This is iHeartMedia's CEOs you should know, sponsored by Comcast Business Powering Possibilities.
You imagine being a parent. You've never heard the words epidermalysis belosa before.
Our big, bold, audacious goal at EBRP is to cure EB by the
end of this decade and pioneer a new innovative business model that can apply to
the four hundred million people on this planet with a rare disease. You know,
it's hard to compare, but it's particularly one of the more devastating disease
I've worked with. Skin is the largest organ in the body, and for
those born with EB, the skin just simply doesn't work. The good news
is eb's a monogenetic disease, which means it's caused by one genetic mutation that
we know. So that gives us hope, courage, optimism to charge forward
with endless urgency to reach that target of a cure by twenty thirty. So
we believe we have a model of business that's worked. CEOs you should know
its powered by iHeartMedia and sponsored by Comcast Business Powering Possibilities all the speed your
business needs. With Comcast Business, it's not just possible it's happening