06.679
<v Speaker 2>cystic fibrosis. Your son has made tremendous progress, has recently

623
00:36:06.719 --> 00:36:10.679
<v Speaker 2>graduated from college and is now out in the workplace

624
00:36:11.039 --> 00:36:14.360
<v Speaker 2>on his own. So yours is a story of great

625
00:36:14.440 --> 00:36:16.840
<v Speaker 2>sacrifice but also great success.

626
00:36:17.880 --> 00:36:21.639
<v Speaker 4>Yeah, it's amazing. It's really come full circle, Dan and

627
00:36:22.159 --> 00:36:26.559
<v Speaker 4>the advances and your earlier guests, when doctor Eichenberger was

628
00:36:26.599 --> 00:36:30.360
<v Speaker 4>talking about Alzheimer's. In hopefully five years from now, it's

629
00:36:30.360 --> 00:36:32.800
<v Speaker 4>going to be a totally different story. Well, the transformation

630
00:36:33.239 --> 00:36:36.639
<v Speaker 4>that we've seen in the care for cystic fibrosis. With

631
00:36:37.039 --> 00:36:42.159
<v Speaker 4>local biotech companies like Vertex and local heroes like Joe

632
00:36:42.199 --> 00:36:46.519
<v Speaker 4>O'Donnell who has raised so much money for research for

633
00:36:47.000 --> 00:36:50.639
<v Speaker 4>cystic fibrosis, we've been able to transform this disease. And

634
00:36:50.800 --> 00:36:53.000
<v Speaker 4>my son Bobby took his first dose of a DOUG,

635
00:36:53.239 --> 00:36:57.119
<v Speaker 4>a drug cult tri Capita that took eighteen years to invent.

636
00:36:57.199 --> 00:36:59.760
<v Speaker 4>It took his first dose it would be five years

637
00:37:00.440 --> 00:37:03.880
<v Speaker 4>November eight and since that day, he's grown, you know,

638
00:37:04.079 --> 00:37:07.440
<v Speaker 4>twelve inches, gained about fifty pounds, his lung function's gone

639
00:37:07.480 --> 00:37:09.440
<v Speaker 4>back to what it was when he was just four

640
00:37:09.519 --> 00:37:12.840
<v Speaker 4>years old, and he's graduated from college and now he's

641
00:37:12.880 --> 00:37:17.960
<v Speaker 4>actually working as a patient advocate and membership professional at

642
00:37:18.000 --> 00:37:22.159
<v Speaker 4>mass Bio here in Massachusetts. So it's just truly we're

643
00:37:22.199 --> 00:37:25.360
<v Speaker 4>filled with gratitude and and yeah, it is a great ending.

644
00:37:25.440 --> 00:37:28.440
<v Speaker 4>A lot of the times these stories don't have a

645
00:37:28.440 --> 00:37:30.840
<v Speaker 4>good ending like that, but that's something you know that

646
00:37:31.159 --> 00:37:33.119
<v Speaker 4>my wife and I and our family's very grateful for.

647
00:37:33.920 --> 00:37:37.280
<v Speaker 2>Well, we all know the success of the Joey Fund,

648
00:37:37.320 --> 00:37:41.519
<v Speaker 2>and with Joe and Kathy O'Donnell, yes, I went through

649
00:37:41.599 --> 00:37:44.840
<v Speaker 2>as well as their son Joey. And as you said,

650
00:37:44.840 --> 00:37:49.360
<v Speaker 2>the millions of dollars that Joe O'Donnell raised, unfortunately lost.

651
00:37:49.440 --> 00:37:54.320
<v Speaker 2>Joe was such a great many here and you know

652
00:37:54.360 --> 00:37:57.920
<v Speaker 2>from Boston, you know great you know, Harvard football and

653
00:37:57.960 --> 00:38:03.159
<v Speaker 2>baseball player, tremendous business success, and yet they were they

654
00:38:03.199 --> 00:38:04.960
<v Speaker 2>were caregivers.

655
00:38:05.000 --> 00:38:05.920
<v Speaker 6>Just that's right.

656
00:38:06.840 --> 00:38:09.800
<v Speaker 2>There has to be for all the families out there

657
00:38:10.159 --> 00:38:14.639
<v Speaker 2>to understand the sacrifice. But also, I guess the satisfaction

658
00:38:15.000 --> 00:38:20.320
<v Speaker 2>of knowing that they're standing by their child or they're

659
00:38:20.360 --> 00:38:24.760
<v Speaker 2>standing by their spouse. Talk about the satisfaction number one,

660
00:38:24.840 --> 00:38:26.559
<v Speaker 2>and then let's talk about what needs to be done

661
00:38:26.639 --> 00:38:27.599
<v Speaker 2>going forward.

662
00:38:27.480 --> 00:38:30.800
<v Speaker 4>If you can, well, you know, in my whole life,

663
00:38:30.800 --> 00:38:35.320
<v Speaker 4>there's nothing more rewarding than being able to provide and

664
00:38:35.400 --> 00:38:38.239
<v Speaker 4>be there for my child. I think that's what any

665
00:38:38.320 --> 00:38:41.519
<v Speaker 4>parent would do. And you know, when you talk with

666
00:38:42.639 --> 00:38:45.239
<v Speaker 4>other folks who are taking care of a parent or

667
00:38:45.280 --> 00:38:48.639
<v Speaker 4>a spouse or a child, you know, to have that

668
00:38:48.800 --> 00:38:52.199
<v Speaker 4>group of folks that you can share the successes and

669
00:38:52.239 --> 00:38:55.239
<v Speaker 4>more importantly, dan share some of the failures. And you know,

670
00:38:55.280 --> 00:38:58.760
<v Speaker 4>when we talk about some of the challenges that caregivers face,

671
00:38:58.800 --> 00:39:01.960
<v Speaker 4>when you think of the mental stress, the physical exhaustion,

672
00:39:02.480 --> 00:39:06.760
<v Speaker 4>the isolation, that loneliness, never mind the financial burden and

673
00:39:06.880 --> 00:39:10.960
<v Speaker 4>trying to balance your job and when you feel like

674
00:39:11.039 --> 00:39:14.000
<v Speaker 4>nobody else in the world understands what you're going through.

675
00:39:14.000 --> 00:39:17.280
<v Speaker 4>There are so many people out there that do understand,

676
00:39:17.280 --> 00:39:19.639
<v Speaker 4>because in some shape or form, we all become a

677
00:39:19.719 --> 00:39:24.320
<v Speaker 4>caregiver at some point. Right, it's inevitable that that's never.

678
00:39:25.440 --> 00:39:28.320
<v Speaker 2>I'm running out of time. We should have okay, more time,

679
00:39:28.559 --> 00:39:30.280
<v Speaker 2>but let me ask you give us the podcast and

680
00:39:30.320 --> 00:39:31.360
<v Speaker 2>how can folks find it?

681
00:39:32.159 --> 00:39:35.159
<v Speaker 4>Yeah, the podcast is called In Sickness Men in the

682
00:39:35.159 --> 00:39:41.119
<v Speaker 4>Culture of Caregiving. It's available on all podcast platforms, including iHeartRadio.

683
00:39:41.519 --> 00:39:45.400
<v Speaker 4>You can visit our websites insickness dot org for any

684
00:39:45.400 --> 00:39:48.519
<v Speaker 4>other information. And it's it's really everybody should listen. It's

685
00:39:48.599 --> 00:39:51.039
<v Speaker 4>it's really a good program to listen to for anyone

686
00:39:51.079 --> 00:39:52.960
<v Speaker 4>who's going to be in the caregiving mode.

687
00:39:53.360 --> 00:39:56.360
<v Speaker 2>Bobble, congratulations to you a family, you and your family,

688
00:39:56.440 --> 00:40:00.719
<v Speaker 2>and congratulations to your son on his perseverance and success.

689
00:40:01.000 --> 00:40:03.000
<v Speaker 4>Really enjoy Thanks so much, Dan, thank you.

690
00:40:03.920 --> 00:40:07.000
<v Speaker 2>Thank you so much for everything you've done. Bob Coughlin,

691
00:40:07.119 --> 00:40:09.800
<v Speaker 2>the podcast host of In Sickness Men and the Culture

692
00:40:09.800 --> 00:40:12.079
<v Speaker 2>of Caregiving. When we get back, we're going to talk

693
00:40:12.119 --> 00:40:14.280
<v Speaker 2>about the story of the night in that selection eve,

694
00:40:15.440 --> 00:40:18.559
<v Speaker 2>A lot going on in the next twenty four forty

695
00:40:18.559 --> 00:40:22.840
<v Speaker 2>eight seventy two hours. We'll see. We will start our

696
00:40:23.000 --> 00:40:26.039
<v Speaker 2>special election coverage right after the nine o'clock news are

697
00:40:26.039 --> 00:40:26.760
<v Speaker 2>on night Side
