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Speaker 1: And we have with us now via phone. I believe

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our friend Charles Maddox is there. Charles, is that you.

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Speaker 2: Hey, how's everybody doing this morning?

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Speaker 3: Good?

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Speaker 1: Good, welcome, or I should say welcome back. You've been

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on with us a couple of times.

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Speaker 3: Before over the years.

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Speaker 1: I think the first time. The first time was jeez,

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it had to be at least five years ago. The

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first time you were on, I think you had had

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you put out the documentary about diabetes.

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Speaker 4: Was that okay, yeah, yeah, yeah, that's been out.

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Speaker 3: It's coming back to me now, yeah. Yeah.

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Speaker 1: Well you're a busy guy. You do a lot of stuff.

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So so welcome to the show on this Saturday morning.

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Jenny is here of course as well. And the subject

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of your newest documentary, Trial by Fire, is something that

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obviously Jenny is she can relate to, unfortunately, because it

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is about a very serious subject CRPS, complex regional pain syndrome.

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Speaker 3: And let me ask you right.

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Speaker 1: Off the top, Charles, what what was it that compelled

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you to make this particular documentary Trial by Fire?

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Speaker 2: Yeah, you know it.

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Speaker 4: My mother suffers from from CRPS, and I remember she

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had it probably about maybe about three two three years

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maybe even longer and I would go see her, and

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I really didn't have any understanding of what she was

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going through. And she was was at a place where

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you know, she would complain about the pain. Not once again,

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I was ignorant to what CRPS was. I would just say, well, Mom,

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maybe you should go to the gym, maybe you should

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try to stretch it out. You know, you got to

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walk it out. You know, things like that that you know,

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really weren't going to help.

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Speaker 2: And then one day I went over there.

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Speaker 4: Now you know, she's a very proud Jamaican woman, and

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I was there one day and this was you know,

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like I said, she was doing with a lot of pain,

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but you know, she was still mobile and so on

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and so forth. And I remember her saying something about,

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you know, wanting to maybe not be on earth anymore.

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And I said, whoa hold on a second. That that

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you know, my mother talked like this, you know. So

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at that moment, I literally went online and went to

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YouTube and just started you know, looking up stuff and

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online looking up stuff. And I just bumped into someone

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who I think had CRPS, and it was real bad

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and they were talking about how bad it was and

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about suicide and things like that, and that's when I said, wow,

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you know what, I don't know what this is or

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what this is doing to her. I get it now

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because I saw someone else who was explaining it, and

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I said, you know what, I've got to do something

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about this. And it was kind of like I wanted

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to kind of chronicle what she was going through, but

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through chronicling or trying to chronicle what she was going

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to go through or going through, you know, I had

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to kind of reach out into the community to say,

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you know, let me reach out, try to find other

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people who were dealing with this, because I want to

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tell this story, not just her story, but just overall

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and see what was going on with this condition called CRPS.

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And that kind of opened up the door and I

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met some people in Tampa Saint you know, I was

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living in Orlando at the time, so I met some

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people who were.

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Speaker 2: In Orlando area.

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Speaker 4: Who were I have the kids of it, and you know,

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they they said, hey, Charles, you know what would love to,

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you know, help you tell this story. And that's that's

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pretty much how it got started. I was really just

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wanting to see what she was living through, but then

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also met other people who were dealing.

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Speaker 1: With it as well in terms of reaching out to

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other people who are dealing with it. Was that, I mean,

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how challenging was it to find those people? Because CRPS?

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I mean the average person probably has no idea what

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it is, and and it's not always uh, you know,

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as as you mentioned, easy to diagnose. And I mean, Jenny,

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how long is.

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Speaker 3: The years before the diagnose yours?

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Speaker 1: Yeah, you know, obviously, And and the thing is too,

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it's it's such a conundrum. It's like when you have

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an illness that is rare. Of course, it's it's harder

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to diagnose because fewer medical professionals have seen that particular illness,

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and there's a lack of research and whatnot because it's

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you know, it's not again, it's not something most people

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have heard of. You know, everybody knows what diabetes is,

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but the average person has no idea what CRPS is.

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So was it was that challenging finding these people?

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Speaker 2: No, it actually wasn't.

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Speaker 4: The thing is is, you know, there are some some

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some great groups on social media, whether it's Facebook or

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whatever it may be. In a particular person that I

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ran into that was close to me, they had a

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great support group and also they knew a lot of

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other people, so they had resources from doctors to experts

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to uh, you know, hundreds of people that were following them,

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and that that kind of opened up the door that

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I found other advocates like at that that time, it

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was like Barbie Ingele, who was very vocal a few

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years ago, you know, she still lives about CRPS and pain,

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and it just started connecting. And because there wasn't much

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advocacy on it, the fact that this film was being

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put together was really you know, raising a lot of awareness. Now,

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they don't get it wrong. It wasn't it wasn't easy.

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There were there were a lot of nights where you know,

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at times, because of the pain, it's easy at times

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to to to.

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Speaker 2: Shoot the messenger.

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Speaker 4: So I had a lot of sleep with sleepless nights

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at times trying to pull all this together and and

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attacked at times. Uh you know, but but it was

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it was it was all worth it. And there's some

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amazing people out in who are dealing with c RPS,

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and and you know, I still see, you know, what

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my mother is going through daily and it's really had

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taken her her whole, her whole life to be honest

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with you now you know she's now bedridden and sad

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to say, and uh so, it's it's it still inspires

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me to want to get out there and change and

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because also there aren't many other advocates that are known

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or can do what what what I can do with this,

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you know, these films, I kind of feel like it's

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my it's my, you know, god given destiny to try

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to continue to fight for people.

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Speaker 2: With see RPS.

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Speaker 4: And I've come to know so many and have so

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much respect and love for them too as well.

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Speaker 3: That's how we met.

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Speaker 5: How you and I actually met is because of CRPS

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and what you're doing with Trial by Fire is so

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vital to get information out there, and unfortunately in America

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we don't have as much information out there as they

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do in other countries. When I was in the Netherlands,

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my girlfriend had gotten into a bad accident and I

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got to see an entire protocol that they have to

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watch out for CRPS and people who get injured like that.

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But we have nothing like that, especially here. But I

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know that you're not just showing this here in the

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United States. I know it's been seen in well over

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what twenty countries. You've won numerous awards with this documentary,

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and now what's exciting to me is that now it's

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going to be carried on Netflix soon, isn't it. No, No,

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Amazon Prime, Amazon.

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Speaker 4: Prim hopefully the next few weeks, which is really exciting.

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And No, you're right, it's probably been seen in over

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twenty five countries and and I assume by by uh

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who knows, I mean at this point maybe millions of people,

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because it's still getting seen and because it's it's been

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on PBS, it's been on you know, some great platforms already.

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So it's it's very exciting. And we plan on even

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with this new documentary that we're doing Drop by Fire,

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to go into other countries to kind of examine what's

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going on right now as.

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Speaker 2: Far as that.

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Speaker 4: But it you know, it's it's it's and I'll say this,

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it's I wish I wish it was it was easy

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to to to to get this done. I mean, you

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think with all the people who are dealing with pain,

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I mean, hundreds of millions of people are dealing with pain.

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It's one of the biggest biggest businesses is the pain. Unfortunately,

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and I don't know how many fad again.

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Speaker 5: Chronic pain patients have been hurt so badly.

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Speaker 4: Of course, of course, and what you're doing you don't know.

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Speaker 2: Oh, I'm sorry, go.

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Speaker 5: Ahead, I'm sorry, I'm sorry, go ahead.

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Speaker 3: No, I was saying, she was just saying, what you're

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doing is so vital.

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Speaker 4: Yeah, yeah, no, And I was saying that you don't

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know how many doors I'm knocked. Gone to try to

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get some small funding just to get this done. And

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you know, the sad thing, especially with CRPS is there's

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there's no cure, so there's you know, there's no money

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in that. So it's hard to find people who who say,

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you know, yeah, well we'll get involved. I mean, I

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even reached out to a lawyer. That's that's pushing trying

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to fight for people with with c RPS. And and

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you know, you got to figure that a lawyer who

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might take one case and who could make you know,

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hundreds of thousands, just not more than that, you know,

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is is more concerned with you know, how much it's

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gonna cost, you know what I mean, even even if

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it was twenty five thousand dollars.

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Speaker 2: But I mean even twenty.

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Speaker 4: Five thousand dollars could do a lot for us, but

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to get you know, some scene shot. But you know,

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they can make a million dollars or if not more,

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on one case, and if they bring in ten cases,

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they could make, you know, a whole lot of money.

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But so it's it's everyone is really in it for

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for for the money, and unfortunately.

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Speaker 3: That's healthcare one hundred percent.

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Speaker 5: That's true. And one of the one of the key

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treatments what's the RPS is kindamine infusions and for the

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vast majority of patients are having to pay cash out

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of pocket because they're you know, or fight. I've been

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fighting insurance and I've got a provider that's allowing me

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to use it, but I'm having to fight. And the

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thing about this is too is yes, CRPS is rare,

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but people with rare diseases are not. One out of

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every ten people has a rare disease. And the light

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that you're shining on this is extremely important in the

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sense that a CRPS complex regional pain syndrome is the

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most painful disease known to modern medicine, and as you said,

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it has no cure. However, seventy percent of people with it,

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including children, will consider suicide as the option because it

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is that bad. It's called the suicide disease by the

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medical community and has been called that for over two

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hundred years, so it's been a disease that's known but

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not known enough. And the light that you're shining on

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this is vital to save lives.

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Speaker 4: Yeah, yeah, yeah. And I've had a few people that

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I've had to that just reach out to me, and

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I've kind of had to say, listen, just don't do

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that and if you have to call me personally and

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let's talk. Over the years where I've literally had to

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try to, you know, just talk people out of things.

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And I remember of late and I like to be

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real because you know, when when doing an interview, you

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could always gloss over things and and make everything out

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to be peachy and keen, but it's really not. And

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I think that, you know, the people who are dealing

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with this and the people who need to know about

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it need to hear the reality that that's out there

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at times of you know, what they're dealing with, because

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I hear reality from them all.

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Speaker 2: The time, and it's like, wow, I wish I could

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do more.

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Speaker 4: But I had to release a lady recently who this

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was a couple of months ago, and she would always

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say just the nicest things to me. She would just

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I didn't know her, but she just reached out and

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you know, she was dealing with CRPS and and I

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remember before the last time where I spoke, so I saying, listen,

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just you need anything, just let me know, and so

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on and so forth, and no idea, you know how

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bad things were. And then probably a couple of weeks later,

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someone reached out and said, Charls, I know you and

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so and so we're good friends and she had a

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lot of respect for you, but you know she's.

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Speaker 2: No longer here. And I was literally.

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Speaker 4: Just just shook it because, like I said, she would

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always encourage me. She would always say nice things and

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reach out and send me a nice message. And you know,

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to hear that was.

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Speaker 5: Like, especially when we know that there are options and

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things that can be done out there, but it's it's

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money that gets in the way. It's it's lack of access,

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denialed access the care or if you don't have enough

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cash to put up front, you don't get it. So

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you know, yeah, this isn't a serious thing to talk about.

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And I'm glad that you're doing a second version and

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you're talking about other areas of the world, because some

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areas of the world are dealing with this better than

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we are, and we could we could take a turn

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out of their page, you know, take page out of

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their book, I should say, of what they're doing to

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help not only protect and preserve lives and save lives,

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but preventative medicines that we in America really kind of

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stink about. When it comes to preventative medicine, we stink.

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Speaker 1: Well in a in a broader in a broader sense too.

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In America, we just don't. Yeah, there's not enough focus

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on preventative anything. When it comes to health. It's it's

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all about, you know, waiting until you get sick and then.

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Speaker 5: We have good sick care sort of, but not great preventative.

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Speaker 1: Exactly, yeah, exactly, Yeah, that's and unfortunately some of that

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I think it's just American culture. But but yeah, but

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this is something in terms of CRPS. I mean, this

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isn't like it's not like you can just you know,

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as we were talking about, you know, there are treatments,

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but it's not like you can just go to the

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gym or take some vitamins. I mean, you have to

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be able to you have to be able to have

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access to to what you need, not to cure it,

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because there is no cure, but but to try to

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manage it as best you can.

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Speaker 2: And yeah, and there are people who literally, I mean.

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Speaker 4: Who are traveling from different parts of the world just

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to you know, there's some treatment out here and for

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the kiddymene in Florida, and literally you hear the stories

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it traveling from, you know, whether it's Los Angeles, New York, Canada, Europe,

283
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and some have to do this every few months just

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to get a little bit of relief. And it's costly.

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This is not this is not you know, a couple

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of hundred dollars. This is uh, you know, some some

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serious money to get on a plane, you know, and

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and and pay for treatment, have to stay in hotels,

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you know, have to rent cars on and so forth,

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just to get a little bit of relief for you know,

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three months.

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Speaker 2: This is not easy.

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Speaker 5: No, no, it's not.

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Speaker 1: What was kind of the criteria Charles for in terms

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of people who you put into the film, uh to

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talk about this and were there some people who you

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spoke with who you wanted to put in it. Who

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maybe was there anyone who declined to be in it,

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because some people are, you know, as much as they

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might like to help and spread awareness, some people are

301
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obviously just very private about their health. So I'm curious

302
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what the criteria was and did you encounter anybody who

303
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just said, no, I'd like to help, but I don't

304
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want to be in the in the documentary.

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Speaker 4: You know, I'll say this, almost everyone wants to be

306
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and wants to share their story. Yeah, because and this

307
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crosses color lines, is called crosses gender lines, as crosses everything.

308
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I mean when when you know, when dealing with this,

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you know, this type of pain, people just want to

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tell their story. I mean, we get now hundreds of

311
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messages where people are like, Charles, I just want to

312
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tell my story, please, I have a story to tell.

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And it's it's to the point now where it's like

314
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I'm so you know, focused on trying to raise some

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money to get this done that it's like listen, I've

316
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got to reply and listen I will get back to you,

317
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because you know, we have so many messages that it's

318
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and some of these messages are like very long, where

319
00:17:23,839 --> 00:17:25,319
you know it's going to take me a few minutes

320
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to just read through the one message. But I understand,

321
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you know, what they're dealing with. So we're going to

322
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have to get back, take a day and get back

323
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to everybody. But no, everyone wants to share. Even back

324
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then when we were shooting the film, everyone wanted to

325
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and wanted to share. And I think in many ways,

326
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because you know, like we just talked about this being

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called the suicide disease, that that a lot of people are.

328
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I mean, you know, you can't even me and you

329
00:17:59,599 --> 00:18:03,680
we don't deal with what they're dealing with. And we

330
00:18:03,799 --> 00:18:08,880
can't understand being in pain day and night. I mean,

331
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can you imagine stubboring your toe and and the pain

332
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of that and having that day and night, and now

333
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you take that and amplify that a hundred times where

334
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this is running through someone's body. We can't understand what

335
00:18:28,079 --> 00:18:32,559
that is. So I mean, when you think about that

336
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and and people are thinking about, you know, maybe taking

337
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their own life, they want to share. There's a lot

338
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of people. I just I just had a young lady

339
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a few days ago send me a message and she

340
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contacted me through WhatsApp. She said, Charles, I don't think

341
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I could do this anymore. And she's got I think

342
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two kids, and and I'm like, listen, just hang in there.

343
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And you know she's got a fiance or husband, and

344
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you know, this is wow. I you know, words can't

345
00:19:04,400 --> 00:19:08,640
even express what what what they're dealing with and how

346
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we need to fight for this. And then this is

347
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why I fight for it, because once you know, once again,

348
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if if if I don't, I don't know who will.

349
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Right Oh, thank god I'm able to have the resources

350
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as far as getting the message out there and putting

351
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a good story together and so on and so forth.

352
00:19:28,680 --> 00:19:31,319
You know, I wish it was easier, you know sometimes

353
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I you know, like I said, I'm banging my head

354
00:19:34,079 --> 00:19:37,519
trying to understand, you know, why it's so hard to

355
00:19:38,480 --> 00:19:41,359
be able to get a project like this together. But

356
00:19:41,680 --> 00:19:43,720
you know, I understand that this is the world we

357
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live in, and but we keep fighting and and you know,

358
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hopefully we're working on going to Italy to highlight some

359
00:19:53,000 --> 00:19:56,200
of the treatment that they have over there. So we've

360
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been talking to that clinic over.

361
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Speaker 5: There, and that if administered early enough, it can halter

362
00:20:05,799 --> 00:20:11,079
or reverse or put into remission torps. I used to

363
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know a woman who had a fourteen year old daughter

364
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that took her to Italy for the treatment. It did

365
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work for a number of years, and then I guess

366
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it came back went back to Italy for an additional treatment.

367
00:20:23,039 --> 00:20:26,599
But it has to be done early, early, early, Like

368
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by the time we knew that I had CRPS, it

369
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was too late for that to work for me, and

370
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to access it here in the United States. I don't

371
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think you can. I think it's impossible. It's not even

372
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like an option for us.

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Speaker 2: Yeah, I think it's only in Italy. Oh.

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Speaker 5: People have mortgage with their houses to get, you know, done,

375
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anything to get their loved ones over there to try it, ye,

376
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you know, just just to have something to try. And

377
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I do want to say, I mean, this is a

378
00:20:53,000 --> 00:20:55,680
serious topic. It is difficult to talk about at times,

379
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but this is why you're done this documentary and why

380
00:20:58,480 --> 00:21:01,559
it's so important to talk about these documentaries and get

381
00:21:01,559 --> 00:21:05,240
that information out there. But if you are having any concerns,

382
00:21:05,359 --> 00:21:07,640
or you're not feeling too hot today, or you need

383
00:21:07,640 --> 00:21:10,160
some help, please remember you can dial nine eighty eight.

384
00:21:10,599 --> 00:21:13,279
Nine eight eight is the suicide and crisis Lifeline, and

385
00:21:13,319 --> 00:21:15,759
there are people there that can help you. So there's

386
00:21:15,839 --> 00:21:18,759
always a voice out there, don't forget nine eighty eight.

387
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Speaker 3: Yeah, yeah, yeah, absolutely, And.

388
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Speaker 4: I think too as well. Part of me, you know

389
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why I fight too as well, because you never.

390
00:21:27,519 --> 00:21:29,880
Speaker 2: Know what might be around the corner, and.

391
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Speaker 4: You want, you want folks to hang in there and

392
00:21:33,599 --> 00:21:36,839
hold out hope that maybe there is some treatment out

393
00:21:36,839 --> 00:21:40,440
there that that you know, I won't have to mortgage

394
00:21:40,440 --> 00:21:43,559
a house or fly across the world to get done.

395
00:21:43,839 --> 00:21:46,240
You know, hopefully there is something that that.

396
00:21:47,119 --> 00:21:49,799
Speaker 5: Part of my hope too is with you doing this,

397
00:21:49,920 --> 00:21:52,240
I have hope that maybe that gets some of the

398
00:21:52,400 --> 00:21:55,759
people up on Capitol Hill to pay attention and approve

399
00:21:56,200 --> 00:21:59,039
treatments that are working for people with the RPS. But

400
00:21:59,720 --> 00:22:02,359
I do you want to also bring up because Charles,

401
00:22:02,400 --> 00:22:05,559
you've done a lot of really great advocacy work, especially

402
00:22:06,000 --> 00:22:08,400
in the realm of the Forever Sick, and you've also

403
00:22:08,519 --> 00:22:13,480
done work in highlighting diabetes and type one diabetes and

404
00:22:13,519 --> 00:22:16,640
type two diabetes. I know you did a documentary series

405
00:22:16,680 --> 00:22:19,079
on that as well, and I wanted to make sure

406
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that our listeners heard about that.

407
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Speaker 2: Yeah.

408
00:22:22,319 --> 00:22:25,839
Speaker 4: Yeah, yeah, We've done some great shows, and you know

409
00:22:25,880 --> 00:22:30,319
we have the first docuseries we did doctor reality series.

410
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Speaker 2: Was called a Verse who shut in Jamaica.

411
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Speaker 4: And featured you know, people living with diabetes. And I've

412
00:22:35,359 --> 00:22:40,680
done a documentary called The Diabetic You and a couple

413
00:22:40,799 --> 00:22:44,440
other projects on diabetes, and so it's it's been very

414
00:22:44,440 --> 00:22:47,759
powerful and and you know, now that I'm even talking

415
00:22:47,799 --> 00:22:50,559
to you, I'd love to follow up once we get

416
00:22:50,599 --> 00:22:53,000
off to as well, because there probably is some other

417
00:22:53,079 --> 00:22:56,160
things that we could be doing, whether it's starting some

418
00:22:56,200 --> 00:23:00,160
sort of you know, online petition where we have you know,

419
00:23:00,200 --> 00:23:03,240
a few thousand people signs to things that could be

420
00:23:04,079 --> 00:23:07,960
brought in front of some legislation or or some more

421
00:23:08,720 --> 00:23:12,079
awareness that maybe you could help me with and help

422
00:23:12,119 --> 00:23:14,480
the community get out there, so we can kind of

423
00:23:14,599 --> 00:23:19,880
make this more movement because we have to force the

424
00:23:19,960 --> 00:23:27,160
hands of these companies. We do, these pharmaceutical companies, they've

425
00:23:27,160 --> 00:23:29,640
got to open up their eyes and take account and

426
00:23:29,799 --> 00:23:35,079
at least, if nothing else, help support the people, whether

427
00:23:35,119 --> 00:23:38,160
it's even with treatment options.

428
00:23:38,319 --> 00:23:42,319
Speaker 5: Oh exactly, look at what's happening now in our community.

429
00:23:42,960 --> 00:23:46,400
Lotos snow truck Zone is a medication that's working for

430
00:23:46,599 --> 00:23:49,559
a lot of people, what's the RPS and small fiber neuropathy,

431
00:23:49,839 --> 00:23:53,480
including myself. However, the pharmaceutical company that makes Nell truck

432
00:23:53,559 --> 00:23:55,799
Zone won't make it in the low doses that people

433
00:23:56,319 --> 00:23:58,640
like us need it because it's not profitable for them.

434
00:23:58,839 --> 00:24:01,240
They only make it in the family high dose. So

435
00:24:01,359 --> 00:24:03,519
all of us have to go to compounding pharmacies to

436
00:24:03,519 --> 00:24:06,000
get the medication, which means we're paying one hundred percent

437
00:24:06,000 --> 00:24:09,279
out of pocket and it's not cheap, you know, and

438
00:24:09,359 --> 00:24:11,680
have it made that way because insurance gets to take

439
00:24:11,680 --> 00:24:16,000
a walk because it's compounded. Pharmaceutical company goes not enough

440
00:24:16,039 --> 00:24:17,440
money in that for us, So we're not going to

441
00:24:17,480 --> 00:24:20,480
make it, you know, and you're you know, you're left

442
00:24:20,480 --> 00:24:24,480
with either you know, no money, no med or whatever

443
00:24:24,480 --> 00:24:27,680
you're going to do to get the med yep nop exactly.

444
00:24:27,839 --> 00:24:31,759
Speaker 4: Maybe maybe we need to get a petition against or

445
00:24:31,799 --> 00:24:34,599
for that company, right so maybe they can open up

446
00:24:34,599 --> 00:24:38,720
their eyes and say what is this? Who are these

447
00:24:38,759 --> 00:24:43,319
people and maybe take a different look at it. I think,

448
00:24:43,559 --> 00:24:47,599
you know, collectively is a community while it's a rare disease.

449
00:24:47,640 --> 00:24:50,920
I'm sure they're I don't know how what the number

450
00:24:51,079 --> 00:24:55,039
is but of CRPS people. But any petition with you know,

451
00:24:55,119 --> 00:24:59,680
fifty sixty to seventy thousand signatures might make that company say,

452
00:25:00,079 --> 00:25:00,599
you know, what.

453
00:25:02,400 --> 00:25:03,039
Speaker 2: We may need to.

454
00:25:03,799 --> 00:25:05,720
Speaker 4: Take a look at this or at least address this

455
00:25:05,799 --> 00:25:06,960
in some form of fashion.

456
00:25:07,359 --> 00:25:12,279
Speaker 1: Right right, exactly exactly, Charles. It is already approaching the

457
00:25:12,279 --> 00:25:14,440
top of the hour. We need to begin to wrap up,

458
00:25:14,440 --> 00:25:16,160
but before we run out of time, I want to

459
00:25:16,200 --> 00:25:20,480
make sure the people know where to find the documentary

460
00:25:20,920 --> 00:25:24,119
Trial by Fire, and also too where they should go

461
00:25:24,160 --> 00:25:27,119
to find your other work, your other documentaries, and anything

462
00:25:27,119 --> 00:25:28,839
else that you want our listeners to know about. How

463
00:25:28,880 --> 00:25:30,400
to keep up with everything that you're doing.

464
00:25:32,079 --> 00:25:36,079
Speaker 4: Definitely, and I really appreciate this. My website is probably

465
00:25:36,079 --> 00:25:39,920
the best place. It's BELLA and l eMedia dot com.

466
00:25:39,920 --> 00:25:43,880
B L L A A and D L E E

467
00:25:44,039 --> 00:25:46,799
L l eMedia dot com and you can always just

468
00:25:47,519 --> 00:25:50,240
google my name Charles Maddox. I'm not hard to find

469
00:25:50,880 --> 00:25:54,880
Trial by Fire, like I said, is on YouTube right now,

470
00:25:55,000 --> 00:25:57,599
on my on my UH on one of my pages,

471
00:25:58,400 --> 00:26:02,359
the Future of Health Network. But probably will more directed

472
00:26:02,519 --> 00:26:06,240
toward the Amazon Prime so that we can really get

473
00:26:06,240 --> 00:26:10,759
people focused there. And who knows, maybe you know, with

474
00:26:11,119 --> 00:26:14,000
some great views on Amazon Prime, they may be interested

475
00:26:14,039 --> 00:26:19,359
in doing something bigger with us regarding CRPS, and so

476
00:26:19,400 --> 00:26:22,559
we really want to push that initiative, and and and

477
00:26:23,079 --> 00:26:29,079
for those who are listening, do remember that collectively, you know,

478
00:26:29,200 --> 00:26:33,960
as an army of people, we work better because we

479
00:26:34,079 --> 00:26:36,759
have to share. There there are people who are literally

480
00:26:37,519 --> 00:26:41,599
just now seeing try by fire after so many years.

481
00:26:41,759 --> 00:26:44,559
And we have to make sure that when we get

482
00:26:44,599 --> 00:26:48,200
this opportunity that we share, we share, we share, We

483
00:26:48,240 --> 00:26:50,680
ask our friends to share, We ask the friends of

484
00:26:50,720 --> 00:26:55,079
our friends to share. And even though at times a

485
00:26:55,079 --> 00:26:57,839
lot of us don't get the support that we would like,

486
00:26:58,640 --> 00:27:01,200
just keep pushing, just keep share and get the message

487
00:27:01,240 --> 00:27:04,279
out there. And I think if we work together at

488
00:27:04,359 --> 00:27:08,160
least we can cause some some some attention and some

489
00:27:08,279 --> 00:27:12,000
eyes to be put on on some things so that

490
00:27:12,079 --> 00:27:14,000
we can try to get some some more help and

491
00:27:14,039 --> 00:27:15,039
resources out there.

492
00:27:15,279 --> 00:27:19,680
Speaker 1: Yeah, absolutely absolutely all right. Well, Charles Maddox, thank you

493
00:27:19,720 --> 00:27:21,519
so much, my friend. It's wonderful to have you back

494
00:27:21,559 --> 00:27:24,400
on the show. Always great to speak with you, and

495
00:27:24,400 --> 00:27:26,759
and we we really love and appreciate what you're doing.

496
00:27:26,880 --> 00:27:29,400
Speaker 3: And uh, keep it up, man, keep it.

497
00:27:29,400 --> 00:27:32,599
Speaker 2: Up, thanks so much, and have a good one.

498
00:27:32,720 --> 00:27:36,880
Speaker 1: Absolutely, Charles, thank you, Take care about it all right.

499
00:27:36,920 --> 00:27:41,519
That was Charles Maddox, filmmaker and also a celebrity chef

500
00:27:41,559 --> 00:27:43,359
and actor, and he does a lot of stuff by

501
00:27:43,400 --> 00:27:45,759
the way he did yeah, not just you know, obviously

502
00:27:45,759 --> 00:27:49,279
we're focused on the documentary with with that conversation, but

503
00:27:50,000 --> 00:27:52,240
he's a busy guy. He's got a lot going on,

504
00:27:52,319 --> 00:27:55,240
so you should definitely check out everything that he's doing.

505
00:27:55,960 --> 00:27:59,000
Speaker 5: Absolutely, and he and see I follow him all the

506
00:27:59,000 --> 00:28:02,680
time because he does home mutch in the chronic illness

507
00:28:02,759 --> 00:28:05,839
area and shine such a great light on it, especially

508
00:28:05,839 --> 00:28:07,799
with that series he did that serious he was talking

509
00:28:07,839 --> 00:28:10,599
about on diabetes is excellent and they talk about things

510
00:28:10,599 --> 00:28:14,039
that they do to you know, help stay healthier, diet

511
00:28:14,119 --> 00:28:18,119
and so forth. So it's it's good to have those conversations. Frankly,

512
00:28:18,599 --> 00:28:21,920
and Trial by Fire one hundred percent excellent movie to watch.

513
00:28:21,960 --> 00:28:24,480
If you haven't seen it, please see it, share it,

514
00:28:24,880 --> 00:28:27,799
help spread awareness. The more people that are aware and know,

515
00:28:28,200 --> 00:28:29,960
the more we can do to try and help them

516
00:28:29,960 --> 00:28:32,000
prevent people from losing their lives.

517
00:28:32,160 --> 00:28:33,519
Speaker 3: Yep. Absolutely, And again.

518
00:28:33,359 --> 00:28:35,440
Speaker 5: I want to just remind people if you're having a

519
00:28:35,440 --> 00:28:37,799
hard day or you're needing someone to talk to, please

520
00:28:37,799 --> 00:28:41,200
remember nine eight eight is a great number you can call.

521
00:28:41,279 --> 00:28:44,400
You can find help and support there and no shame.

522
00:28:45,480 --> 00:28:47,319
Speaker 3: Nine eight eight yep absolutely