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This is iHeartMedia's CEOs you should know, sponsored by Comcast Business Powering Possibilities.

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You imagine being a parent. You've
never heard the words epidermalysis belosa before.

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Our big, bold, audacious goal
at EBRP is to cure EB by the

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end of this decade and pioneer a
new innovative business model that can apply to

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the four hundred million people on this
planet with a rare disease. You know,

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it's hard to compare, but it's
particularly one of the more devastating disease

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I've worked with. Skin is the
largest organ in the body, and for

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those born with EB, the skin
just simply doesn't work. The good news

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is eb's a monogenetic disease, which
means it's caused by one genetic mutation that

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we know. So that gives us
hope, courage, optimism to charge forward

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with endless urgency to reach that target
of a cure by twenty thirty. So

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we believe we have a model of
business that's worked. CEOs you should know

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its powered by iHeartMedia and sponsored by
Comcast Business Powering Possibilities all the speed your

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business needs. With Comcast Business,
it's not just possible it's happening