Well, today is World Down Syndrome Day. Yes, as you hear it,
its main objective is to raise awareness and defend the rights, inclusion and
well- being of people with Down syndrome around the world. This day was
first proposed by Dr Babes Signe and formally established. It was established by the
istalian professor Antomarackis, being observed for the first time in two thousand six the
Organization of Down Syndrome International under the organization of the Down Sndom International. The
initiative has gained international recognition, being adopted by the General Assembly of the United
Nations in two thousand eleven days or celebrates the twenty- first of March of
each year to highlight the uniqueities of the triplication of chromosome twenty- one characteristic
of down syndrome. This genetic condition affects people all over the world, with
an incidence of births of about one in a thousand to one hundred children,
that is, one in a thousand one hundred can have this, can suffer
from this syndrome. People with Down syndrome face unique challenges in terms of learning,
health and development, highlighting the importance of access to health care and early
intervention, including education and research to improve their quality of life. On Down
syndrome day, events are organized globally, including UN class conferences, with awareness
campaigns, such as many socks and fund- raising activities for charity organizations related
to DDS. In addition, awards are given and individuals and organizations that have
contributed significantly to improving the lives of people with Down syndrome. This day is
an opportunity to highlight the importance of inclusion and respect and equal opportunities for all
people. A while ago I was reading. I had read that in Europe
there has been a drastic fall in the births of a child with Dawn syndrome.
They weigh that there is a test that is done during pregnancy that can
determine if the baby comes with some kind of condition. There are a lot
like things that can be determined before, exactly before the baby nasca and the
BBC. Last year he wrote an article for this same date, for the
twenty- first, talking about the drastic reduction that has taken place in the
births of children with Down syndrome. There is a great debate about this issue,
because there are countries like Germany, where children with syndrome are no longer
born, although parents decide better to fear pregnancy than to continue it if it
comes with this condition. The trend has been studied for a long time in
Europe and they go back to 1, 980. According to this data,
in nineteen hundred and eighty there was a possibility of every eight hundred per woman
having a baby with down syndrome. The progressive rise in maternal age in the
four decades that followed led to these odds rising to one per four hundred and
sixty, given that four of the older mothers are, the higher the chances
that the fetus presents this genetic disorder that can cause different degrees of intellectual disability,
among other things, and continues to say the work published by the BBC,
that the technological abscesses of the last decades allow to detect the down and
other anomalies in the combined uterus. The legalization of abortion in most European countries
has led more and more women to choose to end their pregnancy. And this
is what BEBS says. I am saying Alberto barga put an end to her
pregnancy when she is detected presenting the presence of the trisomy twenty- one,
the formal name of the syndrome, which is the three copies of the chromosome
twenty- one. He says that countries do not keep a record of how
many abortions they perform because the fetus is detected has down says the BCS clearly
is embarrassed. In Germany, Angela a Merc was confronted by an activist who
there is an organization fighting to make it illegal in Germany for mothers to make
the decision to sacrifice their child because the child appears with Dawn in the womb.
He hears that but a sheath investigate because even documentaries of what has happened
in Germany are not born children anymore Germany, Austea and those countries are not
born children with Dawn syndrome are slaughtered immediately, that is if one in four
hundred pregnant women detects it. One in four hundred who detect it decides to
abort. And they' re not born in Germany anymore. And there are
a lot of studies that have been done in Europe. The most recent one
says that it estimates that, in the case of Europe, globally, we
are talking about all the countries of Europe, fifty- four percent of pregnancies.
What the fetus had down was sacrificed. That' s in Europe,
complete, in Germany, Italy, etcetera. So this figure, which is
an average that varies strongly in countries, in some cases eight out of ten
pregnancies occur and in others, as in Germany, by one hundred percent.
Yes that this data that was given last year by the BBC, is one
is an extensive article published on its page, where it speaks that the ten
countries with the highest rate of termination of pregnancies due to Down syndrome are Iceland
sixty- nine, Belgium seventy- seven, Italy seventy- one, Bulgaria
seventy- four percent, Slovenia seventy- six, Czech Republic seventy- seven
percent, which they call interruption, but that abortion by and simple is interrupted
what can be restarted or continued. Denmark seventy- nine, Portugal eighty,
Spain eighty- three and the countries that you have not mentioned because they do
not reveal your statistics, because you are ashamed. The case of Germany is
one of those countries. Yes, today is International Day, the consciousness is
combarsation around Dawn' s Syndrome. You' ll say good, but you
have to have a child, being more Dawn isn' t easy. Well,
having kids, very easy, if it doesn' t matter if they
come with Dawn or without him. But look at what you say there of
the different degrees of aute de, but of Dawn syndrome, which is the
triplication of the syndrome from the twenty- first chromosome sheath the scientific comfort is
still in the discussion because there is a group that says that there is no
degree in the sinon you have or you don' t have, but there
is no degree, just like you. You can' t buy, because,
for example, there' s gi graduated a graduate to see. You
don' t have or don' t have down syndrome and in that part.
But there' s another group, there' s another party that claims
that that' s going to vary according to certain to the extent that you
go to environmental factors affect but certainly in the United States there' s also
been a lawyer. I' m going to see if I can get a
very famous American activist lawyer. I' ve put your debates in. He
has had to go to many state legislatures where laws have been proposed similar to
those that exist in Germany and other countries, where he has made some very
interesting and very solid approaches to how inhuman it is to make such a decision,
based on a reasoning that they are disposable human beings because of that simple
fact. He is an activist lawyer and I have mentioned him many times here,
because his speeches are very meaningful and, just like him, there are
a lot of people who have been able to insert themselves into educational life,
to train, educate themselves and lead a fully functional productive life, because they
have found societies that have been able to create conditions and programs according to their
abilities so that they leave, become integrated. But, certainly, that'
s the ugly part of this Sustoye a lot of people talking and calling about
this and honestly, I changed my position from many conversations about abortion and it
was one of the presentations that this lawyer made that I promise you that before
the program is over, I' m going to tell you the name of
this lawyer that I did, because more drastically I said that this is an
excuse for many people not to take responsibility for having a child merit, an
aunt who has a son who is almost fifty years old, who was born
with Down syndrome and my aunt has devoted all her life to the attention of
her son and very much the opposite of what many people can think sometimes for
parents, what you think is a burden, is what makes sense of your
existence and is what has been in my aunt' s life, in the
appearance of my cousin. And I have to tell you if there' s
anyone who hasn' t given you any trouble from the four children that my
aunt has, it' s that boy, because you know that one is
human and one commits again uri and sheath, that is, the peace,
tranquility and companionship that he gives you and the complement that it is to your
life is incredible. And I was born the day I was born, my
cousin, Haffy has been there all my life and quite the opposite of many
people who often say you, you shouldn' t make fun of yourself,
you shouldn' t make a joke. No. I do not have in
my mind a moment of my life that I have not been completely in touch
and in the presence of my life this person who suffers I have not always
seen everything very normal. They used to call him in terms of abnormal pejoratives,
and let me tell him that if I have had to witness, it
is that of the cruel, that is ignorance, of the intolerant, that
is ignorance, because my aunt had to face not only the fact of having
to send forth four children alone, one of them with down syndrome, but
also the having to live with a deeply hostile ignorant environment. They were going
to my aunt' s house to tell her things and make fun of her.
I saw that to the point that they made him cry. I was
a boy of six, seven, eight, nine of ten, and when
my aunt moved to another place surrounded by other kinds of people, etc,
it was that she could have more peace of mind, because if there is
one thing that the ignorant is that it is deeply cruel. So today I
' m leaving you with a musicita. We went out in the morning.
I' ll give it to you.